To those who haven't posted in a while

I am just wondering about those ladies who haven't posted in a while. I read this board everyday and was just wondering how some who don't post are doing. If you read this and feel inclined please say HI!
«1

Comments

  • minniejan
    minniejan Member Posts: 88
    haven't posted
    HI,

    I posted and lurked often last year, USPC, 12/10 surgery. Just went for another checkup and CA125, scans are fine 4/12! Just waiting for the results of the pap. I am now battling a completely different cancer, tall cell in the thyroid, had surgery for that, then RAI therapy. So now it is wait and see for that one too! But I feel blessed so far. One year after finishing therapy for the USPC I am considered N.E.D. Just a week after the finish of the therapies for the second cancer right now. I go back to both doctors in July for more scans and more testing for both cancers! It has become a day long process but as long as they can do all the testing for both cancers on the same day I am happy. I just go on this website weekly to check in to see what is going on. I forget the last time I posted. :)

    MinnieJan
  • norma2
    norma2 Member Posts: 479
    minniejan said:

    haven't posted
    HI,

    I posted and lurked often last year, USPC, 12/10 surgery. Just went for another checkup and CA125, scans are fine 4/12! Just waiting for the results of the pap. I am now battling a completely different cancer, tall cell in the thyroid, had surgery for that, then RAI therapy. So now it is wait and see for that one too! But I feel blessed so far. One year after finishing therapy for the USPC I am considered N.E.D. Just a week after the finish of the therapies for the second cancer right now. I go back to both doctors in July for more scans and more testing for both cancers! It has become a day long process but as long as they can do all the testing for both cancers on the same day I am happy. I just go on this website weekly to check in to see what is going on. I forget the last time I posted. :)

    MinnieJan

    Good to hear from you!!!
    Glad for the NED news....MinnieJan Makes me feel better to know you are hanging in there...here is hoping for many days of NED for both cancers....
  • susangr
    susangr Member Posts: 64
    I haven't checked in for a
    I haven't checked in for a while but do read postings frequently. I have UPSC and completed chemo Feb 2011. Had CTs in March 2012 and so far still NED. Am being followed for thyroid tumors now with further reevaluation in June. I think this is a great thread. Thanks for posting. Susan
  • norma2
    norma2 Member Posts: 479
    susangr said:

    I haven't checked in for a
    I haven't checked in for a while but do read postings frequently. I have UPSC and completed chemo Feb 2011. Had CTs in March 2012 and so far still NED. Am being followed for thyroid tumors now with further reevaluation in June. I think this is a great thread. Thanks for posting. Susan

    thanks Susan
    Dancing with NED!!! Good for you!!! I am so glad. Thanks for posting, Susan.
  • SuziDezi
    SuziDezi Member Posts: 25
    norma2 said:

    thanks Susan
    Dancing with NED!!! Good for you!!! I am so glad. Thanks for posting, Susan.

    Great idea Norma - thanks!
    Count me as another frequent checker who doesn't often post. Still I do feel part of this sisterhood and admit I should be a more active member. To recap - dx December 2009 with UPSC, standard chemo and external radiation all finished in July 2010. "Suspicious' para-aortic nodes on CT beginning November 2010 became recurrence in May 2011. Other enlarged nodes in supra-clavicular node found in August 2011. Second round of carbo-taxol completed February 2012. So here I am - a little the worse for wear but still kicking. A CT in December 2011 showed all nodes had shrunk to normal but one para-aortic that stayed at 7mm. My next appointment is May 8 and I have no idea what the followup will be from there. Thanks to this group I followed my own CA125 (against doctors wishes!) and found it was a marker for me - so I will check it again before the May appointment. Marianne has said it best - we all know that recurrence is a probability but hope that it won't be our reality. Again thanks to this group I am better able to face whatever comes knowing that there are still many things to try and that life can be good during the attempt. Thanks to everyone here for sharing and showing great courage as well as compassion.
  • daisy366
    daisy366 Member Posts: 1,458 Member
    SuziDezi said:

    Great idea Norma - thanks!
    Count me as another frequent checker who doesn't often post. Still I do feel part of this sisterhood and admit I should be a more active member. To recap - dx December 2009 with UPSC, standard chemo and external radiation all finished in July 2010. "Suspicious' para-aortic nodes on CT beginning November 2010 became recurrence in May 2011. Other enlarged nodes in supra-clavicular node found in August 2011. Second round of carbo-taxol completed February 2012. So here I am - a little the worse for wear but still kicking. A CT in December 2011 showed all nodes had shrunk to normal but one para-aortic that stayed at 7mm. My next appointment is May 8 and I have no idea what the followup will be from there. Thanks to this group I followed my own CA125 (against doctors wishes!) and found it was a marker for me - so I will check it again before the May appointment. Marianne has said it best - we all know that recurrence is a probability but hope that it won't be our reality. Again thanks to this group I am better able to face whatever comes knowing that there are still many things to try and that life can be good during the attempt. Thanks to everyone here for sharing and showing great courage as well as compassion.

    suzi
    It's nice to hear from you. You sound very upbeat. I truly wish you the very best report when you see your doc on May 8th.

    Mary Ann
  • Rewriter
    Rewriter Member Posts: 493 Member
    daisy366 said:

    suzi
    It's nice to hear from you. You sound very upbeat. I truly wish you the very best report when you see your doc on May 8th.

    Mary Ann

    Still kicking!
    I was diagnosed in March 2008 with Stage 1a UPSC and am now four years NED. My last gyne-onc appointment was about two weeks ago, and everything was fine.

    Jill
  • norma2
    norma2 Member Posts: 479
    Rewriter said:

    Still kicking!
    I was diagnosed in March 2008 with Stage 1a UPSC and am now four years NED. My last gyne-onc appointment was about two weeks ago, and everything was fine.

    Jill

    Great News!!!
    Thanks Jill for shariing. Treat yourself to something nice!!! Hurray for NED!!!
  • norma2
    norma2 Member Posts: 479
    SuziDezi said:

    Great idea Norma - thanks!
    Count me as another frequent checker who doesn't often post. Still I do feel part of this sisterhood and admit I should be a more active member. To recap - dx December 2009 with UPSC, standard chemo and external radiation all finished in July 2010. "Suspicious' para-aortic nodes on CT beginning November 2010 became recurrence in May 2011. Other enlarged nodes in supra-clavicular node found in August 2011. Second round of carbo-taxol completed February 2012. So here I am - a little the worse for wear but still kicking. A CT in December 2011 showed all nodes had shrunk to normal but one para-aortic that stayed at 7mm. My next appointment is May 8 and I have no idea what the followup will be from there. Thanks to this group I followed my own CA125 (against doctors wishes!) and found it was a marker for me - so I will check it again before the May appointment. Marianne has said it best - we all know that recurrence is a probability but hope that it won't be our reality. Again thanks to this group I am better able to face whatever comes knowing that there are still many things to try and that life can be good during the attempt. Thanks to everyone here for sharing and showing great courage as well as compassion.

    Thanks for the update, SuziDezi
    Thanks for the update. Keep us posted on your May visit. Praying for a positive report for you....Norma
  • firstsister
    firstsister Member Posts: 13
    Haven't posted in awhile
    Haven't posted in a long while. Here's what's going on with me. Diagnosed with UPSC 3C after complete hysterectomy in Sept. 2010. Three rounds of carbo/taxol, then 28 external radiation treatments, then three more rounds of carbo/taxol ending in June 2011. Between the radiation & last three rounds of chemo had fluid buildup in groin area that had to be drained - twice. Had a bad time with depression, lost 20 lbs., etc. Finally got myself back on my feet and then Aug. 2, 2011 a car t-boned mine (with me in it) and collarbone was broken. December 2011 my beloved brother died Christmas morning. Late Jan. 2012 had a pet scan even though CA125 was bouncing around 24, 25, 26. Three nodules lit up in my lungs - one in the left and two in the right. Left was removed surgically with margins clear. Now in the middle of more chemo - carbo/genzar to try to deal with the nodules in the right lung. One more round to go. Then another PET scan.
    BUT, I've been singing in my church choir (we sang the Halleluja (sp?) Chorus on Easter Sunday and with two other smaller groups which entertain at nursing homes and I'm doing okay.
    Thanks, many thanks for the love and support of this wonderful group of fighting women.
    Pat
  • norma2
    norma2 Member Posts: 479

    Haven't posted in awhile
    Haven't posted in a long while. Here's what's going on with me. Diagnosed with UPSC 3C after complete hysterectomy in Sept. 2010. Three rounds of carbo/taxol, then 28 external radiation treatments, then three more rounds of carbo/taxol ending in June 2011. Between the radiation & last three rounds of chemo had fluid buildup in groin area that had to be drained - twice. Had a bad time with depression, lost 20 lbs., etc. Finally got myself back on my feet and then Aug. 2, 2011 a car t-boned mine (with me in it) and collarbone was broken. December 2011 my beloved brother died Christmas morning. Late Jan. 2012 had a pet scan even though CA125 was bouncing around 24, 25, 26. Three nodules lit up in my lungs - one in the left and two in the right. Left was removed surgically with margins clear. Now in the middle of more chemo - carbo/genzar to try to deal with the nodules in the right lung. One more round to go. Then another PET scan.
    BUT, I've been singing in my church choir (we sang the Halleluja (sp?) Chorus on Easter Sunday and with two other smaller groups which entertain at nursing homes and I'm doing okay.
    Thanks, many thanks for the love and support of this wonderful group of fighting women.
    Pat

    Hey There! Pat!!!
    I am so very sorry to hear about your brother. All of this is a lot to contend with, isn't it? You keep your chin up. And keep singing in the choir. If you can do the Handel you sound like your lungs are doing pretty well. I remember that there were few breathing pauses in the Hallelja Chorus....singing is a great way to increase lung capacity and pump oxygen into our bodies.
    Best to you!!! Sounds like you are a fighter!!! Thanks for sharing. Norma
  • Kaleena
    Kaleena Member Posts: 2,088 Member
    Great Post, Norma
    Thanks for posting this. I too wonder what everyone is doing.

    Here are my facts:
    Sept 2005 - Hysterectomy (not for cancer)
    Oct. 2005 - Staging Surgery - final diagnosis Endometrial Adenocarcinoma
    Grade 2, Stage ii/iiia
    Nov 2005 - port placed - chemo started - Allergic to taxol - changed to
    carbo/gemzar - finished in May 2006
    Aug 2006 - 3 bracytherapies
    July 2009 - after CT told I had recurrence (spot there since 2005) - changed doctors
    after this.
    Oct - 2009 - biopsy on mass came back positive for the same
    Feb - 2010 - surgery to remove mass (which was negative)(one removed lymph
    had microscopic cells) and surgery at the same time to repair huge hernia
    Oct 2011 - finally had port removed!
    No further treatment required other than normal check-ups and scans.

    Since getting my port out, I now have been enjoying my family and friends without the monthly reminder of getting that thing flushed. I am also busy with my sons, two of whom are in college and my youngest is a junior in high school. I am looking forward to going on a cruise in July with my family.

    Thanks again, Norma, for posting this. I love your photo! I hope all is well with you and your family. Keep on smiling!

    Kathy
  • norma2
    norma2 Member Posts: 479
    Kaleena said:

    Great Post, Norma
    Thanks for posting this. I too wonder what everyone is doing.

    Here are my facts:
    Sept 2005 - Hysterectomy (not for cancer)
    Oct. 2005 - Staging Surgery - final diagnosis Endometrial Adenocarcinoma
    Grade 2, Stage ii/iiia
    Nov 2005 - port placed - chemo started - Allergic to taxol - changed to
    carbo/gemzar - finished in May 2006
    Aug 2006 - 3 bracytherapies
    July 2009 - after CT told I had recurrence (spot there since 2005) - changed doctors
    after this.
    Oct - 2009 - biopsy on mass came back positive for the same
    Feb - 2010 - surgery to remove mass (which was negative)(one removed lymph
    had microscopic cells) and surgery at the same time to repair huge hernia
    Oct 2011 - finally had port removed!
    No further treatment required other than normal check-ups and scans.

    Since getting my port out, I now have been enjoying my family and friends without the monthly reminder of getting that thing flushed. I am also busy with my sons, two of whom are in college and my youngest is a junior in high school. I am looking forward to going on a cruise in July with my family.

    Thanks again, Norma, for posting this. I love your photo! I hope all is well with you and your family. Keep on smiling!

    Kathy

    Hi! Kathy
    Photo is taken with grand daughter, thanks!
    Glad to hear about the port removal. I find each check-up I become less nervous about them. Not that I take my wellness for granted, just that time has dulled the fear.

    Have a great summer...enjoy that cruise. It is one of the things on my to do list to take a cruise with my kids and grandbaby.
    Have a blessed summer.
  • marieinlv
    marieinlv Member Posts: 47
    Hellow Everyone
    Hi, I'm thrilled to say I can be counted as another Survivor. We very well could be looking at a turning point in our Illness. I look at this through NED eyes. I was diagnosed 11/17/10, surgery, chemo, test. The depression or anxiety was mild but surprising. The not knowing is harder to deal with than the knowing, am I right? I'm so Thankfull for the collective support with information, kindness, and an unending ear for when we can't take it anymore. Ladies, I have been on the side crying with you when one of us is waiting for a test or having treament. God has asked us to Love each other, Wow is he crying tears of Joy when he observes the Love being shared here. Greatfull for the time I've been NED. I go next month for a check up. I'm feeling fine. My diagnosis was UPSC stage 4 (grade b? not sure). Trying to do what I can to help the Drs. less stress, excercising some, eating more "live food". Happy to be able to say Hi, Marie
  • norma2
    norma2 Member Posts: 479
    marieinlv said:

    Hellow Everyone
    Hi, I'm thrilled to say I can be counted as another Survivor. We very well could be looking at a turning point in our Illness. I look at this through NED eyes. I was diagnosed 11/17/10, surgery, chemo, test. The depression or anxiety was mild but surprising. The not knowing is harder to deal with than the knowing, am I right? I'm so Thankfull for the collective support with information, kindness, and an unending ear for when we can't take it anymore. Ladies, I have been on the side crying with you when one of us is waiting for a test or having treament. God has asked us to Love each other, Wow is he crying tears of Joy when he observes the Love being shared here. Greatfull for the time I've been NED. I go next month for a check up. I'm feeling fine. My diagnosis was UPSC stage 4 (grade b? not sure). Trying to do what I can to help the Drs. less stress, excercising some, eating more "live food". Happy to be able to say Hi, Marie

    Hi right back atcha!!!
    Hurray for your NED so far!!!You are so right about about the support here. It has carried me through many dark moments. And I have learned a lot about the strength of spirit the ladies here have shown. So glad you posted. Please let us know how your visit goes next month....
  • fuzzytrouble
    fuzzytrouble Member Posts: 212
    Been awhile
    Hi all, I do feel bad that I haven't posted in awhile. I just am still so sad about losing so many wonderful sisters, so I am afraid to even come here and read posts. I need to tell you that my last ct scan was good and my lung nodules are stable and no new disease showing. I hope this gives someone hope that there are good drugs out there to keep us going. I am on Tamoxifen one a day, and have already gone through radiation, carbo/taxol, doxil, low dose Taxol. I have neuropathy in my feet real bad, and my hands often. Chemo has taken it's toll on my digestive system and my brain, and I still get tired easily, but I am still here to complain about it all. lol
    I have the the chance to go be with my daughter in Boston (I am living in Oregon) while she had both our grand babies, so I feel so lucky to be able to go and do things. I will be here from now on. Hugs to all our sisters and always thinking of our sisters with angels wings.
    Sharon
  • Ro10
    Ro10 Member Posts: 1,561 Member

    Been awhile
    Hi all, I do feel bad that I haven't posted in awhile. I just am still so sad about losing so many wonderful sisters, so I am afraid to even come here and read posts. I need to tell you that my last ct scan was good and my lung nodules are stable and no new disease showing. I hope this gives someone hope that there are good drugs out there to keep us going. I am on Tamoxifen one a day, and have already gone through radiation, carbo/taxol, doxil, low dose Taxol. I have neuropathy in my feet real bad, and my hands often. Chemo has taken it's toll on my digestive system and my brain, and I still get tired easily, but I am still here to complain about it all. lol
    I have the the chance to go be with my daughter in Boston (I am living in Oregon) while she had both our grand babies, so I feel so lucky to be able to go and do things. I will be here from now on. Hugs to all our sisters and always thinking of our sisters with angels wings.
    Sharon

    Sharon it is so good to hear from you
    I am glad things are stable for you. I have been wondering how you have been doing. Glad you can laugh about your problems from chemo. Two grand babies now. How special for you. Too bad you are so far apart from them. Sending hugs back to you. Continue to enjoy each day. In peace and caring.
  • Pat51
    Pat51 Member Posts: 130
    I Don't Post Often
    I don't post often but lurk in the background and read all the posts. I was diagnosed as a UPSC Stage 1B (old charts) in Feb, 2011. I had surgery and 6 rounds of chemo, then finished with internal radiation in August, 2011. I am back to work. I had my one year scans in March and they were NED, but my CA125 was up. The CA125 worries me a bit but I hope that it will be down at my next checkup in May. My husband is a stage 4 melanoma patient and his disease is progressing at this time. We are searching for a clinical trial or other effect treatment for him, which is proving to add a great deal of stress to our lives.

    I feel privileged to have learned so much from the knowledgable women posting on this site. It has been a pleasure and an inspiration to have met so many brave, strong cancer warriors here.

    Pat
  • norma2
    norma2 Member Posts: 479
    SuziDezi said:

    Great idea Norma - thanks!
    Count me as another frequent checker who doesn't often post. Still I do feel part of this sisterhood and admit I should be a more active member. To recap - dx December 2009 with UPSC, standard chemo and external radiation all finished in July 2010. "Suspicious' para-aortic nodes on CT beginning November 2010 became recurrence in May 2011. Other enlarged nodes in supra-clavicular node found in August 2011. Second round of carbo-taxol completed February 2012. So here I am - a little the worse for wear but still kicking. A CT in December 2011 showed all nodes had shrunk to normal but one para-aortic that stayed at 7mm. My next appointment is May 8 and I have no idea what the followup will be from there. Thanks to this group I followed my own CA125 (against doctors wishes!) and found it was a marker for me - so I will check it again before the May appointment. Marianne has said it best - we all know that recurrence is a probability but hope that it won't be our reality. Again thanks to this group I am better able to face whatever comes knowing that there are still many things to try and that life can be good during the attempt. Thanks to everyone here for sharing and showing great courage as well as compassion.

    thanks for checking in
    glad you checked in Suzi. I think when each of us shares their experience it helps all of us. I hope your follow up in May will be just fine.
  • norma2
    norma2 Member Posts: 479

    Been awhile
    Hi all, I do feel bad that I haven't posted in awhile. I just am still so sad about losing so many wonderful sisters, so I am afraid to even come here and read posts. I need to tell you that my last ct scan was good and my lung nodules are stable and no new disease showing. I hope this gives someone hope that there are good drugs out there to keep us going. I am on Tamoxifen one a day, and have already gone through radiation, carbo/taxol, doxil, low dose Taxol. I have neuropathy in my feet real bad, and my hands often. Chemo has taken it's toll on my digestive system and my brain, and I still get tired easily, but I am still here to complain about it all. lol
    I have the the chance to go be with my daughter in Boston (I am living in Oregon) while she had both our grand babies, so I feel so lucky to be able to go and do things. I will be here from now on. Hugs to all our sisters and always thinking of our sisters with angels wings.
    Sharon

    Hi Sharon
    Hugs to you too. I know you are enjoying those grand babies. Glad you said Hi! I hope that neuropathy gets better.