GiGi's Anal Cancer Story - "I believe"

13

Comments

  • geneviasue
    geneviasue Member Posts: 89
    Jo Joy said:

    Be blessed this week and giving thanks for you on this journey
    Gigi,

    Thanks for the updates. It is comforting and awesome news to hear that you are well! I am thankful that God has given us each other to walk through this together at the same time. It is a short week for us due to Thanksgiving. I am scheduled for rad early on Thanksgiving day and get Friday off. I am taking my daughter with me that day, since she is coming home for Thanksgiving, so she can see where it is I go everyday for treatment, and what it is like so she can feel like she is involved even though she will be 450 miles away for most of it. Talk to you again after Thanksgiving. Have a blessed week my friend.

    Dup - Ignore
    I don't know how to delete a post so I'm just changing it.
  • StruTanToot
    StruTanToot Member Posts: 126 Member

    Day 9-16 Update
    These days have been pretty much normal except for minor diarrhea and some minor nausea. I started noticing some anus discomfort around day 12. It's kind of a raw feeling and similar to that you would feel after a day of diarrhea and wiping. No burning though..not like you would think when you hear burn anyway. Some anus itching which was very intense but has let up some over the weekend. This is personal but if it helps someone then so be it. After a couple of days of feeling raw, I stopped using toilet paper and started doing this. I have a sprayer nozzle on my shower/bath combo so everytime I "go", I simply sit on the side of my tub and use my sprayer to clean myself. The water is refreshing and I've noticed a significant improvement. I got the idea from others on this site that did something similar. My own homemade bidet I suppose.

    Take care everyone and I'll update after this week's treatment which is week 4.

    About the itching...mine was
    About the itching...mine was more in the groin area. I had read horror stories about itching (being worse than the pain) and was very worried when mine started. I read on this site though about Zyrtec. I got a small bottle to try and it WORKED! Even the small bottle lasted me a while. I think I just took one a day. Once I started taking Zyrtec, I did not itch at all.

    Also, it did not make me drowsy. A small dose of Benadryl knocks me out, so I didn't try it, but I have read that it has helped some people. Anyway, Zyrtec worked great for me.
  • geneviasue
    geneviasue Member Posts: 89

    About the itching...mine was
    About the itching...mine was more in the groin area. I had read horror stories about itching (being worse than the pain) and was very worried when mine started. I read on this site though about Zyrtec. I got a small bottle to try and it WORKED! Even the small bottle lasted me a while. I think I just took one a day. Once I started taking Zyrtec, I did not itch at all.

    Also, it did not make me drowsy. A small dose of Benadryl knocks me out, so I didn't try it, but I have read that it has helped some people. Anyway, Zyrtec worked great for me.

    StruTanToot
    Hey there,

    Zyrtec? I remember reading a post of yours about Zyrtec but had forgotten about it. Thanks for the reminder. I'll get some the next time I'm out. I'm like you in that I don't want to be drowsy and knocked out all the time either unless I'm in pain then by all means, knock me out!! lol

    God bless. Take care of yourself too!!

    GiGi
  • AZANNIE
    AZANNIE Member Posts: 445 Member

    Day 9-16 Update
    These days have been pretty much normal except for minor diarrhea and some minor nausea. I started noticing some anus discomfort around day 12. It's kind of a raw feeling and similar to that you would feel after a day of diarrhea and wiping. No burning though..not like you would think when you hear burn anyway. Some anus itching which was very intense but has let up some over the weekend. This is personal but if it helps someone then so be it. After a couple of days of feeling raw, I stopped using toilet paper and started doing this. I have a sprayer nozzle on my shower/bath combo so everytime I "go", I simply sit on the side of my tub and use my sprayer to clean myself. The water is refreshing and I've noticed a significant improvement. I got the idea from others on this site that did something similar. My own homemade bidet I suppose.

    Take care everyone and I'll update after this week's treatment which is week 4.

    GiGi
    I so remember the itching, but mine was on the front side about two weeks into radiation. When I told the nurse she said it was too soon for side effects...if they only knew... Anyway, wish I would thought of taking antihistimines like others have. Cortisone cream didn't even help. Yes, water is refreshing...

    Ann
  • geneviasue
    geneviasue Member Posts: 89
    AZANNIE said:

    GiGi
    I so remember the itching, but mine was on the front side about two weeks into radiation. When I told the nurse she said it was too soon for side effects...if they only knew... Anyway, wish I would thought of taking antihistimines like others have. Cortisone cream didn't even help. Yes, water is refreshing...

    Ann

    Ann
    I was treated for a Y infection in week 2 but wondering if that might be a part of this. Mine is sometimes in the front as well. I hate side effects!!

    God Bless

    Gigi
  • geneviasue
    geneviasue Member Posts: 89
    Day 17 - 21 Week 5
    Hello everyone,

    I thought I would update my progress into mid week 5. I'm doing amazing. The anus pain is only noticable with I "go" but that passes within minutes. It's basically a raw feeling, feeling of raw skin being rubbed. Well, I guess that is exactly what is it!! Duh..lol. Using Aquaphor which really helps . The 'v' (genital) outer skin is highly inflamed and very sensitive to touch but comfortable most of the time with the Aquaphor. I really only feel that when I bathe before treatment or when I'm initially sitting down. I realized this week what the "peeing razor blades' phrase meant. It's urine flowing over the inflamed skin in that area. I told my doctor about it and he prescribed a medicine given for bladder infections that has a numbing agent in it (turns urine orange). I took one and the pain was gone all day. Another God sent. I have no groin burns or rump burns. My doctor shared with me that I should be experiencing some skin burn at this point but I have none!! I credit this to specific prayers I prayed early on. The Lord tells us to ask for "what our heart desires" and that was it. Mild side effects from radiation. I also feel a lotion a friend referred to me has been a God sent. AndraSina. You can check it out online if you're interested.
    I have my week 5, 5FU pump on now. It will come off on Friday. Some mild nausea with these but nothing major. I had a skin rash last time but nothing noticeable yet. I also had tremors (shaky legs) and that returned yesterday. Jelly legs I called them. In other words, I can dance like a rapstar standing still. haha. WBC on up to 6500 and RBC up to 197k yesterday. And, the port stick was almost pain free this time which was another "PTL".
    I have 9 more radiation treatments after today so I'm definitely in the home stretch. My Lord and Saviour gave me confidence in His healing early on so I'm just here for the journey of His healing on my body. He has a purpose for me being here and I accept that purpose with all I am..on the good days and the bad. i'm also so grateful for the friends embracing me on this site. I appreciate you all from the depths of my heart.

    God Bless
    Gigi
    Psalm 121:3 NIV - "..He who watches over me will not slumber"
  • Marynb
    Marynb Member Posts: 1,118

    Day 17 - 21 Week 5
    Hello everyone,

    I thought I would update my progress into mid week 5. I'm doing amazing. The anus pain is only noticable with I "go" but that passes within minutes. It's basically a raw feeling, feeling of raw skin being rubbed. Well, I guess that is exactly what is it!! Duh..lol. Using Aquaphor which really helps . The 'v' (genital) outer skin is highly inflamed and very sensitive to touch but comfortable most of the time with the Aquaphor. I really only feel that when I bathe before treatment or when I'm initially sitting down. I realized this week what the "peeing razor blades' phrase meant. It's urine flowing over the inflamed skin in that area. I told my doctor about it and he prescribed a medicine given for bladder infections that has a numbing agent in it (turns urine orange). I took one and the pain was gone all day. Another God sent. I have no groin burns or rump burns. My doctor shared with me that I should be experiencing some skin burn at this point but I have none!! I credit this to specific prayers I prayed early on. The Lord tells us to ask for "what our heart desires" and that was it. Mild side effects from radiation. I also feel a lotion a friend referred to me has been a God sent. AndraSina. You can check it out online if you're interested.
    I have my week 5, 5FU pump on now. It will come off on Friday. Some mild nausea with these but nothing major. I had a skin rash last time but nothing noticeable yet. I also had tremors (shaky legs) and that returned yesterday. Jelly legs I called them. In other words, I can dance like a rapstar standing still. haha. WBC on up to 6500 and RBC up to 197k yesterday. And, the port stick was almost pain free this time which was another "PTL".
    I have 9 more radiation treatments after today so I'm definitely in the home stretch. My Lord and Saviour gave me confidence in His healing early on so I'm just here for the journey of His healing on my body. He has a purpose for me being here and I accept that purpose with all I am..on the good days and the bad. i'm also so grateful for the friends embracing me on this site. I appreciate you all from the depths of my heart.

    God Bless
    Gigi
    Psalm 121:3 NIV - "..He who watches over me will not slumber"

    Gigi
    God is good! I am so glad that you are doing well and that you are in the home stretch. Your faith will get you through this. I believe with my whole being that it was prayer that got me through with very few side effects. Of course, the skilled doctors had a bit to do with it....lol. You are still in. My prayers! I was never given any medication for the burning when I urinated. What I did was used a sport bottle of Poland Springs at room tempature and squirted it on the skin during and after urinating. It worked pretty well. I never even needed tylenol. Prayers, prayers and more prayers.

    Another little strategy that I will confess. I just saw a report on the efficacy of this, so I guess it isn't unique to me. I used Angry Birds! It is a game that my daughter loaded on my ipad! Lol. It took my mind of any pain. Now, mind you, I never played games before in my life. All the waiting in the hospital went by quickly. If you get to the point where your skin is burnt, or your blood counts get low, you may want to give it a try for the fun of it.

    You are in my prayers. We are truly blessed in so many ways. You will beat this and soon you will be cancer free!

    Hugs.

    Mary
  • BC331
    BC331 Member Posts: 12

    Day 17 - 21 Week 5
    Hello everyone,

    I thought I would update my progress into mid week 5. I'm doing amazing. The anus pain is only noticable with I "go" but that passes within minutes. It's basically a raw feeling, feeling of raw skin being rubbed. Well, I guess that is exactly what is it!! Duh..lol. Using Aquaphor which really helps . The 'v' (genital) outer skin is highly inflamed and very sensitive to touch but comfortable most of the time with the Aquaphor. I really only feel that when I bathe before treatment or when I'm initially sitting down. I realized this week what the "peeing razor blades' phrase meant. It's urine flowing over the inflamed skin in that area. I told my doctor about it and he prescribed a medicine given for bladder infections that has a numbing agent in it (turns urine orange). I took one and the pain was gone all day. Another God sent. I have no groin burns or rump burns. My doctor shared with me that I should be experiencing some skin burn at this point but I have none!! I credit this to specific prayers I prayed early on. The Lord tells us to ask for "what our heart desires" and that was it. Mild side effects from radiation. I also feel a lotion a friend referred to me has been a God sent. AndraSina. You can check it out online if you're interested.
    I have my week 5, 5FU pump on now. It will come off on Friday. Some mild nausea with these but nothing major. I had a skin rash last time but nothing noticeable yet. I also had tremors (shaky legs) and that returned yesterday. Jelly legs I called them. In other words, I can dance like a rapstar standing still. haha. WBC on up to 6500 and RBC up to 197k yesterday. And, the port stick was almost pain free this time which was another "PTL".
    I have 9 more radiation treatments after today so I'm definitely in the home stretch. My Lord and Saviour gave me confidence in His healing early on so I'm just here for the journey of His healing on my body. He has a purpose for me being here and I accept that purpose with all I am..on the good days and the bad. i'm also so grateful for the friends embracing me on this site. I appreciate you all from the depths of my heart.

    God Bless
    Gigi
    Psalm 121:3 NIV - "..He who watches over me will not slumber"

    Gigi
    This is such great news. I was wondering how you were doing now that you are over the 1/2 way mark. So glad to hear you are doing amazingly well. Im sure that your prayers and positive attitude are key. You are my inspiration these days. Im not exactly sure when my treatments will start but Im hoping soon. I saw the radiologist last week and I see the Medical oncologist on dec 4. Hopefully, it wont be too long after that. I just want to get it over with. Im sending you positive vibes over the next couple of weeks.
    God bless,
    Britta
  • mp327
    mp327 Member Posts: 4,440 Member

    Day 17 - 21 Week 5
    Hello everyone,

    I thought I would update my progress into mid week 5. I'm doing amazing. The anus pain is only noticable with I "go" but that passes within minutes. It's basically a raw feeling, feeling of raw skin being rubbed. Well, I guess that is exactly what is it!! Duh..lol. Using Aquaphor which really helps . The 'v' (genital) outer skin is highly inflamed and very sensitive to touch but comfortable most of the time with the Aquaphor. I really only feel that when I bathe before treatment or when I'm initially sitting down. I realized this week what the "peeing razor blades' phrase meant. It's urine flowing over the inflamed skin in that area. I told my doctor about it and he prescribed a medicine given for bladder infections that has a numbing agent in it (turns urine orange). I took one and the pain was gone all day. Another God sent. I have no groin burns or rump burns. My doctor shared with me that I should be experiencing some skin burn at this point but I have none!! I credit this to specific prayers I prayed early on. The Lord tells us to ask for "what our heart desires" and that was it. Mild side effects from radiation. I also feel a lotion a friend referred to me has been a God sent. AndraSina. You can check it out online if you're interested.
    I have my week 5, 5FU pump on now. It will come off on Friday. Some mild nausea with these but nothing major. I had a skin rash last time but nothing noticeable yet. I also had tremors (shaky legs) and that returned yesterday. Jelly legs I called them. In other words, I can dance like a rapstar standing still. haha. WBC on up to 6500 and RBC up to 197k yesterday. And, the port stick was almost pain free this time which was another "PTL".
    I have 9 more radiation treatments after today so I'm definitely in the home stretch. My Lord and Saviour gave me confidence in His healing early on so I'm just here for the journey of His healing on my body. He has a purpose for me being here and I accept that purpose with all I am..on the good days and the bad. i'm also so grateful for the friends embracing me on this site. I appreciate you all from the depths of my heart.

    God Bless
    Gigi
    Psalm 121:3 NIV - "..He who watches over me will not slumber"

    Hi Gigi!
    It sounds like you are doing great, all things considered! I'm very happy to hear this! Hang in there--soon you'll be done!
  • pializ
    pializ Member Posts: 508 Member
    mp327 said:

    Hi Gigi!
    It sounds like you are doing great, all things considered! I'm very happy to hear this! Hang in there--soon you'll be done!

    Hi Gigi
    I'm impressed! You are doing good girl! Let us know how you are xxx
  • sandysp
    sandysp Member Posts: 868 Member
    Hello
    Hi Gigi

    I can't believe I haven't chimed in all this time. I am so amazed at how well you expressed yourself all the way through your anal cancer journey - from day one! God bless you!

    I know you are in the roughest time period ( at least it was for me). Hope you breeze through this final run toward full recovery.

    All the best,
    Sandy
  • AZANNIE
    AZANNIE Member Posts: 445 Member

    Day 17 - 21 Week 5
    Hello everyone,

    I thought I would update my progress into mid week 5. I'm doing amazing. The anus pain is only noticable with I "go" but that passes within minutes. It's basically a raw feeling, feeling of raw skin being rubbed. Well, I guess that is exactly what is it!! Duh..lol. Using Aquaphor which really helps . The 'v' (genital) outer skin is highly inflamed and very sensitive to touch but comfortable most of the time with the Aquaphor. I really only feel that when I bathe before treatment or when I'm initially sitting down. I realized this week what the "peeing razor blades' phrase meant. It's urine flowing over the inflamed skin in that area. I told my doctor about it and he prescribed a medicine given for bladder infections that has a numbing agent in it (turns urine orange). I took one and the pain was gone all day. Another God sent. I have no groin burns or rump burns. My doctor shared with me that I should be experiencing some skin burn at this point but I have none!! I credit this to specific prayers I prayed early on. The Lord tells us to ask for "what our heart desires" and that was it. Mild side effects from radiation. I also feel a lotion a friend referred to me has been a God sent. AndraSina. You can check it out online if you're interested.
    I have my week 5, 5FU pump on now. It will come off on Friday. Some mild nausea with these but nothing major. I had a skin rash last time but nothing noticeable yet. I also had tremors (shaky legs) and that returned yesterday. Jelly legs I called them. In other words, I can dance like a rapstar standing still. haha. WBC on up to 6500 and RBC up to 197k yesterday. And, the port stick was almost pain free this time which was another "PTL".
    I have 9 more radiation treatments after today so I'm definitely in the home stretch. My Lord and Saviour gave me confidence in His healing early on so I'm just here for the journey of His healing on my body. He has a purpose for me being here and I accept that purpose with all I am..on the good days and the bad. i'm also so grateful for the friends embracing me on this site. I appreciate you all from the depths of my heart.

    God Bless
    Gigi
    Psalm 121:3 NIV - "..He who watches over me will not slumber"

    Hi Gigi
    Yes, you're on the home stretch! I so remember the burning during urination. I used a squirt bottle filled with water. So glad you don't have burns!!!
    Wishing you the best!

    Ann
  • geneviasue
    geneviasue Member Posts: 89
    sandysp said:

    Hello
    Hi Gigi

    I can't believe I haven't chimed in all this time. I am so amazed at how well you expressed yourself all the way through your anal cancer journey - from day one! God bless you!

    I know you are in the roughest time period ( at least it was for me). Hope you breeze through this final run toward full recovery.

    All the best,
    Sandy

    Everyone is Amazing!!
    I'm still amazed somedays at the overwhelming responces of support. I appreciate you all so much. It's such an encouragement to have friends I don't even know praying for me and giving me all kinds of High 5's.
    Friday was my worst day yet. I had gotten constipated during the last week of chemo. I should have taken more softeners but I didn't. I'm much better now and just resting.
    I have 6 treatments left and think that I may ask for 3 this week and 3 next week. Just so I have a good break in between.

    And yes, this is the toughest part so far and I still have 6 more treatments. Most everything everyone has said about the process is true but I just want newbies to know..it's controllable..it's doable. I expected a burn like when you burn yourself on the stove. That isn't what this is..at least not mine. This is much more of a raw, inflamed feeling. Which for me is the better of the two. Coated with Aquaphor is almost unnoticable when resting.

    Well, thanks again everyone.

    God Bless

    GiGi
  • lizdeli
    lizdeli Member Posts: 569 Member

    Everyone is Amazing!!
    I'm still amazed somedays at the overwhelming responces of support. I appreciate you all so much. It's such an encouragement to have friends I don't even know praying for me and giving me all kinds of High 5's.
    Friday was my worst day yet. I had gotten constipated during the last week of chemo. I should have taken more softeners but I didn't. I'm much better now and just resting.
    I have 6 treatments left and think that I may ask for 3 this week and 3 next week. Just so I have a good break in between.

    And yes, this is the toughest part so far and I still have 6 more treatments. Most everything everyone has said about the process is true but I just want newbies to know..it's controllable..it's doable. I expected a burn like when you burn yourself on the stove. That isn't what this is..at least not mine. This is much more of a raw, inflamed feeling. Which for me is the better of the two. Coated with Aquaphor is almost unnoticable when resting.

    Well, thanks again everyone.

    God Bless

    GiGi

    GiGi
    So glad to hear that you are doing well considering the treatments you are going through. You are on the home stretch. With 6 more radiation treatments to go it sounds like you are doing remarkably well, for which I am so happy. Your attitude is amazing which does help us fight the beast. I did burn severely (my skin was literally black) but I also healed very quickly after the radiation was finished. For me, the internal itch was the absolute worse thing because it was internal I couldn't put any creams or anything on it. I remember punching a wall once or twice because it was so unbearable. Long after treatment someone asked me, "did you try benadryl". Duh....I nor my doctors never thought of it! I had pain meds but they don't work for itching. I wish you continued strength and healing. I am so sorry you have to go through this, but I can tell you are already an inspiration and source of comfort to others who are sadly new to this journey. My wish is that no one will need to come to this forum, but sadly we will continue to have newbies until this disease is conquered. People like yourself and others on this forum are a blessing.
    Stay strong!
    Hugs,
    Liz
  • Marynb
    Marynb Member Posts: 1,118

    Everyone is Amazing!!
    I'm still amazed somedays at the overwhelming responces of support. I appreciate you all so much. It's such an encouragement to have friends I don't even know praying for me and giving me all kinds of High 5's.
    Friday was my worst day yet. I had gotten constipated during the last week of chemo. I should have taken more softeners but I didn't. I'm much better now and just resting.
    I have 6 treatments left and think that I may ask for 3 this week and 3 next week. Just so I have a good break in between.

    And yes, this is the toughest part so far and I still have 6 more treatments. Most everything everyone has said about the process is true but I just want newbies to know..it's controllable..it's doable. I expected a burn like when you burn yourself on the stove. That isn't what this is..at least not mine. This is much more of a raw, inflamed feeling. Which for me is the better of the two. Coated with Aquaphor is almost unnoticable when resting.

    Well, thanks again everyone.

    God Bless

    GiGi

    Gigi
    Thank God that you are almost finished! I am still praying for you. Soon you will be cqncer free. Do your doctors advise splitting up thhe last 6 treatmets up? If you and tolerate it, I would not give a cancer cell a chance to survive. You have been so strong! Stay in faith and know that God will heal you quickly.

    Hugs.

    Mary
  • mp327
    mp327 Member Posts: 4,440 Member
    Marynb said:

    Gigi
    Thank God that you are almost finished! I am still praying for you. Soon you will be cqncer free. Do your doctors advise splitting up thhe last 6 treatmets up? If you and tolerate it, I would not give a cancer cell a chance to survive. You have been so strong! Stay in faith and know that God will heal you quickly.

    Hugs.

    Mary

    Hi Gigi
    I'm glad you are able to see the finish line now! I hope you are still doing fairly well at this point. You mentioned possibly taking a short break and splitting up your 6 remaining treatments. I have to agree with Mary in that I would not take a break if you can keep going. You have those cancer cells backed into the corner right now and I would not give a single one of them any chance to make an escape! I was in pretty bad shape when I only had a few treatments left. My rad onc told me I could take a break if I wanted to. I chose not to. I just wanted to get it over with and also felt that it would be my best chance at killing the beast. Stay strong and you can do this!
  • 7243
    7243 Member Posts: 249 Member

    Everyone is Amazing!!
    I'm still amazed somedays at the overwhelming responces of support. I appreciate you all so much. It's such an encouragement to have friends I don't even know praying for me and giving me all kinds of High 5's.
    Friday was my worst day yet. I had gotten constipated during the last week of chemo. I should have taken more softeners but I didn't. I'm much better now and just resting.
    I have 6 treatments left and think that I may ask for 3 this week and 3 next week. Just so I have a good break in between.

    And yes, this is the toughest part so far and I still have 6 more treatments. Most everything everyone has said about the process is true but I just want newbies to know..it's controllable..it's doable. I expected a burn like when you burn yourself on the stove. That isn't what this is..at least not mine. This is much more of a raw, inflamed feeling. Which for me is the better of the two. Coated with Aquaphor is almost unnoticable when resting.

    Well, thanks again everyone.

    God Bless

    GiGi

    Last treatments
    Gigi ... I've been following your journey and pray this moment you are able to continue to "fight the good fight " these next few days ... Sometimes I don't know how I made it to and through the last few treatments. I could not sit and actually recall I didn't wear panties the last treatments or they were down around my thighs i was so burned, Raw and weapy ... We are honest here!

    Do everything you can to NOT take a break unless you have a serious complication like an open wound or fistula. Or your rad Onc says it is best. All the research states breaks not recommended if at all possible!

    Strength to you dear girl as you push toward the finish line ... A true race for our lives. You will get there!

    If you peer over your shoulder at the journey so far ... See that one set of footprints? He is carrying you so you have the strength to to this hard work right now! I know you Believe!

    Big hug!
  • sephie
    sephie Member Posts: 650 Member

    Day 17 - 21 Week 5
    Hello everyone,

    I thought I would update my progress into mid week 5. I'm doing amazing. The anus pain is only noticable with I "go" but that passes within minutes. It's basically a raw feeling, feeling of raw skin being rubbed. Well, I guess that is exactly what is it!! Duh..lol. Using Aquaphor which really helps . The 'v' (genital) outer skin is highly inflamed and very sensitive to touch but comfortable most of the time with the Aquaphor. I really only feel that when I bathe before treatment or when I'm initially sitting down. I realized this week what the "peeing razor blades' phrase meant. It's urine flowing over the inflamed skin in that area. I told my doctor about it and he prescribed a medicine given for bladder infections that has a numbing agent in it (turns urine orange). I took one and the pain was gone all day. Another God sent. I have no groin burns or rump burns. My doctor shared with me that I should be experiencing some skin burn at this point but I have none!! I credit this to specific prayers I prayed early on. The Lord tells us to ask for "what our heart desires" and that was it. Mild side effects from radiation. I also feel a lotion a friend referred to me has been a God sent. AndraSina. You can check it out online if you're interested.
    I have my week 5, 5FU pump on now. It will come off on Friday. Some mild nausea with these but nothing major. I had a skin rash last time but nothing noticeable yet. I also had tremors (shaky legs) and that returned yesterday. Jelly legs I called them. In other words, I can dance like a rapstar standing still. haha. WBC on up to 6500 and RBC up to 197k yesterday. And, the port stick was almost pain free this time which was another "PTL".
    I have 9 more radiation treatments after today so I'm definitely in the home stretch. My Lord and Saviour gave me confidence in His healing early on so I'm just here for the journey of His healing on my body. He has a purpose for me being here and I accept that purpose with all I am..on the good days and the bad. i'm also so grateful for the friends embracing me on this site. I appreciate you all from the depths of my heart.

    God Bless
    Gigi
    Psalm 121:3 NIV - "..He who watches over me will not slumber"

    no break in radiation reccommended by MDA
    gigi if you can do NOT take a break. I was in ICU with multiple IV's in each arm and the radiation team came in and said if I could do it , to let them roll me in and finish the radiation... that it would be best for fighting this horrific cancer. so they rolled me in on the bed and picked me up and placed me on the table with my IV's and all... i only had 3 or 4 left to do. you can do it .... i was burned severely and swollen but here i am today. hugs sephie
  • geneviasue
    geneviasue Member Posts: 89
    Mid week 6
    I'm doing okay. The genital burns have progressed which means anything in a moist area is raw. Let me say this though, with Aquaphor I'm ok and can get easy and rest. Im definitely glad I have the bladder med to reduce the pee sting. I now have "tanner" skin in the groin area but still not red there.I have 4 days left with radiation. I'm going to do them without a break as I had thought. I took your thoughts into consideration and figured why delay me kicking cancers butt instead of allowing it to kick mine. A little less appetite this week and I'm really only hunger for healthy things..no junk or sweets. That tells me my body needs nutrition instead of just food.
    Thanks everyone for your positive thoughts and keep me in your prayers these last few days and the immediate days after.
  • Marynb
    Marynb Member Posts: 1,118

    Mid week 6
    I'm doing okay. The genital burns have progressed which means anything in a moist area is raw. Let me say this though, with Aquaphor I'm ok and can get easy and rest. Im definitely glad I have the bladder med to reduce the pee sting. I now have "tanner" skin in the groin area but still not red there.I have 4 days left with radiation. I'm going to do them without a break as I had thought. I took your thoughts into consideration and figured why delay me kicking cancers butt instead of allowing it to kick mine. A little less appetite this week and I'm really only hunger for healthy things..no junk or sweets. That tells me my body needs nutrition instead of just food.
    Thanks everyone for your positive thoughts and keep me in your prayers these last few days and the immediate days after.

    Gigi

    Hang in there! You will get through this and cancer in your body will be history! I am so glad that you are doing well. Not much longer! You can do this. You are in my prayers.

    Eat lots of protein and drink plenty of water! You may get worse before you get better, but you will heal quickly. Just make sure there is no lotion left on your skin when you go in for radiation.

    Hugs.

    Mary