Chemo mess up after terrible week

Ctine70
Ctine70 Member Posts: 150
Hi everyone,
Just need to vent some. Hope everyone had a nice Thanksgiving last week, know I'm last wishing it but my husbands grandfather passed away the day before the holiday and it was a long crazy week. Beside all the family drama side effects decided to pop up including my feet, ankle and legs swelling and my vision going all blurry. Just what you need when you have to wear heels for three straight days.
Anyway I go yesterday to get round 5 of chemo only to find out the nurse forgot to order my medicine. Have to go back this morning now for it.
But that doesn't mean I still didn't spend 4 1/2 hours there yesterday oh no! Because I have poor veins there is only one nurse who can feed the IV line and since she is off today she had to do it yesterday. Took her over 1 hour to fine a vein and feed it. I felt like a pin cushion. Than since I was already there they figure they hydrate me some so 3 more hours. Plus the doctor informed me that since my WBC always drops way too low they are going to go with 7 neurogen shots this round. I am so stressed and upset over this whole thing. I just want it o be over with.
I feel like I can't catch a break if I'm not sick from the chemo or shots my R.A is flaring really bad and I can't walk. The holidays are coming quick and I have been trying to do my best to get everything done so my kids will not miss out on anything but I have such few days of being well that's it hard and discouraging. I am nervous now that when I go there will be another mix up. Please tell me it gets better I know I am almost done, one more round to go after this but it was so much harder than I ever expected and starting to get to me know. This is my favorite time of year and I want to be able to enjoy it.
Thanks so much for listening and letting me vent it helped a lot.
You are all the best!

Lots of hugs
Christine

Comments

  • RozHopkins
    RozHopkins Member Posts: 578 Member
    Hi Christine
    Well I know what advice I should give, whether I'd take it myself is another question. I was so independent and wouldn't ask for help and when needed it hubby wouldn't have it. Everyone should be looking after you now and over Xmas. Don't know how old your children are but even little ones know if mum needs a cuddle and rest. This one time let them take over, you will feel worse before you get better and you have arthritis also which is bad enough. Exhaustion will kick in after last treatment. Took me months just to get going.

    Shame you didn't have a port, it would have made your chemo so much easier. Too late now. I would call day before or the morning of appointment to see if they have the right people available for your last treatment, it will cut down the time there some.

    Good luck and please relax over Xmas. Indulge yourself even though it is not the norm. Next year will be better. Right now only rest makes you heal and strengthen.
  • Kylez
    Kylez Member Posts: 3,761 Member

    Hi Christine
    Well I know what advice I should give, whether I'd take it myself is another question. I was so independent and wouldn't ask for help and when needed it hubby wouldn't have it. Everyone should be looking after you now and over Xmas. Don't know how old your children are but even little ones know if mum needs a cuddle and rest. This one time let them take over, you will feel worse before you get better and you have arthritis also which is bad enough. Exhaustion will kick in after last treatment. Took me months just to get going.

    Shame you didn't have a port, it would have made your chemo so much easier. Too late now. I would call day before or the morning of appointment to see if they have the right people available for your last treatment, it will cut down the time there some.

    Good luck and please relax over Xmas. Indulge yourself even though it is not the norm. Next year will be better. Right now only rest makes you heal and strengthen.

    I am sorry about your
    I am sorry about your husband's grandfather. You have my sympathy Christine. And, I am so sorry that you've been so sick. I wish you would have had a port put in. One more to go Christine and you will be done! Hang in there and I am praying you will feel better.


    Hugs, Kylez
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    Kylez said:

    I am sorry about your
    I am sorry about your husband's grandfather. You have my sympathy Christine. And, I am so sorry that you've been so sick. I wish you would have had a port put in. One more to go Christine and you will be done! Hang in there and I am praying you will feel better.


    Hugs, Kylez

    Sending lots of gentle hugs
    Sending lots of gentle hugs and lots of positive thoughts. We'll be here to celebrate your last chemo with you!


    Hugs, Jan
  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    Christine, I remember the
    Christine, I remember the end of chemo being hard. I was so tired! But you must be getting close to the end? Hang in there! I am praying that this will go by quickly and you will feel better soon. Big (((hugs))) and plesae vent anytime!
  • DebbyM
    DebbyM Member Posts: 3,289 Member

    Christine, I remember the
    Christine, I remember the end of chemo being hard. I was so tired! But you must be getting close to the end? Hang in there! I am praying that this will go by quickly and you will feel better soon. Big (((hugs))) and plesae vent anytime!

    You're almost done
    You're almost done Christine, done! You have had such a rough time with chemo and I am so sorry for that. Thanks for the update, even though I wish it would have been better news. We're here for you!


    Hugs, Debby
  • susie09
    susie09 Member Posts: 2,930
    DebbyM said:

    You're almost done
    You're almost done Christine, done! You have had such a rough time with chemo and I am so sorry for that. Thanks for the update, even though I wish it would have been better news. We're here for you!


    Hugs, Debby

    Hoping for much better days
    Hoping for much better days for you and getting ready to celebrate the end of chemo for you!
  • missrenee
    missrenee Member Posts: 2,136 Member
    susie09 said:

    Hoping for much better days
    Hoping for much better days for you and getting ready to celebrate the end of chemo for you!

    Oh, Christine, you're almost there
    I know how hard the last couple of chemos are, but you're almost at the finish line, honey. You're going to do this and then you're going to start feeling better. Adding this on top of a really sad, horrible week doesn't help you get through it.

    Please try to get as much rest as you can, and let anyone who offers give you some help and pampering.

    To better days, Hugs, Renee
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    Christine:
    I would call

    Christine:

    I would call before each appt and say I want to comfirm MY meds have been ordered and you HAVE THEM>....can't hurt...human error but took a toll on you...

    sorry about viens etc..I am the same way...and then ONLY ONE arm doesn't help the matter...

    Denise
  • jnl
    jnl Member Posts: 3,869 Member
    missrenee said:

    Oh, Christine, you're almost there
    I know how hard the last couple of chemos are, but you're almost at the finish line, honey. You're going to do this and then you're going to start feeling better. Adding this on top of a really sad, horrible week doesn't help you get through it.

    Please try to get as much rest as you can, and let anyone who offers give you some help and pampering.

    To better days, Hugs, Renee

    You've got lots of gentle
    You've got lots of gentle hugs coming your way today from me!


    Leeza
  • Megan M
    Megan M Member Posts: 3,000

    Christine:
    I would call

    Christine:

    I would call before each appt and say I want to comfirm MY meds have been ordered and you HAVE THEM>....can't hurt...human error but took a toll on you...

    sorry about viens etc..I am the same way...and then ONLY ONE arm doesn't help the matter...

    Denise

    When is your last chemo
    When is your last chemo Christine? I know it's been hard, but, try to focus on the fact that you're killing the cancer. Sending many prayers and hugs!
  • DebbyM
    DebbyM Member Posts: 3,289 Member
    Megan M said:

    When is your last chemo
    When is your last chemo Christine? I know it's been hard, but, try to focus on the fact that you're killing the cancer. Sending many prayers and hugs!

    How are you doing Christine?
    How are you doing Christine?

    Hugs, Debby
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    DebbyM said:

    How are you doing Christine?
    How are you doing Christine?

    Hugs, Debby

    Thinking of you too and
    Thinking of you too and wondering how you are.

    Hugs,

    Jan
  • Ritzy
    Ritzy Member Posts: 4,381 Member
    susie09 said:

    Hoping for much better days
    Hoping for much better days for you and getting ready to celebrate the end of chemo for you!

    Christine? Worrying about
    Christine? Worrying about you and wanting to hear that you've had that last chemo and hopefully are feeling better.


    Sue :)