CSN Login
Members Online: 18

You are here


A difficult journey

My husband has been dealing with the effects of had Head and Neck Cancer for the past 8 years and I believe he is nearing the end of his journey. He spent one month in hospital over christmas and he's since deteriorated drastically and I'm struggling to cope. I've managed 8 years and it feels like I just can't cope any more. I am slowly watching him die and it's taking it's toll on my health and our immediate family; our lives have all been difficult since his first treatments.


I am finding that the decision-making that is sometimes involved and/or required in dealing with this cancer is very challenging.  Ideally, I want to have a physician I trust at least one hundred percent to make the decisions for me and not ask me to participate, just leave me alone and do the right thing for me.  I am tired and don't feel I have enough information to make important decisions.  And I don't have the information:  I am not a physician and can never have enough information to feel competent, confident.  And yet I know that it is right, ethically and legally- that I participate

Dealing with Cancer

EZLiving66's picture

My cancer journey

In August, at the age of 63, I was finally referred to a gynecologist after switching GPs.  I've never had an abnormal PAP but I just felt something was wrong. She did an endometrial biopsy and found uterine cancer.  She referred me to a gynecological oncologist who scheduled a total hysterectomy using the DiVinci robot for September 30th, 2015.  It turns out my Stage I, Grade 1 cancer turned into UPSC, Stage II, Grade 3.  I met with him and he told me I needed chemotherapy, but not radiation - no alternatives, no statistics, nothing.

Cherry6905's picture

I am my husbands caregiver


i am Cherry and I take care of my husband who has had head and neck cancer since dx in Nov 2014. He went through 44 rads in mask, chemo for 3 month he had a feeding tube for nine months

during this time he says he doesn't remember- I do, it's a miracle he's still here. He had a 9 hr bleed, vomited everyday. I use to sleep with my head on his shoulder to try to figure out why.

The Day That Changed Our Lives

It all started on July 4, 2016 in Boston, Massachusetts. It was are first weekend away together and he took me all over Boston from riding in the swan boats to going to Mike's Pastires in the North End for the first time. We have only been dating for two months. We watched the fireworks and at that moment I knew I was realy falling for this man. I had just gotten out of a really bad divorce this past January. For the first time, I really felt loved. Stephan made me feel so special, he was polite and a gentleman. I noticed he was having a hard time getting in the truck on our way home.

Folfox 5FU at Age 79

My wife is 79 and has just completed treatment 5 out of a possible 12 following succesful surgery removing bowel tumour. She has infusions over 2 days including anti-nausea, oral steroids and injection of 6mg Neumasta to stimulate neutrafil production. Previously very fit, we are active walkers, and so far she has been able to walk 3 miles by the end of each cycle.

Annie B's picture

7-Year Stage IV Breast Cancer Survivor, Thankful and Hoping to Encourage You!

I hope my story gives folks hope... I was diagnosed with stage IV breast cancer in 2009. After successful treatment at MD Anderson Cancer Center, coupled with a radical plant-based, mostly raw, diet and lifestyle change, I have been NED since the 5th month of my chemo (since the fall of 2009). I have writen song lyrics to pass on the hope that I held onto. I hope it blesses the reader. The song is titled "You Are Not the Captain," copyright 2014, and has been recorded by a gifted neo-soul artist in SC.

I remember the day you gave me the news,

tifforjack1's picture

My husband's journey

The son that just needs to vent and let it out through this tough time

How can I even start?.....well my dad just went to a regular colonoscopy and came out with shocking results....i still feel like I am in a dream like I should wake up by this bad dream or just feel numb especially when patient's come in with abdominal pain or headaches. I guess it started after his regular procedure...found a pollup in the colon area scheduled surgery removed it and was at hospital for recovery but before they closed him up upon surgery they found another pollup in the pancreas area. A few days later biopsied that and found out that was carcinogenic as well.


Subscribe to RSS - blogs