esophageal cancer recurrence

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Comments

  • Lynn_Paul
    Lynn_Paul Member Posts: 22 Member

    HER2 test
    Lynn,

    When you speak to the doctors ask about having your husband's tumor tested for HER2 receptors. If he is one of the lucky ones then there is a drug proticol that seems to give patients some positive results a drug called Herceptin. I know several folks on the board in the past who were Stage IV patients had good results and acheived some valuable extra time and quality of life. Originally this was a breast cancer treatment and has recently been approved by the FDA for treatment in Esophageal Cancer. You may also want to inquire it they can test the tumor for the KRAS mutation --- which may indicate that some other experimental drugs like Erbitux which interfere with the cell mutation or other drugs that block the growth of blood vessils to strave the tumors )targeted gene therapies). There are many new treatments, some experimental, that have been developed over the last few years. My one hope would be that you make sure you go to a major cancer center --- one desingnated as such by the NIH and one that specializes in Esophageal Cancer. You really want to get the best and consult with the best and there are many great centers throughout the country. EC is a monster and you want to make sure you have the options and the A team available --- or at least have the option even if you decided that quality of life is most important and you just seek pallative care. Good luck.


    Best,
    Cindy

    2nd surgery scheduled
    All ~

    This site is amazing and filled with such caring people. I have not been on the site for a while as we have been consumed with appointments and decisions. Cyberknife was initially suggested. The doctor agreed to do it although it was very risky because of the location of the tumor if no one else had a better option. Our surgeon said he could not operate. The oncologist did not feel chemo was the answer. We met with another surgeon last week (Dr. Luketich, who is often mentioned on this site. He wants to re-do the surgery and remove the tumor at the end of next month. Hopefully Paul will handle the surgery as well the second time as he did the first.

    Lynn
  • Lynn_Paul
    Lynn_Paul Member Posts: 22 Member

    HER2 test
    Lynn,

    When you speak to the doctors ask about having your husband's tumor tested for HER2 receptors. If he is one of the lucky ones then there is a drug proticol that seems to give patients some positive results a drug called Herceptin. I know several folks on the board in the past who were Stage IV patients had good results and acheived some valuable extra time and quality of life. Originally this was a breast cancer treatment and has recently been approved by the FDA for treatment in Esophageal Cancer. You may also want to inquire it they can test the tumor for the KRAS mutation --- which may indicate that some other experimental drugs like Erbitux which interfere with the cell mutation or other drugs that block the growth of blood vessils to strave the tumors )targeted gene therapies). There are many new treatments, some experimental, that have been developed over the last few years. My one hope would be that you make sure you go to a major cancer center --- one desingnated as such by the NIH and one that specializes in Esophageal Cancer. You really want to get the best and consult with the best and there are many great centers throughout the country. EC is a monster and you want to make sure you have the options and the A team available --- or at least have the option even if you decided that quality of life is most important and you just seek pallative care. Good luck.


    Best,
    Cindy

    2nd surgery scheduled
    All ~

    This site is amazing and filled with such caring people. I have not been on the site for a while as we have been consumed with appointments and decisions. Cyberknife was initially suggested. The doctor agreed to do it although it was very risky because of the location of the tumor if no one else had a better option. Our surgeon said he could not operate. The oncologist did not feel chemo was the answer. We met with another surgeon last week (Dr. Luketich, who is often mentioned on this site. He wants to re-do the surgery and remove the tumor at the end of next month. Hopefully Paul will handle the surgery as well the second time as he did the first.

    Lynn
  • BMGky
    BMGky Member Posts: 621
    Lynn_Paul said:

    2nd surgery scheduled
    All ~

    This site is amazing and filled with such caring people. I have not been on the site for a while as we have been consumed with appointments and decisions. Cyberknife was initially suggested. The doctor agreed to do it although it was very risky because of the location of the tumor if no one else had a better option. Our surgeon said he could not operate. The oncologist did not feel chemo was the answer. We met with another surgeon last week (Dr. Luketich, who is often mentioned on this site. He wants to re-do the surgery and remove the tumor at the end of next month. Hopefully Paul will handle the surgery as well the second time as he did the first.

    Lynn

    Will have you all in our
    Will have you all in our prayers. As I understand, Dr. Luketich is the authority on this type of surgery. I think it is exciting he is going to operate. All the best luck. And, when time, keep us informed. Mary
  • TerryV
    TerryV Member Posts: 887
    Lynn_Paul said:

    2nd surgery scheduled
    All ~

    This site is amazing and filled with such caring people. I have not been on the site for a while as we have been consumed with appointments and decisions. Cyberknife was initially suggested. The doctor agreed to do it although it was very risky because of the location of the tumor if no one else had a better option. Our surgeon said he could not operate. The oncologist did not feel chemo was the answer. We met with another surgeon last week (Dr. Luketich, who is often mentioned on this site. He wants to re-do the surgery and remove the tumor at the end of next month. Hopefully Paul will handle the surgery as well the second time as he did the first.

    Lynn

    Wonderful news!
    With Dr. Luketich (who is praised to high heavens here) behind the scalpel, I'm sure your Paul will handle the surgery very well.

    Our prayers go with you!

    Terry
    Wife to Nick, age 48
    dx T3N2M0 05/19/11
    THE 09/08/11
  • mrsbotch
    mrsbotch Member Posts: 349
    BMGky said:

    Will have you all in our
    Will have you all in our prayers. As I understand, Dr. Luketich is the authority on this type of surgery. I think it is exciting he is going to operate. All the best luck. And, when time, keep us informed. Mary

    How wonderful
    I am thrilled that Dr. Luketich will redoe your husband's surgury. He is quite the man from what I understand. Your hubby will have the best care possible. Take care and know we are all pulling for your guys.


    Barbara
  • Lynn_Paul
    Lynn_Paul Member Posts: 22 Member
    mrsbotch said:

    How wonderful
    I am thrilled that Dr. Luketich will redoe your husband's surgury. He is quite the man from what I understand. Your hubby will have the best care possible. Take care and know we are all pulling for your guys.


    Barbara

    Gut Feelings - go with them!
    We feel so lucky Dr. Luketich will operate. I read all about him and all of your comments seem to confirm he is the best possible surgeon for this ugly cancer.

    Prior to meeting with Dr. Luketich, we were told cyberknife was the only possible way to remove the cancer. We made an appointment with a radio surgeon. I had a bad feeling the entire week leading up to the appointment that Paul would not be a candidate. It sounded too easy and too good to be true that 3 sessions could get rid of the tumor. When the Dr. reviewed the pet scan and came in to the office I knew it wasn't the answer. He said he would do the procedure if no one else could do anything but that it was extremely risky. Instead of the panic I expected to feel, I felt a strange sense of calm. My thoughts were, "Ok ~ now they will operate and get it out of there". Our surgeon said it was not an option. I wish he would have said it was not an option for him. Imagine if we had listened. Luckily our oncologist helped to arrange an appointment with Dr. Luketich. He will operate in late October. In the mean time we are planning a short 30th anniversary get-away. We started dating when we were teenagers. We have 3 children (23, 20, 15).

    Terry ~ Thank you for the kind words. I hope Nick is recovering well from the surgery.

    David ~ You and your family (as well as all on the site) are in my prayers. We have been amazed reading the posts on this site how many young healthy people get this cancer. We were told last year at diagnosis that they are not making a lot of progress in new treatments because it is extremely rare to have an EC patient that is otherwise healthy. I think they should visit this site and do more research. We were also told this strikes older people. Paul is 54 and there are so many of you in your 30s and 40s. It's heartbreaking.

    Cindy ~ I have my notes to ask the dr. about HER2 and KRAS mutation at our next appt. Thanks for the information.

    Barbara ~ Sherry , your support means a lot.

    Lynn
  • Ericalynn
    Ericalynn Member Posts: 200
    Lynn_Paul said:

    Gut Feelings - go with them!
    We feel so lucky Dr. Luketich will operate. I read all about him and all of your comments seem to confirm he is the best possible surgeon for this ugly cancer.

    Prior to meeting with Dr. Luketich, we were told cyberknife was the only possible way to remove the cancer. We made an appointment with a radio surgeon. I had a bad feeling the entire week leading up to the appointment that Paul would not be a candidate. It sounded too easy and too good to be true that 3 sessions could get rid of the tumor. When the Dr. reviewed the pet scan and came in to the office I knew it wasn't the answer. He said he would do the procedure if no one else could do anything but that it was extremely risky. Instead of the panic I expected to feel, I felt a strange sense of calm. My thoughts were, "Ok ~ now they will operate and get it out of there". Our surgeon said it was not an option. I wish he would have said it was not an option for him. Imagine if we had listened. Luckily our oncologist helped to arrange an appointment with Dr. Luketich. He will operate in late October. In the mean time we are planning a short 30th anniversary get-away. We started dating when we were teenagers. We have 3 children (23, 20, 15).

    Terry ~ Thank you for the kind words. I hope Nick is recovering well from the surgery.

    David ~ You and your family (as well as all on the site) are in my prayers. We have been amazed reading the posts on this site how many young healthy people get this cancer. We were told last year at diagnosis that they are not making a lot of progress in new treatments because it is extremely rare to have an EC patient that is otherwise healthy. I think they should visit this site and do more research. We were also told this strikes older people. Paul is 54 and there are so many of you in your 30s and 40s. It's heartbreaking.

    Cindy ~ I have my notes to ask the dr. about HER2 and KRAS mutation at our next appt. Thanks for the information.

    Barbara ~ Sherry , your support means a lot.

    Lynn

    Gut Feeling
    Lynn,
    I agree about the gut feeling, when John and I meet with the first surgeon (he does Ivor Lewis) I had a gut feeling that he was not the correct person. With the help of this board and specifically William and Loretta I found the surgeon at Moffitt. He did the MIE surgery does several every week, original surgeon did 3-4 per year. I still do not understand why a surgeon that only does the surgery only a few times per year would even want to do the surgery ( but I guess that is another discussion). I am also amazed that I keep hearing this is not a common cancer. I think it is just not as publicized ( like come other cancers). My husband is 59, which I do not consider old but maybe some do. I am happy that your husband is candidate for the second surgery. Enjoy your anniversary get away, John and I will celebrate our 33rd anniversary October 27th. I am not sure that he will be ready for a get away (7 weeks post-op) but I am hopping that he will be feeling up to a dinner out!
    Sending good thoughts your way for a successful surgery and speedy recovery!
    Happy Anniversary
    Erica
  • jim2011
    jim2011 Member Posts: 115
    fears about recurring
    Its my biggest personal health fear. EC is such an aggressive cancer. I had an all clear on my first post-treatment PET/CT Scans and my 2nd is in mid December. I am cancer free until then at least! None of my 3 grown children drink but all 3 have admitted texting while driving. Something happening to one of them is my biggest fear right now.
    Getting scans and blood tests every 3-4 months means that even if something does show up it will be caught early or maybe even just scar tissue...maybe??
  • omer mukhtar
    omer mukhtar Member Posts: 6
    jim2011 said:

    fears about recurring
    Its my biggest personal health fear. EC is such an aggressive cancer. I had an all clear on my first post-treatment PET/CT Scans and my 2nd is in mid December. I am cancer free until then at least! None of my 3 grown children drink but all 3 have admitted texting while driving. Something happening to one of them is my biggest fear right now.
    Getting scans and blood tests every 3-4 months means that even if something does show up it will be caught early or maybe even just scar tissue...maybe??

    5 years 6 month without EC recurrence
    I have (good) (if there's somethig good with EC) experience with EC and i think that i have to share it with you. But before that i would like to say that i'm not good english speaker. It's not even my second language so please foregive my mistakes.In 2006 my mother caught EC, squamous cells carcinoma stage 3. I thought that she is going to die soon. That was the frist chock in my life ; i always thought that mothers are immortal. On november 2006 she has a big surgerey without any pre or post treatment. I mean without chemotherapy or radiation till this moment. You will not believe that she is in good condition till this day( 12 may 2012) without any chemo or radio. Last month in my country, after endscopy her doctor said that she has a poorly differentiated squamous cells recurrence. I went here in Jordan in Ebin Elhaythm hospital seeking treatment because i do not trust cancer treatment at my home country. Her new doctor after CT Scan and endoscopy he has just mentioned that she is clear of cancer. My mother is 68 years and has lost 60% of her weight due to the EC and look very very weak to stand cancer treatment. Her surgerey was on 30 november 2006 and as we don't have good cancer treatment in my country we went 3 times here in Jordan that was in 2007, 2010, 2012. and they always say she is clear of cancer.What we did as alternative of chemo and radiotherapy was something you will not agree with because it has not scientific basic. I bought a hebal tretment from Oman and my mother drinks the Moringa leaves juice twice aday ( Moringa is a tree we call it the tree of life). But, i know another thing which helped to prevent the recurrence. I can not mentioned it her for maybe the site policy.I decided to joint this site only after reading all what is written here and see eyes filled of tears.I know that some maybe will not believe that there are some survivors of EC for more than 5 years after surgerey. I have no treatment and i can not help in that Only i wana to share my story with that awful deasise. I'm very happy that i have just joint this site because if i have been here before i have would be disappointed of my mother tretment. I did not think that it's almost untreatable cancer.I HOPE LONG LIFE FOR ALL YOUR PARENTS HUSBANDS AND FOR ALL OF YOU.
    Contact my for further questions, information but please use a simple language.
    For who ask of adenocarcinoma this kind has only one early symptom esophagual pain after meals which comes from reflux of stomach liquid. Envirommental? I don't think maybe, food. Spice...etc
    Thanks
  • omer mukhtar
    omer mukhtar Member Posts: 6
    jim2011 said:

    fears about recurring
    Its my biggest personal health fear. EC is such an aggressive cancer. I had an all clear on my first post-treatment PET/CT Scans and my 2nd is in mid December. I am cancer free until then at least! None of my 3 grown children drink but all 3 have admitted texting while driving. Something happening to one of them is my biggest fear right now.
    Getting scans and blood tests every 3-4 months means that even if something does show up it will be caught early or maybe even just scar tissue...maybe??

    5 years 6 month without EC recurrence
    I have (good) (if there's somethig good with EC) experience with EC and i think that i have to share it with you. But before that i would like to say that i'm not good english speaker. It's not even my second language so please foregive my mistakes.In 2006 my mother caught EC, squamous cells carcinoma stage 3. I thought that she is going to die soon. That was the frist chock in my life ; i always thought that mothers are immortal. On november 2006 she has a big surgerey without any pre or post treatment. I mean without chemotherapy or radiation till this moment. You will not believe that she is in good condition till this day( 12 may 2012) without any chemo or radio. Last month in my country, after endscopy her doctor said that she has a poorly differentiated squamous cells recurrence. I went here in Jordan in Ebin Elhaythm hospital seeking treatment because i do not trust cancer treatment at my home country. Her new doctor after CT Scan and endoscopy he has just mentioned that she is clear of cancer. My mother is 68 years and has lost 60% of her weight due to the EC and look very very weak to stand cancer treatment. Her surgerey was on 30 november 2006 and as we don't have good cancer treatment in my country we went 3 times here in Jordan that was in 2007, 2010, 2012. and they always say she is clear of cancer.What we did as alternative of chemo and radiotherapy was something you will not agree with because it has not scientific basic. I bought a hebal tretment from Oman and my mother drinks the Moringa leaves juice twice aday ( Moringa is a tree we call it the tree of life). But, i know another thing which helped to prevent the recurrence. I can not mentioned it her for maybe the site policy.I decided to joint this site only after reading all what is written here and see eyes filled of tears.I know that some maybe will not believe that there are some survivors of EC for more than 5 years after surgerey. I have no treatment and i can not help in that Only i wana to share my story with that awful deasise. I'm very happy that i have just joint this site because if i have been here before i have would be disappointed of my mother tretment. I did not think that it's almost untreatable cancer.I HOPE LONG LIFE FOR ALL YOUR PARENTS HUSBANDS AND FOR ALL OF YOU.
    Contact my for further questions, information but please use a simple language.
    For who ask of adenocarcinoma this kind has only one early symptom esophagual pain after meals which comes from reflux of stomach liquid. Envirommental? I don't think maybe, food. Spice...etc
    Thanks
    Omer Mukhtar
  • 5 years 6 month without EC recurrence
    I have (good) (if there's somethig good with EC) experience with EC and i think that i have to share it with you. But before that i would like to say that i'm not good english speaker. It's not even my second language so please foregive my mistakes.In 2006 my mother caught EC, squamous cells carcinoma stage 3. I thought that she is going to die soon. That was the frist chock in my life ; i always thought that mothers are immortal. On november 2006 she has a big surgerey without any pre or post treatment. I mean without chemotherapy or radiation till this moment. You will not believe that she is in good condition till this day( 12 may 2012) without any chemo or radio. Last month in my country, after endscopy her doctor said that she has a poorly differentiated squamous cells recurrence. I went here in Jordan in Ebin Elhaythm hospital seeking treatment because i do not trust cancer treatment at my home country. Her new doctor after CT Scan and endoscopy he has just mentioned that she is clear of cancer. My mother is 68 years and has lost 60% of her weight due to the EC and look very very weak to stand cancer treatment. Her surgerey was on 30 november 2006 and as we don't have good cancer treatment in my country we went 3 times here in Jordan that was in 2007, 2010, 2012. and they always say she is clear of cancer.What we did as alternative of chemo and radiotherapy was something you will not agree with because it has not scientific basic. I bought a hebal tretment from Oman and my mother drinks the Moringa leaves juice twice aday ( Moringa is a tree we call it the tree of life). But, i know another thing which helped to prevent the recurrence. I can not mentioned it her for maybe the site policy.I decided to joint this site only after reading all what is written here and see eyes filled of tears.I know that some maybe will not believe that there are some survivors of EC for more than 5 years after surgerey. I have no treatment and i can not help in that Only i wana to share my story with that awful deasise. I'm very happy that i have just joint this site because if i have been here before i have would be disappointed of my mother tretment. I did not think that it's almost untreatable cancer.I HOPE LONG LIFE FOR ALL YOUR PARENTS HUSBANDS AND FOR ALL OF YOU.
    Contact my for further questions, information but please use a simple language.
    For who ask of adenocarcinoma this kind has only one early symptom esophagual pain after meals which comes from reflux of stomach liquid. Envirommental? I don't think maybe, food. Spice...etc
    Thanks
    Omer Mukhtar

    This comment has been removed by the Moderator
  • omer mukhtar
    omer mukhtar Member Posts: 6
    unknown said:

    This comment has been removed by the Moderator

    miracles can be fond everywhere without westren treatment
    Thanks for your long comment sir but i did not say that morgina treated my mother. I said that what one of thing we did instead of chemo and radiation and i said also we did something i will not mentioned maybe because of site's policy. We had access to the treatment you speak about and your country is not so far i was there last may. The surgerey of my mother was in the low part of her esophagus and they poll her stomach up. We tested the tumer after surgerey and it was squamous cells. You may miss understand me now in this moment i'm in Jordan because they said to me your mother has poorly differentiated squamous cells in the esophagus so i went here seeking same drugs you mentioned but the hospital confirmed that she is free of cancer. I repeat again, i said you will not trust what i'm saying because it has no scientific basic. And i repeat again, we only used herpals from 2006 till know. You focused on Moringa and mentioned lots of what i do not khiw before. And remember sir that my mother is very very weak because we discovered the cancer too late and after she lost her weight. The last test dated 08/05/2012 and not 2011 5 or 4 days ago. I believe that scientifically there is no alternative for ( chemotherapy and radiation). We have it and we don't have any scientific evidence for it. I don't know how comes that we don't have any tretment (chemo or radiation) and my mother still alive. That why i wrote ( cancer recurrence) and l fond this site.I would like to be your friend too i'm glad you are survivor for 9 years that gives me lots of hope and fear in the same time because you had chemo or radition and my mother has never tryed it.I believe that i will learn lot here, you know since 2006 i have read more than 14 pages per day about cancer on the net. I read about it in frensh english and my tonglanguage Arabic. I translated from traditional chinese to one of this language. I know lot but as i said maybe the language is my barrier. I could not explain my experience as good as you sir.If you have an access to arabic or frensh translation i will send you all by e.mail and i'm sure it will be new for you because it's not just repeated knowldege from the net.Thanks and sorry for mistakes or missculture.
  • omer mukhtar
    omer mukhtar Member Posts: 6

    miracles can be fond everywhere without westren treatment
    Thanks for your long comment sir but i did not say that morgina treated my mother. I said that what one of thing we did instead of chemo and radiation and i said also we did something i will not mentioned maybe because of site's policy. We had access to the treatment you speak about and your country is not so far i was there last may. The surgerey of my mother was in the low part of her esophagus and they poll her stomach up. We tested the tumer after surgerey and it was squamous cells. You may miss understand me now in this moment i'm in Jordan because they said to me your mother has poorly differentiated squamous cells in the esophagus so i went here seeking same drugs you mentioned but the hospital confirmed that she is free of cancer. I repeat again, i said you will not trust what i'm saying because it has no scientific basic. And i repeat again, we only used herpals from 2006 till know. You focused on Moringa and mentioned lots of what i do not khiw before. And remember sir that my mother is very very weak because we discovered the cancer too late and after she lost her weight. The last test dated 08/05/2012 and not 2011 5 or 4 days ago. I believe that scientifically there is no alternative for ( chemotherapy and radiation). We have it and we don't have any scientific evidence for it. I don't know how comes that we don't have any tretment (chemo or radiation) and my mother still alive. That why i wrote ( cancer recurrence) and l fond this site.I would like to be your friend too i'm glad you are survivor for 9 years that gives me lots of hope and fear in the same time because you had chemo or radition and my mother has never tryed it.I believe that i will learn lot here, you know since 2006 i have read more than 14 pages per day about cancer on the net. I read about it in frensh english and my tonglanguage Arabic. I translated from traditional chinese to one of this language. I know lot but as i said maybe the language is my barrier. I could not explain my experience as good as you sir.If you have an access to arabic or frensh translation i will send you all by e.mail and i'm sure it will be new for you because it's not just repeated knowldege from the net.Thanks and sorry for mistakes or missculture.

    miracles can be fond everywhere without westren treatment 2
    When i mentioned adenocarcinoma i started from where the asker stoped he/she mentioned that his/her father was not involved in many of EC reason but she/ he did not mentioned the reflux of stomach liquid ,i'm happy you have never had. Sir please don't be very proud of doctors in your country we have some who are graduated from the biggest us university. And usually thirdworld country deals with cancer same way you deal with. I mean they buy very expensive machines and treatments because it's the cancer and they know that the only way to avoid it, is to die.The logic you follow and questions to explain your opinion on nerbs can be rejected. Moringa could not be fond over all Africa or anywhere. It always here in my country and i had no idea of it's benefits. USAID does not cover all the 3 world countries to justify why people die oversea and they die also in your country. Westren treatment can not be applyed to treat any cancer case because each case is unique. I'm asking instead of giving just opinion, research center can gives a real answer by searching before people sell it and put it in bags. We use it from the tree and it treat some diseases. I'm not trying to say that Moringa can treat 300 diseases or cancer. My mother has just used it 2 months ago and 5 days ago doctors mentioned it free of cancer while in my country they declared squamous recurrence . i'm trying to make it reasonable just like you when you speak about westren treatment you can give evdiences. Please when you speak about hebs or any other treatment make is also scientific and not logical or accept it as a miracle. Sorry to turn away, i don't say only moringa treted my mother and like you i don't trust it.I'm here because of cancer Sir i swear. Again, i would like to tell you my mother's story even i'm sure that is going to be difficult for 3 reasons (believe, culture, language).
    Sir i don't share you same culture so foregive me if you feel that there is something impolite.
    Thanks
    Omer
  • miracles can be fond everywhere without westren treatment 2
    When i mentioned adenocarcinoma i started from where the asker stoped he/she mentioned that his/her father was not involved in many of EC reason but she/ he did not mentioned the reflux of stomach liquid ,i'm happy you have never had. Sir please don't be very proud of doctors in your country we have some who are graduated from the biggest us university. And usually thirdworld country deals with cancer same way you deal with. I mean they buy very expensive machines and treatments because it's the cancer and they know that the only way to avoid it, is to die.The logic you follow and questions to explain your opinion on nerbs can be rejected. Moringa could not be fond over all Africa or anywhere. It always here in my country and i had no idea of it's benefits. USAID does not cover all the 3 world countries to justify why people die oversea and they die also in your country. Westren treatment can not be applyed to treat any cancer case because each case is unique. I'm asking instead of giving just opinion, research center can gives a real answer by searching before people sell it and put it in bags. We use it from the tree and it treat some diseases. I'm not trying to say that Moringa can treat 300 diseases or cancer. My mother has just used it 2 months ago and 5 days ago doctors mentioned it free of cancer while in my country they declared squamous recurrence . i'm trying to make it reasonable just like you when you speak about westren treatment you can give evdiences. Please when you speak about hebs or any other treatment make is also scientific and not logical or accept it as a miracle. Sorry to turn away, i don't say only moringa treted my mother and like you i don't trust it.I'm here because of cancer Sir i swear. Again, i would like to tell you my mother's story even i'm sure that is going to be difficult for 3 reasons (believe, culture, language).
    Sir i don't share you same culture so foregive me if you feel that there is something impolite.
    Thanks
    Omer

    This comment has been removed by the Moderator
  • rmitchell
    rmitchell Member Posts: 94
    My husband had the radiation and chemo and then surgery. They told him he was Cancer free and then it came back in his bones. He died 3 months after it came back. He did not want any more treatments . He was ready to meet the Lord. It has been a difficult 5 months for me but I know how much he suffered and I would not want that for him again. I pray that you will not have the same outcome. God bless you
  • omer mukhtar
    omer mukhtar Member Posts: 6
    unknown said:

    This comment has been removed by the Moderator

    To William with my respect
    Thanks Sir for this information.When my mother first diagnosed with cancer we had: ULTRASOUND CT SCAN PET SCAN E DSCOPY TISSUE TEST and pictures i think to locate the tumor. Doctors fond that squamous in lower esophagus was unusual so they gave her a questionaire i think they took it as rare case. They decided after the surgery to avoid chemo and radiation because she was very weak and the tumor test after the surgery showed that there was no malagnancy in the safe earia around the tumor. As i said we went here in Jordan 3 time where they made Pet scan ( with special drink with colours) CT scan with endoscopy and tissue test: 2 times they said there is not cancer and i repeated the tissue test twice they confirmed that she was free.This time we came here 10 ago they made Ct scan, endoscopy with tissue test twice in the first one the lab said this:( mild reflux esophagitis, no dysplasia, no malignancy)i sent same slites to another lab and they said:(Mild chronic esophabitis. Modrate chronic active onflamation of gastric metaplastic tissue)I came here because in my country doctors said that she has to take chemo and the tissue test was ( poorly differentiated squamous cells recurrence) this why i went here with her. Yes sir, because all documents of my mother's tests were in english i studyed 6 months at the British Consel only to know what doctors were saying.I have just met her doctor and discussed with him all what you advised me and he recommanded to restart same tests after 6 months.I said to him she has never had chemo or radiation he answered she did not need that treatment.Please Sir i sent you a friend requist accept it or contact me i have a secret for you. Sorry for mistakes.Happy mother day to allThanksOmer
  • omer mukhtar
    omer mukhtar Member Posts: 6
    unknown said:

    This comment has been removed by the Moderator

    To William with my respect
    Thanks Sir for this information.When my mother first diagnosed with cancer we had: ULTRASOUND CT SCAN PET SCAN E DSCOPY TISSUE TEST and pictures i think to locate the tumor. Doctors fond that squamous in lower esophagus was unusual so they gave her a questionaire i think they took it as rare case. They decided after the surgery to avoid chemo and radiation because she was very weak and the tumor test after the surgery showed that there was no malagnancy in the safe earia around the tumor. As i said we went here in Jordan 3 time where they made Pet scan ( with special drink with colours) CT scan with endoscopy and tissue test: 2 times they said there is not cancer and i repeated the tissue test twice they confirmed that she was free.This time we came here 10 ago they made Ct scan, endoscopy with tissue test twice in the first one the lab said this:( mild reflux esophagitis, no dysplasia, no malignancy)i sent same slites to another lab and they said:(Mild chronic esophabitis. Modrate chronic active onflamation of gastric metaplastic tissue)I came here because in my country doctors said that she has to take chemo and the tissue test was ( poorly differentiated squamous cells recurrence) this why i went here with her. Yes sir, because all documents of my mother's tests were in english i studyed 6 months at the British Consel only to know what doctors were saying.I have just met her doctor and discussed with him all what you advised me and he recommanded to restart same tests after 6 months.I said to him she has never had chemo or radiation he answered she did not need that treatment.Please Sir i sent you a friend requist accept it or contact me i have a secret for you. Sorry for mistakes.
    Happy mother day to all
    Thanks
    Omer
  • To William with my respect
    Thanks Sir for this information.When my mother first diagnosed with cancer we had: ULTRASOUND CT SCAN PET SCAN E DSCOPY TISSUE TEST and pictures i think to locate the tumor. Doctors fond that squamous in lower esophagus was unusual so they gave her a questionaire i think they took it as rare case. They decided after the surgery to avoid chemo and radiation because she was very weak and the tumor test after the surgery showed that there was no malagnancy in the safe earia around the tumor. As i said we went here in Jordan 3 time where they made Pet scan ( with special drink with colours) CT scan with endoscopy and tissue test: 2 times they said there is not cancer and i repeated the tissue test twice they confirmed that she was free.This time we came here 10 ago they made Ct scan, endoscopy with tissue test twice in the first one the lab said this:( mild reflux esophagitis, no dysplasia, no malignancy)i sent same slites to another lab and they said:(Mild chronic esophabitis. Modrate chronic active onflamation of gastric metaplastic tissue)I came here because in my country doctors said that she has to take chemo and the tissue test was ( poorly differentiated squamous cells recurrence) this why i went here with her. Yes sir, because all documents of my mother's tests were in english i studyed 6 months at the British Consel only to know what doctors were saying.I have just met her doctor and discussed with him all what you advised me and he recommanded to restart same tests after 6 months.I said to him she has never had chemo or radiation he answered she did not need that treatment.Please Sir i sent you a friend requist accept it or contact me i have a secret for you. Sorry for mistakes.
    Happy mother day to all
    Thanks
    Omer

    This comment has been removed by the Moderator
  • suziebondy2
    suziebondy2 Member Posts: 1

    miracles can be fond everywhere without westren treatment
    Thanks for your long comment sir but i did not say that morgina treated my mother. I said that what one of thing we did instead of chemo and radiation and i said also we did something i will not mentioned maybe because of site's policy. We had access to the treatment you speak about and your country is not so far i was there last may. The surgerey of my mother was in the low part of her esophagus and they poll her stomach up. We tested the tumer after surgerey and it was squamous cells. You may miss understand me now in this moment i'm in Jordan because they said to me your mother has poorly differentiated squamous cells in the esophagus so i went here seeking same drugs you mentioned but the hospital confirmed that she is free of cancer. I repeat again, i said you will not trust what i'm saying because it has no scientific basic. And i repeat again, we only used herpals from 2006 till know. You focused on Moringa and mentioned lots of what i do not khiw before. And remember sir that my mother is very very weak because we discovered the cancer too late and after she lost her weight. The last test dated 08/05/2012 and not 2011 5 or 4 days ago. I believe that scientifically there is no alternative for ( chemotherapy and radiation). We have it and we don't have any scientific evidence for it. I don't know how comes that we don't have any tretment (chemo or radiation) and my mother still alive. That why i wrote ( cancer recurrence) and l fond this site.I would like to be your friend too i'm glad you are survivor for 9 years that gives me lots of hope and fear in the same time because you had chemo or radition and my mother has never tryed it.I believe that i will learn lot here, you know since 2006 i have read more than 14 pages per day about cancer on the net. I read about it in frensh english and my tonglanguage Arabic. I translated from traditional chinese to one of this language. I know lot but as i said maybe the language is my barrier. I could not explain my experience as good as you sir.If you have an access to arabic or frensh translation i will send you all by e.mail and i'm sure it will be new for you because it's not just repeated knowldege from the net.Thanks and sorry for mistakes or missculture.

    Herbal cure
    My cousin has just been told her cancer is back and I went online to see what I could find to help her and saw your post.Please can you tell me more about your mothers treatments in jordon
  • crystalbay
    crystalbay Member Posts: 38
    Lynn_Paul said:

    There is nothing "sugar-coated" about this cancer!


    Eric,

    Thanks for responding. I read your "about me" page. I can't believe after reading some of the stories how young so many men are. My husband is 54 (53 at diagnosis). I see you are only 43. This caught us totally by surprise, which seems to be a common thread. He was always extremely healthy, never overweight, never any acid reflux or stomach issues, never smoked, and never drank more than an occasional beer! He started having trouble with food feeling like it was getting caught. He mentioned it to the doctor while getting a physical at work and was told to schedule an endoscopy to have his esophagus stretched - very common to have the muscle constrict. Needless to say they discovered the tumor during the scope. He was diagnosed as stage 3 adenocarcinoma. It sounds like you have done a lot of research on this. Have you ever read about any link to environmental exposure? Paul worked with asbestos and coal ash for a number of years and is welder. Because he doesn't have heartburn or acid reflux which seem related to the adenocarcinoma, we wonder where this came from.

    It sounds as if you are dealing with this with a very positive attitude. I'm sure that helps your wife and children. I know Paul's attitude has made it easier for us.


    Lynn

    what's the cause?
    Lynn - I also was healthy with no known causes of my Stage 3 adenocarcinoma 2.5 years ago. My
    only symptom was pills getting stuck down low in my esophagus once in a while. What my doctors told me caused this was "silent GERD". I'd never heard of such a thing, but they said that a certain percentage of EC patients do indeed have no noticeable signs of reflux or heartburn. With silent GERD (gastroesophageal reflux disease), the lower esophagus is being
    eroded with stomach acid over time but never rises up to alert you.