might be starting chemo, will know tomorrow, UPDATED no chemo hipec instead

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Comments

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #42
    ron50 said:

    Good luck mate
    Hugs To you and the family,Ron.

    thanks ron
    never a dull moment, whats a man to do. i am looking a cheap flights to germany, its school holidays and the blackforest sounds like fun. they have lots of hot thermal spas in a town called baden baden.

    I tried selling the family on ebay. stage 4 dad, hoarding mum and amazing kids. could find no buyers, so i am stuck with my amazing family. who wanted a boring normal life, wife anyway.

    if i order a skip bin for the rubbish my wife will kill me. her words. now that solves my cancer problem.

    she is making me a juice right now, she looks pretty good.

    decisions, decisions, decisions.

    have you heard of grace gawler on the gold coast ? i might pop up, or at least call her, she runs cancer center tours of the german clinics.

    hugs,
    Pete

    ps from a german doctor re Trifunctional antibody Removab

    Thank you for your query regarding treatment options at our clinic. Having looked at your results we would make the following suggestions:-
    A course of treatment (x3 systemic doses) of the tri-functional antibody Removab would likely be very effective. This is a new type of antibody which causes a rapid and significant immune response against the EpCAM receptors, which are highly expressed on gastro-intestinal tumour cells. This causes rapid killing of tumour cells, together with side effects much like a bad flu – aches and pains, fever, headache etc, together with elevated liver enzymes and CRP. We are very experienced with this and can manage this supportively. Another benefit of this treatment is that it activates an ongoing T-memory cell response, stimulating and targeting your immune reaction to the tumour cells much like a vaccination. It will get at the tumour cells wherever they are. Other options would also include low dose chemotherapy in combination with whole body hyperthermia as well as immune stimulation. We always provide a comprehensive supportive program as well. The tumour cell count is not too high, but given the rising tumour markers and the PET result, it is important to intervene soon. We would be happy to send you a cost estimate.

    http://www.bionity.com/en/news/125207/trifunctional-antibody-removab-from-fresenius-biotech-awarded-galenus-von-pergamon-prize-for-drug-innovation.html
  • wolfen
    wolfen Member Posts: 1,324 Member
    #43
    pete43lost_at_sea said:

    thanks ron
    never a dull moment, whats a man to do. i am looking a cheap flights to germany, its school holidays and the blackforest sounds like fun. they have lots of hot thermal spas in a town called baden baden.

    I tried selling the family on ebay. stage 4 dad, hoarding mum and amazing kids. could find no buyers, so i am stuck with my amazing family. who wanted a boring normal life, wife anyway.

    if i order a skip bin for the rubbish my wife will kill me. her words. now that solves my cancer problem.

    she is making me a juice right now, she looks pretty good.

    decisions, decisions, decisions.

    have you heard of grace gawler on the gold coast ? i might pop up, or at least call her, she runs cancer center tours of the german clinics.

    hugs,
    Pete

    ps from a german doctor re Trifunctional antibody Removab

    Thank you for your query regarding treatment options at our clinic. Having looked at your results we would make the following suggestions:-
    A course of treatment (x3 systemic doses) of the tri-functional antibody Removab would likely be very effective. This is a new type of antibody which causes a rapid and significant immune response against the EpCAM receptors, which are highly expressed on gastro-intestinal tumour cells. This causes rapid killing of tumour cells, together with side effects much like a bad flu – aches and pains, fever, headache etc, together with elevated liver enzymes and CRP. We are very experienced with this and can manage this supportively. Another benefit of this treatment is that it activates an ongoing T-memory cell response, stimulating and targeting your immune reaction to the tumour cells much like a vaccination. It will get at the tumour cells wherever they are. Other options would also include low dose chemotherapy in combination with whole body hyperthermia as well as immune stimulation. We always provide a comprehensive supportive program as well. The tumour cell count is not too high, but given the rising tumour markers and the PET result, it is important to intervene soon. We would be happy to send you a cost estimate.

    http://www.bionity.com/en/news/125207/trifunctional-antibody-removab-from-fresenius-biotech-awarded-galenus-von-pergamon-prize-for-drug-innovation.html

    Now, Pete
    I just love you and your humor. I'm so suprised that no one would buy your family on Ebay. You can buy almost ANYTHING there. Probably Elvis Presley's spit if you were looking for it.LOL

    Seriously though, I hope this hyperthermia treatment is beneficial for you if you choose it. I do remember a fellow here in Arizona traveling to Germany for this for an inoperable brain tumor and his treatments were showing success. This was a few years ago. Unfortunately, the news didn't do a long term followup on him, so don't know the final outcome.

    Best of luck and love,

    Wolfen

    P.S. What happened to the Deathcap Mushrooms? Just the name sounded scary to me.
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #44
    wolfen said:

    Now, Pete
    I just love you and your humor. I'm so suprised that no one would buy your family on Ebay. You can buy almost ANYTHING there. Probably Elvis Presley's spit if you were looking for it.LOL

    Seriously though, I hope this hyperthermia treatment is beneficial for you if you choose it. I do remember a fellow here in Arizona traveling to Germany for this for an inoperable brain tumor and his treatments were showing success. This was a few years ago. Unfortunately, the news didn't do a long term followup on him, so don't know the final outcome.

    Best of luck and love,

    Wolfen

    P.S. What happened to the Deathcap Mushrooms? Just the name sounded scary to me.

    thanks wolfen
    humour is my number one weapon against the tumour.

    deathcap is on the way, i might get some monday. its a great name, especially if it saves me. the headline will be saved from death by death cap.

    we all got our heavy crosses to bare, and bare them well we do
    !

    for me a smile is the easiest way to life a heavy heart.

    and we got plenty of heavy hearts here with the challenges this illness gives us and our family and friends.

    godbless you and johnny also and all of us.

    hugs,
    Pete

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