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  • MomhasStage4EC
    MomhasStage4EC Member Posts: 39
    #22
    TerryV said:

    Too much of an IT geek to trust FB
    Being a Network Administrator for years has taught me to distrust the Internet. Too many hackers and too much personal information available on Facebook. That plus I don't really need abitger computer site to take more time from my day.

    The hazards of being a geek :)

    Terry

    Aww poor face book lol. All
    Aww poor face book lol. All of my family and friends are on it...I mostly use it on my iphone. It hasnt ruined my phone yet. As for my computer well its already a POS so I dont mind :)
  • ritawaite13
    ritawaite13 Member Posts: 236
    #23
    adube said:

    Awesome!
    That's too cool! I think the more popular modern day derby gets the smaller the world becomes between us all. What city does your niece skate for? What an awesome name!

    city
    Hi
    My niece skates in a small town in Minnesota - Lindstrom. She's relatively new to the sport and when she told the family her name, we all roared with laughter. She's quite a character. Your name is pretty darned cute, too. 8-)
  • cher76
    cher76 Member Posts: 292
    #24
    Facebook page
    This is my page.
    https://www.facebook.com/profile.php?id=1753740459

    The following page is by our doctor at MD Anderson. Post some good info sometimes. https://www.facebook.com/pages/Esophageal-and-Gastric-Cancer-Resource/196966500315899
  • JimboC
    JimboC Member Posts: 264
    #25
    Here's mine
    http://www.facebook.com/profile.php?id=1130670792 Gotta warn you though, I'm pretty boring. ;)
  • mruble
    mruble Member Posts: 174
    #26
    Here's mine --
    Here's mine -- https://www.facebook.com/mary.ruble
    And here are a few of EC groups -- https://www.facebook.com/groups/87032539390/ and https://www.facebook.com/groups/40251501786/ and https://www.facebook.com/groups/6744305812/
  • JReed
    JReed Member Posts: 428
    #27
    mruble said:

    Here's mine --
    Here's mine -- https://www.facebook.com/mary.ruble
    And here are a few of EC groups -- https://www.facebook.com/groups/87032539390/ and https://www.facebook.com/groups/40251501786/ and https://www.facebook.com/groups/6744305812/

    I cannot locate Mary Ruble, Jimbo and some others on fb
    I copy and paste your facebook links but I must be doing it wrong - I can find all of you - any ideas as to what I am doing wrong?

    Judy
  • ndmp
    ndmp Member Posts: 36
    #28
    JReed said:

    I cannot locate Mary Ruble, Jimbo and some others on fb
    I copy and paste your facebook links but I must be doing it wrong - I can find all of you - any ideas as to what I am doing wrong?

    Judy

    Face Book
    Hello,

    I haven't posted for a long time. I lost my dad to this beast we know as EC. The beautiful thing was he lived to see my beautiful twins be born, for that I am gratful. I try to us FB as a way to get the word out about any new development in cancer. I did send out a few friend request. You can send me a friend request Nicole Mantovani-Percy
    Nicole
  • mruble
    mruble Member Posts: 174
    #29
    Facebook group
    Someone mentioned a Facebook group but it doesn't look like one has been set up yet so I created one (hope that's okay) https://www.facebook.com/groups/140991832678744/
    It is a secret group so you are only able to see it, its members and any postings if you are a member of the group. Right now I'm only friends with a couple of people from here so they are the only ones who have been added to the group. Everyone is welcome and once you are a member, you can add additional people.

    CSN Esophageal Cancer Group
  • Ginny_B
    Ginny_B Member Posts: 532
    #30
    mruble said:

    Facebook group
    Someone mentioned a Facebook group but it doesn't look like one has been set up yet so I created one (hope that's okay) https://www.facebook.com/groups/140991832678744/
    It is a secret group so you are only able to see it, its members and any postings if you are a member of the group. Right now I'm only friends with a couple of people from here so they are the only ones who have been added to the group. Everyone is welcome and once you are a member, you can add additional people.

    CSN Esophageal Cancer Group

    I'm on FB, but it's a
    I'm on FB, but it's a love/hate relationship. I finally figured out how to turnoff all the comments from people I don't know who comment on posts by people I do know. I only want to see what my kids/family say, or that some of my Corvette club friends say. Other than that, I don't need the social aspects of FB.

    There are ways to create private groups where only those IN the group can see the comments. I like that. Yesterday's post by me was happiness that Barkley is staying a Trojan for one more year! Fight on!
  • mruble
    mruble Member Posts: 174
    #31
    mruble said:

    Facebook group
    Someone mentioned a Facebook group but it doesn't look like one has been set up yet so I created one (hope that's okay) https://www.facebook.com/groups/140991832678744/
    It is a secret group so you are only able to see it, its members and any postings if you are a member of the group. Right now I'm only friends with a couple of people from here so they are the only ones who have been added to the group. Everyone is welcome and once you are a member, you can add additional people.

    CSN Esophageal Cancer Group

    Okay, so you'll need to be
    Okay, so you'll need to be invited if you want to join the group. I would add anyone who responded to the original posting but don't want to make any assumptions about your interest. So, just let me know if you want to be added.

    Mary
  • Ginny_B
    Ginny_B Member Posts: 532
    #32
    mruble said:

    Okay, so you'll need to be
    Okay, so you'll need to be invited if you want to join the group. I would add anyone who responded to the original posting but don't want to make any assumptions about your interest. So, just let me know if you want to be added.

    Mary

    Sure... add me! I think my
    Sure... add me! I think my FB name is just Ginny Bender (Upland, CA)
  • wagnhc
    wagnhc Member Posts: 10
    #33
    mruble said:

    Facebook group
    Someone mentioned a Facebook group but it doesn't look like one has been set up yet so I created one (hope that's okay) https://www.facebook.com/groups/140991832678744/
    It is a secret group so you are only able to see it, its members and any postings if you are a member of the group. Right now I'm only friends with a couple of people from here so they are the only ones who have been added to the group. Everyone is welcome and once you are a member, you can add additional people.

    CSN Esophageal Cancer Group

    Please add me to the FB group...Thanks!
    Heather Wagner http://www.facebook.com/profile.php?id=1187604104&ref=tn_tnmn
  • Mazj
    Mazj Member Posts: 42
    #34
    wagnhc said:

    Please add me to the FB group...Thanks!
    Heather Wagner http://www.facebook.com/profile.php?id=1187604104&ref=tn_tnmn

    Would love to be added
    Can't find my Facebook address- I think because I use my phone to access it. But I love the idea of the private group. If you can find me I am Marilyn Jacobs of Melbourne, Victoria, Australia. Thank you so much.
  • unclaw2002
    unclaw2002 Member Posts: 599
    #35
    mruble said:

    Okay, so you'll need to be
    Okay, so you'll need to be invited if you want to join the group. I would add anyone who responded to the original posting but don't want to make any assumptions about your interest. So, just let me know if you want to be added.

    Mary

    Mary please add me = I am at
    Mary please add me = I am at https://www.facebook.com/#!/profile.php?id=1417064323

    thanks Cindy
  • paul61
    paul61 Member Posts: 1,391 Member
    #36
    Mazj said:

    Would love to be added
    Can't find my Facebook address- I think because I use my phone to access it. But I love the idea of the private group. If you can find me I am Marilyn Jacobs of Melbourne, Victoria, Australia. Thank you so much.

    I would like to be added please
    I would like to be added to the group as well my Facebook address is http://www.facebook.com/profile.php?id=1490422440
  • jim2011
    jim2011 Member Posts: 115
    #37
    facebook
    please add me as well


    http://www.facebook.com/#!/profile.php?id=655594930
  • ritawaite13
    ritawaite13 Member Posts: 236
    #38
    mruble said:

    Okay, so you'll need to be
    Okay, so you'll need to be invited if you want to join the group. I would add anyone who responded to the original posting but don't want to make any assumptions about your interest. So, just let me know if you want to be added.

    Mary

    Me too
    Hi Mary,
    I'd like to be a part of this group too. My fb name is Rita Stenseth Waite. Thanks for setting this up.
    Rita
  • adube
    adube Member Posts: 63
    #39
    Proactive Daughter said:

    Hi, I just joined the group
    Hi, I just joined the group today adn would love to learn more from all of you. Can I join in on the Facebook group? One problem is that I can't find what my facebook address is. I'm Jen Collins from Sudbury, ontario...

    oops
    Hey Jen -- I couldn't find you in the look up-- too many Jen Collins I guess! Can you send me a friend request and then I can post your address for everyone up top? :)

    -Alissa (daughter of Mike, IV)
  • adube
    adube Member Posts: 63
    #40
    MomhasStage4EC said:

    Aww poor face book lol. All
    Aww poor face book lol. All of my family and friends are on it...I mostly use it on my iphone. It hasnt ruined my phone yet. As for my computer well its already a POS so I dont mind :)

    I agree
    I'm totally with you-- people get freaked out about personal info, but you don't have to share anything you don't want to, you know? Plus with all the additional privacy settings, it's easy to make different groups of friends who can or cannot see certain things on your site. For example, I don't allow anyone who adds me because they are roller derby fans to see anything about me other than my photos of derby. You know? Not even my wall or friends list. It's as private or as public as you choose to make it. Love that.
  • adube
    adube Member Posts: 63
    #41
    mruble said:

    Okay, so you'll need to be
    Okay, so you'll need to be invited if you want to join the group. I would add anyone who responded to the original posting but don't want to make any assumptions about your interest. So, just let me know if you want to be added.

    Mary

    great idea
    hey is there a way to make it public so we can follow the link and then have to request to join it? that would save you from having to invite everyone, then you could just accept the requests? Just a thought. Either way, I'd like to be added! :D

    Thanks!!
    -Alissa

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