I need to find out any side affects that Stage 1V lung/metat patients are getting after receiving 9 or more Alimta treatments. My first line was carbonplatin and gemzar, then 25 radiation, then Alimta. It has been very strange becausae I have different reactions every treatment. Are you still getting your Alimta every 21 days or have they adjusted the lenght of time between treatments. I have heard that one person at least has been on it 3 years and is doing quite well.
I started treatment on Jan. 2008. I feel I am doing better than I could have expected from what they initially told me. If you are having side affects such as vertigo, nauseau in latter treatmens, stomach discounfort, bladder problem, heartaches, gasping for breathe, etc/ Please let me know.
In 2002 I was disagnosed with low grade soft tissue Sarcoma in my left scapula, after being misdiagnosed in 2001. I had a wide resection surgery in my back. After being 5 years cancer free, I received the bad news that my Sarcoma returned as high grade in the same area. I had another wide resection in December 2007. In March-April 2008 I had radiation to the left scapula area. Then the whole month of June 2008, I was in the hospital in Boston. I had half my shoulder blade, all the muscles, tissues and even the skin removed from my back. After going through this big surgery, I was told this past February 2009, my Sarcoma has gone to both my lungs and my bones.
I am a recovering penile cancer patient. 4 operations last year made for an awful year of dealing with health issues, hospitals, surgeries and recoveries. The cancer seems to not be evident anymore but now I'm dealing with psychological issues of organ loss and sexual dysfunction. Is there anyone else out there who would be kind enough to share your story? I'm lucky to be in a very supportive relationship but it's still really a hard road to travel. I've dealt with cancer once before and am also a 32 year HIV survivor. I've found that, by speaking about HIV/AIDS issues, it helps me to have power over the disease.
I just wanted to say thank you to all the friends WE have out there. To the friend who takes the time to sit with you at appointments, to friends who give me a quick call just to see if I'm still kicking. To the friends who pour out love with every breath, and the first time friends who dont look at you sideways when they hear the word "cancer". To the friends who don't hesitate to kick you in the shins if your mouth gets out of control, to the friends who just hold you close and let you fall apart, knowing they are there to help you get yourself back together. To the friends who have no idea what to say or do, but feel sooo strongly....
canzerLand brings all kinds of new experiences, new hopes (weird, little things now excite me...look, I'm not nauseous today! or Wow, I made it through an entire event without falling asleep.) and canzerLand brings new words like scanxiety.
Scanxiety occurs whenever someone living with canzer gets any kind of test that will update their current status. CT, PET, MRI, even an x-ray. The day before the scan you start thinking about all the scenarios. The worst case scenario is predominant. That night I'm always up all night getting things done 'just in case'. In case of what? A scan doesn't usually kill people! The days after the scan are filled with terror. Waiting. We wait a LOT...test results, dr appts, treatments, labs....hurry up and wait.
Well, we went to The Liver Symposium this past weekend. First I have to say that Jim Belushi and The Sacred Hearts are FABULOUS! If you get the chance to see them live, go for it! But, alas, he brought his 7yr old son. Sigh. Otherwise, I'm sure he'd have invited me to his room. I saw him making eyes at me...oh yes, he was wearing his Blues Brothers sunglasses the whole night, but I still think he was looking my direction.
We had the most awesome weekend. Wonderful people, inspiring stories from those that are NED (no evidence of disease) and those that are still fighting - but we are all living with canzer. I also found an online friend that I didn't know was attending. We were talking and really felt connected when she asked if I went to any support websites. We soon realized that we have been friends for a year and a half and were diagnosed the same month. It was such a JOY to meet Jennifer in person! We were inseparable the rest of the weekend. I also got to meet several long term survivors that I've admired for sometime.
Recently I celebrated another birthday, my 52nd. As with most birthdays since my illness it has made me reflective. I spent my birthday with my husband riding in the foothills of northern California enjoying nature. Along our drive we found ourselves on an old road that led to a watering hole popular with teenagers and young adults. It had been 29 years since we had been there and it was wonderful to recall the good times we had had with friends back in the day. Being there again reminded me of all I have and of all I have had. How much I love life and do the most I can to enjoy it. I have bad days yes, but they are fewer than the good ones. I revel in the fact that I am still here, still breathing and still loving life. I thought of how wonderful it is that I have lived another year and beaten the cancer beast for the time being. I love my birthday’s they are a symbol of the fact that it is I who am winning the battle against cancer and not the other way around. So here’s to birthday’s, may we all have many more!
I was diagnosed with bilateral ureteral cancer Stage 3 on the left and Stage 2 on the right, Dec.5th, 2008. I had bilateral ureterectomies with illeal replacements at UCLA Med. Center on January 5th, 2009. I am now feeling great but know that there is a very good chance of recurrance. My doctor has yet to put me on chemo since the surgery was so tough.I am 62 years young, very athletic and work out every day. I also had colon cancer in Sept.'08 (Stage 1) and uterine cancer in August'90 (Stage 1). Anyone else out there with a diagnosis of Lynch Syndrome? Apparently that's how I ended up with all these cancers!! My urologist says a good chance at five years. I'd like that and more!
My mom was diagnosed with Non Hodgkins lymphoma in the early 2000's. Either she was quite the award winning actress or I never asked the right questions because she hid it from us for years. She wouldn't even allow the doctors to call us after she received treatment. I am the son, the eldest of 2, a younger sister. Eight years later I am older, wiser, and focused because I need my mom to live, and if she doesn't, it cannot be because I was neglectful in handling her care. We just came from celebrating my girlfriend's birthday today, and I kind of sped up my eating because my mom looked tired. She just received chemo Tuesday.
I'm 55 years old and trying to survive my cancer. I have a 21 year old daughter and a 15 year old basketball playing son ( he's pretty good and fast)and a wife of 29 years. Is there anyone out there fighting the same fight? I was just diagnosed 2 weeks ago and whisked right into Chemo.
It's been quite a whirlwind for myself and my family as we try to get our minds around it and adjust our busy lives.
It's metastisized to my liver and done some substantial damage to my body.
Please let me know if you have some pointers or resources that I might not know about.