Week one down

ECson
ECson Member Posts: 26
Dad finished week one of 5.5 weeks of chemo rads combined. We had cisplatin infusion Monday and then 5FU pump Monday-today. Rads were at esophagus and clavicle lymph. Day 1-2 were good but ol boy hit the wall yesterday. He is super tired and esophagus is burning up. I am super proud!

Comments

  • Freida
    Freida Member Posts: 182
    Hi. Your Dad and my husband
    Hi. Your Dad and my husband are at about the same stage of treatment. Bill had day 9 (of 28) of radiation today - he also has the 5FU pump for 5 days a week, but has oxaliplatin and taxol for his infusion (every other monday). He is not having the burning feeling yet, but they expect it to hit next week. Definitely fatigued like your Dad. The doc said to try and be active to keep his energy levels up. Glad to hear your Dad is doing ok. Good luck to him.
  • TerryV
    TerryV Member Posts: 887
    Ice the Rad target
    My husband did a cisplatin/5FU regime just like your dad. He found that if he pre-iced the rad target about an hour before the rad appointment, he did not get the burn. Hope this idea helps your dad.

    Hopes & prayers for continued treatment success!

    Terry
    wife to Nick, age 48
    dx 05/19/11 T3N1M0
    28 rads / 2 weeks inpatient Cisplatin / 5FU
    THE 09/08/11
    Clean Path 09/13/11
  • Karrie42
    Karrie42 Member Posts: 23
    getting ready to be in same boat...
    My Dad will be starting his 5.5 weeks early next week. Thanks for the ice advice! We are entering unknown territory here - glad to know we are not alone!

    - Karrie
  • ECson
    ECson Member Posts: 26
    Karrie42 said:

    getting ready to be in same boat...
    My Dad will be starting his 5.5 weeks early next week. Thanks for the ice advice! We are entering unknown territory here - glad to know we are not alone!

    - Karrie

    Holy smokes
    Boy the 5 day 5FU is really hitting Dad hard in the mouth! He is very very sore. He had to get a lidocaine solution to help with the pain. 4 weeks to go.... Ugh
  • AngieD
    AngieD Member Posts: 493
    ECson said:

    Holy smokes
    Boy the 5 day 5FU is really hitting Dad hard in the mouth! He is very very sore. He had to get a lidocaine solution to help with the pain. 4 weeks to go.... Ugh

    If you're talking about
    If you're talking about mouth sores, have you tried many saline rinses and gargles a day?
    Angie
  • ECson
    ECson Member Posts: 26
    AngieD said:

    If you're talking about
    If you're talking about mouth sores, have you tried many saline rinses and gargles a day?
    Angie

    Yep
    They started Saturday. I will mention that to him. The Lido rinse worked pretty good. The rad-onco also told him that the radiation pain won't hit full for two more weeks! Fun stuff.