Bladder cancer metastasis to lung

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  • karenbutler
    karenbutler Member Posts: 2
    #22
    My husband has bladder
    My husband has bladder cancer that ended up spreading to bone, brain, liver,lung. they passed a law Social security did about Compassionate allowances so we would not have to wait so long for financial help but they still are treating us like any other illness. saying he will not begin to receive payments until august even though it stated on their website under the compassionate allowances act that they could only take 1 to 3 weeks. I dont know who to talk to about this. we will run out of money before then he is very sick and the only one of us that worked. I have two small children at home who they also did not included in his social security payments like they said they would. Its such a fight to get people to know and do their jobs correctly and I was raised up never to ask to for anything from anyone. we have worked all ours lives. i feel so ovewhelmed and i feel the state and y=u.s. goverment is letting us down at a time when when we really need them. I do not feel I should get a lawyer since he is documented as havinig stage 4 cancer of the bladder, bone, lympnodes, lungs, etc. I applied for social security in feb. beginning of feb. a week or so after we found out how sick he was. without my church and family we would be in big trouble but I cannot rely on them until august. i dont know whay to do. does any one else know what I should do.?

    thanks,
    Karen Butler
  • karenbutler
    karenbutler Member Posts: 2
    #23
    My husband has bladder
    My husband has bladder cancer that ended up spreading to bone, brain, liver,lung. they passed a law Social security did about Compassionate allowances so we would not have to wait so long for financial help but they still are treating us like any other illness. saying he will not begin to receive payments until august even though it stated on their website under the compassionate allowances act that they could only take 1 to 3 weeks. I dont know who to talk to about this. we will run out of money before then he is very sick and the only one of us that worked. I have two small children at home who they also did not included in his social security payments like they said they would. Its such a fight to get people to know and do their jobs correctly and I was raised up never to ask to for anything from anyone. we have worked all ours lives. i feel so ovewhelmed and i feel the state and y=u.s. goverment is letting us down at a time when when we really need them. I do not feel I should get a lawyer since he is documented as havinig stage 4 cancer of the bladder, bone, lympnodes, lungs, etc. I applied for social security in feb. beginning of feb. a week or so after we found out how sick he was. without my church and family we would be in big trouble but I cannot rely on them until august. i dont know whay to do. does any one else know what I should do.?

    thanks,
    Karen Butler
  • spartans71
    spartans71 Member Posts: 5
    #24
    karenbutler said:

    My husband has bladder
    My husband has bladder cancer that ended up spreading to bone, brain, liver,lung. they passed a law Social security did about Compassionate allowances so we would not have to wait so long for financial help but they still are treating us like any other illness. saying he will not begin to receive payments until august even though it stated on their website under the compassionate allowances act that they could only take 1 to 3 weeks. I dont know who to talk to about this. we will run out of money before then he is very sick and the only one of us that worked. I have two small children at home who they also did not included in his social security payments like they said they would. Its such a fight to get people to know and do their jobs correctly and I was raised up never to ask to for anything from anyone. we have worked all ours lives. i feel so ovewhelmed and i feel the state and y=u.s. goverment is letting us down at a time when when we really need them. I do not feel I should get a lawyer since he is documented as havinig stage 4 cancer of the bladder, bone, lympnodes, lungs, etc. I applied for social security in feb. beginning of feb. a week or so after we found out how sick he was. without my church and family we would be in big trouble but I cannot rely on them until august. i dont know whay to do. does any one else know what I should do.?

    thanks,
    Karen Butler

    Cost of bladder Cancer
    I am assuming you do not have insurance? please request a meeting with the hospital social worker. They should be able to help you with the expenses of treatment. Also, your husband may be eliginle for medciaid and the hospital social worker should be able to also help you with this issue. Just another reason why we need health care reform yesterday.
    Goodd luck and God bless.
  • dalehagen
    dalehagen Member Posts: 1
    #25
    BobbinJim said:

    bladder cancer metastasized to lung
    Hi, My husband was diagnosed with bladder cancer in April and on June 2, 2010 had his bladder removed; ct scan showed no spread. The preliminary results after surgery showed no lymph node involvement so we thought it had not spread, later results showed some cells outside the bladder. He did 3 rounds of chemo, cisplatin and gemzar. Started running a fever and they did chest x-ray for pneumonia and found nodules on his lung. Today we got the results of the biopsy and it shows that it is bladder cancer that has metastasized. Our Oncologist did not seem to have much hope that there is any cure. He is talking about only hope of slowing growth is going back to old chemo because he did not have it in his lungs before the surgery and the nodules are growing while he is getting the aggressive chemo treatment. How are you doing? What chemo are you taking, I'm grasping for some hope...Bobbi

    bladder cancer with a mets to the lungs
    My husband and I are going thru a similar challenge. He was diagnosed 4 years ago. He had a redical cystectomy. Went thru chemo and had a few good months..Althought my time line may be a little off. Then last Dec. was diagnosed with a mets to the lungs...Again went thru chemo, Ct & PET scans indicated that the tumors were, not only still there but growing. He was then put on a targeted therapy called sutent. Recent scans show no improvement. His cough is really debilatating and I am beginging to melt down.. Very tearful and so scarred about our future. This is so hard. Just joined this site to talk to others about coping skills and so on... He has a large tumor near the hylum of the lungs and it is to dangerous to try radiation..I think he is now in a 15% of people who survive this long. I feel so lucky to have everyday with him..
  • Deborah1950
    Deborah1950 Member Posts: 1
    #26
    Any new reports on bladder cancer that is now in the lungs

     

    I have gone through 4 rounds of aggressive chemo treatments. The cancer is still surviving and the tumor on my urethra tube is slowly growing after all the treatments. What now?

     

     

     

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