CT SCAN results

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  • MsGebby
    MsGebby Member Posts: 659
    #22
    SIROD said:

    Copies of Notes, Results of tests...
    Hi Mary,

    Do you have your surgical report notes from your Breast Surgeon?
    Do you have your pathology report?
    Do you have your ct scan report?

    You should also include the doctors notes from your various appointments, surgeon, oncologist, thoracic surgeon.

    Reports can be picked up at your Medical Records department where your surgery was done, ct scan was taken. You can ask for the notes from your various doctors at their office.

    All that will be required is a signature. It is your right to have these notes and reports. They have to give them to you.

    It is nice to know what page they are really on via their notes. Perhaps your oncologist believes she gave you a prescription for hormonal therapy as you are ER and PR positive. This might work better than chemotherapy if you are post menopausal. This might also take care of any nodes in your lungs. You should be on some sort of treatment.

    I have my notes in order to give all my doctors a better look in what is going on with me. One of my doctors left his practice. They were four doctors and he and another decided to leave. It wasn't cordial and if I wanted his notes, I had to pay for them. I had all my notes from him as requested after each appointment for the 3 years. All I needed to do his photocopy the notes in my possession and give him copies. He didn't need to start from scratch with me. Notes belong to you, as you paid for them.

    When you see your oncologist, if you are not happy with her, then request a new oncologist. Sometimes, we just don't click with a person. Request a change.

    It sounds as though the communication line isn't open with your oncologist. This isn't good for you.

    Good luck and keep us posted.

    Doris

    Well ... she called me last
    Well ... she called me last night (oncologist) I can say I am breathing MUCH easier today. She was the doctor I first met a few weeks ago. She told me about her conversation with the TS and had hoped he would relay her message the way she told him. She told me that she won't change my treatment plan at this because the nodules are very small and doing surgery to the lungs just doesn't seem to be a good move right now. It's dangerous actually. She said the hormone therapy (which I have not started) will work as good as chemo so she is going that route. IF the hormone therapy shrinks the tumors then we have an answer. They are cancerous! Not sure if I will do the hormone therapy AND radiation at the same time. She wants me to discuss this with the radiology oncologist. I hear it can be very toxic to have both at the same time. By time I am done with radiation, it will be time for a new CT Scan anyway. I guess I can wait to get started on HT. I don't know. It's very scary knowing there is a possibility that cancer is gathering around the table having a feast in my lungs! I am trusting her on this. I have to.

    I am feeling relief today. I have an appt with the BS on Friday. My onco doc already told me the path report is perfect. NO problems! I have to make an appointment to see the onco doc (her request) for next week.

    So all is well for the moment. I am looking forward to enjoying this holiday season and cutting the rug! I am such a party animal!

    I hope you are feeling well and that your Holidays are merry and bright! Keep in touch. You are in my prayers. Thank you for being here for me. xoxo

    Mary
  • MsGebby
    MsGebby Member Posts: 659
    #23
    LoveBabyJesus said:

    Mary -- Sending you hugs and
    Mary -- Sending you hugs and positive thoughts your way. Please keep us posted.

    THANK YOU!!!! right back
    THANK YOU!!!! right back atcha <3
  • SIROD
    SIROD Member Posts: 2,194 Member
    #24
    MsGebby said:

    Well ... she called me last
    Well ... she called me last night (oncologist) I can say I am breathing MUCH easier today. She was the doctor I first met a few weeks ago. She told me about her conversation with the TS and had hoped he would relay her message the way she told him. She told me that she won't change my treatment plan at this because the nodules are very small and doing surgery to the lungs just doesn't seem to be a good move right now. It's dangerous actually. She said the hormone therapy (which I have not started) will work as good as chemo so she is going that route. IF the hormone therapy shrinks the tumors then we have an answer. They are cancerous! Not sure if I will do the hormone therapy AND radiation at the same time. She wants me to discuss this with the radiology oncologist. I hear it can be very toxic to have both at the same time. By time I am done with radiation, it will be time for a new CT Scan anyway. I guess I can wait to get started on HT. I don't know. It's very scary knowing there is a possibility that cancer is gathering around the table having a feast in my lungs! I am trusting her on this. I have to.

    I am feeling relief today. I have an appt with the BS on Friday. My onco doc already told me the path report is perfect. NO problems! I have to make an appointment to see the onco doc (her request) for next week.

    So all is well for the moment. I am looking forward to enjoying this holiday season and cutting the rug! I am such a party animal!

    I hope you are feeling well and that your Holidays are merry and bright! Keep in touch. You are in my prayers. Thank you for being here for me. xoxo

    Mary

    Start the Hormonals
    Dear Mary,

    I am glad that you had a good talk with your doctor. Did she say what kind of hormonal therapy that she will be giving you? I assure you that you can do radiation and hormonal therapy together. I did with no adverse effects. Also if your nodules are cancer, the hormonal therapy will reduce them or make them go away, like in disappear.

    You don't often hear them do surgery on lungs for breast cancer. It is a hard place to do surgery as you have the rib cage protecting it. That is why when cancer metastasize to that area, it is chemotherapy or hormonal therapy. Once in a while they will remove one lesion but, I would hardly think that is worth what you go through for that sort of surgery. It is different when it is primary, they then can remove a tumor but when in has metastasize, then one doesn't know how much cancer is there and still to small to find.

    Cancer is not an emergency. You don't need to start a hormonal right off, but I wouldn't hold out until after radiation, as cells to keep growing and multiplying.

    Best wishes to you, Mary

    Doris

    PS: I have my ct scan report and it is what I expected. My vacation is over and it will be back to the drugs for me. Ah well, I did have a lovely time without them.
  • jnl
    jnl Member Posts: 3,869 Member
    #25
    MsGebby said:

    Well ... she called me last
    Well ... she called me last night (oncologist) I can say I am breathing MUCH easier today. She was the doctor I first met a few weeks ago. She told me about her conversation with the TS and had hoped he would relay her message the way she told him. She told me that she won't change my treatment plan at this because the nodules are very small and doing surgery to the lungs just doesn't seem to be a good move right now. It's dangerous actually. She said the hormone therapy (which I have not started) will work as good as chemo so she is going that route. IF the hormone therapy shrinks the tumors then we have an answer. They are cancerous! Not sure if I will do the hormone therapy AND radiation at the same time. She wants me to discuss this with the radiology oncologist. I hear it can be very toxic to have both at the same time. By time I am done with radiation, it will be time for a new CT Scan anyway. I guess I can wait to get started on HT. I don't know. It's very scary knowing there is a possibility that cancer is gathering around the table having a feast in my lungs! I am trusting her on this. I have to.

    I am feeling relief today. I have an appt with the BS on Friday. My onco doc already told me the path report is perfect. NO problems! I have to make an appointment to see the onco doc (her request) for next week.

    So all is well for the moment. I am looking forward to enjoying this holiday season and cutting the rug! I am such a party animal!

    I hope you are feeling well and that your Holidays are merry and bright! Keep in touch. You are in my prayers. Thank you for being here for me. xoxo

    Mary

    I was told by my rads
    I was told by my rads oncologist to not do hormone therapy during rads. I will be anxious to see what yours says Mary.

    Good luck on Friday! Have a great holiday!


    Hugs, Leeza
  • MsGebby
    MsGebby Member Posts: 659
    #26
    SIROD said:

    Start the Hormonals
    Dear Mary,

    I am glad that you had a good talk with your doctor. Did she say what kind of hormonal therapy that she will be giving you? I assure you that you can do radiation and hormonal therapy together. I did with no adverse effects. Also if your nodules are cancer, the hormonal therapy will reduce them or make them go away, like in disappear.

    You don't often hear them do surgery on lungs for breast cancer. It is a hard place to do surgery as you have the rib cage protecting it. That is why when cancer metastasize to that area, it is chemotherapy or hormonal therapy. Once in a while they will remove one lesion but, I would hardly think that is worth what you go through for that sort of surgery. It is different when it is primary, they then can remove a tumor but when in has metastasize, then one doesn't know how much cancer is there and still to small to find.

    Cancer is not an emergency. You don't need to start a hormonal right off, but I wouldn't hold out until after radiation, as cells to keep growing and multiplying.

    Best wishes to you, Mary

    Doris

    PS: I have my ct scan report and it is what I expected. My vacation is over and it will be back to the drugs for me. Ah well, I did have a lovely time without them.

    Thanks Doris ... you make so
    Thanks Doris ... you make so much sense. When I see my oncologist (Tuesday) we will discuss this hormone and rads combo further. My pathology report show that the proliferation rate on these "c" cells are HIGH. That worries me. It is interesting that hormone therapy works like chemo. I guess it only works for those of us who are ER+, right?

    My heart skipped a beat seeing your comment about your own CT scan. It just isn't fair! What drugs will you be taking? I think of you often even though we have never met.

    Sister forever!

    xoxo
    Mary
  • MsGebby
    MsGebby Member Posts: 659
    #27
    jnl said:

    I was told by my rads
    I was told by my rads oncologist to not do hormone therapy during rads. I will be anxious to see what yours says Mary.

    Good luck on Friday! Have a great holiday!


    Hugs, Leeza

    Hey Leeza
    I will update
    Hey Leeza

    I will update after my appointment. How is the rad treatment going? I haven't started. Not anxious about it at all.

    One of the sisters posted that she has a nutritionist because her diet has to be specific since she is ER+. Have you heard this too? I am ER/PR+, Her2 negative, Stage 2, grade 2. My head is spinning.

    Be well my sister

    Mary
  • DianeBC
    DianeBC Member Posts: 3,881 Member
    #28
    MsGebby said:

    Well ... she called me last
    Well ... she called me last night (oncologist) I can say I am breathing MUCH easier today. She was the doctor I first met a few weeks ago. She told me about her conversation with the TS and had hoped he would relay her message the way she told him. She told me that she won't change my treatment plan at this because the nodules are very small and doing surgery to the lungs just doesn't seem to be a good move right now. It's dangerous actually. She said the hormone therapy (which I have not started) will work as good as chemo so she is going that route. IF the hormone therapy shrinks the tumors then we have an answer. They are cancerous! Not sure if I will do the hormone therapy AND radiation at the same time. She wants me to discuss this with the radiology oncologist. I hear it can be very toxic to have both at the same time. By time I am done with radiation, it will be time for a new CT Scan anyway. I guess I can wait to get started on HT. I don't know. It's very scary knowing there is a possibility that cancer is gathering around the table having a feast in my lungs! I am trusting her on this. I have to.

    I am feeling relief today. I have an appt with the BS on Friday. My onco doc already told me the path report is perfect. NO problems! I have to make an appointment to see the onco doc (her request) for next week.

    So all is well for the moment. I am looking forward to enjoying this holiday season and cutting the rug! I am such a party animal!

    I hope you are feeling well and that your Holidays are merry and bright! Keep in touch. You are in my prayers. Thank you for being here for me. xoxo

    Mary

    It is great to know that you
    It is great to know that you are feeling well and looking forward to the holidays Mary! I wish you the best and will be saying a prayer for you!


    Hugs, Diane

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