r.adiation proctitis 1.5 years after seeding

Kurt70
Kurt70 Member Posts: 3

I choose and recieved seeding for low grade prostate cancer in September 2011.  This January (2013) I noticed some blood in my stools. A colonoscopy confirmed that the problem was radiation procititis.  My oncologists has me using cortosteriod (Anucort 25 mg Rectal suppositories).  I am not able completley stop the problem. I think I am about to get it under control and then it starts up. I do not seem to be able to find any specific "cures" for this problem.   How long the problem can persist? Or, more importantly, what do I look for that indicates I need a higher level of treatment.  That is, intervention on the inside of the rectum through vessesl abulation.  

Comments

  • VascodaGama
    VascodaGama Member Posts: 3,641 Member
    Could be Diverticuloses

    Kurt

    Changing diets may lead to improvements in the condition.

    My experience with IMRT outcome was diagnosed for Diverticulosis. It seems that the radiation causes the colon walls to become weaker and less resistant to hard stools. Once the punches are formed then they trap small detritus like seeds, etc., which are naturally “cleaned” by bleeding. Less seeds or similar foods leads to less bleeding experiences. Ulcerative colitis may also improve with a change in diet and they may have been present before your treatment.  Anal fissures are difficult to cure permanently, particularly if the linen is "damaged".

    I would recommend you to try changing diets during two months before getting involved in a more drastic treatment.

    http://www.webmd.boots.com/digestive-disorders/rectal-bleeding?page=2 bewith

    Regards.

    VG

     

  • Samsungtech1
    Samsungtech1 Member Posts: 351

    Could be Diverticuloses

    Kurt

    Changing diets may lead to improvements in the condition.

    My experience with IMRT outcome was diagnosed for Diverticulosis. It seems that the radiation causes the colon walls to become weaker and less resistant to hard stools. Once the punches are formed then they trap small detritus like seeds, etc., which are naturally “cleaned” by bleeding. Less seeds or similar foods leads to less bleeding experiences. Ulcerative colitis may also improve with a change in diet and they may have been present before your treatment.  Anal fissures are difficult to cure permanently, particularly if the linen is "damaged".

    I would recommend you to try changing diets during two months before getting involved in a more drastic treatment.

    http://www.webmd.boots.com/digestive-disorders/rectal-bleeding?page=2 bewith

    Regards.

    VG

     

    Radiation damage

    I had a fissure, then another one and was told I needed some medication.  From what I have read they will not fuse fissures from radiation.  Not sure why, but it is pretty much closed area. I also suffer from radiation myosotis.  Radiation keeps us alive, but causes alot of damage.  I hope you get some relief.

    Good luck,

     

    Mike

  • Retired 12
    Retired 12 Member Posts: 11
    Kurt,
        I experinced the

    Kurt,

        I experinced the same problem after taking IMRT treatments. Rad Onc put me on Anucort as well. ( Didn't do much) for me. Went to The GI Doc for a colonoscopy and he showed me the damaged area in the rectum. He put me on Canasa suppositories and they worked for me. He also told me to avoid all foods that would cause constipation issues. So far, so good. Hope you can find some relief.

  • starr15
    starr15 Member Posts: 32 Member
    I am not sure if the data is

    I am not sure if the data is there to support it however hyperbaric oxygen therapy may be helpful

     

  • Retired 12
    Retired 12 Member Posts: 11
    starr15 said:

    I am not sure if the data is

    I am not sure if the data is there to support it however hyperbaric oxygen therapy may be helpful

     

    Data

    Starr15,

         Hyperbaric Oxygen Theraphy was and option they were considering for me. The canasa worked for me, but had it not I would have taken this option.

  • OTIS4242
    OTIS4242 Member Posts: 5
    PROCTITIS

    I HAD HIGN DOSE EXTERNAL BEAM RADIATION TREATMENT FOR PC 5 YEARS AGO. I HAVE HAD A NUMBER OF GI TRACT PROBLEMS. MY GI DR , AFTER A COLONOSCOPY, CONFIRMED THAT I HAVE DEVELOPED CHRONIC RADIATION PROCTITIS, DIVERTICULOSES, RECTAL HEMMORAGE, ETC. THE VERY WORST SYMPTOM IS THE NEED TO RUN TO THE BATHROOM AS SOON AS THERE IS ANY PRESSURE IN THE RECTAL AREA. I HAVE HAD ACCIDENTS - HOW EMBARRASSING. WITH ALL THE SIDE EFFECTS, IT HAS RUINED MY CAREER. I ALSO HAVE CONSTANT URINARY TRACT BURN.

    MY GI DR JUST PRESCRIBED ANAL SUPPOST. AND 8 -10 DOSES OF IMMODIUM PER DAY. DOES THIS WORK ????

    HAS ANYONE USED ELMIRON ?

     

    HAS ANYONE FOUND ANYTHING EFFECTIVE FOR THE BURN ?

     

    MY DRS KEPT SAYING THE SYMPTOMS WOULD GO AWAY - 5 YEARS LATER THEY ARE WORSE AND APPEAR TO BE PERM.

     

    OTIS

  • Kurt70
    Kurt70 Member Posts: 3
    Thanks and update

    Thanks for all your comments. Now I know I am on a journey with thes condition.  I was using Anusul 25 mg with a Mettacell product called Inun.  This latter product was used to provide soft stools.  It did that job, but I starting having really bad gas -very esplosive.  I have changed to Citricell and things have calmed down.  My GI doctor wants me on CANASA rather than Anusul choice by my PC doctor. I may give the CANASA another try if my "weekly" cycle continues.  My PC doctor's backup plan is for me to undergo treatement or treatements for Formalin when the time is right, i.e., I have significant bleeding, etc.