Cancer Survivors Network

MOM PASSED 7/14/07 EVERY DAY I WANT TO TALK TO HER. ONCE BOTH PARENTS ARE GONE YOUR LIKE A SHIP IN THE SEA WHOSE ANCHOR HAS BEEN CUT. DRIFTING ALL THE TIME. LOST WITHOUT MOM.

I MISS HER EVERY DAY. I HAVE SUCH HOLES IN MY DAYS,NIGHTS,SPECIAL EVENTS WITHOUT HER. IT IS SUCH A CHALLENGE...I GO NUTS TRYING TO FIND THAT SOMETHING TO TAKE MY MOMS SPACE,PLACE AND YOU KNOW WHAT I HAVE DETERMINED THAT THERE IS NOTHING..HOBBIES,READING,COOKING ALL THE THINGS ONE DOES. SO I DECIDED TO WRITE. A BOOK. MAYBE THAT WILL HELP THE HORRID FEELING THAT A LOSS SUCH AS THE LOVE OF MOM HAS GONE. HOPE IT HELPS. I DO NOT THINK IT CAN HURT.

I am a 55 year old HEALTHY woman. Diagnosed Dec. 23, 2008 with adenocarcinoma of vulva. I had partial radical vulvectomy on Jan. 12,2009, with sentinel node biopsy done( thankfully), cancer present in first node only, with 4 others clear. Doctor recommends radiation treatment also. I am recovering well, went home same day of surgery, and did not need many pain meds except for first couple days. I am handling this well, but I feel so alone. NO ONE knows what the vulva is, including all the women I know. I am ENRAGED by this. We are taught about our uterus, that it can have a baby and get a period, but no one, not even ob/gyn, ever told me anything about the outside plumbing! WHY? I really want to talk to someone that has or is going through this type of cancer.

I am a new member to this site and found it while searching for information on tonsil cancer. I was recently diagnosed with tonsil cancer. I am lucky if you can call any cancer lucky that it was found real early. I am just now meeting with the radiation doctor and chemotherapy doctor and waiting for the surgery to add a port and a feeding tube (just in case). It is hard to not be scared no matter how much trust I have in God it is always a possability for things to happen. I am doing my best to stay positive because from all i gather that is half the battle. Well I guess that is all I have for now.

I had the privilege of spending time with my mom, my 2 aunts, and my mothers neighbor a few weeks ago and I really should have wrote something about it before this, but as things go sometimes my focus of thoughts are not always real clear. I little chemical fog don't you know. Anyway, I got to here all these stories of the things they did as young women, and teenagers. How they learned to care for there children, and as the oldest of these children no wounder I am warped.
I found out that they took great joy in scaring the crap out of me when I was 2 & 3, of course they claimed that they did not know that I would be afraid. Sounds a little suspicious to me, don't you think? I also found out that why my mom and aunt Suzie were driving down the rode one day they went around a corner and whoosh the back door opened I went flying out. So much for seat belts. I also found out that I was drawer baby. That cracked me up. Stupid me asked isn't that what they did in the old days. My mom looked at me and with a straight face said, when you were born it was the old days. I think that she was telling me I was old.

As a survivor of cervical cancer & currently melanoma, I am learning to take life one day @ a time turning each negative into a positive. I REALLY am tired of living with the life long after effects of cancer treatments but know that I have alot to live for. My relationship with my HP, my 1st grand baby boy, my family & my Harley sportster!!

I have been searching to find "Long term" survivors but are only able to find some that are around 2 or 3 yrs later - that's great! But anyone ned years later than that?

I began my first chemo treatment last Wednesday. It's Monday and am feeling alright today. It really tires me out and I had no appetite for the first 4 days since chemo began. It's all I can do to get the recommended amount of water in me. I miss my coffee and Coke! All I'm eating now is cheese, yogurt, vegtables, Honey Nut Cheerios, skim milk and blueberry bagels. I'm not even considering any kind of meat or anything with fat in it. My first day of chemo was not bad, the second alright, but the third and fourth day were quite unpleasant. I felt like my stomach was full all the time. Water, a small amount at a time was all I could get down.

Has anyone been diagnosed and treated for Ewing Sarcoma?
If so where and by whom.

my head was a little cold last nite but glad that this is over. Tommorow is my second chemo- infusion hope it goes as well or better than the last. I am kinda shy about going out of the house with my bald head. but i guess this should be the last of my worries. I thank God for getting the first of everything over. Except radiation in 6 mo.'s but going through this so far gives me courage.