Due to a lack of direction or a proper plan from my oncologist of 5 years for the latest spots found on the pleura of my lung, I decided to seek out a 2nd opinion and went to UT Southwestern Medical Center, which is a teaching hospital.
We met with a new oncologist there, who had many questions and contradicting opinions than my original onc. Currently, they are reviewing my case file of 5 years, with scans, doctor notes, and test data, to determine what they think the next step is.
When I went to my cancer center, the other day, it looked a ghost town and looks like they are about to go out of business. Last year at this time when I was in chemo, it was standing room only for the blood labs, Infusion, the pharmacy, the parking lots and the doctor's offices. Now, it looks like something out of a movie - very few people anywhere. Many have been laid off. When they started demanding their co-pay up front, I told them all to update their resumes, because in 6-months they would be out of business. Looks like I was right. I can barely cover my scans, much less any treatments. My chemo was over $7500 a session and very few people can cover their co-pay for such a large amount, and that is per session.
I am interested in hearing from others who have had/are having/contemplating mammosite radiation. I had a lumpectomy and sentinel node removed on June 3 and am scheduled for mammosite catheter insertion on June 24. According to the lengthy list of criteria for mammosite, I am an excellent candidate: large breasts, under 2.0 centimeter tumor, HER2-, ER+, BRACA- and a few more. Since I expressed mammosite as my choice (if it would work) to surgeon, it was considered during the surgery...because there needs to be enough space between the cavity and skin.
I have ESS low grade stage 4 and being treated with megace. Want to know if anyone else is being treated or has the same disease
I had a RP on March 24, 2009 with nerve sparing on one side. 2 tumors with Gleason scores of 3+3 and 4+4. Surgery went well with very minimal pain. Recovery was a little challanging due to a blocked catheter, about a week after surgery, because of bladder stones, that sent me to er 2 days in a row. Excruciating pain when the cather backs up. I ended up travelling 2 hours to see my surgeon in London, Ontario and he did a cystoscopy and replaced the catheter. I had the catheter in for 21 days. I had bad a lot of bladders spasms and blood leaking from the tip of the penis while the catheter was in. No issues removing the catheter. No pain, just a strange sensation. No pain meds or anything like that required.
Things have been pretty tough lately.
Just as my hair is starting to come back in and my fingernails have become "unfunky" looking, my hubby needed open heart surgery. So spent a week, commuting back & forth to the hospital. (an hour each way)
Then he came home and I cared for him for a week and BLAM....the other shoe dropped! He developed a blood clot and went back into the hospital. They started him on Heparin and he had a reaction on that, where his platelets dropped to a dangerously low level.
A change of drugs next, And while the other drug worked, it worked very slowly.
Day after day, I have been back and forth to the hospital, while trying to manage things at home, while trying to keep my own health together and not get too worn out.
I was diagnosed with soft-tissue sarcoma in March, 2009, and had surgery to remove an aggressive, high grade tumor from my thigh, in April. I will begin radiation on Monday for 36 sessions. The recurrence rate is 50/50. If the cancer spreads, it will go to my lungs. I have been given the option of doing chemo for four months, which may reduce the recurrence rate by 0% to 5%. I cannot decide whether or not to do chemo while my quality of life is good, since it seems inevitable that I will eventually have tumors in my lungs, and then the prognosis is very poor. If anyone has ideas about this, I would really appreciate hearing from you.
i am new in this site and i know i'll get good opinions here regarding brain cancers and cancer patients who can give advices and strengthening words. My aunt was diagnosed with a brain cancer, this May of 2009 - she underwent a surgery when the doctors said that she had two tumors in the rigth side of her brain. Biopsy resulted as those were malignant tumors. Now she will undergo an oral chemo and radiation. however, i still don't know if it is stage3 or 4. She's a very strong , jolly and optimistic person i know, that's why , maybe, she prefers not tell us all the details behind it. But i emailed her and asked her to please tell us what's the real score. Her only word for us her family, was that her doctor's said they can stop it. I really hope she'll be fine and God permits her long life , if these cancers are really a traitor at least we can still have her 10 yrs or more not the other cases that lies only for 2 - 3 yrs surviving. I am yet to know the exact class of her glioma- i believe there are other classes . i hope you pray for us also. and can anyone tell me that this case can go well? i stil lbelieve miracle happens and i hope God spare us one.We really love her.
I have been struggling with so much questions and pain since my mom passed away.
My Mom passed away almost over a month. I was so depressed. My mom was a very devoted mother, she care about us so much. She taught us to be a good person. Not only that, she even care about the people who suffered from a disaster, she gave a big donation(her savings) to help the people that suffered from the Earthquake. She rarely spent money to buy any fancy clothes for herself.
Last year, she was still so healthy and strong. But since Jan., she was feeling pain in the lower back. I took Mom to see the Urologist, he said that Mom has Kidney stone. Then after we came home, my Mom was passed out. My sister, brother and me was trying to call her and hold her, she finally was able to regain concious. We then drove Mom to Hospital in Emergency for check-up and the ADMIT Doctor didn't let us know that Mom was having low in red blood cells until the other heart Doctor notice and give Mom the transfusion so she was feeling better. Then the Urologist have Mom to do the MRI test. The test show lesions on several places in her body. They then had my mom to do the bone biopsy, and it came back that no Tumor identified.
When I was a kid returning to school after summer vacation, we'd get the assignment: "What I did this Summer." Well now, isn't THAT special! Bear with me, this sets up like a hat trick!
Mine starts back in 2004, 2005 with a lie and a divorce that nearly killed my soul and took me that one step off the cliff. I got help, I began to heal, but in much of my reading of cancer I find and tend to believe that stress and severe hardship can lead (?) enhance the occasion of cancer.
In October of 2007 I fell and cranked on my left ankle. I had to go from crutches to walking boot, with weeks of Rx and therapy. This left me with shooting pain, my lightening strikes up and down my leg and back. After many more visits with all doctors wonderful, one night in September 2008 was just too much. I was taken to the emergency room at TMH in Tallahassee, FL.
2and a half years ago, a cancer in my jaw was removed, in a vet hospital.thay removed all my molars, and most of the skin,in the left rear of my jaw. thay also removed the little thing in the middle of your mouth, i forget the name of it. Had 8 radiation treatments....lost all buds, and saliva glans..no taste.. just bad taste...been using feeding tube for 2and a half yrs. now i can't swallow, eating is impossible as i fill up on 3 to 4 ounces of what ever, from 156lbs down to 119 126 up & down. hope to get to 130-135 lbs, i'd rather be back in nam because i know i will not live like this, only because i don't want to,,if i can not enjoy life why live it..only the next year or so will tell...i can't see how others suffering can say thay are enjoying there lives?????? words i hate the most are " I'M ALIVE " are you really????? i may sound bitter b ut i know it's for the best..