Arm swollen on port side, Help

zach08
zach08 Member Posts: 9
in Breast Cancer #1
I do not have a blood clot and my port side arm is very swollen and they are not telling me what to do or what it could be. Sould I tell them to take port out. I only have two treatments left and then hercepton every 3 wks. till Nov. 2011. Any answers out there. Please

Comments

  • natly15
    natly15 Member Posts: 1,941
    #2
    Is the port on the same side
    Is the port on the same side of your surgery and did you have lymph nodes removed on that side? Swelling can be a sign of lymphedema if the surgery was done on that side. Definitely ask the doctor what he thinks the cause may be. Call him today and get the answers you need. I've had my port for over a year and had no problems with it. Something doesnt sound right and you shouldnt have to be stressed over this. Praying fyou get the answer you need.
  • zach08
    zach08 Member Posts: 9
    #3
    natly15 said:

    Is the port on the same side
    Is the port on the same side of your surgery and did you have lymph nodes removed on that side? Swelling can be a sign of lymphedema if the surgery was done on that side. Definitely ask the doctor what he thinks the cause may be. Call him today and get the answers you need. I've had my port for over a year and had no problems with it. Something doesnt sound right and you shouldnt have to be stressed over this. Praying fyou get the answer you need.

    Not on the same side
    Thanks for reply and prayers, Not the same side as surgery. Thanks again
  • jamiegww
    jamiegww Member Posts: 384
    #4
    You have every right to know.
    If they aren't anymore help than that, you might need to find another doctor. You have a right to know what is going on and preferably before it causes any permanent damage. It's their job to know what is causing your arm to swell and to communicate their findings and a solution to the problem. I hope you get the answers you need and the swelling goes down soon.

    HUGS!!!
    Jamie
  • missrenee
    missrenee Member Posts: 2,136 Member
    #5
    jamiegww said:

    You have every right to know.
    If they aren't anymore help than that, you might need to find another doctor. You have a right to know what is going on and preferably before it causes any permanent damage. It's their job to know what is causing your arm to swell and to communicate their findings and a solution to the problem. I hope you get the answers you need and the swelling goes down soon.

    HUGS!!!
    Jamie

    Yes--be the squeaky wheel
    Demand an appointment. If they are not accommodating, I would start at the ER. This may be nothing, but I wouldn't let it go. Oh, and if they're not accommodating, I'd start looking for another doctor. It never hurts to check things out. I always go on my gut instinct.

    I'm hoping you get results. Check back in and let us all know what's going on. Good luck.

    Hugs, Renee
  • zach08
    zach08 Member Posts: 9
    #6
    missrenee said:

    Yes--be the squeaky wheel
    Demand an appointment. If they are not accommodating, I would start at the ER. This may be nothing, but I wouldn't let it go. Oh, and if they're not accommodating, I'd start looking for another doctor. It never hurts to check things out. I always go on my gut instinct.

    I'm hoping you get results. Check back in and let us all know what's going on. Good luck.

    Hugs, Renee

    Squeaky wheel
    Thank you Renee, I am new at this, but to make a long story short. I did go to ER and my doctor ordered an ultrasound and didn't find anything. So thinking it's the Port, but they are not for sure. My arm isn't getting better if anything worse, so just really frustrated. Tues. I go back for chemo and see my doctor, so hopefully it will be ok till then. I'll let you know. Hugs back, Nanette
  • zach08
    zach08 Member Posts: 9
    #7
    jamiegww said:

    You have every right to know.
    If they aren't anymore help than that, you might need to find another doctor. You have a right to know what is going on and preferably before it causes any permanent damage. It's their job to know what is causing your arm to swell and to communicate their findings and a solution to the problem. I hope you get the answers you need and the swelling goes down soon.

    HUGS!!!
    Jamie

    Answer would be nice
    Thank you Jamie, I am feeling the same way, very frustrated, that they not finding a solution. When I went to ER and got an ultrasound they didn't find a blood clot but they are treating me for one. Did you ever here of Herceptin causing swelling? The doctor is taking the port out in 2 weeks, thinking all will be fine but I don't think I can wait that long if it is the port. This has helped, just found this the other day. Thank you again. Hugs, Nanette
  • joyyee1
    joyyee1 Member Posts: 31
    #8
    arm swollen on port side
    I"ve had a port in since April, 2010- had it through chemo and then they left it in for the remaining Herceptin treatments- which I"m still having. Never had swelling. Press you dr. to get answers!!
    It would be advisable to leave the port in for your Herceptin treatments to spare your arm.

    Good Luck!

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