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Monday, July 7, 2014 - 4:39pm

Research study, clinical trial, writer/journalist request,focus group,etc

If you are a woman diagnosed with cancer after the age of 18, we need your help. We are conducting a study to understand how women with cancer stand up for themselves (self-advocate) in their cancer survivorship.

Sharing your opinions and experiences is valuable information that can help health professionals and other women with cancer. If you are interested in participating in this study and meet study requirements, you will be asked to complete a survey about your attitude and actions as a cancer survivor. The survey will take about an hour to complete, and you will receive a small compensation for your time. We can email the survye to you or, if you prefer, we can send a paper copy to you in the mail with a stamped and addressed envelope.

To be eligible to participate, you must:

     * be a woman over the age of 18
     * have been diagnosed with cancer after the age of 18
     * be fluent in English
     * live in the United States
     * have been diagnosed with a cancer other than basal cell carcinoma or
       cervical intraepithelial neoplasia I

This study is approved by the University of Pittsburgh Institutional Review Board. 

For more information, contact:
Teresa Hagan
Thursday, July 3, 2014 - 3:35pm

Research study, clinical trial, writer/journalist request,focus group,etc

Wednesday, July 2, 2014 - 3:30pm

We are conducting a study to explore how different health behaviors relate to one another in adults with a history of cancer. The study also seeks to improve our understanding of socio-demographic (i.e., sex, age, weight status, socioeconomic status), cancer-related (e.g., type, stage, time since diagnosis/treatment), and other factors related to health behaviors. 

You are eligible to participate in this study if you:
Are 18 years of age or older
Can read and write in English
 Have been told by a doctor or other health professional at some point that you have cancer (this could have been recently or years ago)
Have completed primary and systemic treatment for cancer
Are willing to complete an online questionnaire that will take approximately 20-30 minutes

This study has been approved by the University of Ottawa Ethics Review Board. The principal investigator is Dr. Jennifer Brunet, Assistant Professor, University of Ottawa, and the co-investigator is Dr. Kristina Karvinen, Assistant Professor, University of Nipissing. Research assistants are Nicolas Speranzini (BSc.) and Amanda Wurz (MSc.), University of Ottawa.

Please click the following link to learn more about the study: https://qualtricsus2.co1.qualtrics.com/SE/?SID=SV_5bf62LSgALDHR09.

For more information, contact:
Amanda Wurz
Thursday, June 19, 2014 - 7:45am

Event (e.g.conference, teleconference, fundraiser, etc.)

CancerCare, in collaboration with the American Cancer Society offers free workshops on a variety of cancer-related topics. For details and to register for a workshop, call 1-800-813-HOPE, or visit the CancerCare website at www.cancercare.org/connect

July 9 - Living with Gastrointestinal Stromal Tumors (GIST): Treatment Update
July 30 - Updates in the Treatment of HER2 Positive Breast Cancer
August 20 - Treatment of Estrogen Receptor (ER) Positive & Progesterone Receptor (PR) Positive Breast Cancer & Triple Negative Breast Cancer

For more information, contact:
Carolyn Messner, DSW, MSW
Wednesday, June 18, 2014 - 4:04pm

Program or Service (e.g. support group, financial assistance)

Wednesday, July 9, 2014 - 8:00pm
Ovarian Cancer Support Group via Toll-Free Telephone – July 9

Support Connection Inc. is a not-for-profit organization offering free and confidential support services to people affected by ovarian and breast cancer.

Once a month, Support Connection offers an ongoing free telephone support group for women living with ovarian cancer. Like all of our support groups, it is facilitated by a survivor, and is designed to provide an opportunity for women with a common diagnosis to share their concerns and support one another. It just so happens that this group takes place on the telephone. Participants in our group include women who live locally as well as women from across the country.

The next scheduled ovarian cancer telephone support group will take place on July 9. As with all Support Connection services, there is no cost to be a part of this group. Participants call into a toll-free number that we provide and are connected with the group. The group takes place on the second Wednesday of every month at *8:00 pm (*NY time.) If you or someone you know has or had ovarian cancer and would benefit from the chance to share and derive support from other women with the same diagnosis, call our office in advance at 914-962-6402, or toll-free at 800-532-4290, to register and receive instructions on how to participate in this telephone support group.

In addition to ongoing support groups and peer counseling, Support Connection also offers wellness programs; educational forums; resources and referrals; and a toll-free support hotline 800-532-4290. Based in Yorktown Heights, NY, and serving people throughout the country, Support Connection has provided counseling, support and educational services to thousands of women, their families and friends since opening their doors in 1996. To learn more about the free services and programs offered by Support Connection, visit us on the web at www.supportconnection.org.

For more information, contact:
Support Connection
Monday, June 16, 2014 - 11:31am

Research study, clinical trial, writer/journalist request,focus group,etc

Monday, June 9, 2014 - 6:15pm

If you're an unpaid caregiver who provides care to a loved one at least 3 hours every day and are 18 or older, you may be eligible to participate in a study conducted by researchers at the University of Maryland. 

The study explores participants’ caregiving experiences through 2 surveys and 3 writing exercises. Some people write about what happens to them or as a way to talk about difficult experiences. In recent years, there has been great interest in writing as a way to help people understand important experiences in their life.  Caregivers often put the needs of their loved ones ahead of their own and at the expense of their own wellbeing. Researchers aim to use the findings of this study to develop new ways to help caregivers.

The 2 surveys and 3 writing exercises will be spaced out so that you complete one per week for five weeks. It will take approximately 15-25 minutes of your time each week. You can complete the entire study online. This research is being conducted by Amy Fuhrmann, M.S. and Mary Ann Hoffman, Ph.D., professor and co-director of the counseling psychology program at the University of Maryland, College Park.  If you would like to participate in this research, please contact Amy Furhmann at fuhrmann@umd.edu or follow the link below. To participate, you must meet the eligibility requirements of the screening questionnaire.


 Thank you! 

Amy Fuhrmann, M.S.
Doctoral Candidate
Counseling Psychology
University of Maryland, College Park

Mary Ann Hoffman, Ph.D
Professor and Co-Director
Counseling Psychology
University of Maryland, College Park


For more information, contact:
Amy Fuhrmann
Saturday, May 31, 2014 - 7:10am

Research study, clinical trial, writer/journalist request,focus group,etc

 Are You A Prostate, Colorectal, or Breast Cancer Survivor?

Prostate, colorectal, or breast cancer survivors (1 day to 5 years after primary cancer treatment) whose cancer has not spread are needed for an online research study of physical and mental functioning.  You must be age 21 or older.  You will need Internet access with a connection speed faster than dial-up.  The study includes completing questionnaires about symptoms, function, health behaviors, and health service. The study will take approximately 60 to 90 minutes to complete. Your identity will remain confidential.  To find out if you are eligible for this study, please visit: https://www.surveymonkey.com/s/CH53NWK.

For more information, contact:
Alicia Ottati
(301) 295-9660
Saturday, May 31, 2014 - 7:00am

Opportunity to Get Involved (e.g. advocacy, volunteer)

Share your favorite recipes and gratitude with other CSN members! In keeping with the spirit of the holidays, here's an opportunity for CSN members (survivors, caregivers and staff) to share a favorite recipe along with what we are grateful for. Recipes do not have to relate to a holiday theme, just something you really like. Recipes can be entered, viewed and downloaded at - Recipe Project. Feel free to spread the word with your CSN friends via the discussion boards, chat, or CSN private messaging. Thank you for participating! Note: This project has been independently organized by a CSN member. It has not been funded or endorsed by the American Cancer Society.

For more information, contact:
CSN member -- jimwins
Friday, May 30, 2014 - 6:54pm

Research study, clinical trial, writer/journalist request,focus group,etc

Memorial Sloan-Kettering Cancer Center (MSKCC) is currently offering a study for survivors of breast cancer who are experiencing anxiety about the possibility of cancer recurrence.

Eligible participants include women who are more than 1 year out from active treatment for DCIS or stage I or II breast cancer with no history of recurrence or metastasis. To participate, you must have access to a telephone, a computer and the Internet, and you will need to come in to MSKCC in New York City, New York for one visit. 

This study will test a computer program designed to reduce fear of cancer recurrence among breast cancer survivors through 8 30-minute sessions completed over 4 weeks. While the first session will be completed with a staff member at MSKCC, the rest of the sessions can be completed in your own home. You will be asked to fill out questionnaires before, after, and 3 months following the intervention. This program is free of charge, and you will be offered a total of $25 over the study for your time. You may be asked to provide saliva samples before and after completing the program, but this is not required to participate.


For more information, contact:
Malwina Tuman / Corinne Sweeney
tumanm@mskcc.org / sweeneyc@mskcc.org
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