Any survivors willing to call me? Please Please help me save my husband
If you are a survivor, are you wiling to talk with me by phone?
Dori
Comments
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survivors
Hi Dori - hope that you are getting responses to your request. my husband was given Nexavar for a short period of time but it had to be stopped because his liver was to weak to take it. what's worked for him is the chemoambolizations. he's gone through 2 of those and now the tumors are gone. His liver is still weak so we are not out of the situation completely. Ask about TACE and Y-90 therapies and go with what you think is best. i don't know enough about your situation or about the condition itself to give you better advice. i would tell everyone to watch your nutrition, don't eat meat and take a nutritional shake but above all be strong and pray. stay connected.
maria0 -
Hi Dori,
While I don't have
Hi Dori,
While I don't have primary HCC, I do have stage IV cholangiocarcinoma with mets to my liver and spine. At this point, my oncologist and surgeon are treating my liver for the numerous lesions I have. If you feel it would help, please send an email to andreanorth@loopmastersinc.com. I'd be happy to give you a call and let you know what my current treatments and status are. Hang in there, when you're given a stage IV diagnosis it's hard to pick yourself off of the floor and catch you breath. We're all individuals, if we were statistics than I would have gone into the light by now. I was diagnosed in June of 2010 and am doing (as my doctors would say) remarkably well considering I have a chemo-resistant cancer. Take care.
Andrea0 -
dvmendoza
Dear Dori,
So sorry you and your husband have had this news. My husband also has stage 4 liver cancer, although it is a different type than your husband's. The statistics are not encouraging, but you must not let chaos and despair take over. Although your husband's cancer may not be curable, it can be managable. I would suggest a second opinion as soon as possible. Not that your doctors and hospital will not do the best they can, but I believe in getting a second opinion no matter what treatments have been offered. You and your husband need to be in control of his treatments. And need to be able make informed decisions. I do not believe that there is only one treatment for cancer and you need to confirm this protocol with other doctors. I do not know Northwestern Memorial, but I would suggest that you visit the largest comprehensive cancer center in your area, and get with the team approach, where a team of doctors work together to make treatment protocols for your husband. Take care, Dori, and good luck and may God bring you peace. Come back again and let us know what you decide.0 -
Mets to the liverLeeandShirley said:dvmendoza
Dear Dori,
So sorry you and your husband have had this news. My husband also has stage 4 liver cancer, although it is a different type than your husband's. The statistics are not encouraging, but you must not let chaos and despair take over. Although your husband's cancer may not be curable, it can be managable. I would suggest a second opinion as soon as possible. Not that your doctors and hospital will not do the best they can, but I believe in getting a second opinion no matter what treatments have been offered. You and your husband need to be in control of his treatments. And need to be able make informed decisions. I do not believe that there is only one treatment for cancer and you need to confirm this protocol with other doctors. I do not know Northwestern Memorial, but I would suggest that you visit the largest comprehensive cancer center in your area, and get with the team approach, where a team of doctors work together to make treatment protocols for your husband. Take care, Dori, and good luck and may God bring you peace. Come back again and let us know what you decide.
Hi Andrea: I have one met to the liver (2 cm) as well as to the peritoneum from gallbladder cancer diagnosed January 2010. The liver met hasn't grown much since it was first detected and the peritoneum cancerous nodules (6 of them) have been stabilized by chemo. I had surgery April 2010 to remove my gallbladder, its tumour, and part of my liver but no one seemed to do anything about the met on the liver even though it was identified on a CT scan done several months before the surgery. Since then I've had two rounds of chemo (cisplatin + gemcitibine for 12 treatments; oxaliplatin + irenotecan + 5FU pump for 12 treatments) which worked to stabilize the peritoneum nodules. The liver met has grown a little.
I met with the oncologist today to see where we go from here. Given that the met to the liver is so small, I was sure he'd offer surgery to remove it so I can get the peritoneum stripping surgery. Much to my surprise, he said, nope, not likely, no surgery as there are already mets to the peritoneum. So I was surprised that your liver lesions are being treated surgically. I'm in Canada so that may be the reason! They tend to write you off with mets.
Can you give me more information?
Cheryl0 -
TACEwestie66 said:Mets to the liver
Hi Andrea: I have one met to the liver (2 cm) as well as to the peritoneum from gallbladder cancer diagnosed January 2010. The liver met hasn't grown much since it was first detected and the peritoneum cancerous nodules (6 of them) have been stabilized by chemo. I had surgery April 2010 to remove my gallbladder, its tumour, and part of my liver but no one seemed to do anything about the met on the liver even though it was identified on a CT scan done several months before the surgery. Since then I've had two rounds of chemo (cisplatin + gemcitibine for 12 treatments; oxaliplatin + irenotecan + 5FU pump for 12 treatments) which worked to stabilize the peritoneum nodules. The liver met has grown a little.
I met with the oncologist today to see where we go from here. Given that the met to the liver is so small, I was sure he'd offer surgery to remove it so I can get the peritoneum stripping surgery. Much to my surprise, he said, nope, not likely, no surgery as there are already mets to the peritoneum. So I was surprised that your liver lesions are being treated surgically. I'm in Canada so that may be the reason! They tend to write you off with mets.
Can you give me more information?
Cheryl
Hi Cheryl:
The type of surgery I’ve had is TACE (Transarterial Chemoembolization), where chemotherapy drugs are dispensed via a catheter that is inserted directly into the liver as close as possible to the tumor(s) being treated. The catheter is placed into the femoral artery, then passed through the hepatic artery into the tumor(s) arterial system. Once in position, chemo drugs are fed into the liver, then the arterial system is “plugged up” with an embolizing agent. This allows the tumor to be more directly treated for a longer period of time, and also starves the tumor of part of its blood supply. Individuals who aren’t able to tolerate such a direct dose of chemo sometimes are treated with the embolization only. From my understanding, TACE is used against primary HCC, metastatic gastrointestinal cancers, and certain other metastatic cancers. I’ve had four procedures so far, the last being on January 27th of this year. My first was on December 14th of 2010. In actuality I wasn’t a likely candidate due to the number and size of my metastatic liver lesions, but the surgeon who reviewed my case decided it was worth a try and so far we’ve been successful. I think part of the reason he gave me a chance is that I was in relatively good health in spite of the cancer and my liver was and continues to function normally. I did have a problem with my insurance company when my primary oncologist requested a consultation for TACE, but not because they declined the procedure. They kept authorizing appointments at facilities that didn’t perform TACE, and the facilities I asked to be sent to weren’t on my insurance company’s approved list. After two months of the runaround, I was finally allowed to go out-of-network, and am now being seen for special procedures at USC-Norris in Los Angeles. My liver lesions were initially deemed unresectable; however, my surgeon now says that I’m doing “remarkably well”, and he’s thinking that if we can shrink the tumors enough with TACE and perhaps RFA (burning the lesions from the inside out, as opposed to treating them from the outside in as is the case with TACE) he may be able to resect. Have you gotten a second opinion about the liver lesion and options for treatment, or is this also a problem for your insurance company? My lesions that are being treated were much larger than yours (5cm to 8.3 cm), and I have quite a few (infested is a fitting description).
I hope this helps. If you want to chat further about this, please feel free to email me at the email address I listed in my previous post. I’m more than happy to give you whatever information and support you need!
Andrea0 -
I am not familiar with the
I am not familiar with the hospital you mentioned in your post. I did google them up and copied the following information from Northwestern's own web site.
Liver Cancer Clinic & Treatment Options
Treatment of liver cancer requires a comprehensive multidisciplinary clinic dedicated to evaluating patients with hepatocellular carcinoma. These patients meet with physicians from transplant surgery, hepatology and interventional oncology to devise a course of action that includes a variety of treatments individualized for each patient. The potential therapeutic options we offer include:
Resection
Radiofrequency ablation
Transarterial chemoembolization
Transarterial drug-eluting beads
Transarterial radioembolization Y90
Combination therapy with RFA+Y90
You need to ask them to give you an explanation as to why he does not qualify for one of the liver directed therapies listed above. If you don't ask, they won't necessarily tell you. If you don't get the answers you need, find another center that has liver services. GET ANOTHER OPINION. Many times, they can talk with you by phone and give you a lot of information. I'm sure there are other medical centers that have a liver specialty since you live in the Chicago area. You can also contact Johns Hopkins in Baltimore, Md and have them review his case.
In my husband's case, I have talked with University of Pittsburgh, University of Maryland, Cleveland Clinic and Johns Hopkins. I live in Baltimore and he currently goes to the VA and University of Maryland for care. He has no lesions (that we know of) outside his liver. He has plenty of lesions infesting his liver. He still has the potential to be listed for a transplant if all the tumors get zapped with the Y-90. I wanted to make sure we had all our bases/options covered. All of the hospitals I mentioned earlier have told me the same thing...his current therapy (Y-90) is what they would do first and that they would review his records after his 2nd treatment and he has a follow-up MRI.
Each of the hospitals I mentioned were very helpful and informative.0 -
Thanks everyoneblueheaven56 said:I am not familiar with the
I am not familiar with the hospital you mentioned in your post. I did google them up and copied the following information from Northwestern's own web site.
Liver Cancer Clinic & Treatment Options
Treatment of liver cancer requires a comprehensive multidisciplinary clinic dedicated to evaluating patients with hepatocellular carcinoma. These patients meet with physicians from transplant surgery, hepatology and interventional oncology to devise a course of action that includes a variety of treatments individualized for each patient. The potential therapeutic options we offer include:
Resection
Radiofrequency ablation
Transarterial chemoembolization
Transarterial drug-eluting beads
Transarterial radioembolization Y90
Combination therapy with RFA+Y90
You need to ask them to give you an explanation as to why he does not qualify for one of the liver directed therapies listed above. If you don't ask, they won't necessarily tell you. If you don't get the answers you need, find another center that has liver services. GET ANOTHER OPINION. Many times, they can talk with you by phone and give you a lot of information. I'm sure there are other medical centers that have a liver specialty since you live in the Chicago area. You can also contact Johns Hopkins in Baltimore, Md and have them review his case.
In my husband's case, I have talked with University of Pittsburgh, University of Maryland, Cleveland Clinic and Johns Hopkins. I live in Baltimore and he currently goes to the VA and University of Maryland for care. He has no lesions (that we know of) outside his liver. He has plenty of lesions infesting his liver. He still has the potential to be listed for a transplant if all the tumors get zapped with the Y-90. I wanted to make sure we had all our bases/options covered. All of the hospitals I mentioned earlier have told me the same thing...his current therapy (Y-90) is what they would do first and that they would review his records after his 2nd treatment and he has a follow-up MRI.
Each of the hospitals I mentioned were very helpful and informative.
I will ask about why my husband is not eligible for the list of options on the website. Thanks, Blueheaven. I will also ask about whether he is eligible for a liver transplant.
Right now, we have signed up for a trial involved taking both Nexavar and Torisel. They are both targeted therapy drugs, Nexavar for liver cancer and Torisel for renal cell cancer. It is hoped that Torisel will make Nexavar more effective in prolonging life. Torisel is taken as chemo to the vein once weekly and we will start Nexavar this Wednesday.
Anyone else in a similar study?
God bless you all for responding and providing advice. I feel so helpless.
Worried Wife0 -
liver cancer
Hello!!! My name is Barbara and I have angiosarcoma of the liver...9 years ago, they gave me three months to live..This cancer not treatable other than hit and miss options..is a very rare form of liver cancer..I have never drank or smoked..Keep the FAITH!! Never give up hope. I Had RFA done on several lesions..It is still there, but not growing and hasn't in 4 years...God said He would heal me and I believe Him..I'll be praying for both of you...In Gods Love Barbara0 -
Helpoffutt9 said:liver cancer
Hello!!! My name is Barbara and I have angiosarcoma of the liver...9 years ago, they gave me three months to live..This cancer not treatable other than hit and miss options..is a very rare form of liver cancer..I have never drank or smoked..Keep the FAITH!! Never give up hope. I Had RFA done on several lesions..It is still there, but not growing and hasn't in 4 years...God said He would heal me and I believe Him..I'll be praying for both of you...In Gods Love Barbara
Hi. I lost my mom to liver cancer four years ago. Now my brother has been told he has several masses on his liver. I have lost all hope because my mom died and I'm scared he will have the same fate. I ran across you on the CSN. Would you be so kind to guide me in some ways as far as treatments?0 -
liver cancerarivera1 said:Help
Hi. I lost my mom to liver cancer four years ago. Now my brother has been told he has several masses on his liver. I have lost all hope because my mom died and I'm scared he will have the same fate. I ran across you on the CSN. Would you be so kind to guide me in some ways as far as treatments?
i had RFA (radio frequency ablation) done in Cleveland, Ohio at The Cleveland Clinic... Worked wonderful for me.. I would suggest to anyone with liver cancer to check this option out with their doctor or even a 2nd or 3rd opinion. RFA is also being used on lung and other types of cancer now.RFA is overnight stay in hospital and back to work in a few days.. Any Questions, please ask...
In Gods Love....Barbara0 -
dad has liver canceroffutt9 said:liver cancer
i had RFA (radio frequency ablation) done in Cleveland, Ohio at The Cleveland Clinic... Worked wonderful for me.. I would suggest to anyone with liver cancer to check this option out with their doctor or even a 2nd or 3rd opinion. RFA is also being used on lung and other types of cancer now.RFA is overnight stay in hospital and back to work in a few days.. Any Questions, please ask...
In Gods Love....Barbara
Hey Barbara my name is Shay! My dad was told April of last year that he has hcc as well they told him that only treatment out there for him was nexavar! However he can not take the full dose of it cause it made him sick! I'm not sure if his Dr knows what he is doing or not! He doesn't seem to answer many questions I ask! If I can get some advice to help my dad It would be very appreciated. I am 34 years old and trying to do everything I can do to help him and my mom out! I live in South Carolina. Anything from anyone would help. Not sure of a lot of questions to ask the Dr either. My dad has hcc with spots on his spine that came from the liver as well. He doest have hepatitis nor is he a drinker! Thanks for anyone who can help!
MrsTigger.0 -
Sorry it got posted moreoffutt9 said:liver cancer
i had RFA (radio frequency ablation) done in Cleveland, Ohio at The Cleveland Clinic... Worked wonderful for me.. I would suggest to anyone with liver cancer to check this option out with their doctor or even a 2nd or 3rd opinion. RFA is also being used on lung and other types of cancer now.RFA is overnight stay in hospital and back to work in a few days.. Any Questions, please ask...
In Gods Love....Barbara
Sorry it got posted more then one time0 -
my email if you want to arrange a phone callMrsTigger said:dad has liver cancer
Hey Barbara my name is Shay! My dad was told April of last year that he has hcc as well they told him that only treatment out there for him was nexavar! However he can not take the full dose of it cause it made him sick! I'm not sure if his Dr knows what he is doing or not! He doesn't seem to answer many questions I ask! If I can get some advice to help my dad It would be very appreciated. I am 34 years old and trying to do everything I can do to help him and my mom out! I live in South Carolina. Anything from anyone would help. Not sure of a lot of questions to ask the Dr either. My dad has hcc with spots on his spine that came from the liver as well. He doest have hepatitis nor is he a drinker! Thanks for anyone who can help!
MrsTigger.
My husband is now past 4 weeks in the trial with Nexavar and Torisel. He got such a bad rash that they took him off Nexavar for a week. He's back on. I am happy to share what I have learned about this disease and what we are doing in terms of the trial and diet. He will be scanned in mid April to see if the tumors have stopped growing.
dvmendoza@sbcglobal.net0 -
need to share info andreanortha914 said:Hi Dori,
While I don't have
Hi Dori,
While I don't have primary HCC, I do have stage IV cholangiocarcinoma with mets to my liver and spine. At this point, my oncologist and surgeon are treating my liver for the numerous lesions I have. If you feel it would help, please send an email to andreanorth@loopmastersinc.com. I'd be happy to give you a call and let you know what my current treatments and status are. Hang in there, when you're given a stage IV diagnosis it's hard to pick yourself off of the floor and catch you breath. We're all individuals, if we were statistics than I would have gone into the light by now. I was diagnosed in June of 2010 and am doing (as my doctors would say) remarkably well considering I have a chemo-resistant cancer. Take care.
Andrea
Greetings for Easter week to everyone who is sharing. I am addressing this to Ms.Andrea North who reported that had cholangiocarcinoma since June 2010. My wife was recently diagnotsed with the same. Volumetric analysis indicates over 70% of the liver have been infected. MRIs biopsies and PET Scan confirm the findings. Indeed we were advised that there is no specific chemo therapy that works on CC but your report seems to indicate otherwise. My wife will start her FolFox treatments this coming friday at the Dana Farber in Boston. May I contact you via your email? Mine is arlaba2007@gmail.com. I am prepared, in case the chemo therapy does not work, to go to alternative medical treatments and modalities. I have considered as options: St.George Klinik in Germany with Dr. Douwes, Paracelsus in Switzerland with Dr. Rou and the combined East/West treatments at modern hospitals in Guangzhou China (Fuda and Guangzhou Modern hospital) I am in fact meeting up with one of the radiologist/oncologists from China who was trained in Spain for Masters degree in Medicine. I am not giving up hope at all. But I am not too confident with conventional treatments as all my readings seem to confirm the prognosis of the first two highly experienced doctors who diagnosed her disease last January: fast acting, late stage, no chemo agent works, if any does it will only be short term, go for quality of life more than survival rate, due to the size of lesions and metastatic features no hope for liver transplant or even resectioning, no hope for SIRT of radioactive pellets, no hope for Proton beam or any form of radiation therapy. Please help me understand and know what your doctors did to keep you alive and I assume well enough to write back after nearly 2 years from the time they discovered your condition. I shall email you separately in case you do not get to read this message. To all others seeking help and wish to consider alternatives, let me know where I can be of help. Thank you all! Tony Hopeful Husband0 -
To Tony, Hopeful Husbandhopeful husband said:need to share info andrea
Greetings for Easter week to everyone who is sharing. I am addressing this to Ms.Andrea North who reported that had cholangiocarcinoma since June 2010. My wife was recently diagnotsed with the same. Volumetric analysis indicates over 70% of the liver have been infected. MRIs biopsies and PET Scan confirm the findings. Indeed we were advised that there is no specific chemo therapy that works on CC but your report seems to indicate otherwise. My wife will start her FolFox treatments this coming friday at the Dana Farber in Boston. May I contact you via your email? Mine is arlaba2007@gmail.com. I am prepared, in case the chemo therapy does not work, to go to alternative medical treatments and modalities. I have considered as options: St.George Klinik in Germany with Dr. Douwes, Paracelsus in Switzerland with Dr. Rou and the combined East/West treatments at modern hospitals in Guangzhou China (Fuda and Guangzhou Modern hospital) I am in fact meeting up with one of the radiologist/oncologists from China who was trained in Spain for Masters degree in Medicine. I am not giving up hope at all. But I am not too confident with conventional treatments as all my readings seem to confirm the prognosis of the first two highly experienced doctors who diagnosed her disease last January: fast acting, late stage, no chemo agent works, if any does it will only be short term, go for quality of life more than survival rate, due to the size of lesions and metastatic features no hope for liver transplant or even resectioning, no hope for SIRT of radioactive pellets, no hope for Proton beam or any form of radiation therapy. Please help me understand and know what your doctors did to keep you alive and I assume well enough to write back after nearly 2 years from the time they discovered your condition. I shall email you separately in case you do not get to read this message. To all others seeking help and wish to consider alternatives, let me know where I can be of help. Thank you all! Tony Hopeful Husband
I just sent an email to the address you listed in your post. You may want to check your spam file in case my adress wasn't recognized. If you didn't receive it, please email me at andreanorth@loopmastersinc.com and I'll resend it to you or cut and paste it to this site.
Andrea0 -
Here is My Fathers Story
My father was diagnosed with HCC in July last year with a 9 cm tumor multiple nodes outside the liver (Lymph Nodes). Doctors first tried TACE followed by Sorafenib for 3 months, which took a toll on him. He lost 20 Kgs in a span of 2 months and got to a stage where he could barely get up and walk. After all this his tumor shrunk by couple of centimeters but doctors ruled out any surgical procedure due to his age (71). Towards the end of November last year, he decided to stop Sorafenib (mainly due to side effects) and this is when his real fightback started. He started alternative form of medicine (Homeopathy and Ayurveda) and some home remedies and today he is kind of reborn. He has regained most of the lost weight, walks 3-4 miles a day, got back to work and the most important part was his recent liver function test results. Most results are normal and his AFP reading is now 3.7 (used to be above 400). I am not sure if the alternate form of medicine has helped, but my father firmly believes that it is one's will to fightback. He is not worried about the tumor anymore and does not want to get a scan done as well. His main priority is quality of life. This is the story of my father who has been battling cancer for the last 10 months who believes positive attitude is the key. My father is based in India, but will be in the US for the next couple of months and if you would like to speak to him, I can connect you with him.
Chetan0 -
there are options but you must move fast
Hi Dori,
I can sense your panic. So yes, I am willing to share/talk with you about options. My wife was recently diagnosed with cholangiocarcinoma last February and started chemo treatments in Boston yesterday. Our 3 adult children are helping a lot in researching for options. You may contact me first via email at arlaba2007@gmail.com for some exchange that is not too open t the world to see. I can then give you my contact numbers if you and your husband wish to talk about the options we are aware of. Just to give you a quick rundown:
1. First, your options might be dictated by your financial situation. Do you have adequate insurance to cover all the anticipated costs? Does your insurance allow you to get treatments abroad? Will they cover alternative, non-conventional therapies? If not, do you have the financial flexibility to make choices or will you be limited travel wise and family situation wise by your financials?
2. Second, do you have a very clear idea of the exact prognosis on your husbands condition?
Did the doctors do an MRI, PetCt not just CT scan to see the extent of METs if any; did they do the biopsy? You have to have all the records intact because you may have to send them from one hospital/doctor to another if you are still on exploratory stage.
3. Third, if you know what you are dealing with and if you know your limitations or flexibilities i.e. family situation, financials, insurance, you can then proceed to look at several options:
3.1 resectioning/transplant...your husband's doctors will tell you if he is still qualified...but one of the CSN members Im in contact with forwarded to me a new method of liver surgery done by a doctor in San Diego. They take the liver out, remove the tumor while in a vat of cold water, put it back and thus avoid immuno suppresants. I can send you the link if you want to view it. my wife's liver could not be resected nor does she qualify for transplant.
3.2.radioactive pellets (SIRT)..they have to do an angiomapping to see if he qualifies...if yes, they will bombard the cancer cells hoping that at least 70% of the pellets go to the tumor sites. my wife dit not qualify for this also.
3.3 radiation therapy...there are severa i think one is IGRT.. the most sophisticated is the Proton beam...again the doctors will determine if your husband qualifies for this...again my wife's tumor had grown/spread to such an extent that this was ruled out, otherwise she could suffer a lot, maybe expire faster.
3.4 chemotherapy...this is where we see different approaches and medications. HCC might have more cases and more trial and error data with various chemo agents..unfortunately for my wife's cholangio the same cannot be said..
3.5 non-conventional...i have spoken with cancer survivors who went to St. George Klinik in Germany for hyperthermia treatments combined with chemo, i have resarched IPT or insulin potentiation therapy which is available in the USA but still not accepted by many doctors there due to various reasons, I have spoken with those who went to Paracelsus in Switzerland where we might bring my wife after her chemo treatments if we do not see enough progress or if her condition gets worse and I have spoken with many survivors who went to Fuda or Modern Cancer Hospitals in Guanzhou China where they employ both East and West treatment modalities.
3.6 The most important of all: Prayers and a Strong Will to live! I can tell you countless stories. Miracles do happen! And medical science cannot explain them except to give a term for the "suicide of cancer cells" in the same vein that they give a term for those who get cured during trial runs but did not use the drug under trial..i.e. placebo effect.
If you and your husband need to speak I can email you my skype name and my phone numbers. In Asia stem cells are also now being done but this will run up to as high as US$100th. Sadly, the doctors said that my wife's condition may not also qualify her for such. Despite all these negatives we have a strong faith and continue to be hopeful. Our prayers for your family.
Tony0 -
to arivera re your brotherarivera1 said:Help
Hi. I lost my mom to liver cancer four years ago. Now my brother has been told he has several masses on his liver. I have lost all hope because my mom died and I'm scared he will have the same fate. I ran across you on the CSN. Would you be so kind to guide me in some ways as far as treatments?
How old is your brother? Have the massess been biopsied? And if so, are they malignant? Have they identified the primary type of cancer? Do review our posts in this CSN site and contact me or even ms andrea north who has been extremely helpful. This network "empowers" both caregivers such as yourself and the patients not only to know what we are all dealing with but we can compare, make choices and have the flexibility nowadays, not just rely on one or two opinions of doctors who can also make mistakes or at the very least are not infallible. It is prudent to research and to know exactly what your brother really has and what the alternatives are because each case is different and will have to be handled differently. As one of our doctors said, a national scientist/gastroenterologis, medical science today has improved a lot but it is still not an exact science...they often go with "probabilities". Good luck and our prayers for all in this network and those who have yet to discover its wonderful sharing and giving of information from those who seek and those who share.
Tony0 -
liver cancerMrsTigger said:dad has liver cancer
Hey Barbara my name is Shay! My dad was told April of last year that he has hcc as well they told him that only treatment out there for him was nexavar! However he can not take the full dose of it cause it made him sick! I'm not sure if his Dr knows what he is doing or not! He doesn't seem to answer many questions I ask! If I can get some advice to help my dad It would be very appreciated. I am 34 years old and trying to do everything I can do to help him and my mom out! I live in South Carolina. Anything from anyone would help. Not sure of a lot of questions to ask the Dr either. My dad has hcc with spots on his spine that came from the liver as well. He doest have hepatitis nor is he a drinker! Thanks for anyone who can help!
MrsTigger.
Mrs. Tigger... I feel so Blessed!!!! I no that not everyone has the same results as me but I had lesions all over both lobes and big tumors...Dr. Sipperstein at Cleveland clinic in cleveland Ohio suggested RFA Radio frequency ablation...He had never done any as large as MINE BUT i SAID YES AND IT WORKED WONDERFULLY...In 2003, they gave me 3 months to live...Its been 9 years!!! I give all the Glory to God!!!.....Please feel free to contact me if you wish and read my story at csn...Miracle in work...God has a plan for me. In Gods Love Barbara0
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