Taxol...numb feet, overall exhausted?

I have been on Taxol since July, I have had lots of blood transfusions and haven't needed one for a couple weeks so that could be why I am so tired but this last week the bottoms of my feet have been falling asleep. Anyone else experience that? I just feel zapped today but who knows why it could be as simple as all the running around this past weekend. I just get freaked out too easily. Thoughts?

Comments

  • carkris
    carkris Member Posts: 4,553 Member
    the numbness could be
    the numbness could be peripheral neuropathy, you should talk to your doc about it. Vit B6 is good for this. I didnt know and I still have it almost 2 years later.
  • mwallace1325
    mwallace1325 Member Posts: 806
    Had the numbness
    Had the numbness and sometimes "insane" itching on bottoms of feet. I never knew which was worse. Talk with your onc about it. Also, please remember to be good to yourself. The effect of all this is cumulative as a rule, so you may just be feeling it more as treatment goes on. I remember taxol being way harder on me than A/C, but that was just me.

    Best of luck. Sending prayers.

    marge
  • jnl
    jnl Member Posts: 3,869 Member
    carkris said:

    the numbness could be
    the numbness could be peripheral neuropathy, you should talk to your doc about it. Vit B6 is good for this. I didnt know and I still have it almost 2 years later.

    I didn't take chemo, but, I
    I didn't take chemo, but, I hope that the numbness gets better for you. Let us know.


    Hugs, Leeza
  • debi.18
    debi.18 Member Posts: 850 Member
    Yes
    I just finished 12 rounds of taxol and was exhausted the entire time - still am. I started having numb toes the last 2-3 treatments. I knew it was a side effect and thought I had made it through without them, but seems like it along with discolored, sore finger nails creeped up at the end.

    Talk to your ONC, I believe they can prescribe something for it. I'm hoping since I'm finished, mine won't last too much longer.

    Hugs,
    Debi
  • Noel
    Noel Member Posts: 3,095 Member

    Had the numbness
    Had the numbness and sometimes "insane" itching on bottoms of feet. I never knew which was worse. Talk with your onc about it. Also, please remember to be good to yourself. The effect of all this is cumulative as a rule, so you may just be feeling it more as treatment goes on. I remember taxol being way harder on me than A/C, but that was just me.

    Best of luck. Sending prayers.

    marge

    I agree with talking to your
    I agree with talking to your oncologist about this. I am hoping that he can help you out.


    Good luck and keep us updated!
  • Heatherbelle
    Heatherbelle Member Posts: 1,226 Member
    I didn't have Taxol but I
    I didn't have Taxol but I did have Taxotere, which is very similar. I didn't start experiencing the foot numbness until after my chemo treatments and now, about 13 months after my last chemo treatment, my toes still get numb once I'm on my feet for about 15 minutes or so. I just have to sit & rest for a little bit and it goes away. There are meds for neuropathy that you can take, though. My pain management doctor had me try neurontin and something else but (dang chemo brain) i can't remember the name of it. They made me really tired and since my neuropathy isn't too severe I just don't take the meds anymore & try to deal with it :)
    *hugs*
    Heather
  • VickiSam
    VickiSam Member Posts: 9,079 Member

    I didn't have Taxol but I
    I didn't have Taxol but I did have Taxotere, which is very similar. I didn't start experiencing the foot numbness until after my chemo treatments and now, about 13 months after my last chemo treatment, my toes still get numb once I'm on my feet for about 15 minutes or so. I just have to sit & rest for a little bit and it goes away. There are meds for neuropathy that you can take, though. My pain management doctor had me try neurontin and something else but (dang chemo brain) i can't remember the name of it. They made me really tired and since my neuropathy isn't too severe I just don't take the meds anymore & try to deal with it :)
    *hugs*
    Heather

    I endured both Taxol and Taxotere ...
    and I experience many many side efforts with both! blisters on the bottom of each foot, tingling in my hands as well as feet. Sorry to say ... like Miss Heatherbelle -- I continue to experience numbness in my feet and legs when standing still, or walking -- 1 year after my Taxol/Taxotere - Carboplatin has ended. Please note that I continued with herceptin for 1 year --- so many the combo of drugs - plus herceptin prolonged (or intensified) my side efforts -- Just my humble opinion.

    Please check with your Oncologist, and maybe he/she can recommend medication or exercise to help alleviate symptoms.

    Strength, Courage and Hope.

    Vicki Sam
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    debi.18 said:

    Yes
    I just finished 12 rounds of taxol and was exhausted the entire time - still am. I started having numb toes the last 2-3 treatments. I knew it was a side effect and thought I had made it through without them, but seems like it along with discolored, sore finger nails creeped up at the end.

    Talk to your ONC, I believe they can prescribe something for it. I'm hoping since I'm finished, mine won't last too much longer.

    Hugs,
    Debi

    I hope your oncologist can
    I hope your oncologist can prescribe some medication for you to help you.


    Hugs, Jan
  • carkris
    carkris Member Posts: 4,553 Member
    VickiSam said:

    I endured both Taxol and Taxotere ...
    and I experience many many side efforts with both! blisters on the bottom of each foot, tingling in my hands as well as feet. Sorry to say ... like Miss Heatherbelle -- I continue to experience numbness in my feet and legs when standing still, or walking -- 1 year after my Taxol/Taxotere - Carboplatin has ended. Please note that I continued with herceptin for 1 year --- so many the combo of drugs - plus herceptin prolonged (or intensified) my side efforts -- Just my humble opinion.

    Please check with your Oncologist, and maybe he/she can recommend medication or exercise to help alleviate symptoms.

    Strength, Courage and Hope.

    Vicki Sam

    Not that I am glad you have
    Not that I am glad you have this VS but it brings me some comfort as two years later, i still have issues with hands, feet and legs. I tried neurontin but it made me horribly depressed with the most minimal dose. you can also try lyrica. As I said before, I was told to try B6 by an oncology dietician at Dana farber, I wish I had known this when going through treatment, as I wonder if it would havemade the neuroathy less severe.
  • Tkitty
    Tkitty Member Posts: 56
    carkris said:

    Not that I am glad you have
    Not that I am glad you have this VS but it brings me some comfort as two years later, i still have issues with hands, feet and legs. I tried neurontin but it made me horribly depressed with the most minimal dose. you can also try lyrica. As I said before, I was told to try B6 by an oncology dietician at Dana farber, I wish I had known this when going through treatment, as I wonder if it would havemade the neuroathy less severe.

    Taxol
    I finished 4 rounds of Taxol the end of May. My oncologist said the numbness in my toes probably was perminent. Some days it is from my ankles down that feel numb, but mostly my toes. And I did have some funky things happen to my fingernails and toe nails. But, they are growing out, slowly. My energy is starting to come back, so I am finding that very exciting.