Beer or Wine Never Again?
Comments
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We're busting a gut....CivilMatt said:belly up to the H&N bar
HobbsDoggy,
Well, after reading these posts I am even more confused. According to Phrannie’s equation I should be able to drink up to 69.6 millon gallons (and no more), but if Cris is correct any alcohol can cause a reoccurrence (if you were HPV+). Then Skiff pipes in since he already has violated Cris’s truth and nobody told him and Greg and T are drinking wine and cognac and puffing cigars (which can’t be good) and Stacey shows up without a goat story (what is happening). Additionally, luv4lacrosse, hlrowe, and Deb mention moderation (what moderation) and George gives fairly believable story about PEG maintenance. You know, I feel at home you are all my kind of people.
The drinks are on me,
Matt
We're busting a gut right now Matt....LOL! You've come here to try and clear this all up and we've literally made a mess of it. Good thing we're not all doctors trying to give advice.....we'd be in a world of trouble with all our "gathered reports"!
My final question: How do we claim our doctors are possibly over reacting on this, yet believe everything else they tell us? ...
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It's going to be a wild reunion... some dayGeorge_Baltimore said:Not sure
my feeding tube will reach all the way cross country but, it sounds good to me Matt. Gotta get my gastroenterologist to put on a few extensions.
you guys (and I mean Phrannie, stacey & Deb, too) are cracking me up. It will be a hoot when we all meet some day.
George, can't you just get a couple of those things they solder pipes together with ....and add a few thousand feet to your tube ?
So if you were HPV Pos, then you can drink some.....but if HPV Neg (like me) you can't drink anything....and of course you can't smoke in either case.
Even though my 40 years of smoking was to blame for my tongue cancer, I still miss the damn things on occasion. I don't think that ever goes away, T-man.
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Ingridcureitall66 said:We're busting a gut....
We're busting a gut right now Matt....LOL! You've come here to try and clear this all up and we've literally made a mess of it. Good thing we're not all doctors trying to give advice.....we'd be in a world of trouble with all our "gathered reports"!
My final question: How do we claim our doctors are possibly over reacting on this, yet believe everything else they tell us? ...
I've been rethinking this situation. I'm gonna have to get Matt a strong pump to get it pumped over all those mountain ranges out west not to mention the Appalachians back here. It's either that or get a very, very tall water tower. But then I don't know how Matt would be climbing all those stairs.
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gonna need more tubeGeorge_Baltimore said:Ingrid
I've been rethinking this situation. I'm gonna have to get Matt a strong pump to get it pumped over all those mountain ranges out west not to mention the Appalachians back here. It's either that or get a very, very tall water tower. But then I don't know how Matt would be climbing all those stairs.
that is true George...it's a long long way from Baltimore !
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Based on what you said....George_Baltimore said:Ingrid
I've been rethinking this situation. I'm gonna have to get Matt a strong pump to get it pumped over all those mountain ranges out west not to mention the Appalachians back here. It's either that or get a very, very tall water tower. But then I don't know how Matt would be climbing all those stairs.
George,
I keep getting this mental picture of you sitting at the poker table wearing a modified "beer helmet" with custom IV drip control
~"T"
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Funnel and TubeCivilMatt said:ouch
No, just a surgical eviction of an HPV encampment on BOT
Matt
I was more leaning toward the funnel and tube...
Kind of like in the "Ole Days"...shot gunning beers...
Punch a hole in the bottom, put it over your mouth (face up), then pull the trigger..down the hatch in about 3 seconds...
JG
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TO IMBIBE OR INBIBE NOT
Hey HobbsDoggy, your post deffinitely wins the prize for hottest topic in a long time, since we're talking about 27 plus comments, in about 5 min, give or take. I guess lots of folks had quite a thirst for this subject, but I think that it is most admirable that everyone has posted their responses in moderation, nothing heavy, or excessive. Well, here I am to serve up my take, which I think will go down pretty smooth, and easy. I've been on a tube, my good buddy (I don't leave home without it), for the past 12 and about a half or so years, and have just recovered my ability to swallow in June of '11. Back in the olden days, before treatment, I was a moderate drinker (just one or two glasses <a 64 ounce glass is moderate isn't it? >.) of beer, wine, and sometimes something harder. So, sometime after I finished treatment back in '00, I asked my trusty ENT whether or not I could include a bit of alcohol with my tasty meals of Pro Balance. The good doctor said as a majority of the other postees docs have said, go for it, but in moderation. So, my motto became, "if it flows, it goes," and it has been flowing regularly ever since. Now that I can swallow (liquids only) I thoroughly enjoy a beer, or glass of wine with dinner. And, when I get back home, after I've been out hiking in the swamp or other wildland all day, I most certainly enjoy a celebratory end of the trail toast with a glass of single malt scotch and soda with a twist. That's my shot at this subject, although it does appear to be a bit excessive, my apologies, I've gone over the limit, but I'm not sure that I have exceeded the legal limit. I think I remember that Matt has the next round, so I've got the 3rd. Cheers!
PATRICK
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My Name
You asked about my screen name. We had a German Shepard named Hobbs, wonderful dog, smarter than me and stronger too. We lived in the county then, many dogs since, loved them all, but him best.
I think the topic hit a cord as taste and eating is a huge problem to be overcome for most or all of us. The idea of a glass of beer or a glass of wine with dinner maybe means we hit close to normal and that is what we are looking for. Sure "cure" is number 1, but getting back as close as we can to normal and simple pleasures has to be a close number 2.
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LOLfishmanpa said:Based on what you said....
George,
I keep getting this mental picture of you sitting at the poker table wearing a modified "beer helmet" with custom IV drip control
~"T"
Don't give me ideas, T!!!!!
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Thank you, Patrickpatricke said:TO IMBIBE OR INBIBE NOT
Hey HobbsDoggy, your post deffinitely wins the prize for hottest topic in a long time, since we're talking about 27 plus comments, in about 5 min, give or take. I guess lots of folks had quite a thirst for this subject, but I think that it is most admirable that everyone has posted their responses in moderation, nothing heavy, or excessive. Well, here I am to serve up my take, which I think will go down pretty smooth, and easy. I've been on a tube, my good buddy (I don't leave home without it), for the past 12 and about a half or so years, and have just recovered my ability to swallow in June of '11. Back in the olden days, before treatment, I was a moderate drinker (just one or two glasses <a 64 ounce glass is moderate isn't it? >.) of beer, wine, and sometimes something harder. So, sometime after I finished treatment back in '00, I asked my trusty ENT whether or not I could include a bit of alcohol with my tasty meals of Pro Balance. The good doctor said as a majority of the other postees docs have said, go for it, but in moderation. So, my motto became, "if it flows, it goes," and it has been flowing regularly ever since. Now that I can swallow (liquids only) I thoroughly enjoy a beer, or glass of wine with dinner. And, when I get back home, after I've been out hiking in the swamp or other wildland all day, I most certainly enjoy a celebratory end of the trail toast with a glass of single malt scotch and soda with a twist. That's my shot at this subject, although it does appear to be a bit excessive, my apologies, I've gone over the limit, but I'm not sure that I have exceeded the legal limit. I think I remember that Matt has the next round, so I've got the 3rd. Cheers!
PATRICK
It's posts like yours and Brigit's in WV that give me hope of breathing and swallowing normally again. I've been on the verge of just giving up. I needed to read your post today and Brigit's a couple days ago. Thanks again!
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THE SWEET CORD OF NORMALCY INDEEDHobbsDoggy said:My Name
You asked about my screen name. We had a German Shepard named Hobbs, wonderful dog, smarter than me and stronger too. We lived in the county then, many dogs since, loved them all, but him best.
I think the topic hit a cord as taste and eating is a huge problem to be overcome for most or all of us. The idea of a glass of beer or a glass of wine with dinner maybe means we hit close to normal and that is what we are looking for. Sure "cure" is number 1, but getting back as close as we can to normal and simple pleasures has to be a close number 2.
First, there's not much that beats a beloved pet that has a special place in our memory and heart, so I'm lovein HobbsDoggy for your name. Second, I think that you nailed it in your comment about the symbolism of being able to enjoy, once more, the simple pleasure of having a favorite beverage with a meal; yeah, I'm with you as that being a number 2 goal.
PATRICK
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ARE WE THERE YET..............*George_Baltimore said:Thank you, Patrick
It's posts like yours and Brigit's in WV that give me hope of breathing and swallowing normally again. I've been on the verge of just giving up. I needed to read your post today and Brigit's a couple days ago. Thanks again!
Hey George, I'm glad to hear that got a lift from my comment. I know what it's like to feel less than hopeful; it's not a good feeling. If this journey has taught me anything, it's that recovery is a marathon (which we have to sometimes take one nanosecond, minute, hour, or the ever popular day at a time), so we have to pace ourselves. I have found that it is amazing how resilient we are over time, the key word being time, as it does take time, and a whole lot of patience. After surgery, and during my oh so memorable radiation treatment I was very dispairing and barely able to walk around the block, which was very crushing to me since I was/am and avid runner forever years. Within the following few years I had recoverd quite well, was able to run again, and ran a half marathon, and then the following year a marathon, both with my trusty, best buddy PEG tube along for the ride. It takes time George, so keep it movin forward with positive "I Can Do This" energy, taking your time as you do; you'll get there.
PATRICK
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another pet lover aboardHobbsDoggy said:My Name
You asked about my screen name. We had a German Shepard named Hobbs, wonderful dog, smarter than me and stronger too. We lived in the county then, many dogs since, loved them all, but him best.
I think the topic hit a cord as taste and eating is a huge problem to be overcome for most or all of us. The idea of a glass of beer or a glass of wine with dinner maybe means we hit close to normal and that is what we are looking for. Sure "cure" is number 1, but getting back as close as we can to normal and simple pleasures has to be a close number 2.
AHHHHH, another dog lover....as you can see I am one. Had a special GSD named Heidi in my past also. Now have our 6 yr old golden retriever boy named Barney who is my best bud...He was a huge help to me going thru treatment that's for sure.
Many of us are pet lovers.....some of us even like goats...whatever it takes. I have always thought that it is a special kind of human that can open up their heart to love an animal.
I agree with having a goal to work towards in this cancer fight....always need a prize....even if it's only a half a glass of beer or wine.
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never give upGeorge_Baltimore said:Thank you, Patrick
It's posts like yours and Brigit's in WV that give me hope of breathing and swallowing normally again. I've been on the verge of just giving up. I needed to read your post today and Brigit's a couple days ago. Thanks again!
George
We were just talking about a goal of having a beer now and again---so never give up on your goal. You just have a different goal -- working towards losing your trach and even your feeding tube maybe some day.
It may sound undoable now....but look how much you've already come thru. If you are like me, you may have thought that you would never even make it this far.
So keep on moving ...always forward one step at a time.
Besides, we all need your words of wisdom around here.
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