How many DCIS stage 3 that turned into stage 4?

2»

Comments

  • LAU1965
    LAU1965 Member Posts: 10

    stage 0, grade 0 bilateral mastectomy
    hi wolfi, i had dcis stage 0, grade 0 diagnosed in december 2010. i was told although it was a slow growing cancer, it was all over my ducts, as well as precancer cells, to me it felt like my milk ducts were a breeding ground for precancerous cells and dcis. i did not have clear margins on my lumpectomy. the lumpectomy was so hard on me, i really didnt want to go back in and possibly find out still no clear margins. my surgeon explained both options for me and i chose to have the mastectomy, although at the time it was originally going to be a single, but after MRI showed a mass on the other breast, i decided to get a bilateral, skipping the needle biopsy, possible lumpectomy, and just go to the mastectomy (i had told myself if they even SUSPECTED anything in the other breast, i would just want the mastectomy minutes before my surgeon came in the room to tell me they found a mass on the mri that had not shown up on mammogram).i cant say i am happy with all this, but i am very comfortable and at peace with my choice of treatment probably about 98% of the time. i do have my breakdown days but think i would have them even if i had chosen the other alternative of lumpectomy plus radiation (and i know that mastectomy does not always mean rad/chemo/recurrence free). i have also chosen no reconstruction and can say i am happy with that. i have post mastectomy pain syndrome, so i can relate with the pain. it is hard to live with for sure. i wish you the best with your upcoming appts. and hope they can help you. take care.

    HI CINNAMONSMILE
    I AM NEW I WAS DIAGNOSED WITH DCIS ON 2-10-11 HAD BILATERAL MASTECTOMY ON 3-29-11 DIAGNOSED SIMILAR TO YOURS
    THIS MAY SOUND STRAGE BUT AFTER THE MASTECTOMY I WAS HAPPY THE CANCER WAS OUT OF MY SYSTEM BUT I FOUND MYSELF
    FEELING STRANGE A PART OF ME WAS MISSING AND I WAS VERY SAD IS HARD TO EXPLAIN I STILL FEEL THIS WAY EVEN THOUGH IT HAS BEEN ONE MONTH AND I AM HEALING VERY WELL NO PAIN NO SORENESS. I JUST HAVE THIS STRANGE FEELING I CRY BECAUSE I LOST MY BREAST LIKE PART OF ME DIED IS THIS STRANGE? AM I THE ONLY ONE FEELING THIS WAY? IS VERY HARD TO EXPLAIN. I HOPE YOU DO NOT MIND ME ASKING YOU.

    LAU
  • LAU1965
    LAU1965 Member Posts: 10

    Wolfi
    you took a very proactive and aggressive approach with your treatment and should not regret it. I am sure as time goes by you will be pleased with your choice.
    As for stage III, you forgot that stage III patients were recommended and most have had Chemo from 4 to 6 months. There is a big difference in treatment between stage III and stage o grade 3.
    My surgeon recommends mastectomy even for stage II and I am glad that I took her advice. Unfortunately for me pathology report showed stage III.

    If you have concerns please ask your doctor for tests. I hope he will understand and find appropriate diagnostic tool to identify your pain.
    Livestrong foundation has advices, including dietary for joint pain. I use them.
    Wishing you that your pain will go away.
    Hugs
    New Flower

    WOLFI
    WOLFI I DO HOPE YOU GET YOUR ANSWERS AND DO NOT BE AFRAID TO ASK QUESTIONS AND BE PERSISTENT ABOUT IT, I REALLY HOPE YOUR PAIN GETS BETTER. SENDING A BIG HUG BE POSITIVE AS YOU HAVE BEEN WISHING YOUR PAIN GOES AWAY.

    LAU
  • mackiedoo
    mackiedoo Member Posts: 1

    Happy to know that your pain
    Happy to know that your pain has eased up for you Wolfi. Good luck with your appointment next week.


    Hugs, Jan

    I'm very confused now. I
    I'm very confused now. I didn't get to look much at my path report, but I was told it was STAGE 3 - I saw DCIS on the report (trying hard to get a look but couldnt understand much anyway) and have to have surgery next week, radio for 6 weeks every day and then 9 months to a year of chemo! If DCIS is not invasive, how come I have to have all this? Any ideas would be welcomed, thanks guys!