Got CT Results today.....

Lilmiss82
Lilmiss82 Member Posts: 257 Member
And I'm blind-sided and upset. Last time I had a Ct scan was in December and my oncologist said I needed to do a follow up in March because my thymus appeared enlarged and she needed to confirm it was my thymus and not anything else. With the follow up CT the thymus should have returned to normal size but if it didn't change in size if could be more sinister. So these were the results:

Chest: A subcentimeter subpleural nodule in the anterolateral left
upper lobe at the level of the tracheal bifurcation shows
questionable slight increase in, now measuring up to 3 mm,
compared with perhaps 2 mm previously. A slightly larger
subcentimeter nodule in the posterior right lung base appear
stable. Also now noted is a third approximately 5 mm nodule within
the superior segment of the right lower lobe at the level of the
tracheal bifurcation. In retrospect this may have been subtly
apparent on the prior study. It does show some clear interval
increase in size. No focal airspace consolidation or effusion
noted. There is no bulky mediastinal or hilar lymphadenopathy
present. Some residual thymic tissue within the anterior
mediastinum appear stable. No rib or chest wall lesion
demonstrated.

Here is the Ct report from Dec:
There is a soft tissue fullness identified in the anterior
mediastinum, new onset since June 22, 2010, compatible with a new
anterior mediastinal lymphadenopathy. It is identified on image
21/114, measuring 3.4 x 2.0 x 2.8 cm in the craniocaudad, anterior
posterior, and transverse dimensions.

There is a minimal pulmonary scarring identified in the
laterobasal segment of the right lower lobe.

There is a pulmonary nodule identified adjacent to the right
hemidiaphragm in the mediobasal segment of the right lower lobe on
image 42/114, measuring 0.3 x 0.3 x 0.4 cm in the craniocaudad,
anterior posterior, and transverse dimensions. The area was
obscured by a postsurgical pulmonary infiltrate on the CT scan of
June 22, 2010.




SO after reading the reports I am so upset that that she never mention nodule in my lungs in december. I feel cheated. I asked her what the plan was and if we should start 5-fu and lecouvorin and she said NO they are to small and the only thing we can do is rescan in another 3 months. So family what do you suggest , besides switching oncologist?? Please tell me what you would do... I do not like the lets wait and see approach, I mean what for, to see if more nodules pop up?? No Thank You -Melissa
«1

Comments

  • dianetavegia
    dianetavegia Member Posts: 1,942 Member
    I'm so sorry
    Melissa, I'm so sorry your results were not better. I don't understand the CT speak well enough to know how big a change any of it was. Would you mind if I prayed for you?

    Diane
  • Lilmiss82
    Lilmiss82 Member Posts: 257 Member

    I'm so sorry
    Melissa, I'm so sorry your results were not better. I don't understand the CT speak well enough to know how big a change any of it was. Would you mind if I prayed for you?

    Diane

    Diane
    I do not mind at all if you pray for me. Thank you so much :)
  • z
    z Member Posts: 1,414 Member
    Melissa
    Sorry about your nodules, they are quite small. My initial dx was anal cancer, and on a follow up scan my 7 mm lung nodule was found. They only wanted to rescan in 3 months to see if it grew and it did to 11 mm so it was decided to have it come out. The only way to know if the nodules are cancer is to biopsy them, and yours are so small it would be too difficult to do a needle biopsy. I know Buzzard had a nodule that was removed, and he will probably chime in. I understand you not wanting to wait for more to pop up, but maybe this will be it and it could be inflammation. I wish you well Lori.
  • Lilmiss82
    Lilmiss82 Member Posts: 257 Member
    z said:

    Melissa
    Sorry about your nodules, they are quite small. My initial dx was anal cancer, and on a follow up scan my 7 mm lung nodule was found. They only wanted to rescan in 3 months to see if it grew and it did to 11 mm so it was decided to have it come out. The only way to know if the nodules are cancer is to biopsy them, and yours are so small it would be too difficult to do a needle biopsy. I know Buzzard had a nodule that was removed, and he will probably chime in. I understand you not wanting to wait for more to pop up, but maybe this will be it and it could be inflammation. I wish you well Lori.

    Thanks Lori
    My oncologist said the same thing, that they are way to small to biopsy, just sucks knowing that now my lungs are infested with this crap.
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    Lilmiss82 said:

    Thanks Lori
    My oncologist said the same thing, that they are way to small to biopsy, just sucks knowing that now my lungs are infested with this crap.

    Mel did they make a PET?
    I would ask for a pet to si if this little nodules and adenopathies are lighting , just to keep you tranquil .
    Wish you the best!
  • CherylHutch
    CherylHutch Member Posts: 1,375
    Lung nodules
    Hi Melissa,

    I know it's disappointing and I'm surprised your onc did not tell you about them when she first heard about them (Dec?). Then again, if you are anything like me, she may have mentioned them and it was one of those things you just didn't hear because you were focusing on the thymus. I know, and I would swear to it, that I never heard the first time they said they found nodules in my lungs. At the time, we were also dealing with a tumour on my adrenal gland, which was a strange place for a colon cancer met, so I was freaking out about that... and did not hear about anything to do with the lungs. To this day I would say I wasn't told, but I had a friend with me at that appointment and she was very adamant that we did talk about it, that my onc went over how I had multiple, very very small nodules throughout both lungs. But I kept changing the subject back to the adrenal gland and what our plan for that was going to be. So it is possible that we don't hear everything... on the other hand, would ask her, why she didn't tell you in December and hear what her explanation would be.

    Now... as for the plan... the wait and see. I think that is pretty standard when nodules are that small. I know that was our plan too. My nodules ended up being very small and "stable"... also very lazy. By that I mean, they were too lazy to grow... so I had a nice long 2 1/2 year break of stable nodules so did not need treatment of any kind for them. It was only this last spring that 2 of them decided to start to grow. Because mine are spread throughout both lungs, surgery is not an option. I did have an RFA on one a year or so ago, but the others are too small and scattered so RFA is not necessarily the answer for all of them. Also, you don't want to start chemo too early when they are that small because the whole purpose of chemo is to shrink them and stabilize them. So you don't want to waste chemo to shrink them when they are already small... when you might need that chemo later on.

    So, totally understandable that you are disappointed, discouraged and want to get something happening NOW... but sometimes wait and see is the best plan, even though we hate doing that (and the longer you can stay off chemo, the stronger your body/system will be if you have to go back on it).

    Hang in there!!

    Cheryl
  • Lilmiss82
    Lilmiss82 Member Posts: 257 Member
    pepebcn said:

    Mel did they make a PET?
    I would ask for a pet to si if this little nodules and adenopathies are lighting , just to keep you tranquil .
    Wish you the best!

    Hi Pepe
    For some reason my oncologist never wants to do a PET scan. She always says that PETs are not for colon cancer follow up. But I just switched oncologist like 5 minutes ago and have an appointment for this coming tuesday and my husband and I will ask for a PET.
  • grannyc
    grannyc Member Posts: 63

    Lung nodules
    Hi Melissa,

    I know it's disappointing and I'm surprised your onc did not tell you about them when she first heard about them (Dec?). Then again, if you are anything like me, she may have mentioned them and it was one of those things you just didn't hear because you were focusing on the thymus. I know, and I would swear to it, that I never heard the first time they said they found nodules in my lungs. At the time, we were also dealing with a tumour on my adrenal gland, which was a strange place for a colon cancer met, so I was freaking out about that... and did not hear about anything to do with the lungs. To this day I would say I wasn't told, but I had a friend with me at that appointment and she was very adamant that we did talk about it, that my onc went over how I had multiple, very very small nodules throughout both lungs. But I kept changing the subject back to the adrenal gland and what our plan for that was going to be. So it is possible that we don't hear everything... on the other hand, would ask her, why she didn't tell you in December and hear what her explanation would be.

    Now... as for the plan... the wait and see. I think that is pretty standard when nodules are that small. I know that was our plan too. My nodules ended up being very small and "stable"... also very lazy. By that I mean, they were too lazy to grow... so I had a nice long 2 1/2 year break of stable nodules so did not need treatment of any kind for them. It was only this last spring that 2 of them decided to start to grow. Because mine are spread throughout both lungs, surgery is not an option. I did have an RFA on one a year or so ago, but the others are too small and scattered so RFA is not necessarily the answer for all of them. Also, you don't want to start chemo too early when they are that small because the whole purpose of chemo is to shrink them and stabilize them. So you don't want to waste chemo to shrink them when they are already small... when you might need that chemo later on.

    So, totally understandable that you are disappointed, discouraged and want to get something happening NOW... but sometimes wait and see is the best plan, even though we hate doing that (and the longer you can stay off chemo, the stronger your body/system will be if you have to go back on it).

    Hang in there!!

    Cheryl

    CT results
    My onc (was) the same way, mention nothing and then all of a sudden (to me) we are looking at mets to the liver...needless to say I have a new onc.

    Hope your new onc is able to be more personable and open with you.

    GrannyC
  • Lilmiss82
    Lilmiss82 Member Posts: 257 Member

    Lung nodules
    Hi Melissa,

    I know it's disappointing and I'm surprised your onc did not tell you about them when she first heard about them (Dec?). Then again, if you are anything like me, she may have mentioned them and it was one of those things you just didn't hear because you were focusing on the thymus. I know, and I would swear to it, that I never heard the first time they said they found nodules in my lungs. At the time, we were also dealing with a tumour on my adrenal gland, which was a strange place for a colon cancer met, so I was freaking out about that... and did not hear about anything to do with the lungs. To this day I would say I wasn't told, but I had a friend with me at that appointment and she was very adamant that we did talk about it, that my onc went over how I had multiple, very very small nodules throughout both lungs. But I kept changing the subject back to the adrenal gland and what our plan for that was going to be. So it is possible that we don't hear everything... on the other hand, would ask her, why she didn't tell you in December and hear what her explanation would be.

    Now... as for the plan... the wait and see. I think that is pretty standard when nodules are that small. I know that was our plan too. My nodules ended up being very small and "stable"... also very lazy. By that I mean, they were too lazy to grow... so I had a nice long 2 1/2 year break of stable nodules so did not need treatment of any kind for them. It was only this last spring that 2 of them decided to start to grow. Because mine are spread throughout both lungs, surgery is not an option. I did have an RFA on one a year or so ago, but the others are too small and scattered so RFA is not necessarily the answer for all of them. Also, you don't want to start chemo too early when they are that small because the whole purpose of chemo is to shrink them and stabilize them. So you don't want to waste chemo to shrink them when they are already small... when you might need that chemo later on.

    So, totally understandable that you are disappointed, discouraged and want to get something happening NOW... but sometimes wait and see is the best plan, even though we hate doing that (and the longer you can stay off chemo, the stronger your body/system will be if you have to go back on it).

    Hang in there!!

    Cheryl

    Cheryl
    Thank you so much!! I know you're so right but it's so scary. In only three months another nodule popped up and I'm so scared what will appear in another three months. I'm a bit OCD and like to have a plan or information on what to do if they continue to grow. Since I am a KRAS mutant and these nodules are on both lungs I feel my options may be limited:( Melissa
  • CherylHutch
    CherylHutch Member Posts: 1,375
    Lilmiss82 said:

    Cheryl
    Thank you so much!! I know you're so right but it's so scary. In only three months another nodule popped up and I'm so scared what will appear in another three months. I'm a bit OCD and like to have a plan or information on what to do if they continue to grow. Since I am a KRAS mutant and these nodules are on both lungs I feel my options may be limited:( Melissa

    Scary for sure... but not necessarily devastating
    Just thought I'd add to that... where you are being scared is the fact this lesion appeared in just three months. That is scary in itself because we all jump to the conclusions that these lesions just appear and are off and running. But in fact, it's quite possible the lesion was there all along and it all depends on the angle of the CT scan (remember, CTs take pictures in slices). So it's quite possible this lesion was hiding between slices so just never showed up on previous ones. Your lesions are so small, it's quite possible that at this size one or two might fall between an image slice and you'll think "Oh great, they disappeared!" and then one shows up elsewhere and you say, "Oh no, that's a new one!" When in fact, there might be X number of them, all very small, and none of them are growing, they are all stable... but hiding between slices of the CT images. The good news is... if they are that small, then you are not in any danger at this point. And if they remain that small and stable, then that gives you more time to be chemo free and strengthen your body/immune system.

    Now, if a couple of them start growing, then fine, your oncologist now knows they are there and will be watching for growth... and once they get to the place where it's time to deal with them, then that is exactly what you will do.

    I'm not sure why your onc says a PET scan is not good for colon cancer followup... that doesn't make sense. First we do the regular blood tests/CEA test. If the CEA shows an upward trend, then the next thing is either an xray (depending what we already know) or a CT scan. If the CT scan doesn't show any reason for the upward trend in CEA, then a PET scan... of course, this is all depending on doing the things before hand. Not everyone's CEA results are good indicators for them. Hence the CT scan. But if the CT scan isn't showing anything that is worth checking into, the PET would be the next. All three show very different angles/and mean different things so no one is the be all and end all. But it is all part of the trail to find out what's going on, so the PET is a valuable tool as are blood tests, xrays, CT scans or ultrasounds.

    Cheryl
  • geotina
    geotina Member Posts: 2,111 Member
    Melissa;
    I am sorry the results were not what you wanted to hear. In trying to decipher the CT speak, it appears there are 3 nodules, all very small. Your onc's plan is really quite reasonable, since they are so very small, see what they do. If they do act up for you and enlarge or more appear, perhaps RFA would be an option with follow up chemo. If George were in this position, I would vote for holding off on chemo for now. Getting a second opinion on this is a very smart idea. You do not have extensive spread and it soulds like if it is growing at all, it is very minimal.

    Get Craig's take on all this, he has lots of experience with lung stuff and may be able to give you some good advise on his experiences.

    Get your second opinion and then let us know what they say.

    Take care - Tina
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    Hey Gal:)
    A 2nd opinion is never a bad way to go and can go along way with either verifying or disputing what is being told to you now.

    A wait and watch approach is not necessarily all bad - I'll tell you why.

    First, needle biopsies are a "hit and miss" proposition at best. Mine have never been accurate, so I just don't believe in that approach anymore. I mean if it were cancer, we have to attack either through chemo/surgical procedure, or straight surgery. If it was not cancer, but the nodules continued to grow, you gotta' get those out if they continue to grow. But I just don't know anymore if what they are saying it is the truth. They misdiagnosed my liver and it nearly cost me. I've been on both sides of the fence and I just believe in surgical removal and a biopsy to confirm the findings then and there.

    The only "real" biopsy is in the O/R, where they physically remove the mass and run the biopsy right there - that's a tried and true approach.

    Second, PET scans - go ahead and do one if you can get the approval, BUT....take the results with a grain of truth one way or the other. Just because the PET lights up, does not necessarily means it is Cancer for sure.

    My DaVinci surgery was all systems go, CT showed growth - PET scan showed cancer activity - we cut out the 2 tumors and they were benign.

    This last lung surgery we cut out a 6cm tumor that was malignant - no clear margins as the tumor lay next to the spine - and thus extensive radiation and chemo treatments of all kinds.

    And CEAs are now misleading for me - I was down to 0.5 but had that big tumor in my lungs - when it was in liver, the marker was more accurate, but once in lung, the CEAs are now out the door and I don't consider them a marker for me anymore.

    I guess what I'm trying to say, is that despite all of the "standard tests" that we use for monitoring our cancers, the results can be MISLEADING on a good day.

    I think the good approach is what you're doing - go talk to the new onc and get their opinion - that alone will give you a guideline on where to move to next. Remember, it's not a sprint, it's a marathon - just gather your 2nd opinion and then weigh the odds on what you've been told. You'll know more of what to do then.

    Right now, try and not panic, those nodules are small - the one they pulled out of my lung was about the size of a tangerine so it was sizeable enough.

    Anxiously awaiting the next post from you:)

    -Craig
  • luvmylife
    luvmylife Member Posts: 76
    FYI
    Melissa,
    It does look as though the lesions are to small to identify, but I don't blame you I would want to know what they are. You should ask for a Pet Scan to see if you can get more info before the next ct.

    Since you are Kras mutant did you see the post from ColoCan a while back I copied/pasted it for you. You may want to take the info to your onc.

    mutated or wild ......

    can be found at drugs.com/clinical_trials.html

    its second article listed now (OncoMed anti-Cancer stem Cell antibody OMP-21M18........)

    Also, Physorg.com this date has interesting article on tumeric.......and another on an upcoming study of stage 1 and 2s involving cholesterol meds....

    anotheer article, "Anti-DLL4 Inhibits Growth and Reduces Tumor-Initiating Cell Frequency in Colorectal Tumors with Oncogenic KRAS Mutations" can be read at

    http://cancerres.aacrjournals.org/content/71/5/1520.abstract

    If you're KRAS wild or mutated, you might want to read these

    Good luck Melissa and God Bless you, I am also praying for you

    Jan
  • Lilmiss82
    Lilmiss82 Member Posts: 257 Member
    Sundanceh said:

    Hey Gal:)
    A 2nd opinion is never a bad way to go and can go along way with either verifying or disputing what is being told to you now.

    A wait and watch approach is not necessarily all bad - I'll tell you why.

    First, needle biopsies are a "hit and miss" proposition at best. Mine have never been accurate, so I just don't believe in that approach anymore. I mean if it were cancer, we have to attack either through chemo/surgical procedure, or straight surgery. If it was not cancer, but the nodules continued to grow, you gotta' get those out if they continue to grow. But I just don't know anymore if what they are saying it is the truth. They misdiagnosed my liver and it nearly cost me. I've been on both sides of the fence and I just believe in surgical removal and a biopsy to confirm the findings then and there.

    The only "real" biopsy is in the O/R, where they physically remove the mass and run the biopsy right there - that's a tried and true approach.

    Second, PET scans - go ahead and do one if you can get the approval, BUT....take the results with a grain of truth one way or the other. Just because the PET lights up, does not necessarily means it is Cancer for sure.

    My DaVinci surgery was all systems go, CT showed growth - PET scan showed cancer activity - we cut out the 2 tumors and they were benign.

    This last lung surgery we cut out a 6cm tumor that was malignant - no clear margins as the tumor lay next to the spine - and thus extensive radiation and chemo treatments of all kinds.

    And CEAs are now misleading for me - I was down to 0.5 but had that big tumor in my lungs - when it was in liver, the marker was more accurate, but once in lung, the CEAs are now out the door and I don't consider them a marker for me anymore.

    I guess what I'm trying to say, is that despite all of the "standard tests" that we use for monitoring our cancers, the results can be MISLEADING on a good day.

    I think the good approach is what you're doing - go talk to the new onc and get their opinion - that alone will give you a guideline on where to move to next. Remember, it's not a sprint, it's a marathon - just gather your 2nd opinion and then weigh the odds on what you've been told. You'll know more of what to do then.

    Right now, try and not panic, those nodules are small - the one they pulled out of my lung was about the size of a tangerine so it was sizeable enough.

    Anxiously awaiting the next post from you:)

    -Craig

    Craig
    "My Rock" thank you very much. You have been though so much and I really don't know how you do it! I guess I was just hoping that I was gonna be that one in a million that would do all the 1st line standard treatment and be done with this- how vain of me. I like you advice on needle biopsy - I want 100% confirmation no hit or miss for me. I do have one other question though- if these nodules continue to grow, they have to be cancer right?? I mean can growths be anything else? :)Melissa
  • Lilmiss82
    Lilmiss82 Member Posts: 257 Member
    geotina said:

    Melissa;
    I am sorry the results were not what you wanted to hear. In trying to decipher the CT speak, it appears there are 3 nodules, all very small. Your onc's plan is really quite reasonable, since they are so very small, see what they do. If they do act up for you and enlarge or more appear, perhaps RFA would be an option with follow up chemo. If George were in this position, I would vote for holding off on chemo for now. Getting a second opinion on this is a very smart idea. You do not have extensive spread and it soulds like if it is growing at all, it is very minimal.

    Get Craig's take on all this, he has lots of experience with lung stuff and may be able to give you some good advise on his experiences.

    Get your second opinion and then let us know what they say.

    Take care - Tina

    Tina
    Thank you:) I have never been a patient person. I guess I'm like most young women these days and want immediate results rather than later. I'll let you know what my doctor says tuesday.
  • Lilmiss82
    Lilmiss82 Member Posts: 257 Member
    luvmylife said:

    FYI
    Melissa,
    It does look as though the lesions are to small to identify, but I don't blame you I would want to know what they are. You should ask for a Pet Scan to see if you can get more info before the next ct.

    Since you are Kras mutant did you see the post from ColoCan a while back I copied/pasted it for you. You may want to take the info to your onc.

    mutated or wild ......

    can be found at drugs.com/clinical_trials.html

    its second article listed now (OncoMed anti-Cancer stem Cell antibody OMP-21M18........)

    Also, Physorg.com this date has interesting article on tumeric.......and another on an upcoming study of stage 1 and 2s involving cholesterol meds....

    anotheer article, "Anti-DLL4 Inhibits Growth and Reduces Tumor-Initiating Cell Frequency in Colorectal Tumors with Oncogenic KRAS Mutations" can be read at

    http://cancerres.aacrjournals.org/content/71/5/1520.abstract

    If you're KRAS wild or mutated, you might want to read these

    Good luck Melissa and God Bless you, I am also praying for you

    Jan

    Jan
    I always felt I had a strong 6th sense and something was telling me I needed to start taking my tumeric supplements that I bought sometime ago. Low and behold I took 1 this morning before I got the Ct results this afternoon :) Thanks for the info
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    Lilmiss82 said:

    Craig
    "My Rock" thank you very much. You have been though so much and I really don't know how you do it! I guess I was just hoping that I was gonna be that one in a million that would do all the 1st line standard treatment and be done with this- how vain of me. I like you advice on needle biopsy - I want 100% confirmation no hit or miss for me. I do have one other question though- if these nodules continue to grow, they have to be cancer right?? I mean can growths be anything else? :)Melissa

    Melissa
    if these nodules continue to grow, they have to be cancer right?? I mean can growths be anything else? :)Melissa

    Not necessarily true...I look no further than my 1st lung surgery...we watched the spots grow bigger with each scan cycle...the CTs showed the mass and size of the growth - PET scans lit up in those areas too (looked like cancer all the way; would have "bet the ranch."

    So we cut them out, biopsied on site the phyical tumor and those 2 turned out benign.

    So everything said cancer, cancer, cancer, but it was benign, benign and benign.

    I've had too many "tests" that have misled me in my journey - that's why I'm leery of them and take them for what they are, which may or not be the truth, but it's all we got.

    We've "misdiagnosed" many times in my journey, but we've never been wrong in the operating room when they have the tumor in their hands - that's the only test I believe in and I stake my life on those tests and believe in that kind of truth.

    But the bottom line, Melissa, if the tumors continue to grow big enough, you would eventually have to address them - belign or malignant, a tumor that grows too big for the cavity it resides in is going to cause trouble down the road.

    I want to hear more - good to see you shining face again, I've missed you:)

    "Your Rock"
    -Craig
  • Buzzard
    Buzzard Member Posts: 3,043 Member
    Lilmiss82 said:

    Jan
    I always felt I had a strong 6th sense and something was telling me I needed to start taking my tumeric supplements that I bought sometime ago. Low and behold I took 1 this morning before I got the Ct results this afternoon :) Thanks for the info

    Melissa..........
    I bypassed all the rest of the posts after I read the first one because I want to give you another view without me thinking about all the others...I am sure they all are good I just wanted mine to be without biase and I will read all the other posts after I finish this one...I hope no one is offended..Pretty sure no one will be.........
    I had a tumor growth come up after 2 years of nothing...I was never scanned but my CEA started to elevate...I asked for a CT and Boom there it was..1.4 cm...I ask myself right then and there, what if CEA hadn't picked it up ? Might be shoving daisies right now, luckily it did, but after it was 3/4" in diameter...So, I took my butt to Vandy and found me a brand spankin new model Oncologist and am very glad I did. Now, after a few questions I figured out she was right for what I needed...I ask her to have a CT scan done on me at 6 months.....6 months was Wednesday and yeah, I haven't said anything up til now cause there was no use in worrying the masses for something that doesn't tell me anything at that moment. It doesn't matter to me what it is, it is what it is. I am wondering if in fact you have thought of cyberknife as Jennie did...or RFA...or as menright did with MFA...In retrospect I wish I had opted for RFA instead of surgery for removal, even though my tumor was removed with no node involvement and all clear margins, I still lost half of an upper lobe...am I wrong to think that RFA would have saved that portion and only killed the tumor in place...Maybe I am off with this but in any instance, I opted for removal, it was not to stay in me, they can galk at it on the tray as long as its out of me where it has no more effect on me......My thoughts are if I ever recurr and it is tumor growth in the lung, my goal is to have it electrocuted, froze, or melted in place by RFA or Nanoknife, or MFA...Cyberknife.....and to save surgically removal, even if laproscopically done as a last option....Oh well, better I know now than later...and it could very well never have been an option for me...but if there is a next time my options will be all taken into consideration on whatever will keep me breathing the longest and fullest............You are young and resilient, you are very head strong and I know you will come out of this fine and none the worse for wear.....Pull your big girl panties up and get your game face on....it is what it is, now kick its azz.....and I'll be right here cheering you on....you'll do well through this LilMiss, I know you will......Love to ya........buzz
  • Crow71
    Crow71 Member Posts: 679 Member
    This sucks
    This is very upsetting. I'm really sorry.

    You are a long, long way away from being symptomatic.

    Hopefully your new doc will be able to come up with more than just two plans to consider. I would want more info before I made a decision. You sound a little freaked out, and rightfully so. You want the bastards out and you want them out now. BUT, there may be some advantage to waiting a bit longer.

    I hope you get over the shock of the news soon.

    Take care,
    Roger
  • Love2Cats
    Love2Cats Member Posts: 127
    Hi Melissa
    I have had a couple of bad days due to chemo, so forgive me if I repeat any info. I only had enough energy to skim through all the answers.

    Anyhow, I am sorry that you have mets to your lungs, and surprised that they haven't offered you a petscan. After they biopsied the tumor in my colon, and found out it was cancerous, they gave me the choice of a biopsy or petscan, to view the lumps that were seen in an earlier catscan done when they initially diagnosed me with diverticulitis (sp). Unfortunately they are mets, and now I am on Folfox with Avastin. I just finished my 4th Folfox this week, so I don't know when they will scan again, so I can't help you with any further knowledge. I would go for a second opinion.

    Take care,

    Sandy