Bloating and swelling

ldpettit
ldpettit Member Posts: 128
Hi everyone. I haven't been on here nor posted in awhile. I have a question. I started A/C in March and it ended in June. In June I began Taxol/Herceptin combo. I have noticed a lot of swelling and bloating in my stomach. Since I haven't been on in awhile, maybe someone else has posted this question... or may have some info.

Is this common? Will it go away? Has anyone else experienced this?

I have spoken with my onc and she rushes me or blows me off and says to wait til the Taxol is completed. I've never had such bloating in my stomach and I swear I look pregnant... and I know I'm not.

Any feedback is greatly appreciated. Thank's much.

On a side note, the Taxol/Herceptin combo is not nearly as bad as the A/C combo. Sure I have some neuropathy, but it's bearable. My hair has even started to grow back. Not sure when I can color it, but man does it need it.
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Comments

  • fighting4five
    fighting4five Member Posts: 71
    Hi...I am currently getting
    Hi...I am currently getting Taxol and Herceptin, Taxol weekly and Herceptin every 3 weeks I have had 7 taxol and 3 herceptins, 5 Taxol to go. I am also bloated in the stomach. I started chemo weighing 102lbs now im 112lbs. I get Dex8 as a premed with every treatment and was told that is what is making me bloat,however I noticed that it usually only occurs after my Herceptin.Drinking plenty of water helps however be careful not to drink to much or make sure you are drinking orange juice too because to much water can lower your potasium level. Im sure you already knew that since you have been through the A/C treatments.
    I will start F/A/C combo on October 18th 4 treatments.I have done very well on the Taxol & Herceptin so far but the F/A/C im worried about.What kind of side effects did you experience while on A/C?
    I hope the rest of your treatment goes well,I will keep you in my prayers.

    Mary
  • ldpettit
    ldpettit Member Posts: 128

    Hi...I am currently getting
    Hi...I am currently getting Taxol and Herceptin, Taxol weekly and Herceptin every 3 weeks I have had 7 taxol and 3 herceptins, 5 Taxol to go. I am also bloated in the stomach. I started chemo weighing 102lbs now im 112lbs. I get Dex8 as a premed with every treatment and was told that is what is making me bloat,however I noticed that it usually only occurs after my Herceptin.Drinking plenty of water helps however be careful not to drink to much or make sure you are drinking orange juice too because to much water can lower your potasium level. Im sure you already knew that since you have been through the A/C treatments.
    I will start F/A/C combo on October 18th 4 treatments.I have done very well on the Taxol & Herceptin so far but the F/A/C im worried about.What kind of side effects did you experience while on A/C?
    I hope the rest of your treatment goes well,I will keep you in my prayers.

    Mary

    A/C
    With the A/C I had fatigued from day 2-4. I also lost my hair on the A/C. Since this was my first chemo combo it was expected. Have you lost any hair with the Taxol?

    After the A/C treatment the next day I would have to have a shot called Neulasta to help boost my blood counts. That shot hurt. If you haven't had to have it yet, I suggest taking an ice pack with you for after. Also, my MO suggested Claritan and a Tylenol prior to the shot to help with the discomfort. The bone pain you get from the shot lasts a few days and is painful, but bareable after awhile.

    It took me about a week to recover from an A/C treatment. I didn't get mouth sores, but my taste buds were certainly out of wack and not much sounded good. I did find pickles to be a good thing to help stimulate my taste buds. Something to consider. What I wanted to eat after one treatment i didn't want at all after the next. So, be patient with yourself, but do your best to eat or at the very least drink a carnation breakfast shake or something like that.

    Is this picture of you? You look SO young. What is your diagnosis?

    I too only had 4 of the A/C treatments. I have to say, for me, it was the worst. Taxol/Harceptin combo has been SO easy compared to the A/C treatments. I pray your treatments go smooth and are easy to manage.
  • fighting4five
    fighting4five Member Posts: 71
    ldpettit said:

    A/C
    With the A/C I had fatigued from day 2-4. I also lost my hair on the A/C. Since this was my first chemo combo it was expected. Have you lost any hair with the Taxol?

    After the A/C treatment the next day I would have to have a shot called Neulasta to help boost my blood counts. That shot hurt. If you haven't had to have it yet, I suggest taking an ice pack with you for after. Also, my MO suggested Claritan and a Tylenol prior to the shot to help with the discomfort. The bone pain you get from the shot lasts a few days and is painful, but bareable after awhile.

    It took me about a week to recover from an A/C treatment. I didn't get mouth sores, but my taste buds were certainly out of wack and not much sounded good. I did find pickles to be a good thing to help stimulate my taste buds. Something to consider. What I wanted to eat after one treatment i didn't want at all after the next. So, be patient with yourself, but do your best to eat or at the very least drink a carnation breakfast shake or something like that.

    Is this picture of you? You look SO young. What is your diagnosis?

    I too only had 4 of the A/C treatments. I have to say, for me, it was the worst. Taxol/Harceptin combo has been SO easy compared to the A/C treatments. I pray your treatments go smooth and are easy to manage.

    My hair started thining
    My hair started thining after my 4th taxol and thins more with every treatment.I think Im going to go ahead and shave it today.
    I had a treatment of Tuesday and Friday I got bone pain and numbness on my left side only even my lips and tongue felt numb. It lasted all day Saturday and today I feel fine.
    I have not had any naulasta shots yet so far my blood counts have been good.I have found that eating eggs peanut butter and orange juice every day really help with energy.Thank you for the advice.
    That is me in the picture,It was taken in April a month before my diagnoses,which was stage 2 invasive HER2+ ER+ PR+ I am 38 years old. How about you? You look young yourself.
    I pray that the rest of your treatment goes smoothly. Will you have to do ant hormone therapy after the chemo?
  • VickiSam
    VickiSam Member Posts: 9,079 Member

    My hair started thining
    My hair started thining after my 4th taxol and thins more with every treatment.I think Im going to go ahead and shave it today.
    I had a treatment of Tuesday and Friday I got bone pain and numbness on my left side only even my lips and tongue felt numb. It lasted all day Saturday and today I feel fine.
    I have not had any naulasta shots yet so far my blood counts have been good.I have found that eating eggs peanut butter and orange juice every day really help with energy.Thank you for the advice.
    That is me in the picture,It was taken in April a month before my diagnoses,which was stage 2 invasive HER2+ ER+ PR+ I am 38 years old. How about you? You look young yourself.
    I pray that the rest of your treatment goes smoothly. Will you have to do ant hormone therapy after the chemo?

    Okay .. I try and not post very much regarding my
    chemo regiment .. Taxotere --(extreme fatigue, fainting, blood blisters on my feet, hands -- along with daily a bloody nose) dense chemo given .. my choice for my diagnosis ... I was switched to Taxol -- balance of my chemo cocktail was Carboplatin and Herceptin. So when I say I had just about every side effort know to mankind (my symptoms off 'Bell Standard Charts) -- I mean I had everything ...

    Drippy water eyes, my nose dripped uncontrollably for 7 months -- I am sure people that did know my circumstances -- that I was a 'coke head'.

    did I mention my swollen ankles, feet and hands -- which all lasted months .. and I mean months after my last chemo treatment ..8 to 12 months to be exact. At 1 time my Oncologists PA -- tested me for 'GOUT'. Yep, idiots.

    My Oncologist whom is very well known at UCLA, Published and Teaches brushed me off like a pair of old filthy dirty socks. It was not until my 2nd ER visit that I demanded, yes, demanded that he be called in. After a 2 a.m. call down to ER, to view me in full chemo mode side efforts -- did he start to listen to me .. Now, my 3rd ER visit == and my husband pressure to call him in yet again, did my Oncologist take what I said -- seriously.

    Do not allow anyone to brush you off .. especially if you are having a side effort from chemo infusions -- THEY ARE REAL!!!!!! Call PA, Oncologist or an Associate within chemo center ...

    Good luck, and let us know what happens...

    Vicki Sam
  • Rague
    Rague Member Posts: 3,653 Member
    We're all different
    I didn't have any problems with bloating with either A/C or Taxol. Didn't have Herceptin as I'm HER2 Negative but am on Femara for ER+.

    For me A/C was not bad at all - just a tired on days 2 - 4 which resting took care of and basically that was it - never stopped me from doing anything I wanted to do. the 12 weeklky Taxol was a whole other story - i was completely and utterly EXHAUSTED and could not sleep without pills the entire time - existed on either the couch in front of the TV or in bed.

    Neulasta was not bad either for me - all it did was put me to sleep 2 hrs almost to the minute after injection for 2 hours.

    I lost 45 lbs while on Chemo and rads - not from nausea - never had any but from loosing all sense of taste and appetite. Hubby had to call me several times a day to remind me to eat something.

    Have you talked to your PC DR as the Chemo Dr is not listening to you? I'm 1 1/2 yrs out of last Rad so 'anything' that comes up I call my PC PA as she never blows me off and 'things' get checked out ASAP.

    Remember - your experiences are yours and yours alone - just as each of us has our own experiences which are not exactly the same as anyone else's. Ask all the questios but there is no one answer to what each body will experience.

    Susan

    Hair - on A/C I lost 'head' hair, about 1/2 of lashes and brows - on Taxol ALL hair left. Finished Taxol Jan 28, 2010 finially had enough hair back that scalp showed some color ovr it in May 2010. I'm old (65) but have no white naturally - genetic on Daddy's side of the family LOL
  • ldpettit
    ldpettit Member Posts: 128

    My hair started thining
    My hair started thining after my 4th taxol and thins more with every treatment.I think Im going to go ahead and shave it today.
    I had a treatment of Tuesday and Friday I got bone pain and numbness on my left side only even my lips and tongue felt numb. It lasted all day Saturday and today I feel fine.
    I have not had any naulasta shots yet so far my blood counts have been good.I have found that eating eggs peanut butter and orange juice every day really help with energy.Thank you for the advice.
    That is me in the picture,It was taken in April a month before my diagnoses,which was stage 2 invasive HER2+ ER+ PR+ I am 38 years old. How about you? You look young yourself.
    I pray that the rest of your treatment goes smoothly. Will you have to do ant hormone therapy after the chemo?

    Diagnosis
    I am HER2+ as well (honestly not sure what the ER and PR is... ugh - or maybe knew at one time and drawing a blank now... lol). I am 45. I was diagnosed January of this year. I had a double mastectomy in February and started chemo in March. I will have radiation probably October/November. It will be 5 days a week for 5 1/2 weeks.

    I don't believe I will have the hormone therapy. I have 2 more Taxol/Herceptin combos, but will then remain on Herceptin until June 2012.

    Keep me posted on how you are doing and if you have ANY questions, please do not hesitate to ask.

    Lisa
  • ldpettit
    ldpettit Member Posts: 128
    VickiSam said:

    Okay .. I try and not post very much regarding my
    chemo regiment .. Taxotere --(extreme fatigue, fainting, blood blisters on my feet, hands -- along with daily a bloody nose) dense chemo given .. my choice for my diagnosis ... I was switched to Taxol -- balance of my chemo cocktail was Carboplatin and Herceptin. So when I say I had just about every side effort know to mankind (my symptoms off 'Bell Standard Charts) -- I mean I had everything ...

    Drippy water eyes, my nose dripped uncontrollably for 7 months -- I am sure people that did know my circumstances -- that I was a 'coke head'.

    did I mention my swollen ankles, feet and hands -- which all lasted months .. and I mean months after my last chemo treatment ..8 to 12 months to be exact. At 1 time my Oncologists PA -- tested me for 'GOUT'. Yep, idiots.

    My Oncologist whom is very well known at UCLA, Published and Teaches brushed me off like a pair of old filthy dirty socks. It was not until my 2nd ER visit that I demanded, yes, demanded that he be called in. After a 2 a.m. call down to ER, to view me in full chemo mode side efforts -- did he start to listen to me .. Now, my 3rd ER visit == and my husband pressure to call him in yet again, did my Oncologist take what I said -- seriously.

    Do not allow anyone to brush you off .. especially if you are having a side effort from chemo infusions -- THEY ARE REAL!!!!!! Call PA, Oncologist or an Associate within chemo center ...

    Good luck, and let us know what happens...

    Vicki Sam

    Vicki
    THANK YOU Vicki... I see the MO again tomorrow and WILL make her sit with me this time and take time. I'm SO tired of her giving me 3-5 SECONDS only to bill my insurance sky high and leave me feeling like my issues do NOT matter. Every since her AMAZING PA left her office she has been short, curt and impatient. Ridiculous. I haven't changed Dr's because of the fact I have been weekly on the Taxol/Herceptin combo and didn't have the energy to go elsewhere. 2 more of this combo and she may be seeing my rear end as it leaves her and her nasty front office manager for good. UGH!! Why is it we have to advocate, advocate, ADVOCATE for ourselves constantly...

    I'm off my soap box now... lol

    I also find my teeth hurt after the blood boost shots and have had increasing acid reflux lately. Good times... :)

    How are you doing these days Vicki?
  • ldpettit
    ldpettit Member Posts: 128
    Rague said:

    We're all different
    I didn't have any problems with bloating with either A/C or Taxol. Didn't have Herceptin as I'm HER2 Negative but am on Femara for ER+.

    For me A/C was not bad at all - just a tired on days 2 - 4 which resting took care of and basically that was it - never stopped me from doing anything I wanted to do. the 12 weeklky Taxol was a whole other story - i was completely and utterly EXHAUSTED and could not sleep without pills the entire time - existed on either the couch in front of the TV or in bed.

    Neulasta was not bad either for me - all it did was put me to sleep 2 hrs almost to the minute after injection for 2 hours.

    I lost 45 lbs while on Chemo and rads - not from nausea - never had any but from loosing all sense of taste and appetite. Hubby had to call me several times a day to remind me to eat something.

    Have you talked to your PC DR as the Chemo Dr is not listening to you? I'm 1 1/2 yrs out of last Rad so 'anything' that comes up I call my PC PA as she never blows me off and 'things' get checked out ASAP.

    Remember - your experiences are yours and yours alone - just as each of us has our own experiences which are not exactly the same as anyone else's. Ask all the questios but there is no one answer to what each body will experience.

    Susan

    Hair - on A/C I lost 'head' hair, about 1/2 of lashes and brows - on Taxol ALL hair left. Finished Taxol Jan 28, 2010 finially had enough hair back that scalp showed some color ovr it in May 2010. I'm old (65) but have no white naturally - genetic on Daddy's side of the family LOL

    Susan
    Thank you Susan. I haven't yet called my PC DR, but will do so if the MO doesn't do anything tomorrow when I go in for chemo. Thank you for that reminder... sometimes I forget he is still someone I can go to.

    I have white hair growing (genetic on my mom's side). Surprisingly after the 2nd T/H combo my hair started to grow back. I need to color mine... I tried at home, but it came out like my skin color. Who knew my shin would be labeled "medium blonde".. LOL

    Lisa
  • debi.18
    debi.18 Member Posts: 850 Member
    VickiSam said:

    Okay .. I try and not post very much regarding my
    chemo regiment .. Taxotere --(extreme fatigue, fainting, blood blisters on my feet, hands -- along with daily a bloody nose) dense chemo given .. my choice for my diagnosis ... I was switched to Taxol -- balance of my chemo cocktail was Carboplatin and Herceptin. So when I say I had just about every side effort know to mankind (my symptoms off 'Bell Standard Charts) -- I mean I had everything ...

    Drippy water eyes, my nose dripped uncontrollably for 7 months -- I am sure people that did know my circumstances -- that I was a 'coke head'.

    did I mention my swollen ankles, feet and hands -- which all lasted months .. and I mean months after my last chemo treatment ..8 to 12 months to be exact. At 1 time my Oncologists PA -- tested me for 'GOUT'. Yep, idiots.

    My Oncologist whom is very well known at UCLA, Published and Teaches brushed me off like a pair of old filthy dirty socks. It was not until my 2nd ER visit that I demanded, yes, demanded that he be called in. After a 2 a.m. call down to ER, to view me in full chemo mode side efforts -- did he start to listen to me .. Now, my 3rd ER visit == and my husband pressure to call him in yet again, did my Oncologist take what I said -- seriously.

    Do not allow anyone to brush you off .. especially if you are having a side effort from chemo infusions -- THEY ARE REAL!!!!!! Call PA, Oncologist or an Associate within chemo center ...

    Good luck, and let us know what happens...

    Vicki Sam

    Bloody Nose
    Thank you Vicki Sam for sharing about your bloody nose. I hadn't seen anyone else mention it and thought it was just me. I can't tell you how many kleenex's I go through a day....nasal drip is one thing, but the bloody nose drip has become very irritating! They say it's a side effect of Taxol. Oh well, just another day of lovely side effects~!


    Hugs,
    Debi
  • pinkpalette
    pinkpalette Member Posts: 112
    Rague said:

    We're all different
    I didn't have any problems with bloating with either A/C or Taxol. Didn't have Herceptin as I'm HER2 Negative but am on Femara for ER+.

    For me A/C was not bad at all - just a tired on days 2 - 4 which resting took care of and basically that was it - never stopped me from doing anything I wanted to do. the 12 weeklky Taxol was a whole other story - i was completely and utterly EXHAUSTED and could not sleep without pills the entire time - existed on either the couch in front of the TV or in bed.

    Neulasta was not bad either for me - all it did was put me to sleep 2 hrs almost to the minute after injection for 2 hours.

    I lost 45 lbs while on Chemo and rads - not from nausea - never had any but from loosing all sense of taste and appetite. Hubby had to call me several times a day to remind me to eat something.

    Have you talked to your PC DR as the Chemo Dr is not listening to you? I'm 1 1/2 yrs out of last Rad so 'anything' that comes up I call my PC PA as she never blows me off and 'things' get checked out ASAP.

    Remember - your experiences are yours and yours alone - just as each of us has our own experiences which are not exactly the same as anyone else's. Ask all the questios but there is no one answer to what each body will experience.

    Susan

    Hair - on A/C I lost 'head' hair, about 1/2 of lashes and brows - on Taxol ALL hair left. Finished Taxol Jan 28, 2010 finially had enough hair back that scalp showed some color ovr it in May 2010. I'm old (65) but have no white naturally - genetic on Daddy's side of the family LOL

    I am Her2+ like you...
    I am on the TCH combo. Taxotere instead of Taxol. Though we are all different, we are all fighting this beast the same. I am puffy and bloated too... I hate it. My hair is gone. Right now, my taste is pretty good, but after my treatment, everything tastes like garbage. My eye is nearly swollen shut, oozy, crusty and sore. My onc. gave me something for it and I'm not even sure it is working. He says it is because of the Taxotere, so be glad you are not on that one. I have three more treatments to go, then on to rads, with Herceptin until July 2012. I'm not really sure what SE's are from what, but I am looking forward to getting the TCH treatments over in October, and hope most side effects will go away. It must be absolutely wonderful to see your hair growing back. I can't wait for mine to start coming in again. Celebrate every moment, it is one more step to the new you. I wish you well as you continue your treatments, the worst parts are over and the best is yet to be.

    hugs, pp
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    ldpettit said:

    Susan
    Thank you Susan. I haven't yet called my PC DR, but will do so if the MO doesn't do anything tomorrow when I go in for chemo. Thank you for that reminder... sometimes I forget he is still someone I can go to.

    I have white hair growing (genetic on my mom's side). Surprisingly after the 2nd T/H combo my hair started to grow back. I need to color mine... I tried at home, but it came out like my skin color. Who knew my shin would be labeled "medium blonde".. LOL

    Lisa

    Lisa, Deb18 and Fighting for 5 .... Never give up, or
    Never give in .. my motto .. which I pretty much had to eat my words -- as I contemplated quitting chemo, on two different occasion.

    You are your own best ADVOCATE .. tired, sluggish, ready to throw in the towel .. Don't ... get mad, and get even..!! Chemo may of sucked the life out of you .. but, you will preserver -- you can get there to the finish line .. baby steps ..,.,

    I at times found solutions to my side effort with my RN Oncology Nurse .. whom herself is a breast cancer Survivor -- she was great about passing along information, and remedies that she found worked for her during her chemo. In fact, she was the individual who suggested that I have my Oncologist called in to ER .. which of course, I did. She also suggested that I insist that the doctor take the time to address all my side efforts ... and offer me alternatives ..medication, anything.

    Has anyone lost any toe nails or finger nails from Taxol?? I did 3 toe nails ...ridges on each and finger nails took about 8 months to clear up .. after chemo stopped.

    Hang in there you courageous WARRIORS!

    Strength, Courage and Hope.

    Vicki Sam
  • ldpettit
    ldpettit Member Posts: 128
    VickiSam said:

    Lisa, Deb18 and Fighting for 5 .... Never give up, or
    Never give in .. my motto .. which I pretty much had to eat my words -- as I contemplated quitting chemo, on two different occasion.

    You are your own best ADVOCATE .. tired, sluggish, ready to throw in the towel .. Don't ... get mad, and get even..!! Chemo may of sucked the life out of you .. but, you will preserver -- you can get there to the finish line .. baby steps ..,.,

    I at times found solutions to my side effort with my RN Oncology Nurse .. whom herself is a breast cancer Survivor -- she was great about passing along information, and remedies that she found worked for her during her chemo. In fact, she was the individual who suggested that I have my Oncologist called in to ER .. which of course, I did. She also suggested that I insist that the doctor take the time to address all my side efforts ... and offer me alternatives ..medication, anything.

    Has anyone lost any toe nails or finger nails from Taxol?? I did 3 toe nails ...ridges on each and finger nails took about 8 months to clear up .. after chemo stopped.

    Hang in there you courageous WARRIORS!

    Strength, Courage and Hope.

    Vicki Sam

    Toe nails/Finger mails
    Vicki

    I haven't lost any of those yet. However, I have watched my thumbs both turn a shade of purple/pink at the bottom of the nail and I do have the ridges. I have two Taxol/herceptin combos left. Honestly, I'm surprised they haven't come off yet.

    Thank you for your encouraging words... Your such a blessing especially on a day when it may be tough. THANK YOU!!
  • ldpettit
    ldpettit Member Posts: 128

    I am Her2+ like you...
    I am on the TCH combo. Taxotere instead of Taxol. Though we are all different, we are all fighting this beast the same. I am puffy and bloated too... I hate it. My hair is gone. Right now, my taste is pretty good, but after my treatment, everything tastes like garbage. My eye is nearly swollen shut, oozy, crusty and sore. My onc. gave me something for it and I'm not even sure it is working. He says it is because of the Taxotere, so be glad you are not on that one. I have three more treatments to go, then on to rads, with Herceptin until July 2012. I'm not really sure what SE's are from what, but I am looking forward to getting the TCH treatments over in October, and hope most side effects will go away. It must be absolutely wonderful to see your hair growing back. I can't wait for mine to start coming in again. Celebrate every moment, it is one more step to the new you. I wish you well as you continue your treatments, the worst parts are over and the best is yet to be.

    hugs, pp

    PP
    Thank you for your post. I'm grateful for your encouraging words. ALWAYS needed!!

    Your eye is swollen shut... that must be painful and adding insult to injury. If the meds aren't working ask if there is anything different you can try. Did you try a warm compress on it, by any chance? I haven't experienced it. I hope your eye gets better soon.

    You and I will be on Herceptin for almost the same length of time. I'm hopeful Herceptin is no big deal and that my heart holds up. How have your MUGA scans been? I have another one on the 21st and so far all is good. Thank God!!

    Did you have the A/C combo at all?

    When your hair grows back you will be excited! I was...mind you it is growing back with a mind of it's own though. LOL Hopefully it will be trainable when it gets to an inch. LOL I can't wait to NOT wear any head covering outside of the house. That will be an AWESOME day! For now, I'm just too chicken to go al natural...

    Thank you for your post and I pray for smooth roads ahead for you!
  • ldpettit
    ldpettit Member Posts: 128
    debi.18 said:

    Bloody Nose
    Thank you Vicki Sam for sharing about your bloody nose. I hadn't seen anyone else mention it and thought it was just me. I can't tell you how many kleenex's I go through a day....nasal drip is one thing, but the bloody nose drip has become very irritating! They say it's a side effect of Taxol. Oh well, just another day of lovely side effects~!


    Hugs,
    Debi

    Bloody nose
    I didn't have blood running out, but have, since being on the Taxol/Herceptin combo blood inside. I haven't noticed it lately. Not sure if it is because the weather here or what. Maybe I shouldn't jinx myself since I have chemo tomorrow. lol

    Has anyone felt light headed at times? and/or dizzy? I do at times, but it isn't consistent.
  • Rague
    Rague Member Posts: 3,653 Member
    ldpettit said:

    Toe nails/Finger mails
    Vicki

    I haven't lost any of those yet. However, I have watched my thumbs both turn a shade of purple/pink at the bottom of the nail and I do have the ridges. I have two Taxol/herceptin combos left. Honestly, I'm surprised they haven't come off yet.

    Thank you for your encouraging words... Your such a blessing especially on a day when it may be tough. THANK YOU!!

    Had to laugh about toe nails
    Had to laugh about toe nails turning color. 2 days after 2nd A/C I drove my first Powder Puff Mud Bog (Got 2nd). That night I had a had a big 'black' area on big toe. Before next A/C I showed it DR T and he wanted to know what I kicked. Apparently somehow during my runs I bruise it 'good'.

    Actually I would have had problems with my finger nails if I hadn't used Nail Envy.

    Susan
  • ldpettit
    ldpettit Member Posts: 128
    Rague said:

    Had to laugh about toe nails
    Had to laugh about toe nails turning color. 2 days after 2nd A/C I drove my first Powder Puff Mud Bog (Got 2nd). That night I had a had a big 'black' area on big toe. Before next A/C I showed it DR T and he wanted to know what I kicked. Apparently somehow during my runs I bruise it 'good'.

    Actually I would have had problems with my finger nails if I hadn't used Nail Envy.

    Susan

    Powder Puff Mud Bog
    NOW that sounds like an absolute blast!! Nail Envy... I will have to check it out. Thank you!!
  • jnl
    jnl Member Posts: 3,869 Member
    debi.18 said:

    Bloody Nose
    Thank you Vicki Sam for sharing about your bloody nose. I hadn't seen anyone else mention it and thought it was just me. I can't tell you how many kleenex's I go through a day....nasal drip is one thing, but the bloody nose drip has become very irritating! They say it's a side effect of Taxol. Oh well, just another day of lovely side effects~!


    Hugs,
    Debi

    I didn't have this, but,
    I didn't have this, but, wanted to say that I hope you get better and that I will praying for you.


    Hugs, Leeza
  • mariam_11_09
    mariam_11_09 Member Posts: 691
    I was on the same shedule in

    I was on the same shedule in the same months as you last year. Currently I am done. I had the same problem with an incredibly bloated and would pass very horrible gas particularly in the days following the T/H infusion. My stomach (the top part) would protude and feel very hard. I also had acid reflux and was careful with what I ate. In addition I did have diarrhea for a couple days after T/H. I carried pept bismal and immodium with me all the time.

    However I do have to admit a week after finishing chemo, it all went away. It was quite miraculous, it was like I never had a stomach problem. The bloating, the gas and the acid reflux cleared up very quickly.

    I am not sure if you can take this while on T/H but I do know that activated charcoal helps with bloating and gas. You can ask your Onc. I didn't take while on the T/H because I compleletly forgot about it. I did take L-Glutamine that is supposed to help the lining of the stomach but I don't think it did much, maybe once I was done with chemo.

    Sometimes to the Oncs don't pay much attention to this because there isn't much they can do and they are just trying to get you through the chemo. If you continue to have problems post chemo then your Onc. will probably refer you to someone.

    I wish you well. Hang in there, it sounds like you might be close to being done.
  • ldpettit
    ldpettit Member Posts: 128

    I was on the same shedule in

    I was on the same shedule in the same months as you last year. Currently I am done. I had the same problem with an incredibly bloated and would pass very horrible gas particularly in the days following the T/H infusion. My stomach (the top part) would protude and feel very hard. I also had acid reflux and was careful with what I ate. In addition I did have diarrhea for a couple days after T/H. I carried pept bismal and immodium with me all the time.

    However I do have to admit a week after finishing chemo, it all went away. It was quite miraculous, it was like I never had a stomach problem. The bloating, the gas and the acid reflux cleared up very quickly.

    I am not sure if you can take this while on T/H but I do know that activated charcoal helps with bloating and gas. You can ask your Onc. I didn't take while on the T/H because I compleletly forgot about it. I did take L-Glutamine that is supposed to help the lining of the stomach but I don't think it did much, maybe once I was done with chemo.

    Sometimes to the Oncs don't pay much attention to this because there isn't much they can do and they are just trying to get you through the chemo. If you continue to have problems post chemo then your Onc. will probably refer you to someone.

    I wish you well. Hang in there, it sounds like you might be close to being done.

    mariam_11_09
    Thank you... I too have been havind acid reflux. Just started the last week. So having to watch what I eat as well. Of course, it slipped my mind to mention it to the ONC yesterday. I wrote down everything else on my, reminder, sheet. lol

    I have one more T/H combo next week. WAHOO!! Then I have Herceptin every 3rd week until June of 2012. I will start rads in October I believe. That will be 5x a week for 5/12 weeks. I'm hopeful those aren't too bad and don't cause too much fatigue.

    Thanks for the tip on the activated charcoal. Hadn't heard of that before.

    Congrats on being done with the chemo!! That has to be an incredible feeling!!

    Lisa
  • Kylez
    Kylez Member Posts: 3,761 Member
    ldpettit said:

    mariam_11_09
    Thank you... I too have been havind acid reflux. Just started the last week. So having to watch what I eat as well. Of course, it slipped my mind to mention it to the ONC yesterday. I wrote down everything else on my, reminder, sheet. lol

    I have one more T/H combo next week. WAHOO!! Then I have Herceptin every 3rd week until June of 2012. I will start rads in October I believe. That will be 5x a week for 5/12 weeks. I'm hopeful those aren't too bad and don't cause too much fatigue.

    Thanks for the tip on the activated charcoal. Hadn't heard of that before.

    Congrats on being done with the chemo!! That has to be an incredible feeling!!

    Lisa

    Congrats to you Lisa on
    Congrats to you Lisa on almost finishing T/H! Be sure and post so we can all celebrate with you!


    Hugs, Kylez