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NPC--fear and uncertainty with waiting and possibly needing treatment again

Hi All. It's my first time on this network. Was hoping to join with the news of NED, but oh well.  I was diagnosed last Oct 2014 with NPC stage 2. Went through treatments the rest of 2014. Had a recent PET scan showing that my head and neck was all clear of the original cancer.  However, the scan also showed abnormal activity in the liver, slightly also on hip socket and L5. The corresponding CT and ultrasound on liver couldn't locate anything.  Scheduled for another CT this week and a bone scan.

ejourneys's picture


I took my partner to the podiatrist on Friday. As we waited in the examination room for the doctor, she asked me to read to her from the "blue foot" poster, a drawing of a foot with markings in blue where the bones are labeled.

I stood up and craned my neck to read the label she wanted.


Ten foot tall and bullet proof....yeah right!

My first EVER blog, I guess it took something extreme to make me sit down and write it.

So it's about me right a 58 year very proud dad and grandad, although my grand children Billy nearly 5 and Evie 3 dont call me grandad they call me Ha Ha!...Billy christened me with that name when I used to chase him and hide and jump out and surprise him..HAHAaaa! Very Proud...


kipper1219's picture

I can and I will survive!

It's just a couple of days before Im to go to Chicago to get my second opinon.  I feel like my door was shut on me from my reg cancer doctor.  Im excitted, nervous at the same time. What if I hear that it's the same treatment.  I want to make my body last as long as I possibly can.  I just want to make sure I have all the right tools to do so. 




My husband has been on Votrient since January 2015 and have experienced some unusual side effects, such as, red finger tips that appear to have little spots of pus and sore feet, red big toe and painful to walk. Any suggestions?

Jean-Luc's picture

UPDATE: Results from the CAT scan

So yesterday we got the results of my CAT scan at my oncologist appointment (before the weekly chemo) and they are not as good as we hoped.

• the pleural effusion (liquid around the lung) is still there (we were hoping it resorbed)
• the cancerous spot in my left lung is still there as well, and not much smaller if any
• the cancerous mass on my ribs is still there as well, and not much smaller if any

Lung cancer. Stage 2.

I am a 63 year old female. My name is Judy.  I found out I have lung cancer stage 2 in my right lung. I have had tests and biopsy done. I am just waiting to see surgeon on Thursday to fing out what will have to be done. I am pretty sure part or all of my lung will have to be removed. That is if my tests prove that I am ok for the surgery.

I am new to this site and to blogging!

I am a cancer survivor, probably a miracle that it was found so it could be treated and so far no recurrence. I had surgery in July of 2012 for Ovarian Cancer.  When my doctor opened me up, he found I also had endometrial cancer.  Both were considered 1A  I believe is what they said.  I had a full hysterectomy but they did not recommend any further surgeries or chemo or radiation after this. 

I am writing thiw at work and need to come back after my lunch break.  I will continue later.

butchl's picture


I am a 66 yr old male diagnosed with EC October 2014.  I have done chemo and radiation and surgery.  My hiatis esophoectomy was do e on March 5 2015.  I was in hosp for 10 days and released wirh a large opening in my abdomen which was to be dressed 2 times a day.  My sister and wife were instructed how to do this.  We also had home health helping.  We had a complication on the third dressing change.  I started to have pain and  my wife and sister were concerned about changing the dressing but decided to change it at about 10 oclock that night.

ejourneys's picture

When A Hospital Changes Hands

My partner was going in for routine blood work, which we've had done for years at a collection station less than a mile from home. This time, when we walked in, a note tacked up on a partition told us to see the registration desk immediately.

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