Lori - how did it go?

lizdeli
lizdeli Member Posts: 569 Member
Hi Lori
I've been thinking of you, wasn't your appointment today at MDA?
Hugs,
Liz

Comments

  • Lorikat
    Lorikat Member Posts: 681 Member
    Appts are scheduled for Jan
    Appts are scheduled for Jan 25, 26, and 27th. I remember when my kids used the term "kinda-sorta" and I would ask for an explanation. NOW I get it! I am "kinda-sorta" nervous about the outcome. Will let you know when I know, and thanks for thinking of me.... Lori
  • sephie
    sephie Member Posts: 650 Member
    appt at mda
    liz, when is your MDA app? mine is March 11 and 12. might be nice to meet if possible. sephie
  • lizdeli
    lizdeli Member Posts: 569 Member
    sephie said:

    appt at mda
    liz, when is your MDA app? mine is March 11 and 12. might be nice to meet if possible. sephie

    appt at MDA
    Sephie
    We'll be missing you by a few days. My appointments are March 5th and 6th. I would change them but I already booked the flights. Maybe next time we can coordinate. It's always good to have company there and meet fellow virtual friends in person.

    Liz
  • lizdeli
    lizdeli Member Posts: 569 Member
    lizdeli said:

    appt at MDA
    Sephie
    We'll be missing you by a few days. My appointments are March 5th and 6th. I would change them but I already booked the flights. Maybe next time we can coordinate. It's always good to have company there and meet fellow virtual friends in person.

    Liz

    Lori.....waiting to hear....
    How did your appointments go? I'm on pins and needles......
    xoxo
    Liz
  • Lorikat
    Lorikat Member Posts: 681 Member
    lizdeli said:

    Lori.....waiting to hear....
    How did your appointments go? I'm on pins and needles......
    xoxo
    Liz

    Ck up results...
    Wow! What a tiring three days!

    NO METASTISIS! Tumor is very, very small now. Dr. Chang started to biopsy it but decided to "wait and see" till next appt in three months. He DID say he wasn't PLANNING to do surgery on me.....so, I am feeling very good about things.

    Pain in hips and lower back was dx as arthritis exacerbated by radiation therapy. Dr reminded me that at my age arthritis isn't unusual. Never hurt before radiation though. I askd so many questions the Dr told me to take my Ativan! Kinda hurt my feelings, LOL!

    Last appt was with fantastic onc/gyn. NO stenosis YET.....BUT...WE ALL HAVE TO BE DILIGENT BECAUSE STENOSIS CAN DEVELOPE SLOWLY OVER TIME. THE ONC/gyn Here at MDA works closely with the rad docs (and patients) and really gets angry when women are left damaged when they didn't need to be. (sometimes it CANNOT be helped.)

    Other thing I was told and asked to pass on: even if you have had a hysterectomy, had your cervix removed, and only have a part of an ovary left, get your yearly exam.!! The vagina and pelvic floor NEED TO BE EXAMAINED!! I had been told a pap wasn't necessary any longer. If I had been having my annual exams the tumor in my anal canal would have (most likely) been found much earlier. Rad PA also said basically the same thing.

    I feel blessed to be here at MDA....the doctors are awesome.......BUT am ready to go home! Lorikat
  • mp327
    mp327 Member Posts: 4,440 Member
    Lorikat said:

    Ck up results...
    Wow! What a tiring three days!

    NO METASTISIS! Tumor is very, very small now. Dr. Chang started to biopsy it but decided to "wait and see" till next appt in three months. He DID say he wasn't PLANNING to do surgery on me.....so, I am feeling very good about things.

    Pain in hips and lower back was dx as arthritis exacerbated by radiation therapy. Dr reminded me that at my age arthritis isn't unusual. Never hurt before radiation though. I askd so many questions the Dr told me to take my Ativan! Kinda hurt my feelings, LOL!

    Last appt was with fantastic onc/gyn. NO stenosis YET.....BUT...WE ALL HAVE TO BE DILIGENT BECAUSE STENOSIS CAN DEVELOPE SLOWLY OVER TIME. THE ONC/gyn Here at MDA works closely with the rad docs (and patients) and really gets angry when women are left damaged when they didn't need to be. (sometimes it CANNOT be helped.)

    Other thing I was told and asked to pass on: even if you have had a hysterectomy, had your cervix removed, and only have a part of an ovary left, get your yearly exam.!! The vagina and pelvic floor NEED TO BE EXAMAINED!! I had been told a pap wasn't necessary any longer. If I had been having my annual exams the tumor in my anal canal would have (most likely) been found much earlier. Rad PA also said basically the same thing.

    I feel blessed to be here at MDA....the doctors are awesome.......BUT am ready to go home! Lorikat

    Hi Lorikat--
    Congrats on the great results from your exams! Let's hope that your tumor remains the same and nothing further needs to be done. Thanks for updating us and sharing some very good information about pelvic exams. Have a safe trip home!
  • lizdeli
    lizdeli Member Posts: 569 Member
    mp327 said:

    Hi Lorikat--
    Congrats on the great results from your exams! Let's hope that your tumor remains the same and nothing further needs to be done. Thanks for updating us and sharing some very good information about pelvic exams. Have a safe trip home!

    Good news Lori
    What's left could be scar tissue as well so that's why they may be taking a wait and see approach. I'm so relieved! Happy Dance time!
    xoxo
    Liz
  • RoseC
    RoseC Member Posts: 559
    Lorikat said:

    Ck up results...
    Wow! What a tiring three days!

    NO METASTISIS! Tumor is very, very small now. Dr. Chang started to biopsy it but decided to "wait and see" till next appt in three months. He DID say he wasn't PLANNING to do surgery on me.....so, I am feeling very good about things.

    Pain in hips and lower back was dx as arthritis exacerbated by radiation therapy. Dr reminded me that at my age arthritis isn't unusual. Never hurt before radiation though. I askd so many questions the Dr told me to take my Ativan! Kinda hurt my feelings, LOL!

    Last appt was with fantastic onc/gyn. NO stenosis YET.....BUT...WE ALL HAVE TO BE DILIGENT BECAUSE STENOSIS CAN DEVELOPE SLOWLY OVER TIME. THE ONC/gyn Here at MDA works closely with the rad docs (and patients) and really gets angry when women are left damaged when they didn't need to be. (sometimes it CANNOT be helped.)

    Other thing I was told and asked to pass on: even if you have had a hysterectomy, had your cervix removed, and only have a part of an ovary left, get your yearly exam.!! The vagina and pelvic floor NEED TO BE EXAMAINED!! I had been told a pap wasn't necessary any longer. If I had been having my annual exams the tumor in my anal canal would have (most likely) been found much earlier. Rad PA also said basically the same thing.

    I feel blessed to be here at MDA....the doctors are awesome.......BUT am ready to go home! Lorikat

    Congratulations!
    Congratulations! Have a safe trip home!
  • AZANNIE
    AZANNIE Member Posts: 445 Member
    Lorikat said:

    Ck up results...
    Wow! What a tiring three days!

    NO METASTISIS! Tumor is very, very small now. Dr. Chang started to biopsy it but decided to "wait and see" till next appt in three months. He DID say he wasn't PLANNING to do surgery on me.....so, I am feeling very good about things.

    Pain in hips and lower back was dx as arthritis exacerbated by radiation therapy. Dr reminded me that at my age arthritis isn't unusual. Never hurt before radiation though. I askd so many questions the Dr told me to take my Ativan! Kinda hurt my feelings, LOL!

    Last appt was with fantastic onc/gyn. NO stenosis YET.....BUT...WE ALL HAVE TO BE DILIGENT BECAUSE STENOSIS CAN DEVELOPE SLOWLY OVER TIME. THE ONC/gyn Here at MDA works closely with the rad docs (and patients) and really gets angry when women are left damaged when they didn't need to be. (sometimes it CANNOT be helped.)

    Other thing I was told and asked to pass on: even if you have had a hysterectomy, had your cervix removed, and only have a part of an ovary left, get your yearly exam.!! The vagina and pelvic floor NEED TO BE EXAMAINED!! I had been told a pap wasn't necessary any longer. If I had been having my annual exams the tumor in my anal canal would have (most likely) been found much earlier. Rad PA also said basically the same thing.

    I feel blessed to be here at MDA....the doctors are awesome.......BUT am ready to go home! Lorikat

    Lorikat
    Congratulations on your great news! Now you can breathe a sigh of relief...
  • Phoebesnow
    Phoebesnow Member Posts: 600 Member
    AZANNIE said:

    Lorikat
    Congratulations on your great news! Now you can breathe a sigh of relief...

    Check up
    Congratulations! Thanks for all the good info!