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Wednesday, June 24, 2015 - 3:16pm

Research study, clinical trial, writer/journalist request,focus group,etc

Wednesday, June 24, 2015 - 7:15pm

If you are currently caring for someone with cancer, you know it may be one of the most important and challenging roles you've ever had.

The American Cancer Society and Memorial Sloan Kettering Cancer Center are studying a new online program for cancer caregivers. The program is designed to help caregivers find a sense of meaning, purpose, and identity in their role as a caregiver.  If you are a cancer caregiver and are looking to reduce the stress you may be feeling, this free online program could be for you. 

Participation in the study:

  • Is voluntary, private, and confidential;
  • Includes no cost for any of the services involved, which are provided free of charge;
  • Includes the completion of questionnaires and assessments to gather information about your experience as an informal caregiver; and
  • May include watching five separate webcasts delivered online, which can be completed at a time that is convenient for you. You will be asked to post written responses electronically to questions that will help you think about personal examples of each of the topics discussed.

For more information, you can click on this link or copy and paste it into your web browser: https://www.mskcc.org/cancer-care/clinical-trials/14-208?utm_campaign=june_2015&utm_content=june24_A&utm_medium=social&utm_source=mb_fb

 

If you are interested in hearing more about the study or would like to see if you are eligible, please do not hesitate to contact us.

 

For more information, contact:
Nicole Teitelbaum
844-233-8958
skicarestudy@mskcc.org
Tuesday, June 23, 2015 - 4:16pm

Research study, clinical trial, writer/journalist request,focus group,etc

We are conducting a study to explore how different health behaviors relate to one another in adults with a history of cancer. The study also seeks to improve our understanding of socio-demographic (i.e., sex, age, weight status, socioeconomic status), cancer-related (e.g., type, stage, time since diagnosis/treatment), and other factors related to health behaviors. 

You are eligible to participate in this study if you:
Are 18 years of age or older
Can read and write in English
 Have been told by a doctor or other health professional at some point that you have cancer (this could have been recently or years ago)
Have completed primary and systemic treatment for cancer
Are willing to complete an online questionnaire that will take approximately 20-30 minutes

This study has been approved by the University of Ottawa Ethics Review Board. The principal investigator is Dr. Jennifer Brunet, Assistant Professor, University of Ottawa, and the co-investigator is Dr. Kristina Karvinen, Assistant Professor, University of Nipissing. Research assistants are Nicolas Speranzini (BSc.) and Amanda Wurz (MSc.), University of Ottawa.

Please click the following link to learn more about the study: https://qualtricsus2.co1.qualtrics.com/SE/?SID=SV_5bf62LSgALDHR09.

For more information, contact:
Amanda Wurz
ajwurz@ucalgary.ca
Tuesday, June 16, 2015 - 2:55pm

Research study, clinical trial, writer/journalist request,focus group,etc

The University of Louisville is conducting a study of ongoing physical and psychological needs cancer survivors often have following completion of cancer treatment. These needs may or many not be fully addressed. Participants in the study will be asked to complete a single survey which will take approximately 30 minutes to complete and is totally anonymous. Anyone who is over the age of 21, living in the United States, who has completed initial treatment for any form of cancer is eligible to participate in this study.

Survivors are invited to visit our Facebook page, Psychosocial Cancer Survivor Research, at https://www.facebook.com/psychosocialcancersurvivorresearch?_rdr. To proceed to the survey, please click the following link, https://redcap.louisville.edu/redcap/surveys/?s=sPJtfFIikT.

For more information, contact:
Joyce Johnson
219-863-7733
joyce.johnson@louisville.edu
Friday, June 12, 2015 - 11:45am

Event (e.g.conference, teleconference, fundraiser, etc.)

CancerCare, in collaboration with the American Cancer Society offers free workshops on a variety of cancer-related topics. Unless otherwise noted, all workshops take place from 1:30- 2:30 pm Eastern Standard Time unless noted otherwise. 

 

 

7/14    For Health Care Professionals: Care Coordination for Older Men Living with Cancer  (1:30 – 2:45 pm ET)

 

For more information, contact:
Carolyn Messner, DSW, MSW, OSW-C
1-800-813-4673
cmessner@cancercare.org
Friday, June 12, 2015 - 11:18am

Research study, clinical trial, writer/journalist request,focus group,etc

My name is Dr. Erin Hill and I am an Assistant Professor of Psychology at West Chester University of Pennsylvania. I am currently conducting research focused on the experiences of women with ovarian cancer and their loved ones. Attached to this post is a link to a survey that I am inviting women with an ovarian cancer experience (currently experiencing or having had experienced it) as well as loved ones (currently supporting or having supported a loved one with ovarian cancer) in their immediate social circle (e.g., husband, partner, parent, daughter/son) to participate in. The questionnaire should take approximately 20 minutes to complete and participants must be aged 18 years or older to participate. Responses will be held strictly confidential and only viewed by my research team. Upon completion, participants will be prompted to enter their email to be entered into a drawing to win a $50 Amazon gift-card.

https://wcupa.co1.qualtrics.com/SE/?SID=SV_29vyf2FO973Zazb

Thanks for your time, support, and participation!

For more information, contact:
Erin Hill
ehill@wcupa.edu
Thursday, June 11, 2015 - 6:13pm

Research study, clinical trial, writer/journalist request,focus group,etc

Please help us better understand what cancer patients and survivors experience when deciding to disclose their diagnosis to family members. The purpose of this research study is to examine how those diagnosed with cancer tell family members and what their thought process was when contemplating the disclosure. 

You are eligible to participate if:

  • You are at least 18 years old
  • You have been diagnosed with cancer at some point and told an immediate family member (NOT your spouse) about it

Approximately 300 people will participate in this study. If you choose to participate, you will be asked to answer questions about your thoughts and experiences disclosing your diagnosis to your family in an online survey which will take approximately 15-20 minutes to complete. Your participation is voluntary.  

To access the survey, please click here: http://utexascomms.qualtrics.com/SE/?SID=SV_4P0mPcee3kRVhu5. Participants will be entered into a drawing to wind a $25 gift card to restaurant.com.

For more information, contact:
Erin Nelson
erin.nelson@utexas.edu
Tuesday, June 9, 2015 - 12:08pm

Research study, clinical trial, writer/journalist request,focus group,etc

The Icahn School of Medicine at Mount Sinai (ISMMS) is conducting a research survey to understand how individuals who have been diagnosed with cancer and who have experienced childhood sexual abuse experience cancer treatment. Our goal is to use the results of this survey to help improve the quality and sensitivity of cancer care delivered to men and women who have experienced childhood sexual abuse. 

We hope you will consider participating in the study if you meet the following requirements:

* Are 21 years of age or older

* Have been diagnosed with cancer after age 21

* Have experienced childhood sexual abuse before the age 13

* Can read and write in English

* Are willing to complete an online survey that will take approximately 25-35 minutes

* Have not previously participated in this survey

 

Participation is completely voluntary. The survey will ask questions about:

*Your background (demographics, cancer history, history of trauma/abuse including childhood sexual abuse)

*Your thoughts and feelings

*Your experiences of cancer treatment.

 

The survey will be anonymous. You will receive a $3.00 Amazon E-gift card for your time and participation if you choose to provide us with an email address.

We know that these topics can be difficult to discuss, but through your participation, you can help us take a first step towards improving the sensitivity of cancer care delivery to individuals who have experienced childhood sexual abuse.

The study has been approved as exempt by the Institutional Review Board (IRB) of ISMMS.

If you are interested in participating, please click on this link to read our consent document, confirm your eligibility, and begin the survey:  https://www.psychdata.com/s.asp?SID=165462

Thank you for your consideration! 

For more information, contact:
Julie Schnur
CTR@mssm.edu
Thursday, June 4, 2015 - 9:15pm

Research study, clinical trial, writer/journalist request,focus group,etc

Chemotherapy is really rough. If you feel like chemotherapy is making it harder for you to think or remember things, then we would love to have you be part of our study. At the University of Baltimore, we are trying to figure out how to help women who face confusion, difficulty concentrating, or difficulty remembering things during cancer treatment.

We have found some apps for your phone that we think might help you manage your daily life while you're in chemotherapy, or just after chemotherapy. If you become part of our study, we'll ask you to download two apps, and then tell us about your experiences with using them for two weeks.

The apps will be yours to keep, if you like them. And based on your feedback, we hope to develop a new app that will be even better for helping women manage their lives while facing chemotherapy.

To be eligible for this study you must be:

  • Currently undergoing chemotherapy for breast cancer, or have completed chemotherapy within the last 6 months.
  • Currently experiencing memory or thinking problems since starting chemotherapy, such as confusion, difficulty concentrating, or short-term memory loss.
  • A current smart phone owner and user
  • Between 18 and 74 years old

You will be paid throughout the study for your time. The total amount after finishing the study will be $250. 

If you think you might like to be part of this study, or if you would like more information, please visit the following link: Research Study Information and Sign Up Form

For more information, contact:
Caitlin Rinn
caitlin.rinn@ubalt.edu
Friday, May 29, 2015 - 8:06pm

Research study, clinical trial, writer/journalist request,focus group,etc

Researchers at the University of California, San Francisco (UCSF) are conducting a study of women with a BRCA1 or BRCA2 mutation to understand health and well-being of women who decide to have surgery to remove their ovaries and fallopian tubes compared with women who decide not to have this surgery.  The study is overseen by researchers at UCSF Helen Diller Family Comprehensive Cancer Center and in the Department of Obstetrics, Gynecology and Reproductive Sciences.

Participants in the study will:

·     Complete questionnaires about their health
·     Have their blood drawn for cholesterol and diabetes screening
·     Receive a bone density scan to measure fracture risk
·     Have an ultrasound to measure risk for heart disease
·     Receive up to $475 for study participation
·     Travel, at their own expense, to San Francisco once a year for 3 years in a row for a 3 hour
      research study visit
·     Receive results of blood tests, bone density scan, and ultrasound approximately 2 weeks
      after the study visit

This study will help us to better understand how removing the ovaries and fallopian tubes may impact heart health, the risk of bone fracture, menopausal symptoms, and sexual function. Our goal is to use the information from this study to help women with BRCA1 or BRCA2 improve their long-term health and well-being.

You are eligible to participate if:

·     You are a woman between the ages of 35 and 50 years old
·     You have a BRCA1 or BRCA2 mutation, or have a variant suspected deleterious mutation
·     You have not had both of your ovaries removed
·     You are able to travel, at your own personal expense, to San Francisco once a year for 3 years
      in a row for the research study visits

Study participants have the opportunity to contribute information that will help guide women with BRCA1 or BRCA2 mutations in deciding if they should have surgery to remove their ovaries and fallopian tubes. 

Thank you!

For more information, contact:
Lisa Abinanti
415-297-3114
Lisa.Abinanti@ucsf.edu
Thursday, May 28, 2015 - 7:46pm

Research study, clinical trial, writer/journalist request,focus group,etc

Adelphi Values is a health outcomes research organization that works with pharmaceutical companies to assess the impact of health conditions and treatments on peoples’ lives.

We are studying the ways that whole brain radiation therapy can affect individuals with brain metastases from non-small cell lung cancer. We are interviewing survivors, as well as their caregivers. We are interested in the survivor's experience with whole brain radiation therapy and their caregiver's perspective. 

We do not need to see or interview anyone else.  The interview will be audio-recorded with your consent, and all information provided by you will be treated confidentially and made anonymous so that it is non-identifiable. The information collected from the interviews will not be passed on to any third parties.

We will only interview patients and caregivers who both agree to participate.  Patients and caregivers will be interviewed separately. Each interview will last approximately 60 minutes and will be conducted by an Adelphi Values trained interviewer. The interview will be audio-recorded with your consent and all information provided by you will be treated confidentially and made anonymous so that it is non-identifiable. The information collected from the interviews will not be passed on to any third parties.

This is not a medication-related study. No medication will be tested during this study. Please note that your participation in the interview will not affect any treatment or assistance that you currently receive or may receive in the future.

The interviews will be conducted at a time and location which is convenient for you. Your interview will be scheduled by the study staff.  Each person who participates in an interview will receive $100.

For more information, contact:
Kas Severson
617-720-0001
kas.severson@adelphivalues.com
Thursday, May 28, 2015 - 6:41pm

Research study, clinical trial, writer/journalist request,focus group,etc

Penn State Hershey Cancer Institute and Penn State University are studying how journaling, and comments from others about their shared journal entries, affects persons with cancer while undergoing radiation therapy. Study participants share journal entries about their experience as well as read/comment on the shared entries of other participants.

We are looking for volunteers from CSN to help with the study who have had radiation therapy for cancer in the past (not currently). Your role would be to interact with study participants who are currently having radiation therapy. You must have received radiation therapy for cancer in the past, be over 18, speak English, and have internet accesss.

Your participation is strickly voluntary and confidential. 

Thank you for your consideration.

For more information, contact:
Madeline White
mkw5183@psu.edu
Tuesday, May 26, 2015 - 3:54pm

Research study, clinical trial, writer/journalist request,focus group,etc

Texas State University

Researchers at Texas State University in San Marcos, Texas are conducting a study on the relationship between nutrition and physical activity and brain function in breast cancer survivors.

We are looking for two groups of women (30-70 years of age), women who have had a breast cancer diagnosis and have completed treatment (chemotherapy and/or radiation) within 2 years and women without a previous cancer diagnosis, 

Study sessions will take place at Texas State University and include residents of the surrounding areas (Austin, Buda, Kyle, San Marcos, San Antonio). Participants will complete two, 1-hr testing visits at the Texas State University. 

Tests will include:

  • Height, weight, and body composition
  • Computer-based cognition tasks
  • Questionnaires
  • Wearing an activity monitor for one week
  • Giving a small amount of blood

We anticipate that your participation in this project will contribute to the under­standing of the relationship between lifestyle factors and brain function in breast cancer survivors.

Parking will be provided for all visits, and participants will be paid for completing each testing appointment.

To receive more information about our study, and to see if you qualify, please contact Dr. Krystle Zuniga.

This study has been approved by the Texas State University Institutional Review Board.  

For more information, contact:
Krystle Zuniga
512-245-3786
k_z17@txstate.edu
Friday, May 15, 2015 - 2:09pm

Research study, clinical trial, writer/journalist request,focus group,etc

Memorial Sloan Kettering Cancer Center (MSK) is currently offering a study for breast cancer survivors who are feeling "stuck" or distress related to their cancer experience.

Eligible participants include women who are at least 3 months post-treatment (may be on hormone treatment) for DCIS or stage I, II, or III breast cancer with no history of recurrence or metastasis. To participate, you must be at least 18 years old and have access to a telephone, a computer, and the Internet. 

In this study, we are offering groups conducted virtually using a telephone and computer to help with the distress that breast cancer survivors commonly experience after completing treatment.  As the groups will be held virtually, all activities for this study can be completed at your home.  Participation in this study will include completion of 8 online group modules over a period of 8 weeks (about 1.5 hours for each module) as well as completion of questionnaires before, during, after, and 3 months following the intervention.  You will participate in either a group designed to provide a forum for discussion about the commonalities of the breast cancer experience OR a group that seeks to enhance a sense of meaning, purpose, and identity. You will not be able to choose which group you receive.  This program is free of charge, and you will be offered a total of $25 over the study for your time and effort.

For more information, contact:
Elizabeth Slivjak
646-888-0134
slivjake@mskcc.org
Friday, May 15, 2015 - 12:58pm

Research study, clinical trial, writer/journalist request,focus group,etc

Thursday, January 15, 2015 - 4:45pm

Memorial Sloan Kettering Cancer Center (MSK) is currently offering a study for breast cancer survivors who are experiencing anxiety about the possibility of cancer recurrence.

Eligible participants include women who are at least 3 months post-treatment (may be on hormone treatment) for DCIS or stage I, II, or III breast cancer with no history of recurrence or metastasis. To participate, you must be at least 18 years old, have access to a computer and the Internet, and you will be asked to come in to MSK in New York, NY for one visit. 

This study will test a computer program designed to reduce fear of cancer recurrence among breast cancer survivors through eight 30-minute sessions completed over four weeks. While the first session will be completed with a staff member at MSK, the rest of the sessions can be completed in your own home. You will be asked to fill out questionnaires before, after, and 3 months following the intervention. This program is free of charge, and you will be offered a total of $50 over the study for your time and effort. You may be asked to provide saliva samples before and after completing the program, but this is not required to participate.

For more information, contact:
Elizabeth Slivjak
646-888-0134
slivjake@mskcc.org
Wednesday, May 13, 2015 - 4:03pm

Research study, clinical trial, writer/journalist request,focus group,etc

Eun-Ok Im, PhD, MPH, RN, CNS, FAAN and her colleagues at the University of Pennsylvania are conducting a research study to test the effectiveness of an online support group for Asian American women living with breast cancer. 

You may be eligible to participate in this research study if you are a Asian American woman aged 21 years and older who has had a breast cancer diagnosis in the past 5 years; can read and write English, Mandarin Chinese, Korean or Japanese; have access to the Internet; and identify their sub-ethnicity as Chinese, Korean, or Japanese. Participation is completely voluntary. 

Participants will receive a gift certificate of $50 for participating in the research study. 

 

For more information, contact:
Yaelim Lee
(215) 407-3004
icsg-aa@nursing.upenn.edu
Monday, May 4, 2015 - 1:13pm

Research study, clinical trial, writer/journalist request,focus group,etc

If you were diagnosed with Stage III or IV ovarian cancer 8 or more years ago you may qualify for this study. This research project will specifically determine molecular features within tumors along with genetic, quality of life, and lifestyle features that predict for long-term survival for patients with Stages III and IV ovarian cancer. There is clearly something unique among patients who survive Stage III or IV ovarian cancer long term, and we believe that when we understand what this is, we can increase the number of long- and longer-term survivors.  If you are interested in this project and want to know more, please feel free to contact us. 

For more information, contact:
Giulia Fulci
617-643-5130
gfulci@partners.org
Friday, May 1, 2015 - 9:28pm

Research study, clinical trial, writer/journalist request,focus group,etc

Our research team at Tulane University is conducting an online survey of individuals with cancer histories. We are particularly interested in individuals with a history of breast cancer.

If you have about 10 minutes, would you please fill out our survey by following the link below?

www.tulanesurvey.com

The survey takes about 10 minutes and asks about people’s healthcare preferences, demographics, and health history. It also presents some recent research findings that may be relevant to patients. We hope that the study will build knowledge that can help individuals with cancer to be more satisfied with their care.

For more information, contact:
Michael Hoerger
504-314-7545
mhoerger@tulane.edu
Thursday, April 30, 2015 - 12:36pm

Research study, clinical trial, writer/journalist request,focus group,etc

Thursday, April 30, 2015 - 4:15pm
Center for Advanced Medicine & Research

We are recruiting patients with Chronic Myeloid Leukemia, (CML). Your participation in the study may benefit current and future CML patients.

You will be compensated for your time, effort and travel.  Please contact the Center for Advanced Medicine & Research for additional information.  

For more information, contact:
Shelly Ketsenburg
636-486-0866
shelly@camrusa.com
Thursday, March 12, 2015 - 4:37pm

Research study, clinical trial, writer/journalist request,focus group,etc

If you are caring for someone you love who has cancer, you know it may be the most important role you’ve ever had…and one of the most challenging. The American Cancer Society and Memorial Sloan Kettering Cancer Center are studying a new, online program just for cancer caregivers. If you are a cancer caregiver and want to learn how to make the most of your caregiving experience and reduce the stress you may be feeling, this free, online program could be for you.

For more information, contact:
Nicole Teitelbaum
1.844.233.8958 (toll-free)
skicarestudy@mskcc.org
Thursday, March 12, 2015 - 1:04pm

Resource (e.g. book, article, Web site, etc.)

Hello,

I write a column called the Patient’s Corner in The ASCO Post, a publication of the American Society of Clinical Oncology, which is read by oncology physicians and other oncology professionals. The column is a first-person description of how people are affected by cancer. I’m looking for cancer survivors who are interested in being interviewed about their experience of having cancer. The interviews I conduct are done over the phone and take about 30 minutes.

If you are interested in being interviewed for the Patient’s Corner column or if you have questions regarding the column, please contact me at jcava15579@aol.com. Please include some brief information about your cancer, including your type of cancer.

Thank you so much for your consideration.

Best,

Jo Cavallo

For more information, contact:
Jo Cavallo
2124639288
jcava15579@aol.com
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