How long have you survived

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  • palmyrafan
    palmyrafan Member Posts: 396
    Survivor
    I have survived 17 years since diagnosed with brain, sinus, carotid artery and optic nerve cancer and survived 18 hour surgery and traditional radiation therapy.

    Upgraded to brain cancer in 2005, still on W&W (watch and wait).
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    SURVIVAL
    5 MONTHS AND ONE WEEK SINCE TREATMENT OF RIGHT TONSIL SCC W/ METS TO NECK.

    THE LAST MONTH HAS BEEN REAL GOOD AS I HAVE MADE GREAT EATING GAINS AND AM BACK TO THE GYM TRYING TO LIFT AGAIN BUT REALIZED AFTER DROPPING 70 BIG ONES I AM HAVING TO START OVER.

    HERE'S TO LIVING AND A PRAYER TO MY FRIENDS HERE WHO HAVE PASSED.

    BEST!!

    MIKE
  • micktissue
    micktissue Member Posts: 430
    anniversary
    Hi folks. I just passed 1-year post-treatment. I was Dx in Dec 09 (SCC, occult tumor - NPC suspected, 7 local lymph mets). Treatment started in Jan 10 with surgery to remove gross disease from right side of neck (modified neck dissection). Chemo (cisplatin x3) and Rads (6600 grays in 35 treatments) started in mid-Feb 10 and ended on April 1. Pet scan in June 10 was NED. Next PET is June 11.

    My ENT said that if the June PET is clean he's going to consider me "cured". Don't you just love the way these guys throw around these terms as if we will have no emotional response to them?

    I'll post again after the PET scan.

    Much love to all.

    Mick
  • vsudd
    vsudd Member Posts: 52
    Survived
    My husband has survived since 2006. Almost 5 years !!! I would have given anything to find this discussion board when he was diagnosed. Glad I found it now !
  • pascotty
    pascotty Member Posts: 174 Member
    I'm still here yipee
    I'm now a 14 month survivor doing extremely well both physically and mentally. I'm around for a very longtime yet. Love to you all xxxx
  • luv2cut1
    luv2cut1 Member Posts: 288
    pascotty said:

    I'm still here yipee
    I'm now a 14 month survivor doing extremely well both physically and mentally. I'm around for a very longtime yet. Love to you all xxxx

    Thank you all for this thread
    I just want to thank everyone for posting here. I am especially grateful to the long term survivors who stay on here to give hope to those who hope to be long term. It would be so easy to just move on with your life and not want to be reminded of your battle. Seeing your posts give me such hope. Pat has 20 month PET tomorrow and anxiety level is high. Thanks so much for reminding me of all the success stories!

    Myka
  • rozaroo
    rozaroo Member Posts: 665
    luv2cut1 said:

    Thank you all for this thread
    I just want to thank everyone for posting here. I am especially grateful to the long term survivors who stay on here to give hope to those who hope to be long term. It would be so easy to just move on with your life and not want to be reminded of your battle. Seeing your posts give me such hope. Pat has 20 month PET tomorrow and anxiety level is high. Thanks so much for reminding me of all the success stories!

    Myka

    Still here!
    I am 15 month's post treatment & hanging in lol!
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    Month 23
    Month 23 for me....post treatments.

    JG
  • Hondo
    Hondo Member Posts: 6,636 Member
    Skiffin16 said:

    Month 23
    Month 23 for me....post treatments.

    JG

    Still here 8 years 3 months later
    Yep, I am still here and still working in a place that lets me take it easy. lol

    Thanks
    Hondo
  • rmdgy
    rmdgy Member Posts: 22
    2 years
    Two years this June. After my next round of CT scans, I move up to every six months. SCC right tonsil and lymph nodes.
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    rmdgy said:

    2 years
    Two years this June. After my next round of CT scans, I move up to every six months. SCC right tonsil and lymph nodes.

    Anniversary last week.
    Just celebrated two years done with rads last week on 5/15/11. 2 yrs and 7 months and 16 days since I found my tumor.
  • pascotty
    pascotty Member Posts: 174 Member

    Anniversary last week.
    Just celebrated two years done with rads last week on 5/15/11. 2 yrs and 7 months and 16 days since I found my tumor.

    Fab
    That is fantastic, love to hear such positive and inspiring successs. Love Me xxxxx
  • Larla
    Larla Member Posts: 28
    I'm here too
    I am now 20 months post treatment for NPC and am doing well most days anyway.
  • cwcad
    cwcad Member Posts: 117
    Larla said:

    I'm here too
    I am now 20 months post treatment for NPC and am doing well most days anyway.

    Still here after not quite five years.
    Stage lV SCC base of tongue diagnosed Feburary of 07. Still kicking and getting better each day.

    Hi Sweetblood 22! You are looking Great! (I aplogize in advance for hi-jacking the thread.)
  • adrian b
    adrian b Member Posts: 13
    cwcad said:

    Still here after not quite five years.
    Stage lV SCC base of tongue diagnosed Feburary of 07. Still kicking and getting better each day.

    Hi Sweetblood 22! You are looking Great! (I aplogize in advance for hi-jacking the thread.)

    encouraged
    What a fantastic thread to read. I have recently been diagnosed with NPC (5 days ago) and am about to begin the long battle ahead. I am encouraged by all that I have read on here, so thank you all for sharing
  • rchunter
    rchunter Member Posts: 3
    MarkN_CT said:

    Five Months...
    post treatment for SCC BOT, stage IV A. Removed about a third of my tongue, rebuilt with tissue from my forearm, removal of 18 lymph nodes (two positive). 30 rads, 5 shots of chemo. Taste is about 75% back, and I can eat almost everything, with little or no irritation.

    Five months ago, I didn't think I'd be typing the above. Getting used to the "new normal" was a pain, but I'm doing it. Here's to the survivors and their caretakers!

    Chemo treatment
    Mark,

    Glad to here you are recovering well. My son is about to start RT and am trying to understand best approaches and recovery time. Can I ask which chemo you were on?

    Regards, Rick
  • Ron49
    Ron49 Member Posts: 91
    We have not been using the
    We have not been using the word survivor but I guess we should call Ron that after all he has been through. Here are the dates...8 weeks since last rad - last of 33 April 1st
    Diagnosed Dec 10 2010 3 cm tumor removed from left lymph gland on Jan 3 2011 also tonsils out. Hpv+ no known primary. Only 2 of 3 chemo cisplatin concurrent with rad last chemo Mar 18 2011. Have 2nd monthly ckup with head and neck tomorrow. Struggling with food and dry mouth but grateful for progress to date.
    Ron is returning to full days at work tomorrow.
    Life is still a bit upside down but we are trying to be positive and patient.
    Happy memorial day everyone
    Ron and robyn
  • pascotty
    pascotty Member Posts: 174 Member
    Up again
    Just thought I'd bring this one up again
  • Ed_PortOrange
    Ed_PortOrange Member Posts: 110
    pascotty said:

    Up again
    Just thought I'd bring this one up again

    15 Months
    It's been 15 months post treatment and just received my second NED CT last week. The last was a PET in Oct. 2010. Still having the usual problems that come with a stricture and lymphedema. Have gained back only 13 of the 50 lbs. that I lost and would love to get to 180 -185.

    Feeling great and checking in daily.

    Healthy prayers to all.

    Ed
  • texan151
    texan151 Member Posts: 2
    pascotty said:

    Up again
    Just thought I'd bring this one up again

    12 Years, 7 months
    http://www.freewebs.com/texan151