CSN ~ What It Means To Me.....Share Your Story

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  • funnygurl
    funnygurl Member Posts: 16
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  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    funnygurl said:

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    H&N Forum
    The H&N Forum doesn't have any bullying and harrasement that I'm aware of. It's a community of support, a family.

    I'm sorry if you don't get that from your forum or expereinces here on CSN.

    While I know Joe, he speaks for himself, I speak for myself...

    The above was entirely from me, an my expereince and feelings for this site. I have no reason to seek glory ot praise from anyone here, not from ACS or CSN.

    While I love this site and the people on it, I could, did and will survive even if the site wasn't here.

    As would the many people here on this site would if I weren't here. There is no single person on any of these sites that has all of the knowledge, compassion and answers.... It takes all of us to make a community.

    I actually joined this site after my treatment.. I liked it and have stayed since. My way of giving back I guess, definitely not for praise, and the reward I get is from helping others get through what I did...

    I'm in no way affiliated with ACS or CSN in any capacity other than yourself...(if you are a survivor or caregiver)....

    You sound like you might need a friend and community of support...you have found one on the CSN H&N Forum....Welcome, stay awhile, observe the support from our forum.

    Again, I'm sorry you don't feel what I do about CSN and it's community. I can only think and feel that you get out of it what you put into it.

    Thoughts and Prayers,
    John
  • funnygurl
    funnygurl Member Posts: 16
    Skiffin16 said:

    H&N Forum
    The H&N Forum doesn't have any bullying and harrasement that I'm aware of. It's a community of support, a family.

    I'm sorry if you don't get that from your forum or expereinces here on CSN.

    While I know Joe, he speaks for himself, I speak for myself...

    The above was entirely from me, an my expereince and feelings for this site. I have no reason to seek glory ot praise from anyone here, not from ACS or CSN.

    While I love this site and the people on it, I could, did and will survive even if the site wasn't here.

    As would the many people here on this site would if I weren't here. There is no single person on any of these sites that has all of the knowledge, compassion and answers.... It takes all of us to make a community.

    I actually joined this site after my treatment.. I liked it and have stayed since. My way of giving back I guess, definitely not for praise, and the reward I get is from helping others get through what I did...

    I'm in no way affiliated with ACS or CSN in any capacity other than yourself...(if you are a survivor or caregiver)....

    You sound like you might need a friend and community of support...you have found one on the CSN H&N Forum....Welcome, stay awhile, observe the support from our forum.

    Again, I'm sorry you don't feel what I do about CSN and it's community. I can only think and feel that you get out of it what you put into it.

    Thoughts and Prayers,
    John

    smoke screens
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  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    funnygurl said:

    smoke screens
    Content removed by CSN administrator.

    As Far As I Know
    My intent was/is not to patronize you....

    As for Joe, or anyone on the forum being a moderator of any sorts, I'm not aware. I'm not one, and never been approached.

    There is only one moderator as far as I know.

    I am here for the reasons that I have already stated, and that is the truth. I have no hidden agenda, no marketing stradegy, or any other mission. Though I will and do highly recommend CSN whenever the opportunity presents.

    To be honest, I know little of ACS and it's programs...I've always considered them to be the business side.

    As for a "Marketing Stradegy" or mission, I'm not aware of that either. What would be the result of marketing CSN, to others on CSN... Save CSN, I'm not aware that it's in danger....

    The people that are on CSN are the only ones that read my posts, and all that they are intended...those people are already on CSN.

    Anyways, you have found your way to our forum to vent apparently...that's fine. I'm sure that all on this forum will support you and welcome you in any way that we can...though not negatively, we tend to strive for the positive here.

    I'm not quite sure why you chose to come to this forum, and attack me.... Just because you are upset with something that Joe has done, or you are upset with CSN?

    I don't post (or rarely) post on other boards. You and I have never communicated before, so I'm not quite sure why you have chosen to flame me. No need for an explanation...

    Again, if you say what happened between you and Joe is true, I'm sorry... But that is not me, and I can only speak of myself and my actions.

    I'm not here to argue or flame people, so this will be my last response to you concerning.

    Thoughts & Prayers,
    John
  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    Skiffin16 said:

    As Far As I Know
    My intent was/is not to patronize you....

    As for Joe, or anyone on the forum being a moderator of any sorts, I'm not aware. I'm not one, and never been approached.

    There is only one moderator as far as I know.

    I am here for the reasons that I have already stated, and that is the truth. I have no hidden agenda, no marketing stradegy, or any other mission. Though I will and do highly recommend CSN whenever the opportunity presents.

    To be honest, I know little of ACS and it's programs...I've always considered them to be the business side.

    As for a "Marketing Stradegy" or mission, I'm not aware of that either. What would be the result of marketing CSN, to others on CSN... Save CSN, I'm not aware that it's in danger....

    The people that are on CSN are the only ones that read my posts, and all that they are intended...those people are already on CSN.

    Anyways, you have found your way to our forum to vent apparently...that's fine. I'm sure that all on this forum will support you and welcome you in any way that we can...though not negatively, we tend to strive for the positive here.

    I'm not quite sure why you chose to come to this forum, and attack me.... Just because you are upset with something that Joe has done, or you are upset with CSN?

    I don't post (or rarely) post on other boards. You and I have never communicated before, so I'm not quite sure why you have chosen to flame me. No need for an explanation...

    Again, if you say what happened between you and Joe is true, I'm sorry... But that is not me, and I can only speak of myself and my actions.

    I'm not here to argue or flame people, so this will be my last response to you concerning.

    Thoughts & Prayers,
    John

    What CSN means to me:It's a
    What CSN means to me:

    It's a place of me's. Quite simply it's a place where unfortunately many are going through what I am.

    There is no way to describe the relief, the support or the comfort many on CSN have brought to me at my lowest point.

    There is no way to describe the joy, the laughs or the "simple truths" many on CSN have brought to me.

    When I think of my family and closest friends, I now also extend that same affection to those on CSN.


    Best,

    Tim
  • Pam M
    Pam M Member Posts: 2,196
    Skiffin16 said:

    As Far As I Know
    My intent was/is not to patronize you....

    As for Joe, or anyone on the forum being a moderator of any sorts, I'm not aware. I'm not one, and never been approached.

    There is only one moderator as far as I know.

    I am here for the reasons that I have already stated, and that is the truth. I have no hidden agenda, no marketing stradegy, or any other mission. Though I will and do highly recommend CSN whenever the opportunity presents.

    To be honest, I know little of ACS and it's programs...I've always considered them to be the business side.

    As for a "Marketing Stradegy" or mission, I'm not aware of that either. What would be the result of marketing CSN, to others on CSN... Save CSN, I'm not aware that it's in danger....

    The people that are on CSN are the only ones that read my posts, and all that they are intended...those people are already on CSN.

    Anyways, you have found your way to our forum to vent apparently...that's fine. I'm sure that all on this forum will support you and welcome you in any way that we can...though not negatively, we tend to strive for the positive here.

    I'm not quite sure why you chose to come to this forum, and attack me.... Just because you are upset with something that Joe has done, or you are upset with CSN?

    I don't post (or rarely) post on other boards. You and I have never communicated before, so I'm not quite sure why you have chosen to flame me. No need for an explanation...

    Again, if you say what happened between you and Joe is true, I'm sorry... But that is not me, and I can only speak of myself and my actions.

    I'm not here to argue or flame people, so this will be my last response to you concerning.

    Thoughts & Prayers,
    John

    Chatroom Issues
    I can't speak to any recent chatroom issues - it's been some time since I was active. I can tell you that I started going into the chatroom shortly after finding this site. It was wonderful. While I couldn't always get advice/info/commiseration quite like I got from this discussion board, I could get something I needed at the time - INSTANT feedback. Cool. And lots of experience with different aspects of treatment.

    I can also say that, like many families, there were personality clashes and squabbles. This seemed to run in cycles - a group of "regulars" would evolve, some new folks would join in, some issues would arise - sometimes differences in opinion would turn into feuds. Sad, but not uncommon in a group.

    I have seen folks join in the chatroom who made your BS meter go into the overload zone - seen some nasty tempered folk spend just a little too much time lashing out at the nearest folk. Some horribly lonely people use chat hoping for personal friendship and/or romance. I have seen people seem to jump into the chat to "gang up" on someone. I have even seen people who let the mask slip, and show that they are obviously trying to prank or scam the group. One "gentleman" joined CSN because he was jealous that his soon to be ex spent so much time on the site; he came into chat pretending to be a survivor, and quite some time later spent much time and energy on mocking and attacking the group, complete with "YOU ARE ALL DYING" proclamations.

    Like most groups you hang out with - if several members are under a good deal of stress, some stressful situations can crop up - some people can be thoughtless or hurtful. A larger percentage of the group, though, is dedicated to being present and available to anyone needing help, advice, or just an ear. I'm sorry, Funnygurl, if you had a negative exerience in chat - from my experience that is the exception, not the rule. Usually you have a group of people switching from mindless chit-chat to full tilt gonzo support in the blink of an eye. I do know that in the past, some people have been removed from the group for bullying or other unacceptable behavior. I can honestly say that the majority of my visits to the chat arena here were posiive experiences. Sorry to hear you wouldn't recommend the site to cancer survivors - there's an amazing amount of info and support here.