Another bad scan ***Replys to ya all

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Comments

  • Varmint5
    Varmint5 Member Posts: 384 Member
    #22
    janie1 said:

    Hi Sandy
    Thanks for your reply.
    I am one of the unsuccessful people who got the HAI a little over a year ago. I had wasted time going to a local oncologist when I was first diagnosed (who doesn't). Later I got the pump, and after using it twice the liver enzymes elevated (not too bad), but onc wanted to be cautious. She was getting me set up for future surgery.

    Anyway, the pump was only used twice, then I had surgery, which in hindsight was probably too soon. I actually thought it was too soon back then, but I didn't speak up, thinking this "team" has more experience than I do.
    Immediately, following surgery, tumors began popping up. I had RFA twice, and 1 lymph node by liver radiated.....now the latest 3 new tumors. Now using avastin which hadn't been used before, but that's no cure

    I knew you were thinking about it for your daughter and then she had the sir spheres, so i am hoping that is keeping things at bay for her.
    I've travelled to NY many, many times, and it hasn't been easy, but glad I tried.
    It's most effective it appears, when the liver can be resected first, then the pump will "help" keep the liver tumor-free. I've talked to a lot of people with the pump. I can't say I know of anyone that had the pump first, then resected......and stayed clear. I'm sure there must be some people that did it the way that I did......I just don't know of any.

    I agree with you
    I agree that two treatments probably wasn't enough. But how are we supposed to know these things? Long story about my daughter's experience with Theraspheres but the jury is still out... I'll have to post the story here when I get time. I don't know where you live but it might be something for you to check out - SIR Spheres. Suzanne Lindley at www.beatlivertumors.org knows everything there is to know about it. She has a hotline you can call. I had checked into HAI at a major cancer center near here for my daughter and that all fell apart. I just don't know very many people who have had it, and like you, most that I have met had the surgery then the pump implanted and HAI started at that time. Hang in there, Janie.

    Sandy
  • Phil64
    Phil64 Member Posts: 838 Member
    #23
    Similar boat???
    Janie,

    I think I may end up in a similar boat as you. So far, eight FolFox treatments done. CT and PET Scan show a small (3mm) nodule in right lung. They will re-scan in a few more weeks to see if it's growing or if it goes away. Obviously I'm hoping it will go away, but it is in the lower lobe, right lung -- same place I already had a met removed.

    If it's growing the onc said that FolFox is not working. He mentioned Erbitux and FOLFIRI as an alternative treatment. He is testing KRAS mutation now to see if these will be options.

    I think it stinks to have gone through FolFox treatments only to find out that it may not have helped me at all. Suffering those side affects and finding out that it may not have helped is very FRUSTRATING.

    My CEA has been climbing too. After initial surgeries (colon and lung resections) my CEA droped to 3.7 (near normal). It has climbed and last check was 10.2. Onc says it may be related to chemo treatments, but also said if it keeps climbing we will likely do additional scans several more weeks down the line.

    Bottom line for me is I have to keep a positive outlook for my wife and family's sake... And hope that I can handle the side-affects from further treatments (if we have to switch).

    Fighting cancer takes a lot out of a person.

    Good luck with your fight!!!

    And God Bless us all!!!
  • dmj101
    dmj101 Member Posts: 527 Member
    #24
    We all have these dark
    We all have these dark moments. Please don't let them take you under.. I know it is hard to chase them away.. I have them too.. I wonder why it is exactly we fight. but I am sure we all have our reasons....
    I have no advise medical wise that has not already been offered..
    I am not into beimg a rah rah so I will just say.. Luck Love and Laughter can be found by looking into our souls and I hope you will not quit the fight...
  • luvinlife2
    luvinlife2 Member Posts: 172 Member
    #25
    jasminsaba said:

    Hyperthermia clinic information
    Hi there luvinlife2 - I was wondering if you'd be willing to message me the name and contact for your hyperthermia clinic in BC. I have family in Vancouver ... and a friend there who might be interested in this treatment. I would appreciate your help.

    Just saw this...
    I'll pm you :)

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