UPDATE

PADANAG
PADANAG Member Posts: 20
Pathology reports are in,bad news is there is a regrowth in my brain. Good news is it is still only one spot. The rest of me still looks good, blood work is all good. the spot that is being treated is right next to the tumor that was removed in June. The original tumor site is clear, so the docs don't feel like it is traveling, we just need to treat a bigger area. They are not concerned about the discomfort in my rib areas, just scar tissue and post reconstruction surgery side effects. I will be starting whole brain radiation with hippacampus sparing on Monday. 10 treatments.

This puts a damper on the holidays. The hospital is over 100 miles round trip and trying to keep up with 5 kids is hard enough with out trying to juggle treatments and travel and the holidays. I am so tired, trying to recover from 2nd brain surgery in 5 months and now this.

After treatment I will get an MRI every 6 weeks. And they want to do CAT scans every few months on my chest, pelvis and abdomen. Part of me likes the idea of being watched closer, but I also have to deal with scan-xiety more often too.

I keep reminding myself of the positives-I did achieve PCR to the chemo, and since chemo doesn't cross the blood brain barrier, it is possible that this little bugger just got up there before the chemo did it's job. Disease tends to travel from the body to the brain, not the brain to the body--if we can get this under control, I have a good chance of "disease free survival".

So I guess my only choice is to keep praying and keep fighting.

Dana

Comments

  • ladyg
    ladyg Member Posts: 1,577
    So sorry
    you got this bad news so close to the holidays. The good thing is that your dr. is right on top of things. Starting treatment just before the holidays will be hard with 5 kids but I am sure you can do it! I will keep you in my thoughts. Just keep up the fight!

    Hugs,
    Georgia
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    Try to not stress over the
    Try to not stress over the HOlidays..just do what you can and dont' push it...

    Take care of yourself...

    Denise
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    ladyg said:

    So sorry
    you got this bad news so close to the holidays. The good thing is that your dr. is right on top of things. Starting treatment just before the holidays will be hard with 5 kids but I am sure you can do it! I will keep you in my thoughts. Just keep up the fight!

    Hugs,
    Georgia

    Dana,
    Continued prayers ... as well as positive thoughts for you!

    I wish you had someone to help you -- 100 miles to get treatment -- How you had
    the opportunity to contact, or speak with the social worker at your Oncology center
    to see if there are any groups, that assist with child care or traveling expenses?
    ACS here has a link "rides to treatments" ..

    You are so very STRONG, never forget that.

    Strength, Courage and HOPE for a Cure.

    Vicki Sam
  • DebbyM
    DebbyM Member Posts: 3,289 Member
    ladyg said:

    So sorry
    you got this bad news so close to the holidays. The good thing is that your dr. is right on top of things. Starting treatment just before the holidays will be hard with 5 kids but I am sure you can do it! I will keep you in my thoughts. Just keep up the fight!

    Hugs,
    Georgia

    I am so sorry. Sending hugs
    I am so sorry. Sending hugs and prayers!
  • DianeBC
    DianeBC Member Posts: 3,881 Member

    Try to not stress over the
    Try to not stress over the HOlidays..just do what you can and dont' push it...

    Take care of yourself...

    Denise

    Praying and sending lots of
    Praying and sending lots of support, strength and encouragement.


    Big hugs, Diane
  • Ritzy
    Ritzy Member Posts: 4,381 Member
    ladyg said:

    So sorry
    you got this bad news so close to the holidays. The good thing is that your dr. is right on top of things. Starting treatment just before the holidays will be hard with 5 kids but I am sure you can do it! I will keep you in my thoughts. Just keep up the fight!

    Hugs,
    Georgia

    I'm praying for you Dana and
    I'm praying for you Dana and yes, you keep fighting! You've got all of us pinkies as your cheerleaders!


    Sue :)
  • Eleanor1
    Eleanor1 Member Posts: 68
    I will definitely include
    I will definitely include you in my prayers.
  • Megan M
    Megan M Member Posts: 3,000
    Eleanor1 said:

    I will definitely include
    I will definitely include you in my prayers.

    Thank you for letting us
    Thank you for letting us know your results. Praying..
  • roseann4
    roseann4 Member Posts: 992 Member
    Megan M said:

    Thank you for letting us
    Thank you for letting us know your results. Praying..

    Hugs Dana!
    Wishing you good news next visit.

    Roseann
  • DebbyM
    DebbyM Member Posts: 3,289 Member
    roseann4 said:

    Hugs Dana!
    Wishing you good news next visit.

    Roseann

    Big hugs to you
    Big hugs to you today!


    Praying, Debby
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    DebbyM said:

    Big hugs to you
    Big hugs to you today!


    Praying, Debby

    I am adding more prayers for
    I am adding more prayers for you Dana.


    Hugs, Jan
  • nanniebgood
    nanniebgood Member Posts: 42
    will be thinking of you
    I'm so sorry about your scan but what a warrior you are!! I hope you can find help for the travel for tx, that sound vicious to do by yourself. Let the holidays take care of themselves, which is hard to do, and tkae good care of yourself, sending ((((big hugs)))) jan
  • Noel
    Noel Member Posts: 3,095 Member

    will be thinking of you
    I'm so sorry about your scan but what a warrior you are!! I hope you can find help for the travel for tx, that sound vicious to do by yourself. Let the holidays take care of themselves, which is hard to do, and tkae good care of yourself, sending ((((big hugs)))) jan

    I am sorry
    Very sorry of the news on your scan. Don't worry about the holidays, like everyone said. Focus on you and just take care of yourself.


    Hugs, Noel
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    Noel said:

    I am sorry
    Very sorry of the news on your scan. Don't worry about the holidays, like everyone said. Focus on you and just take care of yourself.


    Hugs, Noel

    Thinking of you Dana. How
    Thinking of you Dana. How are you?


    Jan
  • Kristin N
    Kristin N Member Posts: 1,968 Member
    There's never a good time to
    There's never a good time to get this news and I am so sorry. Please keep posting to us so we know how you're doing.
  • susie09
    susie09 Member Posts: 2,930
    Kristin N said:

    There's never a good time to
    There's never a good time to get this news and I am so sorry. Please keep posting to us so we know how you're doing.

    I'm very sorry and send you
    I'm very sorry and send you the biggest hug that I can!
  • Pink Rose
    Pink Rose Member Posts: 493
    Eleanor1 said:

    I will definitely include
    I will definitely include you in my prayers.

    I will put you on our prayer
    I will put you on our prayer list at church.