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Shh! Be Wewy, wewy qwiet…

My partner has a saying: "When in doubt, overdo it." Over the past few years, she has slowly been backing away from that habit. As someone with MS, it's hard on her. As her caregiver, it's hard on me. As her caregiver and a cancer patient, it's become that much harder on me.

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On Circumstances

April 13 will mark three months that I've been on Xarelto. My GP tells me that I can stop taking the blood thinner at that time. Then, some months after that, we can do another follow-up ultrasound. It takes time for the clot to clear completely, she said.

I still feel some very minor discomfort around my jugular vein when I yawn. It feels like a mild version of the discomfort I had felt after my port had first been inserted. My scar from the port removal continues to heal and my surgical skin remains in place. I still have a bit of venous swelling in my right arm.

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I had my follow-up ultrasound on March 18 for my port-related blood clot. The upshot: My subclavian vein is still partially blocked, but it is well on its way to being fully open again.

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Meditations and Explorations

Insurance rep: Why did you pay [the hospital]?
Me: Well, when you're flat on your back in an ER triage bed with a blood clot that could kill you, and someone from the hospital is standing over you asking for money, that could be a bit of a motivator.

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If a Port Falls in the Forest, Is That a Data Point?

I will soon switch from taking 15 mg. of Xarelto twice/day to taking 20 mg. once/day. As I've written before, I am on blood thinner to treat the clot (deep vein thrombosis or DVT) caused by my chemo port.

Picking up the new pills kept me up that night, but only because I couldn't get this visual pun out of my head:

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One of the advantages of posing the same question to different doctors on my medical team is that I get to peek through their respective lenses. (My lens is that of a layperson, so I present my doctors' info as I best understand it. Any errors in interpretation are my own.)

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Six of One, and On the Third Hand...

Due to my port-associated blood clot, my medical oncology appointment was moved up from February 9 to January 22. I brought with me the documents I had downloaded from my hospital's patient portal, the CD of my ultrasound images, and the hospital's report to my GP. They had sent me a hardcopy of the report, which I then scanned into my computer.

My oncologist's assistant had already snagged the patient portal documents, but the ultrasound CD came in handy. He transferred those files to his laptop.

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New Normal Redux

In the days following my hospital discharge for a port-associated blood clot, I've added to my To Do list and have been checking off the tasks.

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That Was Quick (Go-Bag's Maiden Voyage)

Four days after I posted my entry on my ER Go-Bag, I had to use it. Or, as one of my nurses put it, "That's spooky."

On Friday, two days after I posted the entry, I spotted a bruise-like skin discoloration on my right side, level with my breasts. It was about the size of a quarter but it wasn't painful or tender. I figured I had inadvertently bumped into something and left it at that. Later on I noticed other skin discolorations on my torso, which looked more like stretch marks.

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Go Bag/Thoughts on a Commercial

Happy New Year, everyone!

1. Go Bag

Thanks to the need to reach a minimum purchase on a good sale to get free shipping last month, I ordered a decent-sized fanny pack. I have tasked that fanny pack with being my hospital emergency go-bag.


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