coffee in baden baden germany anyone ? Removab UPDATED

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  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    janie1 said:

    Good to hear from you,
    Good to hear from you, Pete. Continually praying for everyone here. I hope all goes well in Germany. Guess there's still time to do the Hipec. If you havent heard from them yet on the surgery......then i dont see why you wouldnt want to keep researching, if from what you find out on the tour that it has delivered results. I hope what you learn is truthful and full disclosure. Please be safe.

    thanks janie and marie
    these are really the toughest days, i feel like buckling under the pressure.

    my onc today said he knows the onc overseas, that they are to be respected and he said you can always try what available here locally if needed when you get back.

    i am the third of his patients going on this current tour, so i will be travelling with like minded cancer patients from sydney, half way around the world. i thought he would say i was foolish, but I felt somewhat reassured that i am heading to where the worlds best care maybe found.

    time will tell. i hope these monoclonal antibodies and the other treatments.

    getting my chemo port back in 7am tomorrow, called the german clinic, chatted with my newest onc breifly. getting the port in is a good idea.

    hugs,
    Pete

    ps if the cancer does not get me then these steamed sheeps brains will. they are the worst i have tasted. i have asked alt doc 6 if the sheep brains are eseential. he said yes. you know some good old fashioned chemo is not as scary as it used to be, now i eat sheeps brains and sea cucumbers.

    what next mouse antibodies ? well actually yes. 9 days and counting to the beginning of another experiement. removeab

    pps no answer hipec team yet! kind of relieved.
  • pog451
    pog451 Member Posts: 20

    thanks janie and marie
    these are really the toughest days, i feel like buckling under the pressure.

    my onc today said he knows the onc overseas, that they are to be respected and he said you can always try what available here locally if needed when you get back.

    i am the third of his patients going on this current tour, so i will be travelling with like minded cancer patients from sydney, half way around the world. i thought he would say i was foolish, but I felt somewhat reassured that i am heading to where the worlds best care maybe found.

    time will tell. i hope these monoclonal antibodies and the other treatments.

    getting my chemo port back in 7am tomorrow, called the german clinic, chatted with my newest onc breifly. getting the port in is a good idea.

    hugs,
    Pete

    ps if the cancer does not get me then these steamed sheeps brains will. they are the worst i have tasted. i have asked alt doc 6 if the sheep brains are eseential. he said yes. you know some good old fashioned chemo is not as scary as it used to be, now i eat sheeps brains and sea cucumbers.

    what next mouse antibodies ? well actually yes. 9 days and counting to the beginning of another experiement. removeab

    pps no answer hipec team yet! kind of relieved.

    Dont forget sheeps brains is
    Dont forget sheeps brains is one of the major ingredient of haggis, which is really good if done well...
  • manwithnoname
    manwithnoname Member Posts: 402

    thanks janie and marie
    these are really the toughest days, i feel like buckling under the pressure.

    my onc today said he knows the onc overseas, that they are to be respected and he said you can always try what available here locally if needed when you get back.

    i am the third of his patients going on this current tour, so i will be travelling with like minded cancer patients from sydney, half way around the world. i thought he would say i was foolish, but I felt somewhat reassured that i am heading to where the worlds best care maybe found.

    time will tell. i hope these monoclonal antibodies and the other treatments.

    getting my chemo port back in 7am tomorrow, called the german clinic, chatted with my newest onc breifly. getting the port in is a good idea.

    hugs,
    Pete

    ps if the cancer does not get me then these steamed sheeps brains will. they are the worst i have tasted. i have asked alt doc 6 if the sheep brains are eseential. he said yes. you know some good old fashioned chemo is not as scary as it used to be, now i eat sheeps brains and sea cucumbers.

    what next mouse antibodies ? well actually yes. 9 days and counting to the beginning of another experiement. removeab

    pps no answer hipec team yet! kind of relieved.

    Thought it was
    piglet brains...that's what I read.
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member

    Thought it was
    piglet brains...that's what I read.

    I will ask the guru at the German clinic
    I think it the lipids, sheep or piglet will do.
    Hugs,
    Pete
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member

    Thought it was
    piglet brains...that's what I read.

    I will ask the guru at the German clinic
    I think its the lipids, sheep or piglet will do.
    Hugs,
    Pete
  • lepperl
    lepperl Member Posts: 39
    Rooting for you
    Good Luck pete! The list of side effects posted looks similar to chemo side effects. I am hopeful they are minimal for you and you have great results! Keep us posted
    Lori
  • sdp
    sdp Member Posts: 181
    Germany
    Hi,

    I just did my colon and liver resection at Regensburg univ hospital in Germany, an hour from Munich.

    I am from India . The Docs there did not offer me any alternative or diet tips etc , pretty much e standard protocol.

    I just got back to India after 3 months in Germany. There is a hyperthermia treatment centre in frankfurt.

    Dr vogl , I believe, has treated farah fawcett and is in Frankfurt.

    I also visited bad ailing, st George clinic briefly .

    They wanted all details of reports etc before they advise on any follow up treatment.

    I still have two balance cycles of FOLFOX plus erbitux to complete ( from the standard 12 cycles )

    I had done 10 before the resection surgery.

    I think I will pursue the other treatments after completing the adjuvant chemo.

    Have neuropathy from the earlier chemo, mild though. Just some numbness.

    Have been off chemo since last 4 months. The mouth sores nd the erbitux rash have disappeared.

    I am afraid that this may return when I restart the chemo , though it is just two cycles.

    Will it help that I have been off chemo since 4 months or is the
    Cumulative effect as they say?

    I was taking supplements earlier. Stopped them also while on surgery since last 4 months.

    Will restart again in a week, once the healing of the liver I feel is done.

    Any suggestions or comments and advice welcome.

    Sdp
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    lepperl said:

    Rooting for you
    Good Luck pete! The list of side effects posted looks similar to chemo side effects. I am hopeful they are minimal for you and you have great results! Keep us posted
    Lori

    thanks Lori, but
    Pray for the sides for me, the stronger the side, the better the effect
    The port is in ok.
    Packing, organising flights.
    Hugs,
    Pete
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    the third shot 10 ug removab
    http://petertrayhurn.blogspot.de/2012/11/third-removab.html

    come on mouse antibodies tag the crc's so i can get back to diving, next year i will win the underwater photographer of the year. mark my words!

    hugs,
    Pete

    ps so glad i have strengthened my poor liver, its getting hammered literally now. cashing in some health savings in the interest of the big picture. a few tears a flowin and i really can hardly type.
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member

    the third shot 10 ug removab
    http://petertrayhurn.blogspot.de/2012/11/third-removab.html

    come on mouse antibodies tag the crc's so i can get back to diving, next year i will win the underwater photographer of the year. mark my words!

    hugs,
    Pete

    ps so glad i have strengthened my poor liver, its getting hammered literally now. cashing in some health savings in the interest of the big picture. a few tears a flowin and i really can hardly type.

    I made it
    So I had a real high temp for a real long time.
    I did not have constant vomiting and diarrhea as I did previously and many here have experienced.

    I think I am finished removab for at least 7 months.
    starting some other therapies real soon.

    When I have some detailed test results indicating removab effectivness I will post them here.
    that shoudl take 2 to 3 weeks.

    hugs,
    Pete
  • marqimark
    marqimark Member Posts: 242 Member
    I hope the treatments take


    Hope you get the great results from this treatment that you are looking for..

    Doesn't sound like your trip to Europe was much of a vacation!!

    Looking forward to your follow up report

    Best as always

    Mark
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    marqimark said:

    I hope the treatments take


    Hope you get the great results from this treatment that you are looking for..

    Doesn't sound like your trip to Europe was much of a vacation!!

    Looking forward to your follow up report

    Best as always

    Mark

    thanks marc and all HER2 receptor status for colorectal
    this is a status update for my oncologist backhome and asking about my her2 status.
    about 11% crc are her2, if i am i have some extra options.

    the treatment if i am her2 positive involves apoptosis inducers, not precisely sure on the details, but the therapy can occur now removab is finished. it shows the principle of keeping your local care team in the loop so that a continuity of care can occur when i return home. so i get info i need hopefully, they may have to retrieve the tumour sample from the lab.

    EMAIL UPDATE BELOW

    Doctor Copic my oncologist at Hallwangen Clinic has asked me to find my HER2 receptor status, the link below provides some back ground.

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2648993/

    I have successfully complete one chemo embolisation with mitomycinin and avastin and three rounds of removab. a few more localised chemo embolisations are planned to target remaining peritoneal mets, lung and liver mets subject to the degree of response with removab.

    going forward I will be having dendtretic cell vaccine made using the most effacious version of ndv combined with an apotosis inducer antigen developed by tim from sydney in aigt. David if you know Tim, let him know his great research is being tested on a fellow sydney sider who is very very grateful he shared his protein description with doctor nestlehut team. the optimum time frame dendretic cell vaccine and immune system preparation and monitoring for me is 4 months per detailed discussions research scientists at the dendtretic cell clinic.

    I also need to under go serious chelation to get the platinum out from my folfox.

    David, you may need to contact eva segalov to obtain my her2 status if its possible. please pass on my kindest regards to her and alison her receptionist. I will bring then some flowers when i am in complete remission, i am not coming home until that occurs.

    David, would you mind letting professor Morris know that I am still in active treatment here and that I expect to be here until after Christmas

    I hope you don't mind being my point of contact while in therapy here, but as you would be my oncologist when I return I feel its professional to keep you updated. If you are ever interested my blog is updated each few days with my obsessive research and whats going on.

    http://petertrayhurn.blogspot.de/2012/11/third-removab.html
  • Lovekitties
    Lovekitties Member Posts: 3,364 Member

    thanks marc and all HER2 receptor status for colorectal
    this is a status update for my oncologist backhome and asking about my her2 status.
    about 11% crc are her2, if i am i have some extra options.

    the treatment if i am her2 positive involves apoptosis inducers, not precisely sure on the details, but the therapy can occur now removab is finished. it shows the principle of keeping your local care team in the loop so that a continuity of care can occur when i return home. so i get info i need hopefully, they may have to retrieve the tumour sample from the lab.

    EMAIL UPDATE BELOW

    Doctor Copic my oncologist at Hallwangen Clinic has asked me to find my HER2 receptor status, the link below provides some back ground.

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2648993/

    I have successfully complete one chemo embolisation with mitomycinin and avastin and three rounds of removab. a few more localised chemo embolisations are planned to target remaining peritoneal mets, lung and liver mets subject to the degree of response with removab.

    going forward I will be having dendtretic cell vaccine made using the most effacious version of ndv combined with an apotosis inducer antigen developed by tim from sydney in aigt. David if you know Tim, let him know his great research is being tested on a fellow sydney sider who is very very grateful he shared his protein description with doctor nestlehut team. the optimum time frame dendretic cell vaccine and immune system preparation and monitoring for me is 4 months per detailed discussions research scientists at the dendtretic cell clinic.

    I also need to under go serious chelation to get the platinum out from my folfox.

    David, you may need to contact eva segalov to obtain my her2 status if its possible. please pass on my kindest regards to her and alison her receptionist. I will bring then some flowers when i am in complete remission, i am not coming home until that occurs.

    David, would you mind letting professor Morris know that I am still in active treatment here and that I expect to be here until after Christmas

    I hope you don't mind being my point of contact while in therapy here, but as you would be my oncologist when I return I feel its professional to keep you updated. If you are ever interested my blog is updated each few days with my obsessive research and whats going on.

    http://petertrayhurn.blogspot.de/2012/11/third-removab.html

    Dear Pete
    You mention the need for serious chelaton needed due to platinum levels.

    Can you point me to info regarding what level is acceptable and what is high?

    I have been searching for info and can't locate anything in that regard.

    Do you know what your current level is? What are the ramifications of having too much platinum?

    Thanks,

    Marie who loves kitties
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member

    Dear Pete
    You mention the need for serious chelaton needed due to platinum levels.

    Can you point me to info regarding what level is acceptable and what is high?

    I have been searching for info and can't locate anything in that regard.

    Do you know what your current level is? What are the ramifications of having too much platinum?

    Thanks,

    Marie who loves kitties

    thanks marie
    dear marie,

    you always care and follow my crazy adventures, i put this together for you and also for an amazing doctor who cured a man of metastatic using combined chemo, surgery, chelation and advanced supplements.

    http://petertrayhurn.blogspot.de/2012/11/current-toxic-metal-problem-platinum.html

    ramifications can be immune suppression, mitocondrial dysfunction due to electrons, blocking of essential enzymes even when essential metals are present ie zinc.

    so maybe low stomach acid and poor nutrition.

    they call them toxic metals! i never wondered why. as if us cancer survivors don't have enough on our plate.

    hugs,
    pete

    ps if you have a spare weekend , goto my blog, search the sky is falling, download the zip file. its the mp3 recording of the toxic metals training seminar i went to in atlanta.
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    aussie govt info removab
    http://www.tga.gov.au/pdf/auspar/auspar-catumaxomab-121004.pdf

    the side effects are massive , experienced personally and witnessed here at the clinic.

    but the antibodies work i suspect and they are not chemo, so lets just hope.

    i am not recommending this, but sharing my experience as always.

    think of removab and say, you got to be cruel to be kind.

    hugs,
    pete

    ps but i have had some tumour regression and my immune system is working and starting some other therapies asap. i will find a way, and it will be the path least travelled.

    pps see the issues raised in my blog about removab, and her2 if your interested n this stuff.
    i also have some good papers in my technical documents on my goggle drive that show its effectiveness.