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Tuesday, May 19, 2015 - 1:00pm

Event (e.g.conference, teleconference, fundraiser, etc.)

CancerCare, in collaboration with the American Cancer Society offers free workshops on a variety of cancer-related topics. Unless otherwise noted, all workshops take place from 1:30- 2:30 pm Eastern Standard Time. For details and to register for a workshop, call 1-800-813-HOPE, or visit the CancerCare website at www.cancercare.org/connect

 


05/26 For Caregivers: Coping with a Loved One’s Metastatic Prostate Cancer

05/27 Treatment of Estrogen Receptor (ER) Positive & Progesterone Receptor (PR) Positive Breast Cancer & Triple Negative Breast Cancer Part II of Living with Breast Cancer

06/09 Managing the Side Effects of Immuno-Oncology in the Treatment of Lung Cancer Part II of Lung Cancer and Immuno-Oncology

06/10 Update on the Treatment of Pancreatic Cancer

06/11 Highlights from the 2015 American Society of Clinical Oncology (ASCO) Annual Meeting Part I of Your Guide to the Latest Cancer Research and Treatments (1:30 – 3:00 pm ET)

06/15 Treatment Update on Liver Cancer and Managing the Costs of Care

06/16 Highlights from the 2015 American Society of Clinical Oncology (ASCO) Annual Meeting Part II of Your Guide to the Latest Cancer Research and Treatments  (1:30 – 3:00 pm ET)

06/17 Understanding the Role of Immuno-Oncology in Treating Cancer

Part I of Immuno-Oncology: A Promising New Approach to Treating Cancer

06/18 New Perspectives in the Treatment of Renal Cell Cancer  

06/22 Gastric Cancer: Current Perspectives and Treatment Options

06/23 Managing the Side Effects of Immuno-Therapy

Part II of Immuno-Oncology: A Promising New Approach to Treating Cancer

06/24 Advances in the Treatment of Lung Cancer

07/14 For Health Care Professionals: Care Coordination for Older Men Living with Cancer  (1:30 – 2:45 pm ET)

 

For more information, contact:

Carolyn Messner

cmessner@cancercare.org

CancerCare

For more information, contact:
Carolyn Messner, DSW, MSW, OSW-C
1-800-813-4673
connect@cancercare.org
Monday, May 18, 2015 - 12:53pm

Event (e.g.conference, teleconference, fundraiser, etc.)

Saturday, June 6, 2015 - 12:00pm
A Celebration of Life-Cancer Survivor Day

The Mid-Atlantic Permanente Medical Group is hosting its second annual A Celebration of Life - Cancer Survivor Day event. Last year, the event was exclusively offered to our Kaiser Permanente patients with over 1,000 registrants! This year, we are opening up our registration to the general public, and all are welcome!

 

The event is free and features: 

  • Health Educational Workshops led by our Permanente providers, including Life as a Survivor, Alternative Medicine, Exercise During & After Treatment, Cancer & Sexuality, Nutrition Planning, Family & Emotional Care, and many more!
  • FREE Wellness activities such as yoga, meditation, art therapy, chair massage, and stretch & relax.
  • Beauty in Me exhibit: Nordstrom representatives and local cosmetologists share beauty tips for cancer survivors.
  • A Health Expo.
  • FREE transportation to the event from one of 3 Kaiser Permanente Medical Centers.
  • FREE onsite parking.
  • FREE event childcare.

Registration is required: http://cancersurvivorday.org/registration/register

For more information, contact:
Sarah Szollar
3018167160
cancersurvivorday@kp.org
Thursday, March 12, 2015 - 4:37pm

Research study, clinical trial, writer/journalist request,focus group,etc

If you are caring for someone you love who has cancer, you know it may be the most important role you’ve ever had…and one of the most challenging. The American Cancer Society and Memorial Sloan Kettering Cancer Center are studying a new, online program just for cancer caregivers. If you are a cancer caregiver and want to learn how to make the most of your caregiving experience and reduce the stress you may be feeling, this free, online program could be for you.

For more information, contact:
Nicole Teitelbaum
1.844.233.8958 (toll-free)
skicarestudy@mskcc.org
Thursday, March 12, 2015 - 1:04pm

Resource (e.g. book, article, Web site, etc.)

Hello,

I write a column called the Patient’s Corner in The ASCO Post, a publication of the American Society of Clinical Oncology, which is read by oncology physicians and other oncology professionals. The column is a first-person description of how people are affected by cancer. I’m looking for cancer survivors who are interested in being interviewed about their experience of having cancer. The interviews I conduct are done over the phone and take about 30 minutes.

If you are interested in being interviewed for the Patient’s Corner column or if you have questions regarding the column, please contact me at jcava15579@aol.com. Please include some brief information about your cancer, including your type of cancer.

Thank you so much for your consideration.

Best,

Jo Cavallo

For more information, contact:
Jo Cavallo
2124639288
jcava15579@aol.com
Wednesday, February 4, 2015 - 1:13pm

Research study, clinical trial, writer/journalist request,focus group,etc

If you were diagnosed with Stage III or IV ovarian cancer 8 or more years ago you may qualify for this study. This research project will specifically determine molecular features within tumors along with genetic, quality of life, and lifestyle features that predict for long-term survival for patients with Stages III and IV ovarian cancer. There is clearly something unique among patients who survive Stage III or IV ovarian cancer long term, and we believe that when we understand what this is, we can increase the number of long- and longer-term survivors.  If you are interested in this project and want to know more, please feel free to contact us. 

For more information, contact:
Giulia Fulci
617-643-5130
gfulci@partners.org
Wednesday, January 28, 2015 - 7:46pm

Research study, clinical trial, writer/journalist request,focus group,etc

Adelphi Values is a health outcomes research organization that works with pharmaceutical companies to assess the impact of health conditions and treatments on peoples’ lives.

We are studying the ways that whole brain radiation therapy can affect individuals with brain metastases from non-small cell lung cancer. We are interviewing survivors, as well as their caregivers. We are interested in the survivor's experience with whole brain radiation therapy and their caregiver's perspective. 

We do not need to see or interview anyone else.  The interview will be audio-recorded with your consent, and all information provided by you will be treated confidentially and made anonymous so that it is non-identifiable. The information collected from the interviews will not be passed on to any third parties.

We will only interview patients and caregivers who both agree to participate.  Patients and caregivers will be interviewed separately. Each interview will last approximately 60 minutes and will be conducted by an Adelphi Values trained interviewer. The interview will be audio-recorded with your consent and all information provided by you will be treated confidentially and made anonymous so that it is non-identifiable. The information collected from the interviews will not be passed on to any third parties.

This is not a medication-related study. No medication will be tested during this study. Please note that your participation in the interview will not affect any treatment or assistance that you currently receive or may receive in the future.

The interviews will be conducted at a time and location which is convenient for you. Your interview will be scheduled by the study staff.  Each person who participates in an interview will receive $100.

For more information, contact:
Kas Severson
617-720-0001
kas.severson@adelphivalues.com
Wednesday, January 28, 2015 - 6:41pm

Research study, clinical trial, writer/journalist request,focus group,etc

Penn State Hershey Cancer Institute and Penn State University are studying how journaling, and comments from others about their shared journal entries, affects persons with cancer while undergoing radiation therapy. Study participants share journal entries about their experience as well as read/comment on the shared entries of other participants.

We are looking for volunteers from CSN to help with the study who have had radiation therapy for cancer in the past (not currently). Your role would be to interact with study participants who are currently having radiation therapy. You must have received radiation therapy for cancer in the past, be over 18, speak English, and have internet accesss.

Your participation is strickly voluntary and confidential. 

Thank you for your consideration.

For more information, contact:
Madeline White
mkw5183@psu.edu
Monday, January 26, 2015 - 2:49pm

Research study, clinical trial, writer/journalist request,focus group,etc

This is a research study that seeks to understand how adults (18 years and older) who are dealing with chronic and/or life-threatening illness of traumatic injury may experience the feeling of longing.  Study participants will complete an online survey. Results of the study will be used to develop a nursing diagnosis which may help nurses work with patients and caregivers to develop a holistic plan of care. Nurses use nursing diagnoses to communicate with other nurses about how to care for patients and caregivers.

Click on this link or copy and paste it into your web browser for detailed information about the study: https://uweauclaire.qualtrics.com/SE/?SID=SV_3VsfYqvhIemJIIR.

Deadline to Participate: July 1, 2015

This Study has been approved by the University of Wisconsin-Eau Claire Institutional Review Board for the protection of Human Subjects. Please feel free to also contact the researcher with any questions. 

For more information, contact:
Shelley-Rae Pehler
715-836-5014
pehlers@uwec.edu
Thursday, January 15, 2015 - 2:09pm

Research study, clinical trial, writer/journalist request,focus group,etc

Memorial Sloan Kettering Cancer Center (MSK) is currently offering a study for breast cancer survivors who are feeling "stuck" or distress related to their cancer experience.

Eligible participants include women who are at least 3 months post-treatment (may be on hormone treatment) for DCIS or stage I, II, or III breast cancer with no history of recurrence or metastasis. To participate, you must be at least 18 years old and have access to a telephone, a computer, and the Internet. 

In this study, we are offering groups conducted virtually using a telephone and computer to help with the distress that breast cancer survivors commonly experience after completing treatment.  As the groups will be held virtually, all activities for this study can be completed at your home.  Participation in this study will include completion of 8 online group modules over a period of 8 weeks (about 1.5 hours for each module) as well as completion of questionnaires before, during, after, and 3 months following the intervention.  You will participate in either a group designed to provide a forum for discussion about the commonalities of the breast cancer experience OR a group that seeks to enhance a sense of meaning, purpose, and identity. You will not be able to choose which group you receive.  This program is free of charge, and you will be offered a total of $25 over the study for your time and effort.

For more information, contact:
Elizabeth Slivjak
646-888-0134
slivjake@mskcc.org
Thursday, January 15, 2015 - 12:58pm

Research study, clinical trial, writer/journalist request,focus group,etc

Thursday, January 15, 2015 - 4:45pm

Memorial Sloan Kettering Cancer Center (MSK) is currently offering a study for breast cancer survivors who are experiencing anxiety about the possibility of cancer recurrence.

Eligible participants include women who are at least 3 months post-treatment (may be on hormone treatment) for DCIS or stage I, II, or III breast cancer with no history of recurrence or metastasis. To participate, you must be at least 18 years old, have access to a computer and the Internet, and you will be asked to come in to MSK in New York, NY for one visit. 

This study will test a computer program designed to reduce fear of cancer recurrence among breast cancer survivors through eight 30-minute sessions completed over four weeks. While the first session will be completed with a staff member at MSK, the rest of the sessions can be completed in your own home. You will be asked to fill out questionnaires before, after, and 3 months following the intervention. This program is free of charge, and you will be offered a total of $50 over the study for your time and effort. You may be asked to provide saliva samples before and after completing the program, but this is not required to participate.

For more information, contact:
Elizabeth Slivjak
646-888-0134
slivjake@mskcc.org
Sunday, December 7, 2014 - 9:32pm

Research study, clinical trial, writer/journalist request,focus group,etc

Sunday, December 7, 2014 - 7:30pm

Our research team at Tulane University is conducting an online survey of individuals with cancer histories. We are particularly interested in individuals with a history of colorectal cancer. Our goal is to help patients make informed decisions about their care that can improve quality of life.

This survey takes about 10 minutes and asks about people’s healthcare preferences, demographics, and health history. It also presents some recent research findings that may be relevant to patients. We hope that the study will build knowledge that can help individuals with cancer to be more satisfied with their care.

www.tulanesurvey.com

 

For more information, contact:
Tessa Barkan
tbarkan@tulane.edu
Thursday, November 20, 2014 - 6:08pm

Research study, clinical trial, writer/journalist request,focus group,etc

Women, how have you stood up for yourself (self-advocated) since being diagnosed with cancer? We are conducting a study to understand how women survivors self-advocate throughout their cancer survivorship. 

We hope you will consider participating in the study if you meet the following requirements:

  • Are a woman over the age of 18
  • Were diagnosed with cancer (other than basal cell or squamous cell carcinoma or cervical intraepithelial neoplasia I) after the age of 18
  • Are fluent in English
  • Live in the United States

The study consists of taking a survey that will take about 35-45 minutes to complete. We can email it to you or send a paper copy to you in the mail with a stamped and addressed envelope. You will receive a $10 Amazon gift card for your time.

The University of Pittsburgh Institutional Review Board approved this study.

For more information, contact:
Teresa Hagan
selfadvocacystudy@gmail.com
Monday, October 13, 2014 - 4:03pm

Research study, clinical trial, writer/journalist request,focus group,etc

Eun-Ok Im, PhD, MPH, RN, CNS, FAAN and her colleagues at the University of Pennsylvania are conducting a research study to test the effectiveness of an online support group for Asian American women living with breast cancer. 

You may be eligible to participate in this research study if you are a Asian American woman aged 21 years and older who has had a breast cancer diagnosis in the past 5 years; can read and write English, Mandarin Chinese, Korean or Japanese; have access to the Internet; and identify their sub-ethnicity as Chinese, Korean, or Japanese. Participation is completely voluntary. 

Participants will receive a gift certificate of $50 for participating in the research study. 

 

For more information, contact:
Yaelim Lee
(215) 407-3004
icsg-aa@nursing.upenn.edu
Tuesday, July 29, 2014 - 8:06pm

Research study, clinical trial, writer/journalist request,focus group,etc

Researchers at the University of California, San Francisco (UCSF) are conducting a study of women with a BRCA1 or BRCA2 mutation to understand health and well-being of women who decide to have surgery to remove their ovaries and fallopian tubes compared with women who decide not to have this surgery.  The study is overseen by researchers at UCSF Helen Diller Family Comprehensive Cancer Center and in the Department of Obstetrics, Gynecology and Reproductive Sciences.

Participants in the study will:

·     Complete questionnaires about their health
·     Have their blood drawn for cholesterol and diabetes screening
·     Receive a bone density scan to measure fracture risk
·     Have an ultrasound to measure risk for heart disease
·     Receive up to $475 for study participation
·     Travel, at their own expense, to San Francisco once a year for 3 years in a row for a 3 hour
      research study visit
·     Receive results of blood tests, bone density scan, and ultrasound approximately 2 weeks
      after the study visit

This study will help us to better understand how removing the ovaries and fallopian tubes may impact heart health, the risk of bone fracture, menopausal symptoms, and sexual function. Our goal is to use the information from this study to help women with BRCA1 or BRCA2 improve their long-term health and well-being.

You are eligible to participate if:

·     You are a woman between the ages of 35 and 50 years old
·     You have a BRCA1 or BRCA2 mutation, or have a variant suspected deleterious mutation
·     You have not had both of your ovaries removed
·     You are able to travel, at your own personal expense, to San Francisco once a year for 3 years
      in a row for the research study visits

Study participants have the opportunity to contribute information that will help guide women with BRCA1 or BRCA2 mutations in deciding if they should have surgery to remove their ovaries and fallopian tubes. 

Thank you!

For more information, contact:
Lisa Abinanti
415-297-3114
Lisa.Abinanti@ucsf.edu
Thursday, July 3, 2014 - 3:35pm

Research study, clinical trial, writer/journalist request,focus group,etc

We are conducting a study to explore how different health behaviors relate to one another in adults with a history of cancer. The study also seeks to improve our understanding of socio-demographic (i.e., sex, age, weight status, socioeconomic status), cancer-related (e.g., type, stage, time since diagnosis/treatment), and other factors related to health behaviors. 

You are eligible to participate in this study if you:
Are 18 years of age or older
Can read and write in English
 Have been told by a doctor or other health professional at some point that you have cancer (this could have been recently or years ago)
Have completed primary and systemic treatment for cancer
Are willing to complete an online questionnaire that will take approximately 20-30 minutes

This study has been approved by the University of Ottawa Ethics Review Board. The principal investigator is Dr. Jennifer Brunet, Assistant Professor, University of Ottawa, and the co-investigator is Dr. Kristina Karvinen, Assistant Professor, University of Nipissing. Research assistants are Nicolas Speranzini (BSc.) and Amanda Wurz (MSc.), University of Ottawa.

Please click the following link to learn more about the study: https://qualtricsus2.co1.qualtrics.com/SE/?SID=SV_5bf62LSgALDHR09.

For more information, contact:
Amanda Wurz
ajwurz@ucalgary.ca
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