I'm starting my first blog today August 24, 2009. I had meant to keep a daily diary of my experiences when I got my diagnosis in April, but just never had the motivation to do it. I bought a nice journal at Barnes and Noble, it lies unwrapped on my dresser.
I don't have time to write more just yet, but having started here, I hope to retrospectively construct the main parts, and continue on into the future.
Noticed a small lump in left breast; this was a surprise because I had a mammogram in November 2008, and it showed no suspicious signs of cancer.
I first visited my internist at UNC Internal Medicine on April 6 to confirm the finding and to refer me to the appropriate place in the UNC system for follow up. On April 8 I had mammogram on the left breast (my November mammogram was at a different facility), followed by an ultrasound. The next day I my usual 6-week hair appointment, then went to UNC in the afternoon to meet wtih the surgical nurse who informed me the ultrasound was highly suspicious for malignancy; I was squeezed into a core biopsy appointment that afternoon. The core biopsy was somewhat painful, with four cores taken, but at that point I was in a daze and didn't really care much. The next morning Susan called to tell me the preliminary pathology report showed a 1 cm malignant tumor. She said it was an invasive ductal carcinoma, but she misspoke, it was lobular I found out next week - neither mattered to me, I had never heard of either type.
Routine mamogram 8/11, diagnosed 8/14.A quick trip to Mo to see daughter who is expecting twin boys and my help in November.Really fun trip with my other daughters and 5 grands.Home 8/19, appointment with surgeon 8/21, scheduled bilateral mastectomy 8/27. Things are still sinking in, trying to read all info out there. Haven't had a chance to feel down, just peace and confidence that this was caught very early. I'd like to here from you who have been here done this!
I started this blog when I started this journey with breast cancer in 2004. After treatment I continued with Tamoxifen and then Arimidex. In May 2008 I experienced severe back pain that was diagnosed as osteoporosis and arthritis. In January 2009 I got the news, as a result of an MRI, that my breast cancer had metastasized to my bone. Since then, I'm traveling down a new path and sharing with readers my personal story and information that I hope is helpful to other cancer warriors, their caregivers, families and friends.
We would like everyone to know that our family is so thankful for all the support and prayers that have been sent our way. We hope you all know that we appreciate each and everyone. I know there are a lot of people in our corner. Thank you from the bottom of our hearts. I will make sure I keep this blog up dated so that everyone will know how Raymond is doing.
We are going to be heading to Minnesota on Monday. We will be meeting with a doctor at the Mayo Clinic on Tuesday. Before we leave the Mayo Clinic on Tuesday we should know how long we will be there with them at the Mayo Clinic. We pray that they have a much better treatment plan than what IU Medical wanted to do.
Daughter was 5 when diagnosed,stage 4 poor histology now 23 and was diagnosed with pulmonary hypertension and infertile.
(Pink Floyd reference)
Well, I did it. I went to one of the local Mind Malls, actually, in my case, probably more like a Mind Mini-Mart: even THEY have standards. Seriously, I made an appointment as indicated earlier, and, if you know my history, it is only now that you know I actually made it to the appointment. I am like that. Probably part of the reason I needed to go to the Mind Mall, now that I think about it.
You know, you know, how when you go to the mall, you sometimes are looking for something but you do not know what it is? (I am speaking to women here, guys. If you have the male chromosome, boys, you are clueless: we know before we go in where Hallmark is, which is where we get the card and the trinket; we know which clothing shop to go to that has small lines and big clothes (okay, okay, let go of my ear, I'll take that out before I publish it, Corrine!), you know how to get in and out really fast, in other words.)
(Bob Dylan reference)
Within the hour I will be off to see the wizard, the wonderful wizard of Oz, the guy behind the curtain, the guy I am always suggesting that other people should go to see when they feel like they aren't in Kansas anymore, when they need a heart, or need some courage, or, in some dire cases, even a brain.
I am going to see a therapist. This guy is supposed to 'specialize' in cancer survivors with depression as the happy camper at the front desk of the joint indicated over the phone. It could have been a funny conversation, by the way, my conversation with Happy the Helper. But the first time I made a joke ("Are any of the doctors good looking women?") I was met with complete silence. That is not funny. Most folks would go into hiding, especially if they are on the psychiatric joint's side of the picture when such a conversational snippet takes place. I mean, for all she knows, I am Hannibal Lecter. Maybe I am eyeballing her through the window on a cellphone even as we speak. I appreciate that. (I wasn't, by the way, and I'm not, by the way, but I appreciate the concern.)
Why do I have lung cancer? Am I being punished for something? People look at me with great empathy when I tell them...
I have just been diagnosed with bladder cancer and am scheduled for cstoscopy with biopsies and TURBT on 9/15/09. Needless to say, I am concerned with the outcome and not quite sure what will happen after the surgery. It will be day surgery and I have been told that I more than likely will go home from the hospital with a catheter. I am concerned about that. If anyone has gone through this and would like to share their experience I would appreciate it. I know that I could call the doctors office but really feel I need to speak to someone who has experience this whole thing.
Something someone else wrote me tonight made me think of this. I'm beginning to realize finding a support group is going to be important. The truth is, as much as my husband and family want to help, they can only help to a point. The reality is, they don't really want to hear about the hard stuff because it hurts them to hear. And I don't want to talk about it with them. Plus, they can't answer my questions - a support group can.
I don't know if my husband is ready for me to find a support group. He is a bit in denial - hopes this will all be a walk in the park. Surgery will be easy, and I'll be able to skip thru the interferon without a problem. Uh-huh, sure. I've let him keep his illusions - you can't argue with a man who has done all the research and only sees the positive in what he reads.