Just recently diagnosed with colon cancer

135

Comments

  • db8ne1
    db8ne1 Member Posts: 142 Member

    you definetly make me feel

    you definetly make me feel better knowing you went thru the same thing i am now and am praying i do not get side effects too bad i can deal with a few but the list was long, I am sleepy but force myself to go for walks to get blood flowing. I have to goto my radiation tx i will keep you guys updated

    Think about it: ANY RX drug

    Think about it: ANY RX drug you receive comes with a LONG list of potential side effects.  Have you seen all those commercials for prescription drugs?  Most of the commercial contains warnings about potential side effects!  For example, here is a great site for potential 5FU side effects:  http://chemocare.com/chemotherapy/drug-info/5-fu.aspx

    Note that the list is divided into 2 groups: Side effects that MAY BE experienced by more than 30% and side effects that MAY BE experienced by less than 30%.  Everyone responds differently, though.  So be on the lookout for them - but don't necessarily expect them.  That said, I recommend drinking LOTS of water to flush out your body. Carry a water bottle.  You are already walking for exercise - so that is great!  It will keep your energy level up. And eat good, nourishing food to repair the damage being done by the therapy.  You will do just fine!

  • KayeKay
    KayeKay Member Posts: 122

    hey thanks I got all hooked

    hey thanks I got all hooked up, and radiation I am feeling ok so far I assume the side effects wont start til tomorrow. I have been drinkin lots and eating lots, tryin to get my weight up :)Chemo pump

    Drink Ensures. The " to gain

    Drink Ensures. The " to gain a healthy weight" ones. They'll help.

  • KayeKay said:

    Drink Ensures. The " to gain

    Drink Ensures. The " to gain a healthy weight" ones. They'll help.

    I have those things are sooo

    I have those things are sooo good I love the vanilla and strawberry ones lol I have gained 12 lbs so far started monday and stay eating so far, hopefully no nausea will come

  • Trubrit
    Trubrit Member Posts: 5,796 Member

    I have those things are sooo

    I have those things are sooo good I love the vanilla and strawberry ones lol I have gained 12 lbs so far started monday and stay eating so far, hopefully no nausea will come

    My gift

    I know where some of your 12 lbs come from. Me! I've lost 8 lbs this week. 

    Kidding aside, I'm glad to hear that you are gaining weight. Every bit is going to help you. Keep it up. 

  • KayeKay
    KayeKay Member Posts: 122

    I have those things are sooo

    I have those things are sooo good I love the vanilla and strawberry ones lol I have gained 12 lbs so far started monday and stay eating so far, hopefully no nausea will come

    lol

    i can only tolerate the chocolate ones and i cant stand chocolate. lol keep drinking them. im trying to cat h up but im assuming until they take out the tumor ill prob. keep losing. ive lost 19 lbs in 3 months. If the nausea comes dont worry there are several diff meds they can use to control it. i had to take 5 diff nausea mdds when i did chemo but i didnt throw up very much.

  • KayeKay said:

    right there along with u.

    right there along with u. stay strong! 

    week 2

    Got plugged in today going for week too, I am not feeling sick so praying this keeps up. had a huge mood swing last night my wife was smoking in the bathroom closed door and window open but i still smelled it, I got this like rush of anger run over me everything made me mad it was hot then cold i got soooo mad about that then I got mad at my wife for moving the bed too much. I appolgized a little after this but my doc said it could be the Anti-depressants so I stopped them as of today.. see if it helps man that was crazy the rush of anger just overwelms your body crazy stuff.

  • annalexandria
    annalexandria Member Posts: 2,571 Member

    week 2

    Got plugged in today going for week too, I am not feeling sick so praying this keeps up. had a huge mood swing last night my wife was smoking in the bathroom closed door and window open but i still smelled it, I got this like rush of anger run over me everything made me mad it was hot then cold i got soooo mad about that then I got mad at my wife for moving the bed too much. I appolgized a little after this but my doc said it could be the Anti-depressants so I stopped them as of today.. see if it helps man that was crazy the rush of anger just overwelms your body crazy stuff.

    Are they giving you dexamethasone?

    That's a steroid (not sure if I spelled it right) that is often given to people on chemo to help reduce the side effects.  However, it also has the typical impact on mood like all steroids, and many people on the forums have mentioned having sudden mood swings, especially anger.  You might want to talk to your doctor about it, see what he/she thinks.  They might choose to reduce it or try something different.  Ann Alexandria

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    YoVita said:

    Sounds like you have a plan

    Stay strong.  Use your support.  Ask questions.  We're all pulling for you.  It does get better.  

    CELEXA

    Celexa is on a warning list as a drug that causes health problems...there is a class action lawsuit out there with that drug.

    I took that many years ago for several months....and it gets you very hot and moody...not a good drug...I discontinued it immediately after about 3-months...

    I believe part of the lawsuit involves organ damage up to/and including death...it's all over the tv in the daytimes...I remember seeing it everyday when I was in treatment. 

    ACTOS too....which is a drug to remove fat from the liver....actually causes weight gain and causes bladder cancer. 

    Glad you discontinued Celexa...try switching to something else...perhaps a Paxil. 

  • Trubrit
    Trubrit Member Posts: 5,796 Member

    week 2

    Got plugged in today going for week too, I am not feeling sick so praying this keeps up. had a huge mood swing last night my wife was smoking in the bathroom closed door and window open but i still smelled it, I got this like rush of anger run over me everything made me mad it was hot then cold i got soooo mad about that then I got mad at my wife for moving the bed too much. I appolgized a little after this but my doc said it could be the Anti-depressants so I stopped them as of today.. see if it helps man that was crazy the rush of anger just overwelms your body crazy stuff.

    Quit smoking!

    This would be a great time for your young wife to quit smoking. Its not healthy for her, and the second hand smoke is definitely not healthy for you.

    I worked as a podiatric medical assistant until my cancer happened, and I can't tell you how many patients we had who would not quit smoking and their recovery, espeically diabetic ulcers, would not heal, ever. 

    As for moving the bed, I'm guessing you meant moving in the bed too much. That rings so true. I woke my husband up one nigh because his brathing was bothering me. I felt so awful in the morning. 

    Good luck in getting the mood swings in hand. 

  • KayeKay
    KayeKay Member Posts: 122

    week 2

    Got plugged in today going for week too, I am not feeling sick so praying this keeps up. had a huge mood swing last night my wife was smoking in the bathroom closed door and window open but i still smelled it, I got this like rush of anger run over me everything made me mad it was hot then cold i got soooo mad about that then I got mad at my wife for moving the bed too much. I appolgized a little after this but my doc said it could be the Anti-depressants so I stopped them as of today.. see if it helps man that was crazy the rush of anger just overwelms your body crazy stuff.

    your going to feel just about

    your going to feel just about EVERY emption with this. Talkto ur doc about some meds to help you control the stuff happenning to u

  • Dyanclark
    Dyanclark Member Posts: 296

    week 2

    Got plugged in today going for week too, I am not feeling sick so praying this keeps up. had a huge mood swing last night my wife was smoking in the bathroom closed door and window open but i still smelled it, I got this like rush of anger run over me everything made me mad it was hot then cold i got soooo mad about that then I got mad at my wife for moving the bed too much. I appolgized a little after this but my doc said it could be the Anti-depressants so I stopped them as of today.. see if it helps man that was crazy the rush of anger just overwelms your body crazy stuff.

    Take Care

    Be sure & tell Dr. because you will need some mental support and TLC so keep your cool.  Your wife is probably a nervous wreck.   Glad to hear your not feeling sick. 

  • magikproductions
    magikproductions Member Posts: 25
    YoVita said:

    Sounds like you have a plan

    Stay strong.  Use your support.  Ask questions.  We're all pulling for you.  It does get better.  

    hey everyone sorry I have not

    hey everyone sorry I have not been on in awhile been sick nhave no net at home can afford it yet I got approved for disability and medicaid needs to fax over my application to the and I will have it by friday, YAY. I was goiong to the florida state strawberry festival this past weekend but I have had sooo much anxiety and depression and stress I just felt sick drove a little ways and had to turn around had my wife drive me home my heart was beating out of my chest started to cry, it was nuts. they finally prescribed me xanax. I have also gotten a prescription for nasea but it was $84.99 which at this time i do not have and they also gave me the prescripton cream for rad burns my bottom is hurtin so bad i cannot got number 2, but that was $95.99 so I am waiting until I get medicaid to help pay for it. any who thought I would update everyone on how I am

     

    Later,

    Justin

  • jen2012
    jen2012 Member Posts: 1,607 Member

    hey everyone sorry I have not

    hey everyone sorry I have not been on in awhile been sick nhave no net at home can afford it yet I got approved for disability and medicaid needs to fax over my application to the and I will have it by friday, YAY. I was goiong to the florida state strawberry festival this past weekend but I have had sooo much anxiety and depression and stress I just felt sick drove a little ways and had to turn around had my wife drive me home my heart was beating out of my chest started to cry, it was nuts. they finally prescribed me xanax. I have also gotten a prescription for nasea but it was $84.99 which at this time i do not have and they also gave me the prescripton cream for rad burns my bottom is hurtin so bad i cannot got number 2, but that was $95.99 so I am waiting until I get medicaid to help pay for it. any who thought I would update everyone on how I am

     

    Later,

    Justin

    Justin - sorry you are having

    Justin - sorry you are having a tough time.  I hope things improve for you soon.  Have you explained your financial situation to the doctors? Many times they are able to get samples of drugs for you.

  • Trubrit
    Trubrit Member Posts: 5,796 Member

    hey everyone sorry I have not

    hey everyone sorry I have not been on in awhile been sick nhave no net at home can afford it yet I got approved for disability and medicaid needs to fax over my application to the and I will have it by friday, YAY. I was goiong to the florida state strawberry festival this past weekend but I have had sooo much anxiety and depression and stress I just felt sick drove a little ways and had to turn around had my wife drive me home my heart was beating out of my chest started to cry, it was nuts. they finally prescribed me xanax. I have also gotten a prescription for nasea but it was $84.99 which at this time i do not have and they also gave me the prescripton cream for rad burns my bottom is hurtin so bad i cannot got number 2, but that was $95.99 so I am waiting until I get medicaid to help pay for it. any who thought I would update everyone on how I am

     

    Later,

    Justin

    Sad

    I have been thinking of you Justin. I am sad that you are having a hard time of it. 

    I am also sorry that you have to put your health and healing on hold because of financed. Having been born and bred in England, I am 100% approving of a National Health System. I wish it were available over here, for people like yourself. 

    All we can do is pray for you and let you know that you are in our thoughts always. 

    I hope the anal pain eases. That is my biggist fear when I head into Radiation. 

    I hope you can get to a compuet again, as we are here for you and wait for your updates. 

    Bless you, Justin!

    - SUE -

  • annalexandria
    annalexandria Member Posts: 2,571 Member

    hey everyone sorry I have not

    hey everyone sorry I have not been on in awhile been sick nhave no net at home can afford it yet I got approved for disability and medicaid needs to fax over my application to the and I will have it by friday, YAY. I was goiong to the florida state strawberry festival this past weekend but I have had sooo much anxiety and depression and stress I just felt sick drove a little ways and had to turn around had my wife drive me home my heart was beating out of my chest started to cry, it was nuts. they finally prescribed me xanax. I have also gotten a prescription for nasea but it was $84.99 which at this time i do not have and they also gave me the prescripton cream for rad burns my bottom is hurtin so bad i cannot got number 2, but that was $95.99 so I am waiting until I get medicaid to help pay for it. any who thought I would update everyone on how I am

     

    Later,

    Justin

    We're glad you checked back in, Justin!

    It sounds like things are pretty hard right now.  Please tell your doc about the issue of not being able to pay for the burn ointment.  There may be a state program that can help until you get set up with federal aid.  And for the nausea, talk to your doc about using the Xanax.  I have Ativan (also an anti-anxiety drug) that works really well for nausea, and it's much cheaper!  You have to take it at a higher dose than for anxiety (with mine it's 2mg 3x per day).  I don't know what the dosage would be for Xanax, but they should be able to tell you.  Don't hesitate to ask for help...having cancer is one of the hardest things you will ever go through, especially when you're young.  And if you put UPDATE in the title of this post, more people will be aware that you've jumped back in.  Someone might have a suggestion for an inexpensive ointment.  Many hugs~Ann Alexandria

    Edited to add that I would go to the pharmacy and see if they can recommend an over the counter ointment.  They might know of something that would be cheaper.

  • Trubrit said:

    Sad

    I have been thinking of you Justin. I am sad that you are having a hard time of it. 

    I am also sorry that you have to put your health and healing on hold because of financed. Having been born and bred in England, I am 100% approving of a National Health System. I wish it were available over here, for people like yourself. 

    All we can do is pray for you and let you know that you are in our thoughts always. 

    I hope the anal pain eases. That is my biggist fear when I head into Radiation. 

    I hope you can get to a compuet again, as we are here for you and wait for your updates. 

    Bless you, Justin!

    - SUE -

    National Health System

    Right on Sue.  Given the US is supposedly a civilized nation one would think health care is available to all, but no.  We finally pass the Affordable Care Act and now that clown and VP loser Paul Ryam wants to repeal the ACA.  Luckily for me, I have excellent insurance as a retired serviceman.  However, I'm an advocate for health care for all. 

  • Sorry to Meet You Under These Circumstances

    Justin, sorry to have to meet you under these circumstances.  It seems so unfair that someone in his 20s has to suffer with colon cancer.  Know that we are here to support you and your young wife as you accompany one another on this journey.  We also wish you the best along the way. 

    Fair winds and following seas. 

    Rick

  • hippiechicks
    hippiechicks Member Posts: 509 Member

    hey everyone sorry I have not

    hey everyone sorry I have not been on in awhile been sick nhave no net at home can afford it yet I got approved for disability and medicaid needs to fax over my application to the and I will have it by friday, YAY. I was goiong to the florida state strawberry festival this past weekend but I have had sooo much anxiety and depression and stress I just felt sick drove a little ways and had to turn around had my wife drive me home my heart was beating out of my chest started to cry, it was nuts. they finally prescribed me xanax. I have also gotten a prescription for nasea but it was $84.99 which at this time i do not have and they also gave me the prescripton cream for rad burns my bottom is hurtin so bad i cannot got number 2, but that was $95.99 so I am waiting until I get medicaid to help pay for it. any who thought I would update everyone on how I am

     

    Later,

    Justin

    Hi Justin...sorry to hear you

    Hi Justin...sorry to hear you are having trouble getting the meds you need.  Have you checked with the pharmacy about any affordable med plan they may offer?  It may be worth checking into, even with the medicaid.  I wish you well as you go forward with your treatments.

  • magikproductions
    magikproductions Member Posts: 25
    hey  everyone thank you all

    hey  everyone thank you all for the help and encouragement, I am sitting outside using neighbors net bit chilly with the wind blowing lol. I am waiting on DCF to call at 10am to let them know I have gotten diability and have them fax that app over. other then that the xanax acyually helps with my nasea along with anxiety so thats a plus. well I am going back inside so cold lol not used to it florida supposed to be hot haha. thanks again

     

    Justin

  • wawaju04976
    wawaju04976 Member Posts: 316 Member

    hey everyone sorry I have not

    hey everyone sorry I have not been on in awhile been sick nhave no net at home can afford it yet I got approved for disability and medicaid needs to fax over my application to the and I will have it by friday, YAY. I was goiong to the florida state strawberry festival this past weekend but I have had sooo much anxiety and depression and stress I just felt sick drove a little ways and had to turn around had my wife drive me home my heart was beating out of my chest started to cry, it was nuts. they finally prescribed me xanax. I have also gotten a prescription for nasea but it was $84.99 which at this time i do not have and they also gave me the prescripton cream for rad burns my bottom is hurtin so bad i cannot got number 2, but that was $95.99 so I am waiting until I get medicaid to help pay for it. any who thought I would update everyone on how I am

     

    Later,

    Justin

    Justin, very glad to hear

    Justin, very glad to hear from you. I'm glad to hear you got your disability; hopefully the medicaid kicks in soon. Again, we are here for you.

    Judy