Change in staging"depending on which doctor you talk to?

nicholson
nicholson Member Posts: 13
in Head and Neck Cancer #1

Hi my name is Claude,Ive been following u guys on here for a few months,Ive got more info on here than at the VA I go to..Im greatful for my treatment,but feel doctors are "rushed"....Im experiencing MUCH fear on some days,and peace on other days.....The unknown is SCARY..

Comments

  • VivianLee5689
    VivianLee5689 Member Posts: 546
    #2
    hi Claude

    Hi there and welcome.  People on this site are great.  We tend to become like family.  I agree it is easy to be afraid.  Not knowing how things are going to turn out is hard sometimes.  We all get through it together. 

  • VivianLee5689
    VivianLee5689 Member Posts: 546
    #3
    hi Claude

    Hi there and welcome.  People on this site are great.  We tend to become like family.  I agree it is easy to be afraid.  Not knowing how things are going to turn out is hard sometimes.  We all get through it together. 

  • nicholson
    nicholson Member Posts: 13
    #4
    VivianLee5689 said:

    hi Claude

    Hi there and welcome.  People on this site are great.  We tend to become like family.  I agree it is easy to be afraid.  Not knowing how things are going to turn out is hard sometimes.  We all get through it together. 

    Thank u

    I kinda feel,my past loves have been"superficial",,,but after being sick,I see my girlfriend loves me for "me"....I have not been able to do the things with my girllike i did when i was healthy,Ive learned a lot frm reading ur post Vivian about you and ur husband David,keep us posted please,I just got a cat scan 5 days ago.....the VA has not called,Im thinking its good news...Ill check n with the doc and c 4 sure later this week....

  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    #5
    darn right it is scary

    Hi Claude,

     

    Welcome to the H&N forum, but sorry you find it necessary to be here.  So what scary things have the VA doctors told you?  If you are like the rest of us, you have a right to be scared.  In your title you mentioned staging, if you want to look the Superthread (top thread) in the opening page has a lot of information on H&N cancers and a lot about staging if you want to read it.

     

    Things do move fast and slow at diagnosis, the doctors want to make the best estimate of your condition.  After your condition is known and a treatment path selected things will mellow out some.  Let us know what you find out and we will answer any questions you have.

     

    Best,

     

    Matt

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #6
    Welcome Claude...

    It is scary, I don't think you'll find any of us here that have not felt the fear that you do.

    But one thing for sure, you have found a family of warriors and survivors here.

    There is always someone that will offer you a hand when needed.

    Best ~ John

  • phrannie51
    phrannie51 Member Posts: 4,716
    #7
    I'm sorry they've left you hanging

    for 5 days on your scan results....that's cruel....but not that unusual.  That's how my ENT handled the first scan I got....but by the time I got my second scan, I was a patient of the Oncologist (who seems to have a better idea about what it's like to have to wait).....his office called me the day they got the scan. 

    I'm sorry you had to find this site, but so glad you did and it's good that you have been reading....now you just have to belly up to the bar and talk... Laughing....There is a ton of good support here....I as SO glad I found these folks before I started treatment.

    p

  • Pam M
    Pam M Member Posts: 2,196
    #8
    Hello

    Scary is part of our cancer package deal here.  Very sorry you're stuck waiting so long for a follow-up on your scans.

  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member
    #9
    NOT

    i am not a believer in stages. cancer is cancer, none of it is good. i believe everyone on the healthcare side should have a high sence of urgency. when treatments are happening we all should be treated same, find it early, get the treatment plan and get started with confidence. 

    Positive Mental Attitude maintained will take down every phase. Believe you will kick cancer butt and guess what you "will kick it's butt, down the road" 

     

    take the unknow scary energy and put that energy into Positive Mental Attitude that will equal out to peacefulness!

     

    john 

  • donfoo
    donfoo Member Posts: 1,771 Member
    #10
    Welcome

    Glad you decided to start posting. I think you will feel it benefits you more to actively engage in the discussions, especially ones like this that you create to express  exactly what is on your mind. I'm nearly as new as you and just completing diagnosis phase, so much of what I read is still all new to me. 

    Feel free to post away, my friend.

    Don

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