SCAN UPDATE

luv4lacrosse
luv4lacrosse Member Posts: 1,410 Member
Well, what a difference 6 weeks makes. 6 weks ago my first every 6 wek scan for the clinical trial I am on revealed that the tumors in my lungs had not shrunk, but did change in appearance. yesterday's result was that the tumors have all but gone away, no resolution, noting recognizable.

I am in shock, and this has not yet really set in. I still have to go over the results with my Oncologist and the clinical trial doc's but feel pretty good that halfway through this, the tumors are almost gone. I guess this is still also good for the tumors in my Lymphatic system in my Mediastynum, as they are still too small to show up on a CT and were only revealed on a PET. Maybe those have shrunk too.

Thanks to all of the good mojo, and feedback from others who have had success on Carboplatin, Erbitux and 5FU or a combination of them.

Still not curable, but I will take the good news anyway.

Best!!

Mike
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Comments

  • osmotar
    osmotar Member Posts: 1,006
    YEAH!!!!!
    Mike,

    Wonderful....take the good news where you find it!!!!

    Blessings and Light


    Linda
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    MOJO MAN...
    Awesome Mike, nothing else to say....

    Welll...one word, AMEN...

    JG
  • cureitall66
    cureitall66 Member Posts: 913
    Amen!
    I say take that news!! Keep positive....one day at a time...just as you've told the rest of us. :)
  • katenorwood
    katenorwood Member Posts: 1,912
    Steady forward march !
    Mike,
    Hurray for a smack down on the beast ! I intead on giving it a good punch in the nose too ! I will be writing down what you have posted for my team...for after surgery. God bless ! Katie
  • KareGiver
    KareGiver Member Posts: 301 Member

    Amen!
    I say take that news!! Keep positive....one day at a time...just as you've told the rest of us. :)

    Okay, Mike...
    I read this post after posting about disability. Not that I would change anything about that, I am SO HAPPY to hear that your scans showed improvement!

    Randy just started today with a new trial - randomized to MEHD7945A. All palliative. We'll take it.

    We wish you good luck, mojo, prayers, ALL OF IT, and to live life as long and as well as possible.

    Take care...

    Lynda
  • D Lewis
    D Lewis Member Posts: 1,581 Member
    Great news!
    Now that's the news I was waitng for! Excellent. Fight on!

    Deb
  • phrannie51
    phrannie51 Member Posts: 4,716
    WHOO HOO!!!
    Oh Mike, this is wonderful news....I am SO relieved for you! I gotta tell you, I read this, then I had to wait and wait and wait to respond...(site is moving like molassis)...it was driving me crazy cuz I wanted to congratulate you fast...not wait 30 minutes for this thing to change screens....LOL

    Treatment is working...take the good news and run with it... :)

    p
  • Tim6003
    Tim6003 Member Posts: 1,514 Member

    WHOO HOO!!!
    Oh Mike, this is wonderful news....I am SO relieved for you! I gotta tell you, I read this, then I had to wait and wait and wait to respond...(site is moving like molassis)...it was driving me crazy cuz I wanted to congratulate you fast...not wait 30 minutes for this thing to change screens....LOL

    Treatment is working...take the good news and run with it... :)

    p

    Wonderful News
    It is not yet your time Mike. Spend it well and spend it wisely!! :)

    It's funny how all of us as humans know we all will die one day ...but something about those of us who have actually received an RSVP in the spiritual mail / mental mail appreciate so much more the life we have .....

    I say don't respond to the RSVP and show up when you are ready on your time!!! LOL

    Great news,

    Best,

    Tim
  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    GOOD scan update
    Mike,

    I held my breath when I clicked “Scan Update”. My goodness what terrific news, Christmas came early for all of us. I am just so explosively happy for you.

    I think of you every time I see my Erbitux freckles and hope all is well. Now I can check out your other post without fear.

    Best,

    Matt
  • Hard12Find
    Hard12Find Member Posts: 217 Member
    Very Good!!
    Mike,
    What a wonderful relief that must have been to hear. I am so happy you are getting some good news here on the second trip.....
    We all love you and are praying and pulling for you.....
    Keep posting the good news.
    Jim
  • Billie67
    Billie67 Member Posts: 898

    Very Good!!
    Mike,
    What a wonderful relief that must have been to hear. I am so happy you are getting some good news here on the second trip.....
    We all love you and are praying and pulling for you.....
    Keep posting the good news.
    Jim

    Awesome!
    I knew it! Like I said my dr swears that erbitux is an amazing drug for this type of thing. I am so happy for you!!
    You will continue to be in my prayers.
    Billie
  • ToBeGolden
    ToBeGolden Member Posts: 695
    Help Me!
    MIKE!
    Can you tell me anything about the clinical trial. Do you know its ID number or title. Who is it's sponsor. I have lung metastasis and looking for/at anything. Rick.
  • patricke
    patricke Member Posts: 570
    GOOD NEWS
    Alright Mike, having the tumors disappear is tremendous, congratulations! As you said, hopefully the combo is having the same effect on the lymph beasts as well, I send you my hopes and positive energy for continued success in your fight.

    PATRICK
  • Pam M
    Pam M Member Posts: 2,196
    Oh My Gracious!
    I was sitting here, letting myself feel down, then I read your post. Wow. Magnificent! you keep up the good work.
  • NoDuck
    NoDuck Member Posts: 134
    Great News Mike!
    Keep fighting the good fight! You are a winner!

    Deb
  • VanessaSLO
    VanessaSLO Member Posts: 283
    NoDuck said:

    Great News Mike!
    Keep fighting the good fight! You are a winner!

    Deb

    Wow, I just can't believe it. This is wonderful!!!!!!!
    Great news, it made me so happy! Just keep on fighting, hoping, praying and enjoying those battles you win!
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member

    Help Me!
    MIKE!
    Can you tell me anything about the clinical trial. Do you know its ID number or title. Who is it's sponsor. I have lung metastasis and looking for/at anything. Rick.

    CLINICAL TRIAL
    Rick, I will try to find some specifics for you. The Trial I am on involves 3 drugs, and one of them is manufactured in Europe, and the other is manufactured in the states. I want to say it is the Erbitux. The trial is following I think two criterias.

    The combination of drugs, Carboplatin, Erbitux, and I think they are studying the addition of the 96 hour infusion of 5FU.

    The other criteria i think is how simillar are the drugs that are made in Europe VS the USA.

    I am being treated at Alvin Sitemann Cancer Center, Barnes Jewish Hospital, Washington University in St. Louis, MO. I see my Onco. Monday and I will see if I can drill down for more info. I do know the study I am in, involves 230 people worldwide, and 21 are being treated at the same place as I, so I assume they are a big player in this particular study.

    Wish I could offer more, but they really do not even disclose very much to me regarding study details.

    My particular METs originated as SCC of the R tonsil and 34 nodes in the right side of my neck. it spread to the lower right lobe of my lung and also to the nodes in my Mediastynum, which is not good at all.

    Best!!

    Mike
  • Tonsil Dad
    Tonsil Dad Member Posts: 488

    Wow, I just can't believe it. This is wonderful!!!!!!!
    Great news, it made me so happy! Just keep on fighting, hoping, praying and enjoying those battles you win!

    Love it.!!!
    Fantastic news Mike,
    This is the kind of post I love to read, may you continue in the
    right direction with the rest of your treatment.

    God bless
    Tonsil dad,

    Dan.
  • Crazymom
    Crazymom Member Posts: 339 Member
    Congrats
    Great news! Stay strong! Ann
  • luvofmylif
    luvofmylif Member Posts: 344
    Crazymom said:

    Congrats
    Great news! Stay strong! Ann

    Happy that you received good
    Happy that you received good news. Hopefully it will make your holdiday celebration alot sweeter. Enjoy the good news and thank God for Siteman.

    Joan