I am new to this. I very much would like to be a part of a Support Group who will Understand what i am going through. I would like Help and Support Mentally,Physically, and Spiritually.I would like to be able to Give Support back as well. I had my Lumpectomy on April,9th,2009. I Was told on the 5th,of April That It Was Cancer. I will be seeing the Oncologist for the First Time on next Tuesday. I had a Lump in 2003 it stayed there till 2005. It disappeared in 2005,it was on the outer side of the Right Breast Near The Arm. The Cancer Diagnosis that I Recently Recieved is closer to the Inside of the Right Breast, where the Breast Cleveage starts. I was Cut Surgically from the Inside Cleavage Horizontally across the Breast about 4 inches. This is just above the Nipple Area about a inch maybe. I moved to a New Area some Distance from where I used to live. The Doctor I had there, told me I was to Young to have Breast Cancer. So in a Month after the Relocation of my Move I had Another Doctor who shall Remain Nameless. I told him about my Lump in the Right Breast and asked him to ( Please Check It ). what do you know ? He claims it was not there, however I could still feel it. My previous Mammogram Showed it to be 3 cm in Diameter. However He Could Not Find it After Spending about 30 Seconds on Each Breast. We kinda had a few words about this as I know That I could still Feel it and it Had not Been That Long Since I had the Mammogram. Well I raised a little stink over it and he sent me for the New Mammogram. What do you know? It was still there. So he calls me back and says we need to watch it and Re-Do Mammogram in six months. I went back 6 Months Later it was Still There he said we would watch it for a while. Again I asked him 6 Months Later for another Mammogram, he Refused. We had words again, I could not feel the Lump anymore. (so he did not Believe it was an Issue ). Needless to say I had the Mammogram. What do you know it was gone ? He then told me I had Caused Him Un-Due Stress. I Kept Doing my Self Breast Exams. In 2007 there was Another Lump in the same Breast only in a Different Location in the Breast. ( Something just did not feel right about this Breast Lump ). I Asked him Again to Schedule a Mammogram. He Flat out Refused telling me I was ( To Young To Get Cancer ). I Lost my Father that Year, May, 2007 I was Devastated and Severely Depressed. I was Seeing this Doctor Every 3 Months Due to my Diabetes and what he called a Urinary Tract Infection he said I had. I had Massive amounts of White Cells and had Sugar spilling over into my Urine. I Kept Requesting more Mammograms every time I went to see him. But he Refused even after he checked my Breast for 30 seconds. My Diabetes was out of Control running 400 to 600, He Would Not put me on Insulin just the Pills. I also had Cataract Surgery too on Both Eyes. So in December of 2008 I had gotten into such a Weakend State that my Husband took me to a Doctor in a Different Town. He immediately put me on Insulin Shots and different Diabetic Pills,he began running New Blood Work and Freaked out on the White Blood Cell count, he checked my Cholesterol which was off the charts as well. My Triglyceride levels were 800 plus. I was also Diagnosed with COPD and I am on Oxygen 24 seven and have to take Breathing Treatments 4 times daily. I have Epilepsy as well. This Doctor did my Pap Smear which turned out ok. By this time I was Severely Weak and Very Fatigued in a Very Weakend Condition. I told him about my Breast lump, he checked it and Found it with out me ever having to tell him which Breast or the Location. He sent me Immediately for a mammogram. I did not even have to Request it. He had the info back on the Mammogram almost Immediately I think 2 days. He called me Straight Away and had an Appointment set up in 24 hours to do more Diagnostic Imageing. I did keep this appointment. then I was informed by the new Doctor, Surgeon, and anesteologist that I could not have Surgery because I was not well enough to have Surgery. I was put on many Different Medications to try to take care of the Diabetes, Cholesterol, Trygliserides and many more Meds to build my Body back up so I would be safe for Surgery. I went through December 2008 and Jan, Feb, March,31st 2009. One day later I was in the Hospital getting my Lumpectomy Procedure done. I am still not in the best of health but the Surgeon said we could not wait any longer the Lump had gotten bigger. Some of my health had improved my Diabetes readings were now in the mid to low 200's , my Cholesterol was in good range,my Triglecerides were down to 576. My Lung Function Test was somewhat better. Other things were beginning to come together as well. the anestesologist still would not put me to sleep because he was affraid I might not be able to come off Life Support. So I had my Surgery with Local and some Mild Sedation. I handled the Surgery well and I am recovering. By the way I had lost a total of 35 pounds since December till march.i weighed approximately 230 pounds in december. As of the 20th of April I now weigh 177 pounds. I did not lose this weight through Diet or Exercise. I lost this weight because my Appetite is gone and I have no desire to eat. I feel really Blessed to have a new Primary Care Doctor and am very Grateful to the Surgeon. I thank God first because with out him I would be lost. I am a Christian who believes in God and his Son our Lord Jesus Christ. I am Grateful for my Husband and 2 Boys who Stand Beside Me every day. They support me in all I do. I have been told in the next week or so by the Surgeon that they will be taking Lymph Nodes out for Biopsy. They say my Cancer is Infiltrating Ductal Carcinoma . So far Grade 1.
I am copying this from a book I'm reading. I don't read 'canzer books' because I'm tired of them. I am not my canzer. My life isn't just this disease. That being said, this comes from a book called, "A Dialogue with canzer, reflections on illness and healing". It is a collection of this type of writing, poems, etc from a collection of survivors. This expresses my feelings and beliefs much better than I can express myself. It is a bit long for this venue, but I find it so important and valuable. - Kim
I WAS DAIGNOSED WITH PANCREATIC CANCER FEBRUARY 2008 IT WAS CAUGHT 1ST STAGE AND I HAD THE WHIPPL SURGERY, DURING SUMMER OF 08 I HAD 5 WEEKS OF RADIATION ALONG SIDE OF CHEMO CALLED 5FU. THEN I HAD A BREAKA DNWENT BACK IN MID SEPTEMBER OR SO FOR 11 WEEKS OF ANOTHER CHEMO CALLED GEMZAR. I WAS ALSO PUT ON A PIC LINE TO HELP HEAL A PART IN ME THAT SURGEON FELT WAS HEALING PROPERLY, UNFORTUNATELY I ENDED UP WITH A BLOOD CLOT AND BLOOS IFECTION
today was all about food and playing dumb. Food: The nausea has lifted and the hormones are kicking in. Appetite is up and I'm indulging a bit. Blueberry muffins were spectacular. Thanks medical marijuana!
Playing dumb: Friday is the scan and I will want to know results ASAP. Of course, Dr B's office already called to set up a conference which gives them to get ready to tell me good news or bad. I can't dwell with that thought so I'm playing dumb to keep from mulling it around as I will.
A little more physical strength today but still very easily winded. I'm amazed how little I have in the tank.
(Guy Clark reference)
If you are old enough (let us say old enough to remember anything at all) you recall wondering if there was ANYTHING that was safe to eat or breathe or do, and then chuckling about it, as if all of those people telling you from time to time that wine was good, bad, good, bad, good, bad, were completely off their rockers.
I cannot get into the litany of items we have been advised are bad for us only to be advised at a later date that "Oops!" that research was incomplete or failed to take these measures into account, or this or that.
This might be good for preventing heart attacks, but it causes cancer. That sort of thing.
(Guy Clark reference)
I certainly hope that all of those highly successful people who claim to have learned from failure have not just been pulling our proverbial leg over the last several centuries because I have, to be blunt, had what we call in the real world a set back.
I had gone 13 days without the tube, was experimenting with foods I had not tried, was finding success with some concoctions I would not have considered likely candidates, and then, on Monday night I began to feel a bit on the sketchy side, as the kids say (or did at some time in the recent past ... their slang seems to change much more rapidly than ours did, as groovy had a rather lengthy lifespan by today's standards).
I have just finished a series of six bouts of chemo treatments and at present have good days and bad days as a result. My biggest complaint is fatigue and leg pains. Some days I have difficulty with extreme weakness in my legs. I am getting over 11-12 hours sleep which is a lot more than I am used to. I have recently sent my exam CDs and pathology reports to the USA clinic for an evaluation in the event there are any advances in treatments to be recommended. I would like to know if there is any standard for having catscans and C125 tests done - ie how often should I be examined. I have never been on a chat system before so I am looking for answers from anyone as my oncologist thinks I do not need a C125 at this time.
CJ Hats is a great source for specially designed & hand-sewn hats & headcoverings for chemotherapy patients (and all others suffering from hair loss due to whatever reason). Lots of colors & patterns, easy care (machine washable), and reasonable prices. Custom orders are available.
Mary Ann Weiss is both the owner & sewer, and is an inflammatory breast cancer survivor.
Her contact information is:
address: 130 Whispering Pines Dr., Apt. M, Coldwater, MI 49036
Visit the website: cjhats.com
Hi I just came upon this website while trying to do a little research. My mother was diagnosed 2yr ago this Mothers Day with papillary serous. I am sorry to say that after surgery, external beam radiation of total abdominal and pelvic and intravaginal HDR, plus almost a whole year of chemotherapy carboplantin/taxol, and most recently 6 treatments of doxel she is get worse. She has had new involement of lymho nodes. I'm not writing to further depress anyone or squash their hope, but instead to say that all of your blogs are helping me understand what my mother is going through a little better.
Hi all, I'm back. I haven't blogged in many months cause I started my Thyroid meds. got my energy back,( my hair even started to come back) I went back to work in my lawn maintenance business; raising my teenagers, and husband; spending as much time as possible with my daughter and grandbabies.Just generally trying to get back to my life. then they called me in for a petscan..... Wham! Knock me over with a feather. It's back and has spread some. The transplant and all the chemo and radiation didn't keep. Now I am waiting to find out the new plan of attack. I know whatever happens is God's will, and Thy will be done. I just don't think I'm humanly ready to go home, and leave my earthly life; but I'm not sure I have the gumption to fight anymore. I know I sound pitiful.No offense to anyone that has it worse than I. I just dread getting weak and sickly again now that I've built up my business again, and am contributing to my family. Bless my husband. He has tirelessly worked and stayed by my side thru all of this for the last 4 years, and we've only been married for going on 6 years.