Cea 3.8 and pet scan clear, post 3447 is my most important by far. "HOPE AT LAST"

2

Comments

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    That's fantastic news!

    Very happy for you, Pete! Laughing Sounds like you may get to skip the HIPEC?  Keep us posted~Ann Alexandria

  • annalexandria
    annalexandria Member Posts: 2,571 Member

    Sweet news Pete

    Brought a tear to my eye Laughing our son got out of hospital yesterday (5th brain surgery) and we are about to start our own adventure (again) we are going out on a limb, coz that is where the fruit is, the techniques we discussed today with the Prof. are 20 years ahead of the game, we didn't raise enough money for all the treatments we wanted but time is of the essense so blood tests tomorrow and next week they will harvest my cells to inject into him.

    Don't rest on your laurels, keep hitting the bugger!

    Take care.

    Wishing your son the best...

    it would be pretty amazing if a parent's cells ends up saving a child.  Quite wonderful. AA

  • tachilders
    tachilders Member Posts: 313
    First off, congratulations on

    First off, congratulations on your great news!!!  I don't follow your blog (sorry), so can you share with us on here what you believe to have been the "magic bullet" in your case?  I know from your posts here that you have tried a LOT of different alternative approaches, so it may be impossible to know which exact thing (or more likely which combination) has produced these great results.  Hoping for only the best for you, and hope and pray your experience can help some others with this horrible disease, which for some reason just doesn't get anywhere near the coverage it deserves.  There are so many of us battling colon cancer, but we don't have nearly the organization or support that they have for some other cancers (i.e. breast cancer).  All cancers are terrible, and we need money and research for all of them....

    Tedd

  • dmj101
    dmj101 Member Posts: 527 Member
    Thank you!

    This is great news Pete.. congratulations.. you have worked so hard to get to this point.. I know there is hope for us all and you are a blazer for the cause... Thanks!

  • luvinlife2
    luvinlife2 Member Posts: 172 Member
    WHOOHOO PETE!!!!!

    You did it!!!  I am so flipping happy for you!!!!  You are so deserving of a great result and I thank you for continuing to share your experiences with us.  What is the plan to maintain this result?  :)  :)   Can't stop smiling for you :):)

  • barbebarb
    barbebarb Member Posts: 464
    dmj101 said:

    Thank you!

    This is great news Pete.. congratulations.. you have worked so hard to get to this point.. I know there is hope for us all and you are a blazer for the cause... Thanks!

    SO SO HAPPY FOR YOU!!!

    Smile

    THIS IS SUCH FANTASTIC NEWS PETE!
    YOU HAVE WORKED SO HARD AND FOR ALL OF US BY SHARING YOUR POSTS.
    I KNOW YOU HAVE INSPIRED ME AND I AM OVERJOYED FOR YOU AND YOUR FAMILY.
    WE FOLLOW OUR GUIDANCE FROM OUR DOCTORS BUT THE UNITY OF OUR POSTS AND SHARED INFORMATION GIVES US POWER TO HELP WITH DECISION -MAKING AND COPING.
    THANK YOU FOR SHARING AND GOD BLESS YOU AND YOUR FAMILY!
    (SORRY FOR ALL CAPS - TYPING ON A KINDLE FIRE AND I HATE TOUCH SCREEN....) Hope you have a huge stein of german beer lined up!
    Hugs! Celebrate!
    Barb
  • geotina
    geotina Member Posts: 2,111 Member
    Peter:

    Good job.   Keep up the good work at beating the monster.  You never gave up, never left a stone unturned, never stopped questioning, never stopped looking and researching and for that I admire you.

    Best wishes for continued success - Tina

  • steveandnat
    steveandnat Member Posts: 886
    Great news

    It is very encouraging seeing how well you are doing with all your treatments.  Jeff

  • LivinginNH
    LivinginNH Member Posts: 1,456 Member

    I got a tear or two myself

    dream sweety dream,

    if i am wrong i am sorry, but tonight I can dream.

    anyone who wants to piddle on this parade well you will be flagged away, sorry but this positive little post will stay that way.

    its possible J, it really really is.

    don't stop the tears, its been years coming. to many friends gone, lets not think of the pain.

    think of this as the best xmas present the colorectal forum has had so far, its just a little late.

    do you remember I had a german pet on the 14dec and I still don't have the results, its cost me $2400 euro, i am so happy I am just going to ask for a freebie in another 6 months. this would have been nice for xmas day. but better late than never.

    as one on my kindest supporters, a heart felt thanks. baby a little hope stretches along long long way.

    according to my research the immune system of the entire colorectal community, at least on csn just got a dam big lift. thats got to be.

    say 10,000 stage 4 get this get news, well we boost their NK cells by 10,000 each, just by faith. thats lots of tumour eating NKs. I am just dreaming.

    I pushed my alt doctors receptionist to tell me my cea score on the way to the consult this arvo, she said 3.8 and my last was 81. I thought she was misreading it, i thought she was reading the range. which actually is 2.8. funny how my mind could not accept what I was told over the phone. I prefered to beleive that silly receptionist could not read the report and that I still had disease.

    I was thinking a cea of 100 would be cool, so yes my expectations were exceeded. to be honest I had no expectations. they are a trap with our curse.

    hugs,

    Pete

    PS I am posting the cea and pet report on my blog within the next 5 minutes, the proofing is in the pudding. read it and smile and taste the pudding!

    Nice!

    Great news Pete!  :)   I'm very happy for you - all smiles.  :)

  • abackhou
    abackhou Member Posts: 77 Member
    Your possible Cure

    Hi Pete,

     

    I am so happy for your latest scan results.  You deserve this good news and I hope it continues for you.

    Best wishes

     

    Aussie Andrew

  • abackhou
    abackhou Member Posts: 77 Member
    Your possible Cure

    Hi Pete,

     

    I am so happy for your latest scan results.  You deserve this good news and I hope it continues for you.

    Best wishes

     

    Aussie Andrew

  • Hooley
    Hooley Member Posts: 156
    Inspiration

    From one aussie to another - Inspiration to say the least.  GOD is good. Faith is so important to me too. Gods peace is indescribable and it sure keeps me going.  I am stage 4 too and 2 1/2 wears and fighting.  Ceas always been between >1 and 66.  one since first diagnosed which is why the mets to lung after bowel resection was all a surprise. Had all the oxy, fol fox, avastin and irrotecan.  Stable or small growth. Yesterday was put on irrinotecan mixed with erbitex. Here's praying this works, so hoping for acne which is a positive sign.,   

    Love reading your posts.  God would be so proud ask u as we all are. Many more blessings to u and your family

    i want to ask my dr about the vit c injections, have read many good reports.  Can u brief me pls when u get time

    take care, God bless

    sue

  • richls
    richls Member Posts: 54
    Great news Pete!

    I am so happy for you! You have been a insperation to us all. I hope you will continue to hang around, we need you here.

  • atlanticcanada
    atlanticcanada Member Posts: 74
    so happy!!!!

    hey Pete 

    reading your story makes me so happy! Your hard work paid off! 

  • Dyanclark
    Dyanclark Member Posts: 296
    Pete

    Pete great news, you give us hope.   LaughingCool

    Dyan

  • k44454445
    k44454445 Member Posts: 494
    Pete

    this is GREAT news! i am soooo happy for you! and i thank you for always keeping us informed & i want to thank you for your positive attitude. keep going!!!

    hugs from indiana

    judy

     

  • thxmiker
    thxmiker Member Posts: 1,278 Member

    thanks kathi

    I am back to germany on the 4th feb, i got a return ticket to use.

    I am in the middle of therapies. not counting my chickens before they hatch.

    hugs,

    Pete

    Congrats from the Mountains in the AZ!

    Congrats Pete on the Great News!  You and many others have said, The battle for cancer is fought on many levels.   You my friend, have fought it on a lot of levels. We wish that you have kicked the Dragon's Hiney and continue to do so!

     

    Best Always, mike

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    thanks everyone, long and interesting onc visit

    so my mum, wife and kids crowded into the onc office.

    he read the report, i am ned. he said its a great miracle, its offical.

    he can get removab imported, i explained how tricky the therapy was from my direct experience and that of others. i would only get this therapy at the hallwang clinic for the time being.

    its worked a miracle for me, it costs about say $40,000 for 4 weeks and a course, but get a quote if your interested.

    i have emailed hundreds, thanked everyone. spokedn with my dearest supporters, prayed and thanked god.

    my health and the success of my therapies is my greatest achievement in my life.

    thanked onc for the life insurance payout that enabled my attempt at cure, how ironic.

    I have shared all the details of my therapies here, i decided not to spoon feed any of the onc's.

    they are not interested and he did not ask details,i was not surprised. the absence of genuine detailed curiousity of the details of my success shows the reason our cancers are not cured. its professional arrognane in my arrongant opinion. so maybe i saved my life, but not one of my onc patients knows my story in detail or the therapies.

    my friends here know exactly whats worked for me, goodluck. i am dreaming of diving and forgetting cancer. the research has stopped, i am no longer interested.

    Its crazy how quickly my desire to learn has stopped, i think it was motivated by my desire to survive.

    I walked hand in hand on the beach with my wife, we are planning a new more relaxing life, I am heading back to germany for about 2-3 months depending on therapies. onc said this was a good idea and to check in with him when i get back to australia.

    i sincerely appreciate everyones kind words, especially the recognition of my efforts and the sharing of my research and story.

    i am exhausted emotional, this much joy is hard work, all my dead friends have been on my mind, i tried calling one by mistake. i feel myself difting away from cancer now, I love all you guys so deeply.

    not a day is to be wasted, i have invested so much of my life into this result, that i have to focus away from.

    this is not advice, but I am grateful I did removab at the hallwang clinic, the chemo embolisation at uniclinic frankfurt with doctor vogel and dendritic cell vaccine in duderstadt. google these and get quotes if you are keen, pm me if any questions. faith, peace and love are as essential to healing. A healthy diet, exercise and supplements also good. qigong also has a place in my heart. so do all of you.

    thanks again to each and everyone of you on csn for your support, especially prayers.

    self directed change is the key to the lifestyle components of my success.

    hugs,

    Pete

  • Vickilg
    Vickilg Member Posts: 281 Member

    thanks everyone, long and interesting onc visit

    so my mum, wife and kids crowded into the onc office.

    he read the report, i am ned. he said its a great miracle, its offical.

    he can get removab imported, i explained how tricky the therapy was from my direct experience and that of others. i would only get this therapy at the hallwang clinic for the time being.

    its worked a miracle for me, it costs about say $40,000 for 4 weeks and a course, but get a quote if your interested.

    i have emailed hundreds, thanked everyone. spokedn with my dearest supporters, prayed and thanked god.

    my health and the success of my therapies is my greatest achievement in my life.

    thanked onc for the life insurance payout that enabled my attempt at cure, how ironic.

    I have shared all the details of my therapies here, i decided not to spoon feed any of the onc's.

    they are not interested and he did not ask details,i was not surprised. the absence of genuine detailed curiousity of the details of my success shows the reason our cancers are not cured. its professional arrognane in my arrongant opinion. so maybe i saved my life, but not one of my onc patients knows my story in detail or the therapies.

    my friends here know exactly whats worked for me, goodluck. i am dreaming of diving and forgetting cancer. the research has stopped, i am no longer interested.

    Its crazy how quickly my desire to learn has stopped, i think it was motivated by my desire to survive.

    I walked hand in hand on the beach with my wife, we are planning a new more relaxing life, I am heading back to germany for about 2-3 months depending on therapies. onc said this was a good idea and to check in with him when i get back to australia.

    i sincerely appreciate everyones kind words, especially the recognition of my efforts and the sharing of my research and story.

    i am exhausted emotional, this much joy is hard work, all my dead friends have been on my mind, i tried calling one by mistake. i feel myself difting away from cancer now, I love all you guys so deeply.

    not a day is to be wasted, i have invested so much of my life into this result, that i have to focus away from.

    this is not advice, but I am grateful I did removab at the hallwang clinic, the chemo embolisation at uniclinic frankfurt with doctor vogel and dendritic cell vaccine in duderstadt. google these and get quotes if you are keen, pm me if any questions. faith, peace and love are as essential to healing. A healthy diet, exercise and supplements also good. qigong also has a place in my heart. so do all of you.

    thanks again to each and everyone of you on csn for your support, especially prayers.

    self directed change is the key to the lifestyle components of my success.

    hugs,

    Pete

    Congratulations

    I am so happy for you!   Much love. I'll read your blog today. 

  • Minnesotagirl
    Minnesotagirl Member Posts: 141
    Vickilg said:

    Congratulations

    I am so happy for you!   Much love. I'll read your blog today. 

    Blessings to you from Minnesotagirl

    Well Pete,

    If you aren't just something else!!!Wonderful news for you and your family. You got it Pete...blessings and prayers to you from cold Minnesota!

    "Minnesotagirl"