Still Hoarse.

2»

Comments

  • peggylulu
    peggylulu Member Posts: 375

    I'm an icecream addict, too....

    and tho the yum yum taste is gone in three bites, I don't seem to have a problem finishing my bowl.....LOL.  I have to let it sit a bit to warm up to get the most out of it...but I have quit having it on hand at all times, cuz I'll eat a half gallon in two days.

    p

    ice cream

    So ..... are you saying there is something wrong with eating 1/2 gallon in two days ??? jk  Laughing I don't like it now by itself but I have found it still taste pretty good melted in a Dr. Pepper !!  The onc dr. told me to drink whole milk because I needed the fat .... so I figure ice Cream has even more fat so I have been drinking 2 small floats a day and I think that is what's helping me to not lose weight as fast now.

    Peggy

  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    For you T

    T,

     

    I have more trouble with tasting ice-cream than anything else (cat is out of the bag).

     

    You will simply have to be on top of your game when it comes to fighting side effects of treatments.   The one good thing I did was get myself psyched up about swallowing and drinking lots of water.  Thanks to the informal push I received from the H&N warriors, I drank and swallowed till I was blue in the face.  Mind you I still went through a period of whispering, but my swallowing was (almost) flawless.

     

    Silence is (not) golden.

     

    Matt

  • peggylulu
    peggylulu Member Posts: 375
    fishmanpa said:

    My Mouth is a Desert on a Hoarse With No Name

    Frankly, the thought of having dry mouth and being hoarse for so long has me rattled. My friend, who underwent this glorious course of treatment has had very little effect on his singing voice. His saliva is at about 50% 18 months out of Tx. I can only hope my outcome is the same or better. 

    I'm taking solace in that taste will come back eventually but am saddened that my love of ice cream may be a thing of the past for a while :(  With the advice of many here I've written the team about discussing ways to preserve saliva production. They're fully aware of my music background and situation and I trust they have that in mind concerning my treatment. 

    "T"

    "T"

    I bet they can come up with something that will help you. I have seen people talking on an older post on here about something some doctors give you at the same time as tx called Amifostine to help protect your S. glands also something called Salagen that helps after tx. I googled Salagen because I was going to ask my Dr. for a Rx but it listed so many side effects that I'm not sure that I want to try it. Some on here said they couldn't take it because of the side effects and another said they only had one and that was sweating so who knows ? I hope they come up with a plan for you that helps .

    Good luck , Peggy

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    fishmanpa said:

    My Mouth is a Desert on a Hoarse With No Name

    Frankly, the thought of having dry mouth and being hoarse for so long has me rattled. My friend, who underwent this glorious course of treatment has had very little effect on his singing voice. His saliva is at about 50% 18 months out of Tx. I can only hope my outcome is the same or better. 

    I'm taking solace in that taste will come back eventually but am saddened that my love of ice cream may be a thing of the past for a while :(  With the advice of many here I've written the team about discussing ways to preserve saliva production. They're fully aware of my music background and situation and I trust they have that in mind concerning my treatment. 

    "T"

    On the first part of the journey....

    Cause there ain't no one for to give you no pain....

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    peggylulu said:

    "T"

    I bet they can come up with something that will help you. I have seen people talking on an older post on here about something some doctors give you at the same time as tx called Amifostine to help protect your S. glands also something called Salagen that helps after tx. I googled Salagen because I was going to ask my Dr. for a Rx but it listed so many side effects that I'm not sure that I want to try it. Some on here said they couldn't take it because of the side effects and another said they only had one and that was sweating so who knows ? I hope they come up with a plan for you that helps .

    Good luck , Peggy

    Amifostine...

    It might help with "regaining", some salivary function..."eventually"... It isn't instant protection. You still lose your taste and saliva for a long time... I had it... The best thing for sure that seems to be "instant", is in the lack of the thick mucous and phlegm.

    That is the main purpose, or was for me...

    The potential to regain some saliva is just a bonus...

    JG

  • peggylulu
    peggylulu Member Posts: 375
    Skiffin16 said:

    Amifostine...

    It might help with "regaining", some salivary function..."eventually"... It isn't instant protection. You still lose your taste and saliva for a long time... I had it... The best thing for sure that seems to be "instant", is in the lack of the thick mucous and phlegm.

    That is the main purpose, or was for me...

    The potential to regain some saliva is just a bonus...

    JG

    Amifostine

    Ok Thanks for the info JG, evidently my doctor doesn't use it because he never mentioned it to me. The thick mucous and phlegm was my worst problem in the beginning , it is better now. It comes and goes. I almost think a little mucous in my throat is better than when it is so dry.

    peggy

     

  • Billie67
    Billie67 Member Posts: 898
    Skiffin16 said:

    On the first part of the journey....

    Cause there ain't no one for to give you no pain....

    John and T,
    I happen to know Dewy Bunnell from the Band America.....I'll have to tell him that we H&N patients have a new theme song! Haha
    He's a nice personable guy, he'll get a kick out of it.
    Billie
  • fishmanpa
    fishmanpa Member Posts: 1,227 Member
    CivilMatt said:

    For you T

    T,

     

    I have more trouble with tasting ice-cream than anything else (cat is out of the bag).

     

    You will simply have to be on top of your game when it comes to fighting side effects of treatments.   The one good thing I did was get myself psyched up about swallowing and drinking lots of water.  Thanks to the informal push I received from the H&N warriors, I drank and swallowed till I was blue in the face.  Mind you I still went through a period of whispering, but my swallowing was (almost) flawless.

     

    Silence is (not) golden.

     

    Matt

    Love Has No Pride

    Nor Does Cancer.....

    The swallowing has been on the radar since day 1 joining here. I already drink a good amount of liquid during the day. Mostly hydrating drinks... Powerade Zero (no sugar) and Gatorade H2... At least 64oz or more.  I don't know if I want my face to turn blue but I'll keep that up as long as I'm able! Ohhh ice cream, ice cream... I am going to miss you so! :(  It's said if you love someone, you have to let them go... perhaps that's the case with ice cream. I'm afraid Breyers will lose a few points on the market when that happens ;)

    On a side note... I had, for the most part, limited the circle of friends and family that knew about the cancer. After discussing things with my partner, family and friends, and at their urging and suggestion, I've made my struggle public to my fan base via email and my contacts on Facebook. My close friend and singing partner is organizing a fundraiser for the end of February. The response has been overwhelming and positive. So along with liquids, I'm swallowing pride as well and reaching out for help. With the prospect of being out of work for a long period of time as well as unanticipated bills and expenses, any little bit helps.

    "T"

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    Billie67 said:

    John and T,
    I happen to know Dewy Bunnell from the Band America.....I'll have to tell him that we H&N patients have a new theme song! Haha
    He's a nice personable guy, he'll get a kick out of it.
    Billie

    America...

    Very cool...Billie (the girl).

     

    Growing up and being a teen in the late 60's early 70's (I was born in 1954), America was always one of my favorite bands...

    LOL, even now, my iPhone has Pandora (a music app similar to XM/Sirius only free)..., anyways America is one of my favorite saved channels.

     

    Please tell him that I said "Thank You", they have provided decades of great memories and music to me...

     

    Thanks,

    John