Lymph nodes

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Comments

  • Sandblaster
    Sandblaster Member Posts: 17
    Dawn50 said:

    love the attitude
    I love your attitude and surely wish I could find just a little of that in me!

    Try to stay positive
    Dawn, we all have good and bad days. Biggest thing is dont insist on being alone. I have a lot of people around me that want to help, but I have to let them in and not take this whole burden on myself. Sometimes my ego wants to get in the way......gotta put it in time out and open the doors for my support....lol You know we are here for you.
  • ellenm4
    ellenm4 Member Posts: 124

    yes to lymph nodes, and no to surgery
    My husband had lymph nodes involved, one of which was above his collar bone, so that made him 3B and not a surgery candidate. Only one node popped on the Pet, so the plan was to try surgery contingent on biopsy of lymph nodes--so he went under knowing he'd either wake up with with a lobe of his lung gone or with a diagnosis of advanced stage cancer. He got the latter--3 of 4 lymph nodes they biopsied had tumor present. It really sucked,but now he had chemo and radiation and is NED--and if this continues to work out the way it has been, it was probably easier than having surgery and chemo (he sailed--more or less- through chemo and radiation and only had a few rough days). So, I don't think they can always find hot nodes on scans, especially if they're deep.

    congrats!!
    Congrats to your husband for dancing with NED!! That is always the most wonderful news. You are right that not all hot nodes will show up in scans. Will always keep you and your husband in my prayers. Good luck and wish you only the best of news when time for the scans!
  • plars0402
    plars0402 Member Posts: 5

    Im watching you
    Ha, yeah, the 10 day mark isnt normal. My surgeon is a really great guy. He took 5 1/2 hours to remove the one lobe. He really trys to create as little damage as possible for his patients, especially cancer patients, so they can start chemo as soon as possible after surgery, if necessary. Im keeping my eye on you. All I can offer is an ear at this point, but I know from experience, that is a lot sometimes. So is your treatment contingent on you making the decision? That must be tough since you are having such a rough time. Yours is probably more excessive because it is the LUL, is that right???? Mine was RML which is the smallest...ergo, much different results. Yours is a much larger lobe to remove. It kind of sucks cause you know you need to try and make the best decision in the beginning to remove all possible while surgery is an option. I know someone who had his entire left lung removed 20 years ago, no chemo and never had cancer again. So I guess that is possible. I hope some others with more experience latch on to your thread to offer you some actual experience, but you have a new friend here...........

    rml
    Hi, I have been reading your posts and glad you are doing so well. I wanted to ask if you had any other physical symptoms prior to your diagnosis. I am having a difficult time trying to decide how to handle this 7mm nodule I have in the rml. I know I can't procrastinate - can't sleep due to anxiety. Thank you for your posts. Pam